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What would you do...
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"What would you do if you woke up one morning and one of your senses/limbs had "gone"
How would you cope (if you didn't have a partner to help)?
**Morbid subject, sorry x "
Depending on which sense and limbs the reaction is different.
Has happened to me and I just did what I had to do to be honest and try to function with the rest that is functioning while waiting on the Docs to figure out what's the problem.
As we have said before, you just get on and put a smile on as much as you can. xx |
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By *ane DTV/TS
over a year ago
Birmingham (3nts) |
Been on the caring side of this for 20+ years.
Everyone deals with it differently. I've seen people collapse in tears, rage with anger, retreat into themselves.
But from my side of the matter all I ever do is try to help and cope.
Fumama, you know you can always drop me a line if you want to vent/ask questions.
Jane |
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By *muma OP Woman
over a year ago
Livingston |
Jane, I'm fine honey.. It was a conversation last night whereby the disability was from birth so never knew anything different, whereas I woke up one morning 16 months ago and was paralysed from the waist down....
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By (user no longer on site)
over a year ago
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"Jane, I'm fine honey.. It was a conversation last night whereby the disability was from birth so never knew anything different, whereas I woke up one morning 16 months ago and was paralysed from the waist down....
"
From reading your posts on here i know your a strong woman _muma so hope you continue to remain that way.
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By *ane DTV/TS
over a year ago
Birmingham (3nts) |
"Jane, I'm fine honey.. It was a conversation last night whereby the disability was from birth so never knew anything different, whereas I woke up one morning 16 months ago and was paralysed from the waist down....
"
Good to hear,
Had those convos too, not been able to work out a decent answer either.
J |
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"Jane, I'm fine honey.. It was a conversation last night whereby the disability was from birth so never knew anything different, whereas I woke up one morning 16 months ago and was paralysed from the waist down....
From reading your posts on here i know your a strong woman _muma so hope you continue to remain that way.
"
  |
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By (user no longer on site)
over a year ago
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"Jane, I'm fine honey.. It was a conversation last night whereby the disability was from birth so never knew anything different, whereas I woke up one morning 16 months ago and was paralysed from the waist down....
"
omg sorry to hear this x  |
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By *muma OP Woman
over a year ago
Livingston |
"Do as many do everyday...adapt"
yes people do adapt..but it's not that simple
Say YOU woke up one morning, entirely on your own, couldn't move.., had absolutely no feeling from your waist down and didn't have a phone beside you?? |
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By (user no longer on site)
over a year ago
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Iv never been in that situation ..plus always Have a phone beside me...
But as I said...you would have to try to fall out of bed to get to a phone..window or door ...instinct would kick in |
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I know a lot of guys, good friends too that have woken up having lost a limb, sometimes two. Guys that have woken up blind and deaf. Their willingness to push forward gives me hope that I too would deal with most anything thrown at me. |
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By (user no longer on site)
over a year ago
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"Iv never been in that situation ..plus always Have a phone beside me...
But as I said...you would have to try to fall out of bed to get to a phone..window or door ...instinct would kick in "
yeah but sometimes that just isn't an option if you cant move is it? |
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By (user no longer on site)
over a year ago
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 At my age i'm loosing bits of everything daily.  just have to get on with it, and hope to see the next day. not morbid, just the way life goes when you get older. I've been lucky enough all my life to keep intact, I really feel for those who loose sense's at a young age. its not fair. |
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By (user no longer on site)
over a year ago
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I like to think I'd be strong enough to adapt and have a positive outlook but I think it would depend on what it was. My biggest fear in this respect would be losing my eyesight. The loss of independence would be really difficult to overcome plus so many of the things I do creatively are sight based.
All respect to _muma, your are obviously a very strong lady. |
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By *ilshyxWoman
over a year ago
happy lil world |
"Jane, I'm fine honey.. It was a conversation last night whereby the disability was from birth so never knew anything different, whereas I woke up one morning 16 months ago and was paralysed from the waist down....
From reading your posts on here i know your a strong woman _muma so hope you continue to remain that way.
"
What he said. I work with people who have been in this position. I believe you are strong person x |
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By *muma OP Woman
over a year ago
Livingston |
Thank you all, but I'm not looking for sympathy or anything like that in any way shape or form.
Obviously I have coped and adapted over the past year and I still am, as it's not as simple as just having MS.
I just wondered how other people would react if they woke up one morning and life was totally turned on it's head... |
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By (user no longer on site)
over a year ago
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"Thank you all, but I'm not looking for sympathy or anything like that in any way shape or form.
Obviously I have coped and adapted over the past year and I still am, as it's not as simple as just having MS.
I just wondered how other people would react if they woke up one morning and life was totally turned on it's head... "
Indeed and you didn't come across as looking for sympathy. You don't sound like someone who would be self pitying and I do hope that doesn't sound awful. Hard to put this just the right way. It is a thought provoking question, we all take our health so much for granted. |
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"Thank you all, but I'm not looking for sympathy or anything like that in any way shape or form.
Obviously I have coped and adapted over the past year and I still am, as it's not as simple as just having MS.
I just wondered how other people would react if they woke up one morning and life was totally turned on it's head... "
I wouldn't know what to do and probably have a panic fueled breakdown . Hopefully after that I'd be able to adapt to the new situation with support of those around me . |
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By *muma OP Woman
over a year ago
Livingston |
"Thank you all, but I'm not looking for sympathy or anything like that in any way shape or form.
Obviously I have coped and adapted over the past year and I still am, as it's not as simple as just having MS.
I just wondered how other people would react if they woke up one morning and life was totally turned on it's head...
Indeed and you didn't come across as looking for sympathy. You don't sound like someone who would be self pitying and I do hope that doesn't sound awful. Hard to put this just the right way. It is a thought provoking question, we all take our health so much for granted. "
Doesn't sound awful at all and thank you.
I was with friends last night, one has a bone condition from birth, other friend's son has CF from birth. Mine was literally overnight, so it started a conversation about how you handle it... from birth, you've not known any different so it is your way of life. But to go from being a very active person to suddenly being in hospital, learning to walk again, using a wheelchair etc |
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By *muma OP Woman
over a year ago
Livingston |
"Been on the caring side of this for 20+ years.
Everyone deals with it differently. I've seen people collapse in tears, rage with anger, retreat into themselves.
But from my side of the matter all I ever do is try to help and cope.
Fumama, you know you can always drop me a line if you want to vent/ask questions.
Jane"
I've done all that Jane (still do at times), it's why I wasn't on the forums much and haven't been back to CJs yet xx (and we had many a good laugh there) x |
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By *ab femWoman
over a year ago
Ayrshire |
I honestly don't know. I would imagine i'd go through a lot of different emotions. I would hope that I wouldn't let it stop me enjoying my life with friends but I know that's easier said than done. |
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By (user no longer on site)
over a year ago
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Both my hands have had operations at different times and were bandaged up and unusable for about a week. It was tough, putting on underwear and wiping my bottom was interesting but I got on with it.
I see all the military people and the paralympian people and have great admiration for them all. They have had great challenges put in front of them and just got on with it. No sitting around and moping for them. And they must have some very dark days. |
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By *andsCouple
over a year ago
Edin |
I don't think until faced with the situation anyone would really know what they would do. Some would react how they predicted, others the opposite.
FMUMA you like many others in this world have been dealt a very cruel hand and I am really sorry to hear this. Much love from us xx |
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By *muma OP Woman
over a year ago
Livingston |
"I don't think until faced with the situation anyone would really know what they would do. Some would react how they predicted, others the opposite.
FMUMA you like many others in this world have been dealt a very cruel hand and I am really sorry to hear this. Much love from us xx"
Tands, you know me well... the day I lose my sense of humour is the day you will all be getting the funeral party invitation and that;s not for a long while yet.. xxx
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By (user no longer on site)
over a year ago
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"I don't think until faced with the situation anyone would really know what they would do. Some would react how they predicted, others the opposite.
FMUMA you like many others in this world have been dealt a very cruel hand and I am really sorry to hear this. Much love from us xx
Tands, you know me well... the day I lose my sense of humour is the day you will all be getting the funeral party invitation and that;s not for a long while yet.. xxx
"
I frigging hope not  |
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Depends on what is lost. I tend to mock most of the adversity in my life as a coping mechanism. If I lost a hand I'd do an awesome Ash from Evil Dead cosplay. Sight I'd try and fool my friends into thinking I had Daredevil like senses. My way of coping with bad stuff happening to me is to make it a joke. |
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By (user no longer on site)
over a year ago
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The truth
I have no idea, I've seen it from the outside with friends and family but how I personally would react I have no idea
I'd hope I'd cope but could just as easily turn into a quivering wreck |
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By (user no longer on site)
over a year ago
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"Thank you all, but I'm not looking for sympathy or anything like that in any way shape or form.
Obviously I have coped and adapted over the past year and I still am, as it's not as simple as just having MS.
I just wondered how other people would react if they woke up one morning and life was totally turned on it's head...
Indeed and you didn't come across as looking for sympathy. You don't sound like someone who would be self pitying and I do hope that doesn't sound awful. Hard to put this just the right way. It is a thought provoking question, we all take our health so much for granted.
Doesn't sound awful at all and thank you.
I was with friends last night, one has a bone condition from birth, other friend's son has CF from birth. Mine was literally overnight, so it started a conversation about how you handle it... from birth, you've not known any different so it is your way of life. But to go from being a very active person to suddenly being in hospital, learning to walk again, using a wheelchair etc "
Phew, thanks. I know what you mean re that type of conversation. Also I have a friend who's son has severe MS. It's ripped the family apart but as you have asked in your original question, how do others think we'd cope??? It's not something you can know I guess and we all hope we will never find out. Big kudos to you in how you have coped. |
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By (user no longer on site)
over a year ago
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I honestly don't know. Think it depends on what it was,prognosis etc
Been in the position with a very close family member and in that instance we just got on with life after a period of adjustment
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adapt? really that simple? so what happens when you lose your job & the benifits agencies make you jump over every hurdle & hoop before they offer any help. not to mention so called friends vanishing lol. then if you are lucky depression kicks in. Some people don't have a clue. Most think they would cope but would they? keep your chin up fumma x |
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