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Fibromyalgia
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By (user no longer on site) OP
over a year ago
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Shout out to all the fibro warriors on here 
For many years we were quite active on here and had some great meets and met some wonderful people. Then the health issues reared there heads for Minnie and what started as what she thought was sciatica actually turned out to be fibromyalgia.
Fast forward about five years and we’ve both learnt how to deal with this horrendous condition and our relationship and sex life is better than ever! It was difficult at first and, after a serious knock back last summer, we are fucking like teenagers again and loving it 
So this is just a thread for those who may be starting on this fibro journey, or any conditions for that matter that have changed your lives, to let you know their are positives and you can still enjoy life.
Don’t let your condition define who you are, you have control and you can do anything you want too (unless that anything with fibro is running  haha)
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By (user no longer on site) OP
over a year ago
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"This is encouraging, as my mrs has fibo, and our sex life has taken a massive dive."
It does get easier, well it did for us anyway, so hang in there. Just be patient with her and understand when she’s in too much pain. Wasn’t easy for either of us at first but the way I looked at it, I wasn’t really suffering the way she was and I wasn’t the only one missing out on sex, she was as well. As difficult as it was for me it was doubly difficult for Minnie  |
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By (user no longer on site) OP
over a year ago
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"Please can i ask how you are dealing with this, I've had it for year's and it's getting worse. No tablets touch it but I'm just getting on with it.
Thanks gayna xx "
PM’d you but basically its a combination of painkillers, fluoxetine or a morning to “pick up her mood” and amitriptyline of an evening to help her body relax. Believe it or not exercise helps as well but take it easy as pushing yourself could just leave you in agony for days. Avoid high impact stuff like running but cardio is good and some strength training to keep your muscles active. Minnie says yoga helps as well, as well as mindfulness
It’s all a balancing act though and finding what works for you, not easy granted but hopefully you’ll find that soon x |
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I'm currently undergoing various hospital investigations regarding my widespread pains, everything is pointing towards it being fibromyalgia, my gp has explained that everything needs to be ruled out before I'm given the fibromyalgia diagnosis , also found I'm type 2 diabetic too  |
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By (user no longer on site)
over a year ago
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my husband has this on top of a few other bad health conditions ..brings tears to my eyes when i see him suffering he takes enough pain killers to down an elephant but the pain wins ..never moans just gets on with it as with everything else |
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I have fibro alongside rheumatoid arthritis with secondary osteo arthritis.
I found amytriptyline worked wonders in helping me sleep better and as a consequence not feel so fatigued.
Over the last year I've been seriously unwell with several hospitalisations but I'm feeling loads better which I think I can put down to losing a relatively decent amount of weight.
I'm still not back to full mobility after a hip replacement but I'm definitely feeling much better mentally if not quite as much physically. |
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By *jonesMan
over a year ago
Plymouth |
"Shout out to all the fibro warriors on here
For many years we were quite active on here and had some great meets and met some wonderful people. Then the health issues reared there heads for Minnie and what started as what she thought was sciatica actually turned out to be fibromyalgia.
Fast forward about five years and we’ve both learnt how to deal with this horrendous condition and our relationship and sex life is better than ever! It was difficult at first and, after a serious knock back last summer, we are fucking like teenagers again and loving it
So this is just a thread for those who may be starting on this fibro journey, or any conditions for that matter that have changed your lives, to let you know their are positives and you can still enjoy life.
Don’t let your condition define who you are, you have control and you can do anything you want too (unless that anything with fibro is running haha)
"
Lovely post , I help out with a charity and have discovered there are many conditions like fibromyalgia that are really disabling and largely ignored in terms of research, i dont think people appreciate how unpleasant they are, there is a news presenter (I forget her name) that had to stop work a few years ago with fibro..and I was glad it gave some publicity to the condition.
Sounds like you are doing your very best...good luck |
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By (user no longer on site)
over a year ago
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yep amytriptyline helps hubs but hes on 10 tabs daily along with 8x tramadol daily plus 8x codeine phophate paracetamol that gets swapped out with oral morph often not to mention the other 27 different meds he takes for his major health probs and all this started with sudden onset of type 1 diabetes 20 = years ago |
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"yep amytriptyline helps hubs but hes on 10 tabs daily along with 8x tramadol daily plus 8x codeine phophate paracetamol that gets swapped out with oral morph often not to mention the other 27 different meds he takes for his major health probs and all this started with sudden onset of type 1 diabetes 20 = years ago "
Yep I'm also on a right cocktail of different drugs, they do help but some days even now it's a struggle. |
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By (user no longer on site)
over a year ago
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"Please can i ask how you are dealing with this, I've had it for year's and it's getting worse. No tablets touch it but I'm just getting on with it.
Thanks gayna xx "
Same here |
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By *rank59Man
over a year ago
Northwich |
Had Fibro for eight years now(confirmed but prob for 15).
Painkillers do not work for me Even Morphine. Been through them all over the years.
You need to find what works for you. what combination. Stress is a biggie. Good sleep/ finding the triggers.
I wake up in the morning feeling like some one has literally just stopped beating the shit out of me. The day goes down hill from there.
The hardest part is when it just wears you down.
No magic wand. No magic pill. What works for one doesn't for another. A lady I know has a very low pain threshold. She spends her life in a zombie state. I feel very sorry for her. |
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By *rank59Man
over a year ago
Northwich |
It truly is one of those things that you just cannot conceive how bad it is until you experience it yourself.
A few years ago I just put my hand in boiling water to get the eggs out and my wife looked on horrified. I felt no more pain then I feel all the time. I was banned from cooking!
Add gout to the mix... |
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By (user no longer on site)
over a year ago
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One of my clients suffers from this, actually I should say - used to suffer, especially during flare ups.
So I put her on my bodybuilding training routine, my specialised diet, eliminating the dangerous meds her Dr put her on...Citalopram etc etc and treating her with a combination of natural supplements (Vitamins,Minerals and specific Amino acids) most symptoms are virtually non existent and or been GREATLY reduced and she is now living a very healthy and happy life virtually symptom free, for the past six months so far.
I find it puzzling why in this country very few know how to treat a very treatable condition!!!
Dr's just throw drugs at people and have very little ACCURATE knowledge about the condition.
Seems MOST think it's made up or not as serious as it can be for some 
Also a problem I have to deal with, with some clients is the fact the Dr's in this country have absolutely NO CLUE about the subject of cholesterol and give people dangerous and FALSE info!!!
Even the NHS website has it all WRONG
They will tell people there is such a thing as 'bad cholesterol'..... without even doing a Fractionation test!! how can you possibly tell if the levels are good or bad without one???? 
I have had to explain to our GP, actually lecture her on the subject as they tried to put Sheila on Statins WITHOUT understanding what cholesterol is and how it functions - friggin SCARY that they don't understand such a simple subject
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By (user no longer on site)
over a year ago
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"It truly is one of those things that you just cannot conceive how bad it is until you experience it yourself.
A few years ago I just put my hand in boiling water to get the eggs out and my wife looked on horrified. I felt no more pain then I feel all the time. I was banned from cooking!
Add gout to the mix... "
I have treated clients for Gout successfully using Orotic acid (Used to be Vit B13) 4g daily for six days - orotic acid dissolves uric acid crystals and removes pain and swelling |
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By *ad NannaWoman
over a year ago
East London |
I take Pregabilin and Naproxen or Ibuprofen for my pain.
Without it I wouldn't leave my bed.
I have osteoarthritis and IBS too, and take Paroxetine for clinical depression and already on Amitriptyline for neck osteoarthritis when I was diagnosed with fibromyalgia.
Today was a really hard day and laying in bed not able to relax is stressful.
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"One of my clients suffers from this, actually I should say - used to suffer, especially during flare ups.
So I put her on my bodybuilding training routine, my specialised diet, eliminating the dangerous meds her Dr put her on...Citalopram etc etc and treating her with a combination of natural supplements (Vitamins,Minerals and specific Amino acids) most symptoms are virtually non existent and or been GREATLY reduced and she is now living a very healthy and happy life virtually symptom free, for the past six months so far.
I find it puzzling why in this country very few know how to treat a very treatable condition!!!
Dr's just throw drugs at people and have very little ACCURATE knowledge about the condition.
Seems MOST think it's made up or not as serious as it can be for some
Also a problem I have to deal with, with some clients is the fact the Dr's in this country have absolutely NO CLUE about the subject of cholesterol and give people dangerous and FALSE info!!!
Even the NHS website has it all WRONG
They will tell people there is such a thing as 'bad cholesterol'..... without even doing a Fractionation test!! how can you possibly tell if the levels are good or bad without one????
I have had to explain to our GP, actually lecture her on the subject as they tried to put Sheila on Statins WITHOUT understanding what cholesterol is and how it functions - friggin SCARY that they don't understand such a simple subject
"
Are you medically qualified? |
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My wife has just been diagnosed with fibromyalgia. She has been suffering with it for around 3 years but didn't know. She started to think it was all in her head and was some kind of hypochondriac. But after having many tests we now know what her pain is. After seeing what she goes through I feel for anyone that suffers with it.
There is nothing I can do to help her. But just being there and supporting her helps in a small way. |
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"I take Pregabilin and Naproxen or Ibuprofen for my pain.
Without it I wouldn't leave my bed.
I have osteoarthritis and IBS too, and take Paroxetine for clinical depression and already on Amitriptyline for neck osteoarthritis when I was diagnosed with fibromyalgia.
Today was a really hard day and laying in bed not able to relax is stressful.
"
That's quite a cocktail. Pain is really difficult to deal with when it's constant isn't it. |
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By *ad NannaWoman
over a year ago
East London |
"One of my clients suffers from this, actually I should say - used to suffer, especially during flare ups.
So I put her on my bodybuilding training routine, my specialised diet, eliminating the dangerous meds her Dr put her on...Citalopram etc etc and treating her with a combination of natural supplements (Vitamins,Minerals and specific Amino acids) most symptoms are virtually non existent and or been GREATLY reduced and she is now living a very healthy and happy life virtually symptom free, for the past six months so far.
I find it puzzling why in this country very few know how to treat a very treatable condition!!!
Dr's just throw drugs at people and have very little ACCURATE knowledge about the condition.
Seems MOST think it's made up or not as serious as it can be for some
Also a problem I have to deal with, with some clients is the fact the Dr's in this country have absolutely NO CLUE about the subject of cholesterol and give people dangerous and FALSE info!!!
Even the NHS website has it all WRONG
They will tell people there is such a thing as 'bad cholesterol'..... without even doing a Fractionation test!! how can you possibly tell if the levels are good or bad without one????
I have had to explain to our GP, actually lecture her on the subject as they tried to put Sheila on Statins WITHOUT understanding what cholesterol is and how it functions - friggin SCARY that they don't understand such a simple subject
Are you medically qualified?"
I was wondering this too as I can't find anything online regarding alternatives to drug therapy.
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By (user no longer on site)
over a year ago
|
Osteoarthritis - again the Dr's don't seem to get that this very treatable with the right combination of supplements and can actually be reversed - I KNOW it's a strange and strong claim to make but I can prove the formula works and can actually regrow cartilage - I can prove it with 20 years of MRI scans of a knee joint showing the results
Happy to share info about anything I have stated to those that are interested and I DO NOT want anything in return - I just want to help those that need it |
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By *ad NannaWoman
over a year ago
East London |
"I take Pregabilin and Naproxen or Ibuprofen for my pain.
Without it I wouldn't leave my bed.
I have osteoarthritis and IBS too, and take Paroxetine for clinical depression and already on Amitriptyline for neck osteoarthritis when I was diagnosed with fibromyalgia.
Today was a really hard day and laying in bed not able to relax is stressful.
That's quite a cocktail. Pain is really difficult to deal with when it's constant isn't it. "
I try to take as few as possible but I have to take the Pregabilin every day.
Some days are unbearably difficult but I have responsibilities I have to focus on.
Trying to look after a 10 month old after a few hours sleep is exhausting me. |
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By *ad NannaWoman
over a year ago
East London |
"Osteoarthritis - again the Dr's don't seem to get that this very treatable with the right combination of supplements and can actually be reversed - I KNOW it's a strange and strong claim to make but I can prove the formula works and can actually regrow cartilage - I can prove it with 20 years of MRI scans of a knee joint showing the results
Happy to share info about anything I have stated to those that are interested and I DO NOT want anything in return - I just want to help those that need it "
You think you can reverse osteoarthritis? |
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By (user no longer on site)
over a year ago
|
Not got fibro.. big hugs to all who suffer...
I have small fibre neuropathy due to autoimmune due to cptsd.
Basically stress caused nerve damage.
I looked up food and cptsd
Food and joint pains..
So far avoiding sugars making a massive difference for me.
#be kind
|
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"I take Pregabilin and Naproxen or Ibuprofen for my pain.
Without it I wouldn't leave my bed.
I have osteoarthritis and IBS too, and take Paroxetine for clinical depression and already on Amitriptyline for neck osteoarthritis when I was diagnosed with fibromyalgia.
Today was a really hard day and laying in bed not able to relax is stressful.
That's quite a cocktail. Pain is really difficult to deal with when it's constant isn't it.
I try to take as few as possible but I have to take the Pregabilin every day.
Some days are unbearably difficult but I have responsibilities I have to focus on.
Trying to look after a 10 month old after a few hours sleep is exhausting me."
I bet. How are you finding pregabalin? |
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By (user no longer on site)
over a year ago
|
No I am NOT medically qualified in any way, I have just written a book on Vitamins and Minerals and collaborate with some top nutritionists in the USA.
One of my clients is a Dr and will confirm what I say is real.
Anyone wanting to confirm this with him is welcome to, he has given me permission
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By *ad NannaWoman
over a year ago
East London |
"I take Pregabilin and Naproxen or Ibuprofen for my pain.
Without it I wouldn't leave my bed.
I have osteoarthritis and IBS too, and take Paroxetine for clinical depression and already on Amitriptyline for neck osteoarthritis when I was diagnosed with fibromyalgia.
Today was a really hard day and laying in bed not able to relax is stressful.
That's quite a cocktail. Pain is really difficult to deal with when it's constant isn't it.
I try to take as few as possible but I have to take the Pregabilin every day.
Some days are unbearably difficult but I have responsibilities I have to focus on.
Trying to look after a 10 month old after a few hours sleep is exhausting me.
I bet. How are you finding pregabalin? "
Lifesaver. The relief I get after taking one helps me to get moving in the mornings.
Apparently it works better with Paroxetine than Amitriptyline.
I won't take all 3 together as they make me tired. |
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By *ad NannaWoman
over a year ago
East London |
"No I am NOT medically qualified in any way, I have just written a book on Vitamins and Minerals and collaborate with some top nutritionists in the USA.
One of my clients is a Dr and will confirm what I say is real.
Anyone wanting to confirm this with him is welcome to, he has given me permission
"
You can't reverse osteoarthritis.
Why should we have faith in your doctor after what you wrote about them.
|
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"I take Pregabilin and Naproxen or Ibuprofen for my pain.
Without it I wouldn't leave my bed.
I have osteoarthritis and IBS too, and take Paroxetine for clinical depression and already on Amitriptyline for neck osteoarthritis when I was diagnosed with fibromyalgia.
Today was a really hard day and laying in bed not able to relax is stressful.
That's quite a cocktail. Pain is really difficult to deal with when it's constant isn't it.
I try to take as few as possible but I have to take the Pregabilin every day.
Some days are unbearably difficult but I have responsibilities I have to focus on.
Trying to look after a 10 month old after a few hours sleep is exhausting me.
I bet. How are you finding pregabalin?
Lifesaver. The relief I get after taking one helps me to get moving in the mornings.
Apparently it works better with Paroxetine than Amitriptyline.
I won't take all 3 together as they make me tired."
That's good that it works. Mr N had a terrible experience with it. |
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By (user no longer on site)
over a year ago
|
"Not got fibro.. big hugs to all who suffer...
I have small fibre neuropathy due to autoimmune due to cptsd.
Basically stress caused nerve damage.
I looked up food and cptsd
Food and joint pains..
So far avoiding sugars making a massive difference for me.
#be kind
"
Sugar !!!!! all should eliminate all refined sugars from their diet, just doing that one thing alone will improve your health in SO MANY different ways |
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By *ad NannaWoman
over a year ago
East London |
"I take Pregabilin and Naproxen or Ibuprofen for my pain.
Without it I wouldn't leave my bed.
I have osteoarthritis and IBS too, and take Paroxetine for clinical depression and already on Amitriptyline for neck osteoarthritis when I was diagnosed with fibromyalgia.
Today was a really hard day and laying in bed not able to relax is stressful.
That's quite a cocktail. Pain is really difficult to deal with when it's constant isn't it.
I try to take as few as possible but I have to take the Pregabilin every day.
Some days are unbearably difficult but I have responsibilities I have to focus on.
Trying to look after a 10 month old after a few hours sleep is exhausting me.
I bet. How are you finding pregabalin?
Lifesaver. The relief I get after taking one helps me to get moving in the mornings.
Apparently it works better with Paroxetine than Amitriptyline.
I won't take all 3 together as they make me tired.
That's good that it works. Mr N had a terrible experience with it. "
I sometimes feel light headed, but that could be the arthritis in my neck too. |
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"I take Pregabilin and Naproxen or Ibuprofen for my pain.
Without it I wouldn't leave my bed.
I have osteoarthritis and IBS too, and take Paroxetine for clinical depression and already on Amitriptyline for neck osteoarthritis when I was diagnosed with fibromyalgia.
Today was a really hard day and laying in bed not able to relax is stressful.
That's quite a cocktail. Pain is really difficult to deal with when it's constant isn't it.
I try to take as few as possible but I have to take the Pregabilin every day.
Some days are unbearably difficult but I have responsibilities I have to focus on.
Trying to look after a 10 month old after a few hours sleep is exhausting me.
I bet. How are you finding pregabalin?
Lifesaver. The relief I get after taking one helps me to get moving in the mornings.
Apparently it works better with Paroxetine than Amitriptyline.
I won't take all 3 together as they make me tired.
That's good that it works. Mr N had a terrible experience with it.
I sometimes feel light headed, but that could be the arthritis in my neck too."
It was way more than that and since coming off it, which took six months his pain level has remained the same. I'm glad it works for you |
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By *ad NannaWoman
over a year ago
East London |
"I take Pregabilin and Naproxen or Ibuprofen for my pain.
Without it I wouldn't leave my bed.
I have osteoarthritis and IBS too, and take Paroxetine for clinical depression and already on Amitriptyline for neck osteoarthritis when I was diagnosed with fibromyalgia.
Today was a really hard day and laying in bed not able to relax is stressful.
That's quite a cocktail. Pain is really difficult to deal with when it's constant isn't it.
I try to take as few as possible but I have to take the Pregabilin every day.
Some days are unbearably difficult but I have responsibilities I have to focus on.
Trying to look after a 10 month old after a few hours sleep is exhausting me.
I bet. How are you finding pregabalin?
Lifesaver. The relief I get after taking one helps me to get moving in the mornings.
Apparently it works better with Paroxetine than Amitriptyline.
I won't take all 3 together as they make me tired.
That's good that it works. Mr N had a terrible experience with it.
I sometimes feel light headed, but that could be the arthritis in my neck too.
It was way more than that and since coming off it, which took six months his pain level has remained the same. I'm glad it works for you "
So am I lol |
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"I take Pregabilin and Naproxen or Ibuprofen for my pain.
Without it I wouldn't leave my bed.
I have osteoarthritis and IBS too, and take Paroxetine for clinical depression and already on Amitriptyline for neck osteoarthritis when I was diagnosed with fibromyalgia.
Today was a really hard day and laying in bed not able to relax is stressful.
That's quite a cocktail. Pain is really difficult to deal with when it's constant isn't it.
I try to take as few as possible but I have to take the Pregabilin every day.
Some days are unbearably difficult but I have responsibilities I have to focus on.
Trying to look after a 10 month old after a few hours sleep is exhausting me.
I bet. How are you finding pregabalin?
Lifesaver. The relief I get after taking one helps me to get moving in the mornings.
Apparently it works better with Paroxetine than Amitriptyline.
I won't take all 3 together as they make me tired.
That's good that it works. Mr N had a terrible experience with it.
I sometimes feel light headed, but that could be the arthritis in my neck too.
It was way more than that and since coming off it, which took six months his pain level has remained the same. I'm glad it works for you
So am I lol "
 .
He's finding his tens machine helps at the moment. |
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By (user no longer on site)
over a year ago
|
"I take Pregabilin and Naproxen or Ibuprofen for my pain.
Without it I wouldn't leave my bed.
I have osteoarthritis and IBS too, and take Paroxetine for clinical depression and already on Amitriptyline for neck osteoarthritis when I was diagnosed with fibromyalgia.
Today was a really hard day and laying in bed not able to relax is stressful.
That's quite a cocktail. Pain is really difficult to deal with when it's constant isn't it.
I try to take as few as possible but I have to take the Pregabilin every day.
Some days are unbearably difficult but I have responsibilities I have to focus on.
Trying to look after a 10 month old after a few hours sleep is exhausting me.
I bet. How are you finding pregabalin?
Lifesaver. The relief I get after taking one helps me to get moving in the mornings.
Apparently it works better with Paroxetine than Amitriptyline.
I won't take all 3 together as they make me tired.
That's good that it works. Mr N had a terrible experience with it.
I sometimes feel light headed, but that could be the arthritis in my neck too.
It was way more than that and since coming off it, which took six months his pain level has remained the same. I'm glad it works for you
So am I lol
.
He's finding his tens machine helps at the moment."
There's always Rick Simpson Oil. Google it and if you've got any questions, I'll happily field them over PM. |
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By (user no longer on site)
over a year ago
|
Also a sufferer. Check your vitamin b12 levels, low b12 can contribute to pain signalling in the body, as said above cut out as much sugar as possible, I found that really helped. My doctor prescribed nsaids which were useless and opiates which were addictive, there's no crystal ball with this I found gentle swimming helped immensely. |
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By *ad NannaWoman
over a year ago
East London |
"I take Pregabilin and Naproxen or Ibuprofen for my pain.
Without it I wouldn't leave my bed.
I have osteoarthritis and IBS too, and take Paroxetine for clinical depression and already on Amitriptyline for neck osteoarthritis when I was diagnosed with fibromyalgia.
Today was a really hard day and laying in bed not able to relax is stressful.
That's quite a cocktail. Pain is really difficult to deal with when it's constant isn't it.
I try to take as few as possible but I have to take the Pregabilin every day.
Some days are unbearably difficult but I have responsibilities I have to focus on.
Trying to look after a 10 month old after a few hours sleep is exhausting me.
I bet. How are you finding pregabalin?
Lifesaver. The relief I get after taking one helps me to get moving in the mornings.
Apparently it works better with Paroxetine than Amitriptyline.
I won't take all 3 together as they make me tired.
That's good that it works. Mr N had a terrible experience with it.
I sometimes feel light headed, but that could be the arthritis in my neck too.
It was way more than that and since coming off it, which took six months his pain level has remained the same. I'm glad it works for you
So am I lol
.
He's finding his tens machine helps at the moment."
Is that used all over the body?
|
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By *ad NannaWoman
over a year ago
East London |
"Also a sufferer. Check your vitamin b12 levels, low b12 can contribute to pain signalling in the body, as said above cut out as much sugar as possible, I found that really helped. My doctor prescribed nsaids which were useless and opiates which were addictive, there's no crystal ball with this I found gentle swimming helped immensely. "
I'm hoping to go back to swimming when they reopen to general public. |
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"I take Pregabilin and Naproxen or Ibuprofen for my pain.
Without it I wouldn't leave my bed.
I have osteoarthritis and IBS too, and take Paroxetine for clinical depression and already on Amitriptyline for neck osteoarthritis when I was diagnosed with fibromyalgia.
Today was a really hard day and laying in bed not able to relax is stressful.
That's quite a cocktail. Pain is really difficult to deal with when it's constant isn't it.
I try to take as few as possible but I have to take the Pregabilin every day.
Some days are unbearably difficult but I have responsibilities I have to focus on.
Trying to look after a 10 month old after a few hours sleep is exhausting me.
I bet. How are you finding pregabalin?
Lifesaver. The relief I get after taking one helps me to get moving in the mornings.
Apparently it works better with Paroxetine than Amitriptyline.
I won't take all 3 together as they make me tired.
That's good that it works. Mr N had a terrible experience with it.
I sometimes feel light headed, but that could be the arthritis in my neck too.
It was way more than that and since coming off it, which took six months his pain level has remained the same. I'm glad it works for you
So am I lol
.
He's finding his tens machine helps at the moment.
Is that used all over the body?
"
He uses it on his lower back. I'm not medically qualified so I wouldn't advise you on where to use it but the booklet with it shows you how to use it on your shoulders etc. but please don't take my word for it. I do know that anyone with a heart condition shouldn't use them. |
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By (user no longer on site)
over a year ago
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Again fab members pull together and supports each other over some pretty difficult situations.
I went through months of test and pain until I was diagnosed with wegeners syndrome. Even after diagnosis pain control took months. I have learned more from others who have it than any doctor or specialist. |
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By *ad NannaWoman
over a year ago
East London |
"I take Pregabilin and Naproxen or Ibuprofen for my pain.
Without it I wouldn't leave my bed.
I have osteoarthritis and IBS too, and take Paroxetine for clinical depression and already on Amitriptyline for neck osteoarthritis when I was diagnosed with fibromyalgia.
Today was a really hard day and laying in bed not able to relax is stressful.
That's quite a cocktail. Pain is really difficult to deal with when it's constant isn't it.
I try to take as few as possible but I have to take the Pregabilin every day.
Some days are unbearably difficult but I have responsibilities I have to focus on.
Trying to look after a 10 month old after a few hours sleep is exhausting me.
I bet. How are you finding pregabalin?
Lifesaver. The relief I get after taking one helps me to get moving in the mornings.
Apparently it works better with Paroxetine than Amitriptyline.
I won't take all 3 together as they make me tired.
That's good that it works. Mr N had a terrible experience with it.
I sometimes feel light headed, but that could be the arthritis in my neck too.
It was way more than that and since coming off it, which took six months his pain level has remained the same. I'm glad it works for you
So am I lol
.
He's finding his tens machine helps at the moment.
Is that used all over the body?
He uses it on his lower back. I'm not medically qualified so I wouldn't advise you on where to use it but the booklet with it shows you how to use it on your shoulders etc. but please don't take my word for it. I do know that anyone with a heart condition shouldn't use them. "
I have a sound heart, thankfully.
I don't really get lower back pain but it's worth looking into.
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By (user no longer on site) OP
over a year ago
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Some fantastic comments on this thread so thank you to everybody for sharing your experiences of this horrid illness and how you deal with it on a daily basis
On the subject of herbal remedies and supplements etc we’d advise you to seek medical advice before considering coming off your pain meds and trying these. Minnie was advised to stop taking all her meds as she was told “they were useless” and was in horrendous pain for weeks. It may work for some but supplements aren’t a cure all!
As a recently qualified fitness instructor I can tell you if you aren’t a qualified nutritionist or dietician you should not be giving advice on supplements. It is dangerous to take them without expert advice and you could do far more harm than good, no matter how well intended the advice may be. Medication does work as many have said on here but it’s finding the right balance
Keep fighting the good fight warriors |
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By (user no longer on site) OP
over a year ago
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"I struggle horrendously with fibromyalgia and EDS, it's ruined my whole life not just my sex life vxx"
Fibro is such an awful condition and is very hard to explain to others unless you struggle with it yourself! I see Minnie every day try and manage it but even I can’t comprehend just how it feels. Just functioning is an effort most days so I’ve got the upmost admiration for her and others like you who do so x |
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"I take Pregabilin and Naproxen or Ibuprofen for my pain.
Without it I wouldn't leave my bed.
I have osteoarthritis and IBS too, and take Paroxetine for clinical depression and already on Amitriptyline for neck osteoarthritis when I was diagnosed with fibromyalgia.
Today was a really hard day and laying in bed not able to relax is stressful.
That's quite a cocktail. Pain is really difficult to deal with when it's constant isn't it.
I try to take as few as possible but I have to take the Pregabilin every day.
Some days are unbearably difficult but I have responsibilities I have to focus on.
Trying to look after a 10 month old after a few hours sleep is exhausting me.
I bet. How are you finding pregabalin?
Lifesaver. The relief I get after taking one helps me to get moving in the mornings.
Apparently it works better with Paroxetine than Amitriptyline.
I won't take all 3 together as they make me tired.
That's good that it works. Mr N had a terrible experience with it.
I sometimes feel light headed, but that could be the arthritis in my neck too.
It was way more than that and since coming off it, which took six months his pain level has remained the same. I'm glad it works for you
So am I lol
.
He's finding his tens machine helps at the moment.
There's always Rick Simpson Oil. Google it and if you've got any questions, I'll happily field them over PM. "
is this similar to CBD oil ? |
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I have chronic pain/fatigue, mild scoliosis, Hypermobility although I'm more stiff these days than bendy!
I've found sorting out my vitamin deficiencies has really helped. I follow vitamin D protocols, magnesium is hot for aches/pains/restless legs/energy.
And I also do my own B12 injections. |
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By *azza12Man
over a year ago
Ayrshire |
I was diagnosed with fibro 6yrs ago, have tried naproxen, pentagabin,morphine etc. None really help. Sometimes feel more relief from a really hot bath and massage. Over the years I've learned to just listen to my body and accept my limits which certainly limits my sex life |
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Some days or weeks are awful for me. I struggle to just do normal daily things, I look ok though. I now just go with it, rest and sleep if I feel rubbish. Others don't really understand that's ok. X |
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By *azza12Man
over a year ago
Ayrshire |
"Some days or weeks are awful for me. I struggle to just do normal daily things, I look ok though. I now just go with it, rest and sleep if I feel rubbish. Others don't really understand that's ok. X"
I totally understand what you mean, unless you have it you will never understand it x
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By (user no longer on site)
over a year ago
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I (female) also have fibro, I was diagnosed 12 years ago but had it since I was 6 years old (now 48 years old). I developed it after I had an accident breaking the base of my spine. Everybody has fibro in their system but it take some sort of trauma to trigger it. It's also heireditary. All I take is zapain, nurofen and paracetamol, oh and the best relief is a tens machine. Occasionally massage as well. I don't let it ruin my sex life, I have always managed to work through the pain, the fun out weighs the pain. I also keep up to date with vitamins etc as I spent a lot of time researching it regarding fibro and everything that goes with fibro when I worked for Holland and Barrett and doing my training.
I would advise anybody with fibro who has not used a tens machine to try one obviously with caution if you have certain other illnesses |
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By *hesblokeMan
over a year ago
Derbyshire village |
"Some days or weeks are awful for me. I struggle to just do normal daily things, I look ok though. I now just go with it, rest and sleep if I feel rubbish. Others don't really understand that's ok. XI totally understand what you mean, unless you have it you will never understand it x"
My mum and a mate has it, and my heart goes out to anyone else afflicted, it truly does. |
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Hubby has fibromyalgia, rheumatoid arthritis, muscle wastage among other things
It’s a rough road and I feel for anyone who has to deal with it
Our sex life is below average as it’s tough to find a window where pain isn’t a factor but in my opinion the longer you wait the better the sex is  |
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By (user no longer on site)
over a year ago
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Has anyone started or noticed chest aches and shortness of breath when exerting yourself? I've started with this now and it's grown worse over a number of years. The aches, fatigue and the fog are becoming more frequent in recent months. My gp doesn't understand and no pain relief is prescribed, and due to the nature of my work I'm not sure it would be a good idea anyway tbh.
With this and upper cervical deterioration I feel as if I'm just on a count down at my age to losing the job I love, and being isolated alone |
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By *oodmessMan
over a year ago
yumsville |
"Has anyone started or noticed chest aches and shortness of breath when exerting yourself? I've started with this now and it's grown worse over a number of years. The aches, fatigue and the fog are becoming more frequent in recent months. My gp doesn't understand and no pain relief is prescribed, and due to the nature of my work I'm not sure it would be a good idea anyway tbh.
With this and upper cervical deterioration I feel as if I'm just on a count down at my age to losing the job I love, and being isolated alone "
I've found cutting sugar, fructose, lactose and high carb foods beneficial as well as eating gluten free products where possible.. It avoids spike/crash from sugars. As far as helping with symptoms I've found nothing that works in absolute terms, though a decent co-q10, vit D and B complex seems to help lift fog/energy. |
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By *AABMan
over a year ago
Not far |
I honestly didn’t know fibro was such a common condition as it is judging by this thread. I have a relative with it. Are there support groups on-line or resources that can provide good advice for reducing symptoms? |
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By (user no longer on site)
over a year ago
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"I honestly didn’t know fibro was such a common condition as it is judging by this thread. I have a relative with it. Are there support groups on-line or resources that can provide good advice for reducing symptoms?"
The best place would be is to look on face book. You may even find you have a local support group near you. |
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By (user no longer on site)
over a year ago
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I don't suffer, my kid does.
They have gone gluten and dairy free, takes lots of different vitamins and minerals. Pain meds are hopeless. The side effects outweigh the benefits.
Only drugs now is a lidocaine infusion every few months.
They have lived with this for at least 14 years. It took years to get a diagnosis. It took a long time to convince a specialist to allow the infusion.
As a parent it's awful to watch. Not knowing from day to day if they can walk or not. Can they shower or will it be a baby wipe day.
Then throw on top of that a form of elhers danlos, so the joints enjoy popping out regularly due to the lack of collagen in the ligaments.
I swear we have a cupboard specifically for braces for all parts of the body, crutches and varying medical aids.
It hurts me every day watching, and knowing I can't help |
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By (user no longer on site)
over a year ago
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I feel sorry for anyone that is in long term pain its no joke.
I suffer from Osteoarthritis in my foot ,lower back problems
and 2 whiplash injuries to my neck. been to pan rehab,chiropractor,craniosacral therapy,acupuncture.
I have tried a tens machine, heatpads,hot baths paracitamol,co-codamol,tramadol.diagnosed with chronic prostatitis.
So having loads of painkillers and the heatpads etc. i had a sports massageand he told me go swimming it will help .
He was right i go 4 times a week when i could not go swimming i had flare ups on pain killers etc
Scine the pools have been open again i have had 2 painkillers and that was that i had to drive the van with a manaul gear box
I hope this will hepl somebody with thee pain
Just been |
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