Since I moved from Newcastle to Hereford it seems to have gotten a little better, it is warmer here. I have tried a few things but nothing seems to help, however If I can think of anything that will help you I will let you know. |
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By (user no longer on site) 19 weeks ago
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Yup! Multiple dysautomnia owner... being a hermit and wearing multiple layers so far has been my best fight against it.
Sorry I can't advise more, following though incase someone else has cracked the code |
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"Any other forumites suffer from this annoying condition? 
Apart from the obvious of trying to keep warm, any other suggestions or remedies you have found helps? "
Yeah,,its more than annoying.
I find that when hands especially, start to warm up again, it can be extremely painful, like you have just plunged your hands into a deep fat fryer.
Still not found anything that really helps. Extra thick thermal gloves and heated handlebars on motorbike aren't really helping when riding in winter. 😭 |
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If you go on websites that provide stuff for dancers and ballerinas you can get what I can only describe as little silicone toe condoms (for each individual toe)
I find those under ski socks are really useful when out walking
For hands thin silk gloves under normal gloves work well.
At my desk I've a foot muff that has a space for a hot water bottle. That's toasty. |
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I stopped smoking a long time ago and that made a huge difference.
Over the last few years I've been buying fingerless gloves for my son and I wear them now in the Winter. Seem to really help, I guess because I don't give my hands a chance to get too cold. |
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I mr. have had Reynauds for many years. 30 plus. The key things I have learned would be;
There is a strong genetic component to it. Siblings and children in our case.
Vibration is bad! You need to be very careful about your choice of motorcycle...as anyone should. Heated grips do help as does rubber mounting the bars where possible, but the root cause is the vibration frequency. It is often said that a 4 cylinder is the worst but that depends on the engine size and the revs it operates at. Half and 1/4 of max rpm can be worst. There are certain revs that bikes are designed to run rough at for passing noise tests or it might just need a service? If a particular bike is problematic just get rid of it! It makes the condition worse.
Pressure on fingers is bad. Even what you might consider a tiny pressure from a slightly small glove will trigger Reynauds. That is the reason why a previous poster recommended mittens. Not because of their being warmer but because of less pressure. Similarly avoid even slightly tight inners. I (bike) ride in winter using mountaineering gloves.
Big shoes and lose socks. None of this "I only bought a children's size to avoid VAT" nonsense ladies🤣
Always have good gloves/ mittens in the pocket of every coat. Don't cheapskate on them.
Bottom line is my condition is less troublesome now than it was 30 yrs. Accept the basics and make a few better choices. Bit like fab really?  |
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A V4 will still vibrate but differently or less and it probably will indeed be better😁
We have several bikes including two big straight fours. One of them vibration numbs my cock after a while but Mrs seems to not find it objectionable at all 🤔. "It only does it when ridden slowly officer" |
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By *cobMan 18 weeks ago
here |
"Yes i do and working outdoors it's a pain. it has been a bit better since taking blood pressure medication."
Was going to say exactly this, my Ex was really bad with the condition and only improved when she started on a type of blood pressure medication |
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"I mr. have had Reynauds for many years. 30 plus. The key things I have learned would be;
There is a strong genetic component to it. Siblings and children in our case.
Vibration is bad! You need to be very careful about your choice of motorcycle...as anyone should. Heated grips do help as does rubber mounting the bars where possible, but the root cause is the vibration frequency. It is often said that a 4 cylinder is the worst but that depends on the engine size and the revs it operates at. Half and 1/4 of max rpm can be worst. There are certain revs that bikes are designed to run rough at for passing noise tests or it might just need a service? If a particular bike is problematic just get rid of it! It makes the condition worse.
Pressure on fingers is bad. Even what you might consider a tiny pressure from a slightly small glove will trigger Reynauds. That is the reason why a previous poster recommended mittens. Not because of their being warmer but because of less pressure. Similarly avoid even slightly tight inners. I (bike) ride in winter using mountaineering gloves.
Big shoes and lose socks. None of this "I only bought a children's size to avoid VAT" nonsense ladies🤣
Always have good gloves/ mittens in the pocket of every coat. Don't cheapskate on them.
Bottom line is my condition is less troublesome now than it was 30 yrs. Accept the basics and make a few better choices. Bit like fab really? "
I played hockey in school but eventually had to stop because of the pain from the vibrations through the stick. |
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"I absolutely hate suffering with this (Mr). I've found nothing that really helps it. The doctor recommended copper bands to go around the wrist? They apparently help?"
I suffered until I started taking chaga. It really works. 1/2 teaspoon of ground chaga with my morning coffee and the next day its gone. Often now I only have to take it 3 or 4 times a year.
May also be beneficial for erections as it aids blood flow especially to the small capillaries.
I tried everything else for 3 years before finding this miracle mushroom. |
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"I absolutely hate suffering with this (Mr). I've found nothing that really helps it. The doctor recommended copper bands to go around the wrist? They apparently help?
I suffered until I started taking chaga. It really works. 1/2 teaspoon of ground chaga with my morning coffee and the next day its gone. Often now I only have to take it 3 or 4 times a year.
May also be beneficial for erections as it aids blood flow especially to the small capillaries.
I tried everything else for 3 years before finding this miracle mushroom. "
I'll definitely take a look into this. I've heard that chaga helps with quite a lot of issues too like sleep and stress |
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I have read recently about Viagra and Cialis helping, it's because it dilates the blood vessels. Also my daughter who gets it eats 80/90% dark chocolate which also dilates the blood vessels. She is a research scientist by profession. Obviously it won't help everyone. |
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"I absolutely hate suffering with this (Mr). I've found nothing that really helps it. The doctor recommended copper bands to go around the wrist? They apparently help?
I suffered until I started taking chaga. It really works. 1/2 teaspoon of ground chaga with my morning coffee and the next day its gone. Often now I only have to take it 3 or 4 times a year.
May also be beneficial for erections as it aids blood flow especially to the small capillaries.
I tried everything else for 3 years before finding this miracle mushroom. "
On your recommendation … I ordered chaga…. Actually ordered a mix by mistake but the results are remarkable .. thank you… what do you do for your tinnitus ? lol |
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"I absolutely hate suffering with this (Mr). I've found nothing that really helps it. The doctor recommended copper bands to go around the wrist? They apparently help?
I suffered until I started taking chaga. It really works. 1/2 teaspoon of ground chaga with my morning coffee and the next day its gone. Often now I only have to take it 3 or 4 times a year.
May also be beneficial for erections as it aids blood flow especially to the small capillaries.
I tried everything else for 3 years before finding this miracle mushroom.
On your recommendation … I ordered chaga…. Actually ordered a mix by mistake but the results are remarkable .. thank you… what do you do for your tinnitus ? lol "
Fortunately I don't suffer with tinnitus. I'm happy I've been of some use. |
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"I absolutely hate suffering with this (Mr). I've found nothing that really helps it. The doctor recommended copper bands to go around the wrist? They apparently help?
I suffered until I started taking chaga. It really works. 1/2 teaspoon of ground chaga with my morning coffee and the next day its gone. Often now I only have to take it 3 or 4 times a year.
May also be beneficial for erections as it aids blood flow especially to the small capillaries.
I tried everything else for 3 years before finding this miracle mushroom.
On your recommendation … I ordered chaga…. Actually ordered a mix by mistake but the results are remarkable .. thank you… what do you do for your tinnitus ? lol
Fortunately I don't suffer with tinnitus. I'm happy I've been of some use. "
Thanks again xx |
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By *lusherCouple 9 weeks ago
bodmin |
"Apparently Viagra helps ease the condition. And no, I'm not joking. but for men though right? "
Actually viagra was intended and sti used for pulmomary hypertension. Also in HAPE. The story goes that it was 6 years into using it for Pulmonary Hypertension that someone realised the side effect on erections - apparently nobody complained of this side effect! |
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"Apparently Viagra helps ease the condition. And no, I'm not joking. but for men though right?
Actually viagra was intended and sti used for pulmomary hypertension. Also in HAPE. The story goes that it was 6 years into using it for Pulmonary Hypertension that someone realised the side effect on erections - apparently nobody complained of this side effect!"
ah right I only said ‘is it just for men’ as the OP was a woman asking thanks |
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I’ve had it as long as I can remember. I’ve always been fairly active, but I’ve recently got into weight training.
I’ve noticed since doing weights my fingers and toes don’t go cold as frequently any more. No more blue fingernails whenever it’s chilly. Phew!
Maybe that tip will help others too? I’m guessing it’s happened because of new blood vessels forming |
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I've got white finger from vibration. Commercial machinery stuff. Maybe excessive vibrator use can lead to nerve damage? Surely a study needs to be launched to ensure safety. In the mean time appropriate ppe should be used when using vibration based implements. Gloves, eye protection, high vis and intermittent use should be adheared to. PPE really helped my hands. |
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"I've got white finger from vibration. Commercial machinery stuff. Maybe excessive vibrator use can lead to nerve damage? Surely a study needs to be launched to ensure safety. In the mean time appropriate ppe should be used when using vibration based implements. Gloves, eye protection, high vis and intermittent use should be adheared to. PPE really helped my hands. "
When you say a study..? Would it not be better just to move along to regulation… like the Control of Vibration at Work Regulations? |
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"I've been taking a combination of vitamins and my raynauds, migraines and tinnitus have all stopped in the last 6 weeks and ive not suffered with it at all.
So I'm very grateful for that."
What vitamins you are taking? |
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"I've been taking a combination of vitamins and my raynauds, migraines and tinnitus have all stopped in the last 6 weeks and ive not suffered with it at all.
So I'm very grateful for that.
What vitamins you are taking? "
I've just taken a picture of the selection for you and I'll send it over now so you can see the brands. 😊 |
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"I've been taking a combination of vitamins and my raynauds, migraines and tinnitus have all stopped in the last 6 weeks and ive not suffered with it at all.
So I'm very grateful for that.
What vitamins you are taking? "
Ah, i can't 😅 sorry. You've got your restrictions up. Do you want me to just list them here with the brand name? |
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"I've been taking a combination of vitamins and my raynauds, migraines and tinnitus have all stopped in the last 6 weeks and ive not suffered with it at all.
So I'm very grateful for that.
What vitamins you are taking?
Ah, i can't 😅 sorry. You've got your restrictions up. Do you want me to just list them here with the brand name?"
Thank you for sending me the info by DM 
Are you happy to share with others so hopefully they might benefit from your findings? |
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It is a very frustrating condition that shows up whenever it feels like it. Do you have trouble with hands and feet? I live in a very cold climate and if I’m going to be out in the cold a lot, I use foot warmers and wool mittens. The best remedy I can offer is hot steamy sex, I’ve never had to worry about cold feet after, lol. |
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"I've been taking a combination of vitamins and my raynauds, migraines and tinnitus have all stopped in the last 6 weeks and ive not suffered with it at all.
So I'm very grateful for that.
What vitamins you are taking?
Ah, i can't 😅 sorry. You've got your restrictions up. Do you want me to just list them here with the brand name?
Thank you for sending me the info by DM
Are you happy to share with others so hopefully they might benefit from your findings? "
I'd be very interested to know as I suffer from Reynauds and Tinnitus. |
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