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By (user no longer on site) OP
over a year ago
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Just curious...i was recently diagnosed with this horrible condition after near constant oain for 6 years.
Does anyone else here have it and how does it effect your sex life..
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By (user no longer on site)
over a year ago
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I have it.
It doesn’t really - I don’t have much of a sex drive anyway so I haven’t noticed a difference.
However being pregnant means I can’t take all the painkillers I used to take, so I’m in agony a lot. |
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By *irtySekretsCouple
over a year ago
Filthy Desires Upon Trent |
"Just curious...i was recently diagnosed with this horrible condition after near constant oain for 6 years.
Does anyone else here have it and how does it effect your sex life..
"
Ess has this as well as Rumatoid Arthritis. She is a brave girl and is in pain everyday. Don’t know how she carries on smiling.
All the best to you  |
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By *hilloutMan
over a year ago
All over the place! Northwesr, , Southwest |
I see and treat people in clinic frequently with this condition. It's tough as there isn't one specific test or marker that proves one has it. I've found that people who remain active and keep a more positive outlook usually fair much better. |
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By (user no longer on site)
over a year ago
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I am interested in this condition. I dont know too much about it. Can I ask does massage help or hold any benefits? I've been asked by someone to massage them as they think it may help, but I have not given an answer yet because I don't know much about it. I am going to read up about it, but if you could provide some insight that would be helpful! |
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It's a disability that is hidden not many people know you have. You can have your good and bad days. I try keep active never give in to it. It has never affect my sex life. It's got better since I been on here  |
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By *hilloutMan
over a year ago
All over the place! Northwesr, , Southwest |
"I am interested in this condition. I dont know too much about it. Can I ask does massage help or hold any benefits? I've been asked by someone to massage them as they think it may help, but I have not given an answer yet because I don't know much about it. I am going to read up about it, but if you could provide some insight that would be helpful! "
It would provide the same benefits that massage normally does; mainly relaxation, increased blood flow to treated area, etc. Most people with fibromyalgia don't react well to aggressive or vigorous massage but most tolerate gentler ones well. |
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By (user no longer on site)
over a year ago
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Well I'm not trained in deep tissue or sports massage so there's no problem there. Would you say that different people experience different symptoms? I've just done some reading about it on the nhs website and it seems to me there is not one particular answer, rather a full assessment to ascertain symptoms and aims of treatment of the individual. A quick Google search on essential oils pointed me in the direction of muscley, painy, relaxing type oils. |
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By (user no longer on site)
over a year ago
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"Well I'm not trained in deep tissue or sports massage so there's no problem there. Would you say that different people experience different symptoms? I've just done some reading about it on the nhs website and it seems to me there is not one particular answer, rather a full assessment to ascertain symptoms and aims of treatment of the individual. A quick Google search on essential oils pointed me in the direction of muscley, painy, relaxing type oils. "
I know a few people with fibro, gentle massages are ok but definately nothing vigorous as bruising can occur very easily. Some have said even their hair can feel painful. When it flares up it can be a debilitating condition that makes the sufferer bedridden until it subsides. |
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"I see and treat people in clinic frequently with this condition. It's tough as there isn't one specific test or marker that proves one has it. I've found that people who remain active and keep a more positive outlook usually fair much better. "
I have it bad but that’s right keep active helps a lot |
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By (user no longer on site)
over a year ago
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It seems to be a very complicated set of conditions and although there are some similarities between people, it's entirely possible to have different sets of symptoms covered by the umbrella term.
Hmmmm, I think an individual assessment on symptoms and expectations is really the best way forward.
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By (user no longer on site)
over a year ago
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"Is this anecdotal or is there some medical grounding in fact? Bruising is a worry, as it can be linked issues in the liver and blood. "
From what ive heard fibro is something to do with the white blood cells attacking the nervous system, the bruising could be due to that. Scientists in America are developing a blood test for it. |
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By *oodmessMan
over a year ago
yumsville |
Dr Elizabeth Unger is at the forefront of American medicine. Over here Dr Charles Shepherd has done a lot of work to promote NICE reviews and Dr Sarah Myhill has looked into diet and mitochondrial dysfunction. |
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My best RL friend has it.
Took a very long time to diagnose, her symptoms changed constantly, new ones appeared, then subsided for weeks, when something else popped up.
She's gone from being one of the most active people I know to having days were just going to the toilet exhausts her.
She's had her living room halved, wall built & created a downstairs bedroom as some mornings she's unable to manage the stairs.
But on good day, you'd never know anything was wrong.
So she's taken a lot of flack from people who've accused her of faking it.
So many ignorant people unaware of hidden disabilities it gets me angry |
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By *bwplaydateMan
over a year ago
Newcastle and travel/hotel |
The best cure is vitamin D from natural sources - mainly sunshine, which also explains why solar radiation also improves the condition.
It is after all a disease of the electromagnetic circuitry of the body and the sun outputs in all frequencies.
Now, where's my passport? |
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By (user no longer on site)
over a year ago
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I have Fibromyalgia
And chronic fatigue syndrome,and arthritis in my spine,exercise has been a god send for me,it's helped tremendously,I used to be on 20+ tablets a day including 8 Tramadol
I manage my pain now on paracetamol and ibuprofen
As long as I keep moving I'm OK x |
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I have fibromyalgia too. Was diagnosed about six years ago after most of my life being in unexplained pain.
It does effect my six life mostly by causing my joints to stiffen. For example if I'm lying on my back with my legs raised, my hips will stiffen into that position and any sudden movements can cause extreme pain and even injury. It's helped by having support under my back and hips like a pillow or something.
It's a difficult condition to have but it's been a lot better recently. I don't take any medication anymore and for the most part I manage my pain quite well. |
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By (user no longer on site)
over a year ago
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I have the condition. I was diagnosed 2 years ago and still learning to live with it. The pain, fog, and tiredness is an incessant pain in the bum so to speak. |
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