FabSwingers.com > Forums > Swinging Support and Advice > Chronic illness and Swinging/BDSM

Chronic illness and Swinging/BDSM

By (user no longer on site) OP over a year ago

Are there any fellow swingers or bdsm people who also suffer with chronic illness and how do you manage them both.

Ive had Fibromyalgia for nearly 10 years now and even though i get chronic pain with it the bdsm pain is different which I enjoy.

I manage it by rest and pain meds even though cannot wear my pain patch during swinging in case comes off etc. So its a longer recovery time.

Has anyone else got similar issues and how do you deal with swinging and BDSM

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By *orkie321bWoman over a year ago

Nottingham

I've got a condition called hidradenitis suppurativa and have had it since the age of 12.

When I get a flare up it stops all play completely. An excruciatingly painful swelling the size of a tennis ball in the groin, armpits or under boobs, fatigue and flu like symptoms kill my sex drive stone dead

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By (user no longer on site) OP over a year ago

I get the fatigue with the Fibro along with some other little things that happens.

Sadly my sex drive does go down from high just my body says no sometimes

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By *anillaguyMan over a year ago

Kingston

Diabetes, what a pain in the arse it is

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By (user no longer on site) over a year ago

Diagnosed with Crohn’s disease a couple of years ago.

Just avoid planning anything when I’m feeling shit, mainly fatigue but I try not to let it interfere as much as possible.

If it’s on full on flare up mode my social life becomes none existent nevermind Swinging

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By (user no longer on site) OP over a year ago

"Diagnosed with Crohn’s disease a couple of years ago.

Just avoid planning anything when I’m feeling shit, mainly fatigue but I try not to let it interfere as much as possible.

If it’s on full on flare up mode my social life becomes none existent nevermind Swinging

Whats a social life??

lol

Yeah when im in major flare mode my body goes dont care if horny so odd your going to sleep

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By (user no longer on site) over a year ago

Not quite the same as I don't suffer with any physical pain but I'm epileptic (controlled by medication) and suffer with depression and anxiety.

With the epilepsy I make sure people know before we do anything just to be on the safe side.

With the mental health I've learned various coping mechanisms over the past few years that have helped me get a handle on it.

Got to say that starting to explore the whole swinging scene has been brilliant for the mental health as it's been something new and exciting, even if as a single bloke on here it can be tough going sometimes lol.

Trips to spa's like BGHS and Rio's are now on my recovery plan as activities to help keep my mood up if I feel it dipping. Although I don't share any of this with the doctors when they ask me what I'm doing to keep myself well haha

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By (user no longer on site) OP over a year ago

Yeah I dont tell my GP about how I am relieving my depression..

Not sure swinging and BDSM are the things he wants to hear

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By (user no longer on site) over a year ago

"Yeah I dont tell my GP about how I am relieving my depression..

Not sure swinging and BDSM are the things he wants to hear"

Well when I went through my last course of therapy we were given a big list of about 50 suggested activities we could try to lift our mood. One of them was sex! But yeah I still won't mention it to my Gp or my mental health nurse etc. Especially as I'm trying to get back into paid work in mental health services and could end up working with some of the people who supported me in my recovery.

Well that's been some very random sharing for me tonight lol!

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By *wisted2000Woman over a year ago

under my rock cleethorpes

I’m into bdsm and have been since my early teens, I’ve also had depression and anxiety since a similar time period, as long as precautions are taken and everyone is aware of what’s going on it’s usually (although not always) ok

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By (user no longer on site) over a year ago

I also have fibromyalgia and ME which means I can't play as much as I'd like to.

I won't let it stop me fully but sometimes I just have to rest and recover.

I don't take any meds I manage it with my diet and regular Bowen therapy treatments. Bowen works better than any other pain relief I've tried.

Swinging also helps to lift my spirits and keep me enjoying life.

(Mrs)

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By (user no longer on site) OP over a year ago

Im sort of in the middle circle which is Fibro with aspects of ME and all the other crap etc.

Ive not looked at Bowen but I need to look at something with im on that many meds yet still in pain etc.

Swinging is new to me. Only went TH this sunday when 10 ppl there but luckily i arrange to meet somewhere there and just did 1-1.

Put down for Raw this friday over 150 ppl so that may be jumping in deep end.

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By (user no longer on site) over a year ago

I have MS and I just have to make sure I rest ahead of meeting and usually have to spend the next day in bed recovering. I think for me, it's a small price to pay.

I grab the fun while I can. Tomorrow it could be game over so I make sure I have as much as possibly within my limits

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By (user no longer on site) over a year ago

I've recently been diagnosed with long term sciatical nerve damage in my back which is a pain (literally

) even with medication obviously I don't want to stop playing on here but position wise it's painful so I'm trying to find the right balance of meds to control it but not walk round high as a kite

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By (user no longer on site) over a year ago

"I've recently been diagnosed with long term sciatical nerve damage in my back which is a pain (literally

) even with medication obviously I don't want to stop playing on here but position wise it's painful so I'm trying to find the right balance of meds to control it but not walk round high as a kite

The female half of the couple I should've added

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By (user no longer on site) OP over a year ago

[Removed by poster at 17/11/17 10:13:44]

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By *oreverHorny69Man over a year ago

Milnrow

Photosensitive Epilepsy is a real bummer and has led to prospective meets pulling out and blocking me

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By (user no longer on site) OP over a year ago

"I've recently been diagnosed with long term sciatical nerve damage in my back which is a pain (literally

) even with medication obviously I don't want to stop playing on here but position wise it's painful so I'm trying to find the right balance of meds to control it but not walk round high as a kite

Sorry to hear know how nerve damage pain is.

The balance of not being high but have meds working is an arse esp as all effect the brain chemistry of how pain is interpretted. I do get what i call "spacey" moment where you feel out of it but normally i can function.

Only just started swinging so ill see how my Fibro and meds and playing goes. May just need weeks to recover lol

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By *s_bettyboopWoman over a year ago

-3

"I've recently been diagnosed with long term sciatical nerve damage in my back which is a pain (literally

) even with medication obviously I don't want to stop playing on here but position wise it's painful so I'm trying to find the right balance of meds to control it but not walk round high as a kite

The female half of the couple I should've added

I have the same and a few other things wrong with my back. I ended up having a few months break off here as it was too painful to meet and was off work sick. I am now waiting for a operation. Hope it gets better for you! X

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By (user no longer on site) OP over a year ago

"Photosensitive Epilepsy is a real bummer and has led to prospective meets pulling out and blocking me

Thats silly. I was with a woman for 13 yrs who had epilepsy and had lots of triggers if its managed its fine.

I think people are still scared of it. Ok it can be scary to watch and people still try to stick fingers in mouth to protect tongue but i used to just leave her alone and make sure nothing around to hurt here and was there when woke up

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By *oreverHorny69Man over a year ago

Milnrow

Good for you SV glad to see that it’s not “the norm” My confidence is a bit shot atm though. Will be glad to get a few meets “under my belt” so to speak

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By (user no longer on site) OP over a year ago

"Good for you SV glad to see that it’s not “the norm” My confidence is a bit shot atm though. Will be glad to get a few meets “under my belt” so to speak"

Yeah im like that too. I have depression but have since teens and fibro since 30 and it gets knocked when you get people not wanting to be involved friendship or otherwise.

Hope you get some luck

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By *oreverHorny69Man over a year ago

Milnrow

You too mate

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By (user no longer on site) over a year ago

You see now I feel really terrible because where my epilepsy is mainly controlled I often don't thin to mention it when chatting before initial meets. I'm fortunate enough not to have any real triggers such as photo sensitivity and rarely ever have seizures nowadays. So it does tend to slip my mind sometimes. In future maybe I do need to try and mention it if someone's travelling a fair distance to me for a meet.

The main thing from my health issues that can cause a pain for my activities on here is not being able to drive. I'll never risk getting behind the wheel even if I go multiple years clear without seizures. Just makes it more of a pain when speaking to people who live a bit of a distance and getting to clubs etc.

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By *amiePhuktMan over a year ago

Bristol

"I have MS and I just have to make sure I rest ahead of meeting and usually have to spend the next day in bed recovering. I think for me, it's a small price to pay.

I grab the fun while I can. Tomorrow it could be game over so I make sure I have as much as possibly within my limits

Im exactly the same was diagnosed in oct last year, totally agree with your outlook

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By (user no longer on site) over a year ago

I hibernate in cold weather. It's really not worth the extra medication and after pain I have. I still see my long term and regular partners, because one lives very close and they both know my capabilities.

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By *hoenixAdAstraWoman over a year ago

Hiding in the shadows

I have a spinal/pelvic problems & nerve damage from a car crash 3yrs ago.

I have limited feeling down my right leg, and issues with my left arm.

My right hip has been known to pop out or my leg completely seize up in 'certain positions'

Quite amusing on a few occasions

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By *amiePhuktMan over a year ago

Bristol

"I have a spinal/pelvic problems & nerve damage from a car crash 3yrs ago.

I have limited feeling down my right leg, and issues with my left arm.

My right hip has been known to pop out or my leg completely seize up in 'certain positions'

Quite amusing on a few occasions

sorry to hear that

But also good that you keep a sense of humour about it

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By (user no longer on site) over a year ago

"I’m into bdsm and have been since my early teens, I’ve also had depression and anxiety since a similar time period, as long as precautions are taken and everyone is aware of what’s going on it’s usually (although not always) ok "
sub drop can cause a form of depression after a good bdsm session

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By (user no longer on site) over a year ago

"I have MS and I just have to make sure I rest ahead of meeting and usually have to spend the next day in bed recovering. I think for me, it's a small price to pay.

I grab the fun while I can. Tomorrow it could be game over so I make sure I have as much as possibly within my limits

Im exactly the same was diagnosed in oct last year, totally agree with your outlook

"
totally agree positive outlook too

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By *hoenixAdAstraWoman over a year ago

Hiding in the shadows

"I have a spinal/pelvic problems & nerve damage from a car crash 3yrs ago.

I have limited feeling down my right leg, and issues with my left arm.

My right hip has been known to pop out or my leg completely seize up in 'certain positions'

Quite amusing on a few occasions

sorry to hear that

But also good that you keep a sense of humour about it

When you're rolling round trying to pop back in a dislocated hip, you either laugh or cry.

Crying ruins my mascara, so I try to avoid it

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By *amiePhuktMan over a year ago

Bristol

"I have a spinal/pelvic problems & nerve damage from a car crash 3yrs ago.

I have limited feeling down my right leg, and issues with my left arm.

My right hip has been known to pop out or my leg completely seize up in 'certain positions'

Quite amusing on a few occasions

sorry to hear that

But also good that you keep a sense of humour about it

When you're rolling round trying to pop back in a dislocated hip, you either laugh or cry.

Crying ruins my mascara, so I try to avoid it

Cant even begin to imagine !! My legs gave way last year and i twisted a ligament in my knee that was painful enough lol !!

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By (user no longer on site) over a year ago

"I have MS and I just have to make sure I rest ahead of meeting and usually have to spend the next day in bed recovering. I think for me, it's a small price to pay.

I grab the fun while I can. Tomorrow it could be game over so I make sure I have as much as possibly within my limits

Im exactly the same was diagnosed in oct last year, totally agree with your outlook

It's a bugger isn't it? Never knowing how you are going to feel on any given day. Keep smiling warrior

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By *anillaguyMan over a year ago

Kingston

Surprised I am the only diabetic to comment in this thread

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By (user no longer on site) over a year ago

I too have fibromyalgia and ME. I also have rheumatoid arthritis and when I get a flare up, I'm out of action for weeks.

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By *orkie321bWoman over a year ago

Nottingham

"Surprised I am the only diabetic to comment in this thread "

I have type 2 diabetes but it doesn't have much impact on my daily life or swinging. I control my diabetes without any medication and i don't get hypos. The only real impact is thirst so as a consequence I have to pee more frequently.

I assume if you have type one diabetes it means a much bigger impact on daily life and play.

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By *anillaguyMan over a year ago

Kingston

"Surprised I am the only diabetic to comment in this thread

I assume if you have type one diabetes it means a much bigger impact on daily life and play."

Sadly, yes

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By *eviantdeliteWoman over a year ago

Cheltenham

I had a stroke in Dec 2015, and only just back on Fab now after having massive confidence issues and constant fatigue(and being left with a naughty hand lol) ....dating/swinging before would have been a no go as any stress in social situations results in my speech skills being poor...speaking slowly, aphasia etc... one on one now I am fine but club situations are difficult (I do not even go out for meals/clubs with friends in vanilla life) but fingers crossed with my super vigilant and attentive playmate we will experience it again....although he has recently been very ill

at least all his faculties are still very much on point x

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By *s ParisWoman over a year ago

My Dungeon Room

I have chronic osteoarthritis in all my joints my legs are the worst and recently i am diagnosed with Ms I've been on the bdsm scene myself almost 30yrs but no longer active on the swing scene or bdsm scene as a lot of people are not very understanding or accepting of my illness and disability so don't want to meet me but thats totally there perogative and preference and they are very much entitled to it, but I quit completely last year just wasn't worth some of the messages and reactions I got. So now I enjoy coming online chatting to friends I know and chatting here In the forums my very best wishes to everyone here that has any type of illness I wish you all the best keep battling on guys

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By *amiePhuktMan over a year ago

Bristol

"I have MS and I just have to make sure I rest ahead of meeting and usually have to spend the next day in bed recovering. I think for me, it's a small price to pay.

I grab the fun while I can. Tomorrow it could be game over so I make sure I have as much as possibly within my limits

Im exactly the same was diagnosed in oct last year, totally agree with your outlook

It's a bugger isn't it? Never knowing how you are going to feel on any given day. Keep smiling warrior

xx"

Yeh it is

Have just slept for 15 hrs !!! Must of needed it lol, quiet weekend for me i think lol x

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By *r C Miss CCouple over a year ago

llanelli

Miss c has bi-lateral lower leg spasticity type 2 with full body muscule spasms.

Some days she cant walk other days she has to use walking sticks then theres days when you wouldnt beleive there is anything wrong with her.

Shes prescribed 110mg morphine sulphate tablets slow release twice a day they last 12hrs there very stong, but she also has to take other meds for break through pain.

So arranging meets in advance is almost impossible for us as we never know in advance if shes going to have a good day. So now we just make the most of it when she does have a good day and play and party hard.

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By (user no longer on site) over a year ago

"I've recently been diagnosed with long term sciatical nerve damage in my back which is a pain (literally

) even with medication obviously I don't want to stop playing on here but position wise it's painful so I'm trying to find the right balance of meds to control it but not walk round high as a kite

Sorry to hear know how nerve damage pain is.

Only just started swinging so ill see how my Fibro and meds and playing goes. May just need weeks to recover lol"

Atm if not spaced out, I'm asleep or they've worn off and I'm in pain lol x

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By (user no longer on site) over a year ago

"I've recently been diagnosed with long term sciatical nerve damage in my back which is a pain (literally

) even with medication obviously I don't want to stop playing on here but position wise it's painful so I'm trying to find the right balance of meds to control it but not walk round high as a kite

The female half of the couple I should've added

So do I

the drs aren't much help they have the view take the meds and phone an ambulance if you can't feel your legs

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By *amiePhuktMan over a year ago

Bristol

Am sending hugs and love to all fellow sufferers on here, we are all dealing with really hard stuff but its great to see support , understanding and care for our fellow lifestylers / humans

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By *itch n BollockCouple over a year ago

Leeds

Male half of couple suffers from Chron's, Ankolosing Spondylitis and depression. All diagnosed more or less at the same time.

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By *isaB45Woman over a year ago

Fabville

I have a chonic lung condition, which has been rather unstable since last summer. Seems to be better under control now, but only because of lots of drugs, and leaves me very tired.

I don't participate in any breath control/ gagging etc, needless to say

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By *s_bettyboopWoman over a year ago

-3

"I've recently been diagnosed with long term sciatical nerve damage in my back which is a pain (literally

) even with medication obviously I don't want to stop playing on here but position wise it's painful so I'm trying to find the right balance of meds to control it but not walk round high as a kite

The female half of the couple I should've added

So do I

the drs aren't much help they have the view take the meds and phone an ambulance if you can't feel your legs

Said the same to me as well. If I get pins and needles in my legs straight to hospital.

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By (user no longer on site) over a year ago

"I also have fibromyalgia and ME which means I can't play as much as I'd like to.

I won't let it stop me fully but sometimes I just have to rest and recover.

I don't take any meds I manage it with my diet and regular Bowen therapy treatments. Bowen works better than any other pain relief I've tried.

Swinging also helps to lift my spirits and keep me enjoying life.

(Mrs)"

I've heard great things about Bowen but always feel apprehensive about how expensive all the regular treatments would be when I return tried so many other things which may have helped but not significantly enough to be worth the cost

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By (user no longer on site) OP over a year ago

"I also have fibromyalgia and ME which means I can't play as much as I'd like to.

I won't let it stop me fully but sometimes I just have to rest and recover.

I don't take any meds I manage it with my diet and regular Bowen therapy treatments. Bowen works better than any other pain relief I've tried.

Swinging also helps to lift my spirits and keep me enjoying life.

(Mrs)

Thats a big issue is cost and then if it doesnt help x amount has been spent and then back on meds or nothing

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By (user no longer on site) over a year ago

Fibromyalgia, hypothyroid, plmd , rls, rem behaviour disorder and apnoea here oh and 1 kidney lol

I find sex is the best medicine as I only sleep for 2 hours at a time unless I get an endorphin rush which can take it up to 4 hours if I'm lucky

I'm on pain meds and cbd I still hurt but I deal with it my biggest problem is my memory loss caused by chronic sleep deprivation and added fibro fog, most days I can't remember any significant info my kids birthdays etc, tonight I made myself 3 cups of tea but I don't drink tea ! I rarely know what day it is and I forget what I'm saying a lot.

Just by raising the amount of sleep I can get to 4 hours can reverse this for a day and make me feel brand new

Endorphin rushes are powerful things that can help with depression so be kind if your friend is depressed offer to fuck them

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By (user no longer on site) OP over a year ago

"Fibromyalgia, hypothyroid, plmd , rls, rem behaviour disorder and apnoea here oh and 1 kidney lol

I find sex is the best medicine as I only sleep for 2 hours at a time unless I get an endorphin rush which can take it up to 4 hours if I'm lucky

Just by raising the amount of sleep I can get to 4 hours can reverse this for a day and make me feel brand new

Endorphin rushes are powerful things that can help with depression so be kind if your friend is depressed offer to fuck them

Lol i need a friend like that lol.

Depression 25yrs plus all the Fibro stuff you mentioned and i didnt know there was more than 2hrs sleep a night.

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By (user no longer on site) over a year ago

[Removed by poster at 20/11/17 18:52:22]

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By (user no longer on site) over a year ago

Hi renal failure here to failed transplants bladder cancer due to imusupresent drugs.dialysis 3 times a week for 4.5 hours.but never Stop me playing life is life enjoy it.just got to adjust.I do get down.but think to myself I'm getting treated.so think myself lucky.

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By (user no longer on site) over a year ago

So pleased to have stumbled across this thread! I got diagnosed with fibro and M.E last year and also suffer with anxiety and panic attacks. Would love to hear any hints or tips on how you guys with these conditions manage the fun side of fab to

feel free to message me

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By (user no longer on site) over a year ago

2 fuck off cases of cancer in 18 months checking in...... but the fucker got beaten

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By *amiePhuktMan over a year ago

Bristol

"2 fuck off cases of cancer in 18 months checking in...... but the fucker got beaten

Awesome

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By *ools and the brainCouple over a year ago

couple, us we him her.

I have athletes foot.

I don't even run!

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By (user no longer on site) over a year ago

Love your attitude!

Xxxx

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By (user no longer on site) over a year ago

Sending massive hugs and hi fives to you awsome sexy people!

I'm a broken too! (fibro)

Looks like I'm in excellent company. Xx

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By *oreverHorny69Man over a year ago

Milnrow

We are all here to support each other and any other swingers who have hidden and not so hidden illnesses and disabilities. I’m always available for a chat on here or kik

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By *hepostman22Man over a year ago

Crewe

Finally been diagnosed as to having a form of Ulcerative colitis. Don’t know much about what it is but spent 10 days in hospital and still waiting for follow up appts after being on a shit load of steroids. It’d be ok if I worked out I’d be bloody massive! Quite embarrassing at the best of times though!

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By (user no longer on site) over a year ago

"Finally been diagnosed as to having a form of Ulcerative colitis. Don’t know much about what it is but spent 10 days in hospital and still waiting for follow up appts after being on a shit load of steroids. It’d be ok if I worked out I’d be bloody massive! Quite embarrassing at the best of times though!"

Ask about azathioprine

The steroids they use to treat UC are fucking awful.

I’ve done two courses of the steroids, 8 tablets a day for a week then drop down a tablet each week.

Hated them, they do work but they’re harsh

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By *uicy72Woman over a year ago

North Colchester

As already mentioned.........

For me the best medicine is sex !

Since discovering fabswingers I am

Enjoying feeling liberated

and loosing my inhibitions in clubs and at parties!

Makes me feel alive and feel like ‘ME’

I have many of the above illnesses !

Fibromyalgia won’t beat me

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By *oreverHorny69Man over a year ago

Milnrow

"As already mentioned.........

For me the best medicine is sex !

Since discovering fabswingers I am

Enjoying feeling liberated

and loosing my inhibitions in clubs and at parties!

Makes me feel alive and feel like ‘ME’

I have many of the above illnesses !

Fibromyalgia won’t beat me

Good for you sweetie xx

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By (user no longer on site) over a year ago

I have a chronic illness and until recently i also worked full time plus we are swingers. I find it difficult to get the balance right and spend a lot of time in pain and completely knackered, so much so that i am often shaking with exhaustion. However that's caused by work not swinging and i'm lucky enough to have just been able to reduce from working 5 days a week to 4 days a week. Hopefully that will help although i think it may have happened to late because it took my work 3 years to agree to a reduction in my working hours ! Sadly our swinging life has come to a virtual standstill now because i'm to tired to even bother to try to find any guys to meet

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By *hepostman22Man over a year ago

Crewe

Thank you I’ll see if I can sort some of them.

You’re right the roids worked brilliantly but once the course stops, I’m back to square one!

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By (user no longer on site) over a year ago

Just coming back to this thread a few days after posting about my own health issues.

Really great to see the all the positive posts and offers of support. Makes a nice change from some of the more negative threads that often come up on the Fab Forums.

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By (user no longer on site) over a year ago

I have M.E. and quite possibly fibro but not diagnosed, obviously swing.....

It does cause me problems because I suffer from both physical and mental fatigue.

When I start to go into fatigue, I can tell quite easily as I sweat perfusley, I find it hard to cum and that in some people’s eyes means I’m not enjoying myself or don’t fancy them. But they could not be more wrong.

A chronic illness is not the be and end all

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By *eviantdeliteWoman over a year ago

Cheltenham

"I have M.E. and quite possibly fibro but not diagnosed, obviously swing.....

It does cause me problems because I suffer from both physical and mental fatigue.

A chronic illness is not the be and end all

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By *illupMan over a year ago

Stoke-on-Trent

"2 fuck off cases of cancer in 18 months checking in...... but the fucker got beaten

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By *RnMrsFreakCouple over a year ago

Hull,England

"Are there any fellow swingers or bdsm people who also suffer with chronic illness and how do you manage them both.

Ive had Fibromyalgia for nearly 10 years now and even though i get chronic pain with it the bdsm pain is different which I enjoy.

I manage it by rest and pain meds even though cannot wear my pain patch during swinging in case comes off etc. So its a longer recovery time.

Has anyone else got similar issues and how do you deal with swinging and BDSM"

We know at least two other swingers with your condition, and like you they have on periods and off periods but they still have fun when they can. We've met so many people with such a variety of ailments that it's almost become normal.

Mrs Has achondroplasia and is arthritic and Mr has mitochondrial myopathy CPEO, which is a chronic muscle wasting illness. We still have fun! Although it's harder to find couples to play with. There's not much in the way of treatment and we have both suffered bouts of depression. We have the same GP and he knows everything really which helps as we don't have to lie.

Getting into the scene and going out to meet the many friends we've made really helps, and with grown teens it gives us both a common passtime now we're not needed in the nest, win win.

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By *laytimetwoCouple over a year ago

Staines

Was good reading this thread, it’s nice to see the help and support given by all.

I was diagnosed with sevear COPD, which is bad lung condition, been on medication since then, lots of courses of steroids which are good but come with bad side affects, it’s always worse in winter and the cold weather.

Earlier this year I had a bad chest infection known as a flare up, it so bad that it lead to heart failure, that put my heart out of sinus rythum into one called fast AF ( Arterial Fibulation ) was rushed into hospital, two heart operations later, was sent home on loads of medication with a do and don’t list as long as your arm, but slowly I have improved, so now I’m back swinging with my partner, who was my rock. I am lucky because my cardiac nurse was fantastic, nothing happened between us, but the banter was fantastic and talking openly to her about sex was a big help.

I wish you all well and happy swinging. XxX

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By (user no longer on site) over a year ago

So many people with chronic conditions out there

I've had mine a few years now.... diagnosed with HIV which was a shock at the time and took some time to come to terms with. On medication and feeling good now...the virus is totally suppressed which means I cannot pass it on at all.

I have to take two pills a day, but other than that no problems (apart from stigma of course!)

Good luck and big hugs to all who suffer with chronic conditions

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By (user no longer on site) over a year ago

"So many people with chronic conditions out there

I have to take two pills a day, but other than that no problems (apart from stigma of course!)

Sorry to hear that

But why the hell are you offering bareback sex ?

Good luck and big hugs to all who suffer with chronic conditions"

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By *inkerbell67Woman over a year ago

Clacton on sea essex

I have fibromyalgia and 2 auto immune system problems I just deal with it and get on with my life and dont moan about it ..

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By (user no longer on site) over a year ago

"So many people with chronic conditions out there

I have to take two pills a day, but other than that no problems (apart from stigma of course!)

Sorry to hear that

But why the hell are you offering bareback sex ?

Good luck and big hugs to all who suffer with chronic conditions"

It's the only way I have ever played... hence being HIV positive now.... but being on medication and undetectable means I cannot pass the virus on... actually makes me safer than people who randomly fuck bare without knowing their status.... of course I am still susceptible to other STI's

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By *laytimetwoCouple over a year ago

Staines

[Removed by poster at 21/11/17 13:28:17]

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By *laytimetwoCouple over a year ago

Staines

"[Removed by poster at 21/11/17 13:27:39]"

Wish you all the best, I personally wasn’t moaning, just sharing things with other people with chronic conditions, but are still able to a full life with swinging as a bonus.

Happy swinging. X

Love your pictures

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By (user no longer on site) over a year ago

Sending gentle hugs to everyone

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By *orkie321bWoman over a year ago

Nottingham

"So many people with chronic conditions out there

I have to take two pills a day, but other than that no problems (apart from stigma of course!)

Sorry to hear that

But why the hell are you offering bareback sex ?

Good luck and big hugs to all who suffer with chronic conditions

Just because you have always been irresponsible with your own and other peoples sexual health doesn't mean it is ok to still do so.

The virus might be suppressed at the moment but there is no guarantee it will stay that way. The virus may reactivate and you may be unaware until your next medical check up that this is the case.

Do you make your sexual partners aware that you have the virus so they can make an informed decision? If you don't and you do pass it on you may be prosecuted for it. People have been jailed for this.

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By (user no longer on site) over a year ago

"So many people with chronic conditions out there

I have to take two pills a day, but other than that no problems (apart from stigma of course!)

Sorry to hear that

But why the hell are you offering bareback sex ?

Good luck and big hugs to all who suffer with chronic conditions

Just because you have always been irresponsible with your own and other peoples sexual health doesn't mean it is ok to still do so.

The virus might be suppressed at the moment but there is no guarantee it will stay that way. The virus may reactivate and you may be unaware until your next medical check up that this is the case.

Yes I do inform any partner.... and many have educated themselves and are happy to play, the virus will not "reactivate" as long as I am adherent to medication, which I am, thus I am not infectious to others. For more information look up the PARTNER study or U=U (Undetectable = Untransmittable) Treatment has come a long way....this is no longer the 1980's

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By (user no longer on site) OP over a year ago

"So many people with chronic conditions out there

I have to take two pills a day, but other than that no problems (apart from stigma of course!)

Sorry to hear that

But why the hell are you offering bareback sex ?

Good luck and big hugs to all who suffer with chronic conditions

Just because you have always been irresponsible with your own and other peoples sexual health doesn't mean it is ok to still do so.

The virus might be suppressed at the moment but there is no guarantee it will stay that way. The virus may reactivate and you may be unaware until your next medical check up that this is the case.

Even if all this is correct there is still a chance however small it is the meds dont work and pass it on. Surely using protection is just good practise and making sure safe.

Its fkin irresponsible to believe its fine to still bareback

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By (user no longer on site) over a year ago

"So many people with chronic conditions out there

I have to take two pills a day, but other than that no problems (apart from stigma of course!)

Sorry to hear that

But why the hell are you offering bareback sex ?

Good luck and big hugs to all who suffer with chronic conditions

Just because you have always been irresponsible with your own and other peoples sexual health doesn't mean it is ok to still do so.

The virus might be suppressed at the moment but there is no guarantee it will stay that way. The virus may reactivate and you may be unaware until your next medical check up that this is the case.

Even if all this is correct there is still a chance however small it is the meds dont work and pass it on. Surely using protection is just good practise and making sure safe.

Its fkin irresponsible to believe its fine to still bareback"

This is a thread about chronic conditions which I have contributed to.

Yes there is a chance of other STI's but not HIV.... I respectfully suggest updating your knowledge on the subject

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By (user no longer on site) over a year ago

"Are there any fellow swingers or bdsm people who also suffer with chronic illness and how do you manage them both.

Ive had Fibromyalgia for nearly 10 years now and even though i get chronic pain with it the bdsm pain is different which I enjoy.

I manage it by rest and pain meds even though cannot wear my pain patch during swinging in case comes off etc. So its a longer recovery time.

Has anyone else got similar issues and how do you deal with swinging and BDSM"

Hey, I (mrs) have had a few health problems and I actually have fibromyalgia myself. I can go on a night out to a club but will pay for it the next day. Even if I go out on a vanilla night I have a whole day or 2 recovering as the pain is awful. The fatigue is herrendous as you know so sometimes it gets to me. I try not let it effect my social life otherwise I'd sink into an even further depression. I am currently switching medication over as I've had different types and nothing's helped. X

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By (user no longer on site) over a year ago

"Are there any fellow swingers or bdsm people who also suffer with chronic illness and how do you manage them both.

Ive had Fibromyalgia for nearly 10 years now and even though i get chronic pain with it the bdsm pain is different which I enjoy.

I manage it by rest and pain meds even though cannot wear my pain patch during swinging in case comes off etc. So its a longer recovery time.

Has anyone else got similar issues and how do you deal with swinging and BDSM

This is the same as me (female), I have EDS and I appear perfectly normal all night out and then will often end up laid up in bed for a day or more - it was almost a week last time after two nights out but I don’t let it stop me. Luckily I work from home so can still work even when pretty much bed bound so I keep going.

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By *ink magnolia s yorksWoman over a year ago

south yorkshire

I have ehlers danlos and dislocate joints all the time, my fbs and subs are just used to it now. But having very bendy joints has its uses, bendy fingers are great for prostate massage

The pain isn't fun though or the exhaustion, trying to cum when on a lot of pain medication can be damn frustrating too.
"I have a spinal/pelvic problems & nerve damage from a car crash 3yrs ago.

I have limited feeling down my right leg, and issues with my left arm.

My right hip has been known to pop out or my leg completely seize up in 'certain positions'

Quite amusing on a few occasions

sorry to hear that

But also good that you keep a sense of humour about it

When you're rolling round trying to pop back in a dislocated hip, you either laugh or cry.

Crying ruins my mascara, so I try to avoid it

Cant even begin to imagine !! My legs gave way last year and i twisted a ligament in my knee that was painful enough lol !! "

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By *ink magnolia s yorksWoman over a year ago

south yorkshire

Now I'm impressed someone else with eds... waves like a nut case!

I find that people don't get it that I'm online but maybe in agony so last too want is to meet them and their mates to satisfy their fantasy, if I'm awake in the early hours I'm asked why I'm awake if I say why at least 75% offer me a damn massage! No thanks, I already hurt I don't need anyone causing me more pain. I get loads of 'tips' to help me sleep too or to stop the pain sheesh, drives me mad x

"Are there any fellow swingers or bdsm people who also suffer with chronic illness and how do you manage them both.

Ive had Fibromyalgia for nearly 10 years now and even though i get chronic pain with it the bdsm pain is different which I enjoy.

I manage it by rest and pain meds even though cannot wear my pain patch during swinging in case comes off etc. So its a longer recovery time.

Has anyone else got similar issues and how do you deal with swinging and BDSM

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By *ay19720Man over a year ago

Ashford kent

Recently diagnosed with lymphoma (blood cancer)...but even esa say im fit for work..lol so ..life as normal ..lol

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By (user no longer on site) OP over a year ago

"Recently diagnosed with lymphoma (blood cancer)...but even esa say im fit for work..lol so ..life as normal ..lol"

Dont get me started on dwp as its taken then 10 months to basically tell me im lying on my pip forms and believe the assessor even after we sent 14 pages of innacuracy and witness statements who went with me

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By *oonshadowsCouple over a year ago

Lytham St Annes

Joints popping out here too

I (Mrs) has Hypermobility Syndrome with pressure palsies and a good handful of other things that make life painful and exhausting or leave me feeling pants depending on which kicks in the hardest

I’ve had to ‘retire’ from subbing as it got too frustrating but manage to meet some of those needs through swinging - have to say lots of friends will be at Raw so have a great time OP x

I have to make sure we don’t make too many plans when i’m having a good day that we then have to cancel when I crash and that we stick to really strict diary planning so that I don’t over do it with nilla stuff and miss out on play - even then we regularly go quiet for a couple of months

Biggest frustration for me (well other than when I can’t cum) is having to cancel at the last minute - Mr misses out and we feel bad on the others - we’ve taken to meeting at clubs then at least everyone else can have fun and hopefully I’m up to going and watching xx

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By *ay19720Man over a year ago

Ashford kent

"Recently diagnosed with lymphoma (blood cancer)...but even esa say im fit for work..lol so ..life as normal ..lol

Well ive decided to be like del boy....I.ll ask for nothing ...but they can have nothing eva..lol

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By *ornylady71Woman over a year ago

near Bury

"Diagnosed with Crohn’s disease a couple of years ago.

Just avoid planning anything when I’m feeling shit, mainly fatigue but I try not to let it interfere as much as possible.

If it’s on full on flare up mode my social life becomes none existent nevermind Swinging

I have colitis so I know what you mean, it causes havoc wiv my fab life sometimes!

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By (user no longer on site) over a year ago

Any ladies here with Crohn's?

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By *ornylady71Woman over a year ago

near Bury

"Any ladies here with Crohn's?"

I have ulcerative colitis which if very similar

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By (user no longer on site) over a year ago

"Any ladies here with Crohn's?

I have ulcerative colitis which if very similar

Hi! Can you inbox me? Can't seem to message you xx

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By (user no longer on site) over a year ago

Fibromyalgia, ME and MdDS here (fem)

Any sufferers of any please feel free to message us x

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By (user no longer on site) over a year ago

Crohn's for 30 years...... woooo hooooo

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By *eviantdeliteWoman over a year ago

Cheltenham

"So many people with chronic conditions out there

I have to take two pills a day, but other than that no problems (apart from stigma of course!)

Sorry to hear that

But why the hell are you offering bareback sex ?

Good luck and big hugs to all who suffer with chronic conditions

?? If you bareback with everyone you meet, then HIV or not you can still pass on other STI’s....in fact the HIV is almost irrelevant....it is the fact that you are gambling with others sexual health....you gambled with your own...and unfortunately for you, you paid the price.....for which I am sorry to hear....but to continue this gamble now with others health is just plain irresponsible.....but this is of course just my own opinion....

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By *omis.69Man over a year ago

Birmingham

PTSD diagnosed after ignoring it for 20 odd years and thinking I was "normal"

Not all disabilities are visual or physical.

But like everyone else on this forum.. got to adjust with the condition, adapt and not let it control you !

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By *eviantdeliteWoman over a year ago

Cheltenham

"PTSD diagnosed after ignoring it for 20 odd years and thinking I was "normal"

Not all disabilities are visual or physical.

But like everyone else on this forum.. got to adjust with the condition, adapt and not let it control you !"

I look normal, but walking around with part of my brain dead....I hide it well as had lots of working brain to spare and have a high functioning, very neuroplastic brain

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By *omis.69Man over a year ago

Birmingham

"PTSD diagnosed after ignoring it for 20 odd years and thinking I was "normal"

Not all disabilities are visual or physical.

But like everyone else on this forum.. got to adjust with the condition, adapt and not let it control you !

I look normal, but walking around with part of my brain dead....I hide it well as had lots of

working brain to spare and have a high functioning, very neuroplastic brain

Good for you!!

Like I said don't let the condition control !

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By *eviantdeliteWoman over a year ago

Cheltenham

"PTSD diagnosed after ignoring it for 20 odd years and thinking I was "normal"

Not all disabilities are visual or physical.

But like everyone else on this forum.. got to adjust with the condition, adapt and not let it control you !

I look normal, but walking around with part of my brain dead....I hide it well as had lots of

working brain to spare and have a high functioning, very neuroplastic brain

Good for you!!

Like I said don't let the condition control !

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By (user no longer on site) over a year ago

"So many people with chronic conditions out there

I have to take two pills a day, but other than that no problems (apart from stigma of course!)

Sorry to hear that

But why the hell are you offering bareback sex ?

Good luck and big hugs to all who suffer with chronic conditions

I respect your views...and yes HIV is pretty much irrelevant.... I am totally upfront with my wants and status which, sadly some people aren't, but I won't go there! We are all consensual adults, I am not gambling with others health, that is their choice...we are all aware of risks....some take them, some don't.

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By *eviantdeliteWoman over a year ago

Cheltenham

"So many people with chronic conditions out there

I have to take two pills a day, but other than that no problems (apart from stigma of course!)

Sorry to hear that

But why the hell are you offering bareback sex ?

Good luck and big hugs to all who suffer with chronic conditions

I was harsh....I apologise....I did not read your profile first x

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By (user no longer on site) over a year ago

"So many people with chronic conditions out there

I have to take two pills a day, but other than that no problems (apart from stigma of course!)

Sorry to hear that

But why the hell are you offering bareback sex ?

Good luck and big hugs to all who suffer with chronic conditions

I was harsh....I apologise....I did not read your profile first x

No problem...very kind of you x

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By *oodmessMan over a year ago

yumsville

So glad you posted this thread. I suffer with fatigue or what's known as ME. My meets have decreased to zero over the last few years, a large part due to my condition, part focussing on my health and sorting out a few obstacles. It's an annoying thing knowing you were meeting several days a week to now not. It's good to see people are actively meeting and enjoying themselves.

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By (user no longer on site) over a year ago

"Now I'm impressed someone else with eds... waves like a nut case!

Are there any fellow swingers or bdsm people who also suffer with chronic illness and how do you manage them both.

Ive had Fibromyalgia for nearly 10 years now and even though i get chronic pain with it the bdsm pain is different which I enjoy.

I manage it by rest and pain meds even though cannot wear my pain patch during swinging in case comes off etc. So its a longer recovery time.

Has anyone else got similar issues and how do you deal with swinging and BDSM

I always love finding other zebras! (Even though I wouldn’t wish it on anyone!)

My favourite is “you need to stretch it out” when my stretchy is what has caused the pain in the first place!

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By (user no longer on site) over a year ago

Another MS'er here *waves

I play when I can , and rest when I can't. I know that a night at a club usually leads to several days of rest,and upping the meds, but its worth it. There may come a time I can't do it , but until then I'm enjoying myself xx

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By *donielMan over a year ago

Liverpool

Chronic diverticular disease for the last few year. Pain, depression and toiletry issues. You cant predict when one are all issues will hit you. Not the creates turn on. Issues returning despite complete anterior resecton.?? it is a pain in the arse!!!

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By *amiePhuktMan over a year ago

Bristol

"Another MS'er here *waves

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By (user no longer on site) over a year ago

"Another MS'er here *waves

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By (user no longer on site) over a year ago

"I have MS and I just have to make sure I rest ahead of meeting and usually have to spend the next day in bed recovering. I think for me, it's a small price to pay.

I grab the fun while I can. Tomorrow it could be game over so I make sure I have as much as possibly within my limits

Same here and yes grasp.every day. .

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By (user no longer on site) over a year ago

Nice to see ms ers and all you other folks with illnesses being so positive. ..it's easy to slump into negatives but it's inspirational to see you all upbeat x

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By (user no longer on site) over a year ago

Did anyone see the programme about cannabis for medical use with the celebs trying it out ?

Would this help anyone ? Just with so many lovely people suffering if it would help why won't legal medical taking of it help for pain etc ??

Oh apart from all the companies who make loads out of suffering ?

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By (user no longer on site) OP over a year ago

I know some who use cbd in vapes etc or drops on tongue but not tried it myself they say it helps them a lot but like anything what works for 1 doesnt someone else

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By (user no longer on site) over a year ago

Think that if it controlled there could be a helpful element to ease people's suffering ?

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By (user no longer on site) over a year ago

Sadly CBD did nothing to help me, but it really helped a friend who has a different disease.

I need the THC to relieve my symptoms which is illegal. Ridiculous that laws are broken just to relieve pain. Hopefully this will change in the near future..

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By *amiePhuktMan over a year ago

Bristol

Have been considering trying the CBD oil but still unsure on the whole vape thing lol, it has been proven though that THC does really help with MS and other diseases

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By (user no longer on site) over a year ago

Long term asthmatic slowly turning to COPD so this can affect my performance on the night!

Some say heavy breathing turns them on... I just want air!

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By (user no longer on site) over a year ago

Have enjoyed reading this thread as it shows the very human side, real and empathetic side of the forum which is rarely seen.

Celestine x

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By (user no longer on site) over a year ago

"Long term asthmatic slowly turning to COPD so this can affect my performance on the night!

Some say heavy breathing turns them on... I just want air! "

Same here

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By *RnMrsFreakCouple over a year ago

Hull,England

"Have been considering trying the CBD oil but still unsure on the whole vape thing lol, it has been proven though that THC does really help with MS and other diseases

The various cannabis oils are truly wonderous in their ability to help with so many conditons, a quick scan through youtube gives enough real life testament for it.

My mum in her late 60's has debilitating arthritis and this year had a bad flare up that left her bedbound for months. I eventually found her some oral CBD oil from Endoca in Holland, perfectly legal, and got her to use it. Just a couple of drops under the tongue a couple of times a day. She is now out of bed and back volunteering at her local charity shop.

I personally smoke cannabis to kerb muscle pain. I have never heard a reasonable argument against it, this stuff should be growing by the roadside, don't ever be fearful of trying this harmless, medicinal plant. It was only ever banned for political reasons

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By (user no longer on site) over a year ago

I’ve had Crohns for 17 years now!

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By (user no longer on site) OP over a year ago

"Have been considering trying the CBD oil but still unsure on the whole vape thing lol, it has been proven though that THC does really help with MS and other diseases

The various cannabis oils are truly wonderous in their ability to help with so many conditons, a quick scan through youtube gives enough real life testament for it.

I do remember it being declassified for short while in 2000s as i guy walked out of work and smoked a huge fatty then it got reclassified and banned.

Walking around every tom dick and harry is smoking skunk these days the streets reek of it. They may as well legalise it

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By *gentlovedayWoman over a year ago

Tranmere

"Yeah I dont tell my GP about how I am relieving my depression..

Not sure swinging and BDSM are the things he wants to hear"

tell him is alternative therapy that's what it says on the main door at town house

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By *ndyehelenCouple over a year ago

stoke on trent

Helen was diagnosed with breast cancer 4 years ago and had to have a mastectomy since then we have struggled to meet anyone at all. So that’s how we cope with serious illness.

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By (user no longer on site) over a year ago

"Diagnosed with Crohn’s disease a couple of years ago.

Just avoid planning anything when I’m feeling shit, mainly fatigue but I try not to let it interfere as much as possible.

If it’s on full on flare up mode my social life becomes none existent nevermind Swinging

Ditto. All about taking it one day at a time and hoping others understand how sporadic things can be.

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By (user no longer on site) over a year ago

"Helen was diagnosed with breast cancer 4 years ago and had to have a mastectomy since then we have struggled to meet anyone at all. So that’s how we cope with serious illness.

Feel your pain.

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By *izadoCouple over a year ago

Keighley

I (male) have Sarcoidosis, which in real terms doesn't effect my day to day life.

But at one point when diagnosed did have me thinking being knackered all the time was part of getting older.

Looking at this thread nice to see I'm the only one with it so far

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By (user no longer on site) OP over a year ago

Its not the pain of Fibromyalgia that is the kicker its all the little shitty stuff that comes with it like fatigue, restless limbs, cosocondrytis (sp) IBS and if had depression before made worse.

I know if I go out my body is cabbaged for a good week or more to the point at sometime it will just go nope not working at all today

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By (user no longer on site) over a year ago

Have a hole in my heart. Get tired easily, palpitations. Blood pressure usually low but high at mom

Often just feel odd lol. Depression too

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By *amiePhuktMan over a year ago

Bristol

Im so overwhelmed at all the love and empathy for all of us that suffer, it truly re energises my feelings of of love for our fellow humans, something that is distinctly lacking in this world, i do truly send my thoughts and love to all of the people on here that suffer/ struggle etc, it makes me proud to know that there are people out there that understand/accept others and their struggles.

Life is for living, whatever your flaws / challenges etc we are all still human and bonded by that, but it takes a real person to see beyond whats in front of them and have a true understanding of what it means to be human

Sorry if thats deep but those that get it will understand

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By *ve 66Woman over a year ago

Blackwood

"You see now I feel really terrible because where my epilepsy is mainly controlled I often don't thin to mention it when chatting before initial meets. I'm fortunate enough not to have any real triggers such as photo sensitivity and rarely ever have seizures nowadays. So it does tend to slip my mind sometimes. In future maybe I do need to try and mention it if someone's travelling a fair distance to me for a meet.

I'm a controlled epileptic well for past 5 years. Don't tell anyone cos I get a warning if I'm gonna have one. So male sure I ain't got nothing on my mouth

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By (user no longer on site) over a year ago

"Im so overwhelmed at all the love and empathy for all of us that suffer, it truly re energises my feelings of of love for our fellow humans, something that is distinctly lacking in this world, i do truly send my thoughts and love to all of the people on here that suffer/ struggle etc, it makes me proud to know that there are people out there that understand/accept others and their struggles.

Sorry if thats deep but those that get it will understand

Here here.

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By (user no longer on site) over a year ago

"So glad you posted this thread. I suffer with fatigue or what's known as ME. My meets have decreased to zero over the last few years, a large part due to my condition, part focussing on my health and sorting out a few obstacles. It's an annoying thing knowing you were meeting several days a week to now not. It's good to see people are actively meeting and enjoying themselves. "

Have you been fully diagnosed? Have you attended a ME CFS course?

Did any of the suggestions for dealing with or elevating fatigue work????

As I said above I now struggle to orgasam because of the fatigue but don’t let that spoil the fun. I also know when I’m going into deep fatigue.

I use isotonic drinks to keep me hydrated and properly balanced and caffeine soft drinks (hate coffee or tea) to perk me up.

There is a huge wealth of info out there you just need to find what works best for you.

Have you been tested for things like Vit D, magnesium etc. You may be deficient in one of these and that is causing the issues.

Also stress is not good.

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By *entleman callerMan over a year ago

ripon

Just under gone two back operations which has solved some of my back pain problems but now it's cold the arthritis kicks in also but for everyone here you can't let it rule your life there's nooky to enjoy

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By (user no longer on site) OP over a year ago

Popping to a rock night away tonight and cold at train st is playing havoc with hands already

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By *oodmessMan over a year ago

yumsville

Have you been fully diagnosed? Have you attended a ME CFS course?

Did any of the suggestions for dealing with or elevating fatigue work????

As I said above I now struggle to orgasam because of the fatigue but don’t let that spoil the fun. I also know when I’m going into deep fatigue.

I use isotonic drinks to keep me hydrated and properly balanced and caffeine soft drinks (hate coffee or tea) to perk me up.

There is a huge wealth of info out there you just need to find what works best for you.

Have you been tested for things like Vit D, magnesium etc. You may be deficient in one of these and that is causing the issues.

Also stress is not good. "

Yes I am diagnosed but as you are probably aware (if you have ME, I haven't read back), access to good information and any courses are limited. The usual two views are to increase the amount of exercise you are doing or to attend mindfulness. Exercising is dangerous in its application to those already with fatigue. Mindfulness, I found bizarre as I am no Zen master able to moderate my conditions at the drop of a hat but yes it's good for stress but then again so are many other things.

As far as me meeting, it has been more a personal decision as I have found where I used to play for hours at a time (by that I mean several hrs, often all nigh), I now cannot judge my pace.

Simple conversation can tire me, so I am finding where rapport and flirtation was easy, I am now tired before sex even begins. Sex really starts before you hit the bedroom and as I like a lot of variety in play I simply cannot judge my energy levels atm.

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By (user no longer on site) OP over a year ago

Have you been fully diagnosed? Have you attended a ME CFS course?

Did any of the suggestions for dealing with or elevating fatigue work????

As I said above I now struggle to orgasam because of the fatigue but don’t let that spoil the fun. I also know when I’m going into deep fatigue.

I use isotonic drinks to keep me hydrated and properly balanced and caffeine soft drinks (hate coffee or tea) to perk me up.

There is a huge wealth of info out there you just need to find what works best for you.

Have you been tested for things like Vit D, magnesium etc. You may be deficient in one of these and that is causing the issues.

Also stress is not good.

As far as me meeting, it has been more a personal decision as I have found where I used to play for hours at a time (by that I mean several hrs, often all nigh), I now cannot judge my pace.

I was given mindfulness at pain management clinic. Was supposed to be 2 weeks i lasted 4 days. The jellybean test made me walk out.

Its a diff test for different people running it but i thought not for me

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By *ne Fish Two FishCouple over a year ago

London

End stage renal failure CKD

kidneys at 8-10%

on peritoneal dialysis 7 days a week..

4 overnight sessions 8-9 hrs

3 daily sessions 45 mins 4 times a day.

its a right pain, emotionally, mentally, n sometimes physically ,..fatigue, sickness, tiredness, bone and muscle damage from long term steroids

but have a lovely partner and we play when we can,..

with other people if they understand the tubes fitted to me .

can go long sessions anymore , you be surprised how lack of red blood cells takes it out of you , you use up the oxygen in your muscles then takes a while to recover.

fortunately i'm great at oral

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By *aisyDDWoman over a year ago

North West

"I've got a condition called hidradenitis suppurativa and have had it since the age of 12.

I have the same. Not sure mine is as bad as yours but I do sympathise. Love how people think the docs can just wave a magic wand for it!

I have severe knee pain so just need an understanding Dom when it comes to getting told what to do. I'm not kneeling down anywhere in a hurry or getting back up again quickly either

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By *oodmessMan over a year ago

yumsville

I was given mindfulness at pain management clinic. Was supposed to be 2 weeks i lasted 4 days. The jellybean test made me walk out.

Its a diff test for different people running it but i thought not for me"

I attended a phsyio session with a senior guy. He said 'I can start you on this programme but you'll be upping the amount of exercise you'll be doing from now on, or I can discharge you'. The details were I would start on 2mins of treadmill working up to 15mins. I asked what the point was - to build muscle, improve cardio, improve my condition? As the course was 8-10 weeks I couldn't see any positive impact. He said the course would no doubt be renamed in a few years to suit the condition. Wtf.

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By *orkie321bWoman over a year ago

Nottingham

"I've got a condition called hidradenitis suppurativa and have had it since the age of 12.

I have the same. Not sure mine is as bad as yours but I do sympathise. Love how people think the docs can just wave a magic wand for it!

I have severe knee pain so just need an understanding Dom when it comes to getting told what to do. I'm not kneeling down anywhere in a hurry or getting back up again quickly either "

My boss struggles to understand that it is an incurable and (for me at least) untreatable condition. To be honest I don't really mind because I don't expect her to know much about it. What does annoy me is that my family fail to understand the pain I'm in even after 30 years and several surgeries.

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By (user no longer on site) over a year ago

Hi all I have chronic prostatitis and had it for 18 months I do manage it but it's a bummer I only can play now and again other than that I don't bother ??

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By (user no longer on site) over a year ago

I had a kidney transplant five years ago.. left me with a bulge to the the left side. Type one diabetic with nerve damage in the feet. I had testicular cancer and one removed. The result has been difficult to manage. Not that secure about my body image. Being diabetic means at times the blue pills are handy..

It's difficult to find someone who will meet when you explain all of the above.

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By (user no longer on site) over a year ago

Totally understand was on dialysis for five years. The feeling of no energy all the time. I had lines in my chest for dialysis. The worst thing was the effect it had on your sex drive...

I hope you will get a call for a transplant soon.

Wishing you all the best ..

Chris

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By (user no longer on site) over a year ago

As far as me meeting, it has been more a personal decision as I have found where I used to play for hours at a time (by that I mean several hrs, often all nigh), I now cannot judge my pace.

^this

I barely have the energy to hold a conversation or the clarity of mind to follow what is being said.

Its turned me from the life and soul of the party into somebody who rarely goes out socially.

Clubs were my favourite hobby, but now they are on hold too. My MdDS is affected by pattered carpets, florescent lighting and corridors.

Recovery too can take days.

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By (user no longer on site) over a year ago

Have you been fully diagnosed? Have you attended a ME CFS course?

Did any of the suggestions for dealing with or elevating fatigue work????

As I said above I now struggle to orgasam because of the fatigue but don’t let that spoil the fun. I also know when I’m going into deep fatigue.

I use isotonic drinks to keep me hydrated and properly balanced and caffeine soft drinks (hate coffee or tea) to perk me up.

There is a huge wealth of info out there you just need to find what works best for you.

Have you been tested for things like Vit D, magnesium etc. You may be deficient in one of these and that is causing the issues.

Also stress is not good.

As far as me meeting, it has been more a personal decision as I have found where I used to play for hours at a time (by that I mean several hrs, often all nigh), I now cannot judge my pace.

I was diagnosed when living in Nottinghamshire and courses and information was offered to me through the NHS. I will say that I found lots more out through my own research and that everyone is different with the way fatigue effects them. Mine started as physical but now metal fatigue is worse for me.

Graded exercise is the only way you will be able to get back into any sort of exercise routine, but I think to say exercise is dangerous for anyone with fatigue is very much a remark that is unfounded and not really researched.

It took me 6-12 months before I was back to within 80% of my normal activity level and 4/5 years on I still know I’m not at 100%, but I still manage to compete at quite a high level in competition Climbing and in the summer managed to finish in 2nd place in a vets competition. Yes I do still get fatigue but you need to learn your body and understand how it works, which will allow you work with your fatigue rather than against it.

Vitamin and mineral difficencies are very common and more often than not effect physical fatigue. So go see your dr and get tested, do some research before you go and make sure you know what your asking to be tested for.

Hope you can take from my comments as they are meant to help and not be derogatory.

Also there was something on Facebook a while back which was quite interesting. It was about brain capacity and how it effects things like fatigue. Comparing brain function to broadband width. I’m not sure if you search the not you might be able to find it.

Good luck

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By (user no longer on site) over a year ago

I was just about to post on the forum for advice when I came across this post. I am awaiting an appointment to see a rheumatologist and have been suffering fatigue and joint pain which has has made my life seem quite unbearable. I'm finding it impossible to do anything and as I really enjoy swinging with my husband (as well as other things

) I was beginning to worry that I might have to stop. After reading all the messages on this post is have realised that just because it is bad now doesn't mean i can't still enjoy myself!

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By *alcon43Woman over a year ago

Paisley

Do any of you were medi alert bracelets or pendants? Just a thought in case you’re at a club or a meet and something happens. Might be worthwhile investing in one.

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By (user no longer on site) over a year ago

Aww bless. Sounds like you are going through the mill at the moment. I'm sure once you have got some meds for the pain and fatigue you will be feeling much better. You will find your limits. Just work around them and you will be fine I'm sure xx

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By *s ParisWoman over a year ago

My Dungeon Room

"I was just about to post on the forum for advice when I came across this post. I am awaiting an appointment to see a rheumatologist and have been suffering fatigue and joint pain which has has made my life seem quite unbearable. I'm finding it impossible to do anything and as I really enjoy swinging with my husband (as well as other things

) I was beginning to worry that I might have to stop. After reading all the messages on this post is have realised that just because it is bad now doesn't mean i can't still enjoy myself!"

Now reason at all why you should stop just takes a lot of careful planning for meets when your having good times with pain etc once you see the rheumatology and get started on some Meds to help you manage pain you keep on meeting. I stopped meeting myself last year as others didn't want to meet me but that was my choice no reason at all for you to stop keep on going and have as much fun as you can when you feel able to best wishes to you hope everything works out well for you

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By (user no longer on site) over a year ago

Thanks ladies, just feeling down in the dumps atm but hoping to feel better soon xx

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By *anger69104Man over a year ago

Lincoln

"Helen was diagnosed with breast cancer 4 years ago and had to have a mastectomy since then we have struggled to meet anyone at all. So that’s how we cope with serious illness.

"
I met a couple recently where the lady had her left breast removed in a mastectomy, didn't put me off at all

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By *addybear_purplehazyCouple over a year ago

Worthing

"Helen was diagnosed with breast cancer 4 years ago and had to have a mastectomy since then we have struggled to meet anyone at all. So that’s how we cope with serious illness.

I met a couple recently where the lady had her left breast removed in a mastectomy, didn't put me off at all"

It certainly wouldn't stop me finding anyone attractive.

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By *addybear_purplehazyCouple over a year ago

Worthing

This seems a very popular thread.

I suffer from black-outs / seizures and reduced mobility following an RTA 3 years ago.

We've since begun swinging and got back into BDSM. We are honest with our potential playmates and so far it has not been an issue.

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By *anger69104Man over a year ago

Lincoln

I have sarcoidosis of the lungs which leave me very breathless. The steroids I used to take for the condition has left me with type 2 diabetes and nerve damage to my feet' I also suffer from obstructive sleep apnoea, which means that I need to have a mask over my face when I sleep, I have arthritis in all my joints. I am being treated for clinical depression, The illness's have also left me with mobility problems so I need a three wheel walker. I also have ED. Like a lot of others constant, sometimes debilitating, tiredness

I have learnt to adapt to my conditions and learn other ways of pleasing ladies. Unfortunately due to the above, being 61, and married tends to put people off. My wife and I used to play together, but for various reasons she has stopped. She does know I am looking for fun elsewhere.

Luckily I have met people who are prepared to see beyond what I can't do. There are good people out there, keep looking

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By (user no longer on site) over a year ago

I have damaged the nerve leaving me with syitca for nearly 3yr now just had a massive cancer scare have a mood-presonalty disorder and a few more problems the wifey to be has diabetes along with other health problems find I really hard to meet even for a social

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By (user no longer on site) over a year ago

Would be intrested in sorting out some sort of coffee morning social event for other swinger suffering health problems x

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By *oreverHorny69Man over a year ago

Milnrow

"This seems a very popular thread.

I suffer from black-outs / seizures and reduced mobility following an RTA 3 years ago.

We've since begun swinging and got back into BDSM. We are honest with our potential playmates and so far it has not been an issue."

So good to hear, let’s hope my epilepsy is not an issue for me

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By (user no longer on site) over a year ago

"Would be intrested in sorting out some sort of coffee morning social event for other swinger suffering health problems x"

Great idea!

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By *oreverHorny69Man over a year ago

Milnrow

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By (user no longer on site) over a year ago

"Would be intrested in sorting out some sort of coffee morning social event for other swinger suffering health problems x"

That would be good if it was at a weekend as i work in the week

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By (user no longer on site) over a year ago

"So many people with chronic conditions out there

I have to take two pills a day, but other than that no problems (apart from stigma of course!)

Sorry to hear that

But why the hell are you offering bareback sex ?

Good luck and big hugs to all who suffer with chronic conditions

I guess this is what you meant about stigma, people are still very scared by someone having hiv which is understandable if don't have up to date knowledge. Well done to you for being so open about it all (i know you inform partners but i meant by talking about it on this forum and taking the flack you probably knew would come). It's through people like yourself being open and ready to pass on information that the stigma should eventually diminish. Well done to everyone on this thread really as I know there is stigma attached to many of the illnesses mentioned and it's just not fair to have to deal with that as well.

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By (user no longer on site) over a year ago

As someone who has suffered with recurrent depression the excitement of sexy secret chats is what sometimes keeps me on the up!

As a mum of a son with epilepsy I do wonder what the future holds for him and if he will be able to meet a partner or even maintain a sexual relationship. It's reassuring to see whose who have epilepsy are out there giving it laldy!!!

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By (user no longer on site) over a year ago

Well...I'm going to pen a letter this morning. .

My ms means I limp and as I limped from one bar to the next last night for my 2nd drink I was refused entry as I was told by the bouncers that I was too d*unk and could not walk straight. ...

See you next Tuesdays

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By *alcon43Woman over a year ago

Paisley

"So many people with chronic conditions out there

I have to take two pills a day, but other than that no problems (apart from stigma of course!)

Sorry to hear that

But why the hell are you offering bareback sex ?

Good luck and big hugs to all who suffer with chronic conditions

I know two guys with HIV who are both in the same situation with their levels being suppressed. Lovely guys and I don’t have an issue with their HIV. One is gay but discloses his status to potential partners. The other isn’t in any relationship. He has several health issues but is still a good friend. He only disclosed his status to close friends and family.

As long as you play safe and take your medication you should be fine.

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By *ungry4more69Woman over a year ago

dudley

"Diabetes, what a pain in the arse it is "
hell yes! I have the insulin pump and small cannula to contend with too

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By *anillaguyMan over a year ago

Kingston

"Diabetes, what a pain in the arse it is hell yes! I have the insulin pump and small cannula to contend with too "

I have avoided the pump as I think it will be too much of a pain to have it attached

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By (user no longer on site) OP over a year ago

Im finding recently not able to wear my morphine patches as they dont stay on so if any real sweat worked up or even if brushed may come off and i dont want it to be attached to someone who aint me for fear or reaction.

Can limit stuff as tablets some days can only make me manageable for kink etc

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By (user no longer on site) over a year ago

[Removed by poster at 04/12/17 01:37:43]

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By *unlovingx2Couple over a year ago

Aberdeen

"Helen was diagnosed with breast cancer 4 years ago and had to have a mastectomy since then we have struggled to meet anyone at all. So that’s how we cope with serious illness.

Simply inspirational.....

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By (user no longer on site) over a year ago

"I've recently been diagnosed with long term sciatical nerve damage in my back which is a pain (literally

) even with medication obviously I don't want to stop playing on here but position wise it's painful so I'm trying to find the right balance of meds to control it but not walk round high as a kite

The female half of the couple I should've added

So do I

the drs aren't much help they have the view take the meds and phone an ambulance if you can't feel your legs

Said the same to me as well. If I get pins and needles in my legs straight to hospital."

they didn't say pins and needles to me I have them pretty much constantly

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By *unlovingx2Couple over a year ago

Aberdeen

[Removed by poster at 04/12/17 02:01:19]

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By *unlovingx2Couple over a year ago

Aberdeen

If I posted what I had (hubby) anyone who knows me in real life woukd know who we were. Needless to say I've almost died lots of times over many years , And still live with doubt, and a massive cloud over my future. All from a guy who was very fit and who never smoked drank etc. I have so much empathy with those in similiar position. But remember this for as bad and life ruined we feel little babies and kids are dying before they even get some of the years we have. Some of the above illnesses are ones I'd gladly swap For and I'm sure many feel the same. The people with cancer and real life threatening illnesses. I'm sorry if I view some of the above posts as whinging, but until you have been in the position of begging a doctor and crash team to keep you going long enough too clap eyes on your kids once more I may come across as harsh. I would positively enjoy having sore joints etc...and truly livable conditions. I'd have rather stood on a Afghan landmine and lost my legs, than have what I do. Im sure those with cancer, bad heart trouble, bad strokes etc etc would feel the same way

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By (user no longer on site) over a year ago

There's no such thing as safe sex, unless you have no sex.

Condoms make it safer, but they're not 100% safe.....if someone has genital warts and there is skin to skin contact, you're likely to catch them, if sharing sex toys, you can get HPV which is the second most common after chlamydia.

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