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By (user no longer on site)
over a year ago
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My husband suffers chronic illness, all friends who know him are great. Sadly my family have no understanding of his condition and give him grief (mother) saying he could be doing alot more. He doesnt stop and works 40hrs. He can barely walk in through the front door after his shift. Hes getting worse too but is a survivor ( and stuborn) x |
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I also have a chronic illness, and yes find that some don’t understand what it is all about, but i try and lead a normal life, Even on the days I struggle. Just find it odd that some will avoid you like the plague when they find out, i mean i dont think im that bad looking and things still work the same, hope your husband will keep on fighting and being stubborn |
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There r some nasty ppl about and some on here, i think its a case of fuck u im alright jack, and then they or a partner becomes ill for what ever reason then they want the sympathy and ppl to be all over them, fuck u its to late.
Now both u guys above have asked for nothing just understanding and maybe a little loving, which cost nothing, its an old saying " Bad things happen to nice ppl", as shit as that sounds it is true, |
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Very true words them, and yes i dont ask for sympathy from no one, as this is the cards have delt for me, jst hope i can getvthe double transplant and try and be back to a 100% soon,
What i find abit brutal is when they find out i have a chronic illness or ask about how i got a scare and i explain they seem to run a mile, as i said i still have all the right bits in working order |
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"My husband suffers chronic illness, all friends who know him are great. Sadly my family have no understanding of his condition and give him grief (mother) saying he could be doing alot more. He doesnt stop and works 40hrs. He can barely walk in through the front door after his shift. Hes getting worse too but is a survivor ( and stuborn) x "
FairPlay to him for still working as many people would just go on benefits, proves your man is a real mans man and will keep pushing his body to the limit. I hate the fact that people who have no idea about there lives comment so much and tell others what they should or shouldn’t do, we’ve all had ups and downs but if your living with an illness unless it’s physical people are so judgemental |
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By (user no longer on site)
over a year ago
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Yep, I have a chronic illness & for almost 5 years had a colostomy bag, I wasn't ashamed of it but I liked to have choice about who I told & when. That choice was taken away by a nasty Fabster & it was broadcast to everyone we knew, that led to some people feeling 'uncomfortable' about getting intimate with me. I soon found out who my true friends were & last year said goodbye to the bag, but not the illness. Fab isn't always as tolerant a place as you'd expect X |
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By *ac711Man
over a year ago
south Wales |
I suffered a stroke 8years ago and just diagnosed with prostate cancer, I have great friends in other groups who understand,
But on Fab I find it hard to meet anyone who would meet a disabled person. My apologies if this doesn't fit this forum topic |
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"My husband suffers chronic illness, all friends who know him are great. Sadly my family have no understanding of his condition and give him grief (mother) saying he could be doing alot more. He doesnt stop and works 40hrs. He can barely walk in through the front door after his shift. Hes getting worse too but is a survivor ( and stuborn) x
FairPlay to him for still working as many people would just go on benefits, proves your man is a real mans man and will keep pushing his body to the limit. I hate the fact that people who have no idea about there lives comment so much and tell others what they should or shouldn’t do, we’ve all had ups and downs but if your living with an illness unless it’s physical people are so judgemental "
I have renal failure so running to hospital 4 times a week, and feeling rubbish most of the time after between that and working i can feel down on energy but still have needs as to say.
I only tell people i think should know incase i cant make it or to save on the questions at a meet, but hope you can carry on as well as you can with life and its great news about getting rid of the bag |
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"I suffered a stroke 8years ago and just diagnosed with prostate cancer, I have great friends in other groups who understand,
But on Fab I find it hard to meet anyone who would meet a disabled person. My apologies if this doesn't fit this forum topic "
Great you have people around you who understand and support you keep your chin up and hope you can beat the cancer |
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By (user no longer on site)
over a year ago
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My middle child has a chronic bleeding disorder and has to have I.V infusions every other day for the rest of his life which I have fortunately been trained to do at home. He spent a lot of time back and forth hospital and a few lengthy inpatient stays at UHW when he was younger. He attends mainstream school and plays football at a high level, which most boys with his illness don't but I was always adament he would live as normal a life as possible and he is a resillient little shit so he doesn't let his illness define who he is and never feels sorry for himself. A lot of adults could take a leaf out of his book |
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By (user no longer on site)
over a year ago
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"My middle child has a chronic bleeding disorder and has to have I.V infusions every other day for the rest of his life which I have fortunately been trained to do at home. He spent a lot of time back and forth hospital and a few lengthy inpatient stays at UHW when he was younger. He attends mainstream school and plays football at a high level, which most boys with his illness don't but I was always adament he would live as normal a life as possible and he is a resillient little shit so he doesn't let his illness define who he is and never feels sorry for himself. A lot of adults could take a leaf out of his book "
I've always counted my blessings & he's had the benefit of a positive role in his Mum X |
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By (user no longer on site)
over a year ago
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"My middle child has a chronic bleeding disorder and has to have I.V infusions every other day for the rest of his life which I have fortunately been trained to do at home. He spent a lot of time back and forth hospital and a few lengthy inpatient stays at UHW when he was younger. He attends mainstream school and plays football at a high level, which most boys with his illness don't but I was always adament he would live as normal a life as possible and he is a resillient little shit so he doesn't let his illness define who he is and never feels sorry for himself. A lot of adults could take a leaf out of his book
I've always counted my blessings & he's had the benefit of a positive role in his Mum X"
Thankyou Peach. I always think there are people far worse off than us so we make the best of everything and try and be positive |
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Real illness seems to have taken a back seat to the new bad back syndrome sadly!!...depression!!...my mate 2mnths ago said he was going to docs as he was depressed...I said you just lost your mother and job same time...not depressed just having a shit time such as life!!!..it worked lol...reading these posts and having family go through some horrendous times it's bloody awful...but some people really need to get a grip!!..those above posts I hope you get through and have no doubt you will |
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