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Esential tremor

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By (user no longer on site) OP     over a year ago

I have a new colleague at work with this, I don't know a lot about it. She is quite shy and doesn't talk a lot, so I don't want to make her uncomfortable pointing it out.

Is it going to get worse ? Or is it something that stays the same ?

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By (user no longer on site) OP     over a year ago

Spelt it wrong. Make that Essential Tremor

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By *illy_the_tvTV/TS  over a year ago

hoorn, Netherlands

No need to comment on it really

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By (user no longer on site) OP     over a year ago


"No need to comment on it really"

No need to comment to the person ? I know that, I was just hoping for any fabbers experience or knowledge, so that I don't need to comment.

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By (user no longer on site)  over a year ago


"No need to comment on it really

No need to comment to the person ? I know that, I was just hoping for any fabbers experience or knowledge, so that I don't need to comment."

I just checked Google (as I didn’t know what it was and I’m a bit of a noseache! ) and all the answers are on there if you have any questions about the condition. Loads of material on it!

I’m sure it’s distressing for your colleague but hopefully not too restricting for them.

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By *illy_the_tvTV/TS  over a year ago

hoorn, Netherlands


"No need to comment on it really

No need to comment to the person ? I know that, I was just hoping for any fabbers experience or knowledge, so that I don't need to comment."

Yes I meant to the person. If she's never said it's essential tremors it could be any number of things, someone I work withs hands shake constantly as his body produces a little too much testosterone. If it's her hands then some people's hands just shake anyway. If it is essential tremors it can get worse but that doesn't mean that it will. If can affect other muscles such as eyelids and lips or even vocal chords but it's not something that most people would worry about, theres not much you can do about it. But I believe for bad cases they're given beta blockers or something like that to help combat it

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By (user no longer on site) OP     over a year ago


"No need to comment on it really

No need to comment to the person ? I know that, I was just hoping for any fabbers experience or knowledge, so that I don't need to comment.

I just checked Google (as I didn’t know what it was and I’m a bit of a noseache! ) and all the answers are on there if you have any questions about the

condition. Loads of material on it

I’m sure it’s distressing for your colleague but hopefully not too restricting for them. "

I have read about it, just sometimes people have a more personal perspective than facts and figures, hence my post. It was prompted by the positive feedback Mrmarmite got on his copd thread.

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By (user no longer on site) OP     over a year ago

So they may have to deal with side effects of medication they have to take for it Lilly ?

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By (user no longer on site)  over a year ago


"So they may have to deal with side effects of medication they have to take for it Lilly ?"

I'm sorry im confused ...

It's your business because ?

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By *rincess peachWoman  over a year ago

shits creek


"So they may have to deal with side effects of medication they have to take for it Lilly ?

I'm sorry im confused ...

It's your business because ? "

I imagine to be able to show understanding and support in the workplace. If this lady has at least 1 person who understands I'm sure she'll feel more open to talk if there's something bothering her. Talking to someone who's taken the time and effort to understanding a condition can be a godsend.

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By (user no longer on site)  over a year ago

I suffer with it, for me it’s my head and a shake occasionally in my hands. I wouldn’t like it to be remarked upon as being nervous makes it worse. My mom also has it but much more severe it impacts on her ability to feed herself and drink and cooking. She’s had the beta blockers but unfortunately it’s too severe to do anything for. The best thing you can do is not make an issue if it but If she brings it up then talk about it like you would any medical condition x

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By (user no longer on site) OP     over a year ago


"So they may have to deal with side effects of medication they have to take for it Lilly ?

I'm sorry im confused ...

It's your business because ? "

I am not sure what provoked such a response ?

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By (user no longer on site) OP     over a year ago


"I suffer with it, for me it’s my head and a shake occasionally in my hands. I wouldn’t like it to be remarked upon as being nervous makes it worse. My mom also has it but much more severe it impacts on her ability to feed herself and drink and cooking. She’s had the beta blockers but unfortunately it’s too severe to do anything for. The best thing you can do is not make an issue if it but If she brings it up then talk about it like you would any medical condition x "

Thanks, that is why I was asking on here, to learn a little more without making an issue.

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By (user no longer on site)  over a year ago


"So they may have to deal with side effects of medication they have to take for it Lilly ?

I'm sorry im confused ...

It's your business because ?

I am not sure what provoked such a response ?"

She's shy .Doesn't talk a lot. Your words .You don't want to point it out to her ! Leave the poor woman alone unless she approaches you. I'm sure she needs nothing pointing out to her !

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By (user no longer on site) OP     over a year ago


"So they may have to deal with side effects of medication they have to take for it Lilly ?

I'm sorry im confused ...

It's your business because ?

I imagine to be able to show understanding and support in the workplace. If this lady has at least 1 person who understands I'm sure she'll feel more open to talk if there's something bothering her. Talking to someone who's taken the time and effort to understanding a condition can be a godsend."

This is what my intention was.

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By (user no longer on site) OP     over a year ago


"So they may have to deal with side effects of medication they have to take for it Lilly ?

I'm sorry im confused ...

It's your business because ?

I am not sure what provoked such a response ?

She's shy .Doesn't talk a lot. Your words .You don't want to point it out to her ! Leave the poor woman alone unless shep

approaches you. I'm sure she needs nothing pointing out to her ! "

I haven't pointed anything out to her, my post said that is what I didn't want to do. Since when has it been a crime to understand more about something, so you are best able to support someone should they need it ?

Perhaps a lie down in a quiet place would be best for you right now, then you might think twice about such aggressive responses.

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By (user no longer on site)  over a year ago


"So they may have to deal with side effects of medication they have to take for it Lilly ?

I'm sorry im confused ...

It's your business because ?

I am not sure what provoked such a response ?

She's shy .Doesn't talk a lot. Your words .You don't want to point it out to her ! Leave the poor woman alone unless she approaches you. I'm sure she needs nothing pointing out to her ! "

Maybe it’s the nerves of starting a new job making it worse. Perhaps being put at ease about it and talking about it might relieve some of those nerves and make it a bit better. No need for the harsh response, the OP is trying to find out about an obvious issue so she can approach it in the correct manner.

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By (user no longer on site) OP     over a year ago

There are opinions and there are aggressive responses.

Unless I know you I am not permitted certain comments ? Gosh, thankfully I don't know you, nor need your permission.

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By *iamondsmiles.Woman  over a year ago

little house on the praire

I dont know anything about the condition but can quite easily see what you where asking in this thread

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By *abs..Woman  over a year ago

..

I think it’s very considerate of you to try to find out more OP.

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By (user no longer on site) OP     over a year ago


"I dont know anything about the condition but can quite easily see what you where asking in this thread"

To learn and listen from real people rather than facts and figures. A bit like what I ask you about from your personal experiences, so I can offer support if someone asks for help.

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By *iamondsmiles.Woman  over a year ago

little house on the praire


"I dont know anything about the condition but can quite easily see what you where asking in this thread

To learn and listen from real people rather than facts and figures. A bit like what I ask you about from your personal experiences, so I can offer support if someone asks for help."

exactly and how can people learn if someones going to fly off the handle

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By (user no longer on site) OP     over a year ago


"I think it’s very considerate of you to try to find out more OP. "

So that 'if' she ever talks about it, I don't end up in the situation where I shrug my shoulders and say, sorry, don't know anything about that.

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By (user no longer on site)  over a year ago

Iv had it for 7 or 8 years,its actually called benign essential tremors,its there all the time but it fluctuates,its called benign because it doesn't lead to anything else like Parkinson's disease.propanalol is the drug most prescribed for this,but i dont take it because of the sude effects

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By *abs..Woman  over a year ago

..


"I think it’s very considerate of you to try to find out more OP.

So that 'if' she ever talks about it, I don't end up in the situation where I shrug my shoulders and say, sorry, don't know anything about that."

Absolutely

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By *tonMessCouple  over a year ago

Slough Windsor ish

I used to work for a chap who had essential tremor, it impacted his life to such a degree that he needed to employ me. He was an inventor, the tremors prevented him from lots of day to day activities including the use of a keyboard and driving. He took beta blockers which really only offered a little help. He is 96 now and I still see him out and about... Lovely man.

He always used to say that people understanding was the most important thing in the battle with any illness. Well do you for finding out more.

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By (user no longer on site)  over a year ago


"I have a new colleague at work with this, I don't know a lot about it. She is quite shy and doesn't talk a lot, so I don't want to make her uncomfortable pointing it out.

Is it going to get worse ? Or is it something that stays the same ?"

How do you know that she has this?

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By (user no longer on site) OP     over a year ago


"I have a new colleague at work with this, I don't know a lot about it. She is quite shy and doesn't talk a lot, so I don't want to make her uncomfortable pointing it out.

Is it going to get worse ? Or is it something that stays the same ?

How do you know that she has this? "

.

Because I have access to her personal file in my position. I saw her hand shakes and checked her file.

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By *oxy_minxWoman  over a year ago

Scotland - Aberdeen

I actually suffer with this and have done for at least ten years.

Mine unfortunately is full body tremor and if I wear high heels it becomes more noticeable in my legs.

I take gabapentin daily, which has helped with my hand shakes, enough so that I can sign my signature again which is all good.

My doctor also said that for some reason or another, alcohol helps settle this condition also, so glass of wine any one?

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By *oxy_minxWoman  over a year ago

Scotland - Aberdeen


"I actually suffer with this and have done for at least ten years.

Mine unfortunately is full body tremor and if I wear high heels it becomes more noticeable in my legs.

I take gabapentin daily, which has helped with my hand shakes, enough so that I can sign my signature again which is all good.

My doctor also said that for some reason or another, alcohol helps settle this condition also, so glass of wine any one? "

I'm just bumping this as someone has messaged me to say that it was funny that most were being treated with 'beta blockers and not a neuro drug' like I am, which I find helps me a lot, with no side effects at all, so just wanted to highlight that fact in case it helps others

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By (user no longer on site)  over a year ago


"I actually suffer with this and have done for at least ten years.

Mine unfortunately is full body tremor and if I wear high heels it becomes more noticeable in my legs.

I take gabapentin daily, which has helped with my hand shakes, enough so that I can sign my signature again which is all good.

My doctor also said that for some reason or another, alcohol helps settle this condition also, so glass of wine any one?

I'm just bumping this as someone has messaged me to say that it was funny that most were being treated with 'beta blockers and not a neuro drug' like I am, which I find helps me a lot, with no side effects at all, so just wanted to highlight that fact in case it helps others "

My mom has just had her meds changed and taken off the beta blockers. But her doctor has blamed her smoking for hers being so bad. X

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By *oxy_minxWoman  over a year ago

Scotland - Aberdeen


"I actually suffer with this and have done for at least ten years.

Mine unfortunately is full body tremor and if I wear high heels it becomes more noticeable in my legs.

I take gabapentin daily, which has helped with my hand shakes, enough so that I can sign my signature again which is all good.

My doctor also said that for some reason or another, alcohol helps settle this condition also, so glass of wine any one?

I'm just bumping this as someone has messaged me to say that it was funny that most were being treated with 'beta blockers and not a neuro drug' like I am, which I find helps me a lot, with no side effects at all, so just wanted to highlight that fact in case it helps others

My mom has just had her meds changed and taken off the beta blockers. But her doctor has blamed her smoking for hers being so bad. X "

Personally I think that is shite lol

I know smoking is bad for you but it can't be blamed for everything!

My doctor think it is more connected to nerve pain, or nerve interceptors not speaking to each other.

Hell it could even be linked to my back pain, but there is no way of telling, as this is a relatively new condition and wasn't even considered at the beginning of my investigation. It's was just the conclusion after everything else was ruled out.

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By (user no longer on site)  over a year ago


"I actually suffer with this and have done for at least ten years.

Mine unfortunately is full body tremor and if I wear high heels it becomes more noticeable in my legs.

I take gabapentin daily, which has helped with my hand shakes, enough so that I can sign my signature again which is all good.

My doctor also said that for some reason or another, alcohol helps settle this condition also, so glass of wine any one?

I'm just bumping this as someone has messaged me to say that it was funny that most were being treated with 'beta blockers and not a neuro drug' like I am, which I find helps me a lot, with no side effects at all, so just wanted to highlight that fact in case it helps others

My mom has just had her meds changed and taken off the beta blockers. But her doctor has blamed her smoking for hers being so bad. X

Personally I think that is shite lol

I know smoking is bad for you but it can't be blamed for everything!

My doctor think it is more connected to nerve pain, or nerve interceptors not speaking to each other.

Hell it could even be linked to my back pain, but there is no way of telling, as this is a relatively new condition and wasn't even considered at the beginning of my investigation. It's was just the conclusion after everything else was ruled out. "

I agree, everything that’s wrong with her he blames on the smoking, I know with my family it’s an hereditary condition, I have it, my eldest son has it and my maternal grandmother had it. I just don’t know what the cause is and I’m wary of starting medication yet x

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By *ittle_brat_evie!!Woman  over a year ago

evesham


"I have a new colleague at work with this, I don't know a lot about it. She is quite shy and doesn't talk a lot, so I don't want to make her uncomfortable pointing it out.

Is it going to get worse ? Or is it something that stays the same ?

How do you know that she has this?

.

Because I have access to her personal file in my position. I saw her hand shakes and checked her file."

Sorry but whilst the intention of your post is very nice I'm afraid this bit is a tad concerning. While you might have access to her personal file you really shouldn't access it without good reason and that to me is not a good reason.

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By (user no longer on site)  over a year ago

I had a similar situation in the past, about another issue. Someone at job found out about my depression condition and started taking information about it and talking about it with others. Since I never decided to tell this person about it, it came to me as a shock that she knew and she discussed it. I took it as a personal offence that she forced herself into something so private. No matter if the intention is to help. If I want help, I'll say. It's a work relationship and not a personal one, so invading one's privacy is not excusable.


"I have a new colleague at work with this, I don't know a lot about it. She is quite shy and doesn't talk a lot, so I don't want to make her uncomfortable pointing it out.

Is it going to get worse ? Or is it something that stays the same ?

How do you know that she has this?

.

Because I have access to her personal file in my position. I saw her hand shakes and checked her file."

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By (user no longer on site) OP     over a year ago


"I have a new colleague at work with this, I don't know a lot about it. She is quite shy and doesn't talk a lot, so I don't want to make her uncomfortable pointing it out.

Is it going to get worse ? Or is it something that stays the same ?

How do you know that she has this?

.

Because I have access to her personal file in my position. I saw her hand shakes and checked her file.

Sorry but whilst the intention of your post is very nice I'm afraid this bit is a tad concerning. While you might have access to her personal file you really shouldn't access it without good reason and that to me is not a good reason. "

Of course not, you have never posted anything positive when replying to any of my posts. For some reason you always see the negative with me.

To be aware of someone's health condition, and to find out how best to support someone in the future, is a good enough reason to me, and I know my team better than someone looling for a pot shot.

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By *ittle_brat_evie!!Woman  over a year ago

evesham


"I have a new colleague at work with this, I don't know a lot about it. She is quite shy and doesn't talk a lot, so I don't want to make her uncomfortable pointing it out.

Is it going to get worse ? Or is it something that stays the same ?

How do you know that she has this?

.

Because I have access to her personal file in my position. I saw her hand shakes and checked her file.

Sorry but whilst the intention of your post is very nice I'm afraid this bit is a tad concerning. While you might have access to her personal file you really shouldn't access it without good reason and that to me is not a good reason.

Of course not, you have never posted anything positive when replying to any of my posts. For some reason you always see the negative with me.

To be aware of someone's health condition, and to find out how best to support someone in the future, is a good enough reason to me, and I know my team better than someone looling for a pot shot."

I can't ever remember responding to one of your posts to be honest so can't say wether I'm always negative or not. I just say how I see.

If she wanted you to be aware of her condition she would tell you about it. For you to go into her personal file to nose about and see why she was shaking is an abuse of trust. I am fairly certain that if I worked where you worked and found out you had been dipping in my personal file to have a nose about my personal medical conditions I would be well within my rights to make a formal complaint against you and I would win it.

Like I said, the intention of this thread was good, educating yourself about a colleagues medical condition but the way in which you discovered that they had it is underhand and an abuse of trust in your position.

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By *ittle_brat_evie!!Woman  over a year ago

evesham

In what capacity do you have access to her file?

You say she is a colleague so you are not her line manager.

Are you an occupational therapist and shw has been referred to you?

Has she given consent for you to access her medical information?

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By (user no longer on site) OP     over a year ago


"In what capacity do you have access to her file?

You say she is a colleague so you are not her line manager.

Are you an occupational therapist and shw has been referred to you?

Has she given consent for you to access her medical information? "

Never miss an opportunity do you ?

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By (user no longer on site)  over a year ago


"I have a new colleague at work with this, I don't know a lot about it. She is quite shy and doesn't talk a lot, so I don't want to make her uncomfortable pointing it out.

Is it going to get worse ? Or is it something that stays the same ?"

She may have Parkinsons disease.

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By *ittle_brat_evie!!Woman  over a year ago

evesham


"In what capacity do you have access to her file?

You say she is a colleague so you are not her line manager.

Are you an occupational therapist and shw has been referred to you?

Has she given consent for you to access her medical information?

Never miss an opportunity do you ?

"

Perfectly valid questions really given what you have divulged. You may not like that you are being called out on you abusing your position but like I said.... I say as I see.

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By (user no longer on site)  over a year ago


"I have a new colleague at work with this, I don't know a lot about it. She is quite shy and doesn't talk a lot, so I don't want to make her uncomfortable pointing it out.

Is it going to get worse ? Or is it something that stays the same ?

How do you know that she has this?

.

Because I have access to her personal file in my position. I saw her hand shakes and checked her file.

Sorry but whilst the intention of your post is very nice I'm afraid this bit is a tad concerning. While you might have access to her personal file you really shouldn't access it without good reason and that to me is not a good reason.

Of course not, you have never posted anything positive when replying to any of my posts. For some reason you always see the negative with me.

To be aware of someone's health condition, and to find out how best to support someone in the future, is a good enough reason to me, and I know my team better than someone looling for a pot shot.

I can't ever remember responding to one of your posts to be honest so can't say wether I'm always negative or not. I just say how I see.

If she wanted you to be aware of her condition she would tell you about it. For you to go into her personal file to nose about and see why she was shaking is an abuse of trust. I am fairly certain that if I worked where you worked and found out you had been dipping in my personal file to have a nose about my personal medical conditions I would be well within my rights to make a formal complaint against you and I would win it.

Like I said, the intention of this thread was good, educating yourself about a colleagues medical condition but the way in which you discovered that they had it is underhand and an abuse of trust in your position. "

What if she is in HR ?

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By (user no longer on site) OP     over a year ago


"In what capacity do you have access to her file?

You say she is a colleague so you are not her line manager.

Are you an occupational therapist and shw has been referred to you?

Has she given consent for you to access her medical information?

Never miss an opportunity do you ?

Perfectly valid questions really given what you have divulged. You may not like that you are being called out on you abusing your position but like I said.... I say as I see. "

You do indeed. Always positive

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By *ittle_brat_evie!!Woman  over a year ago

evesham


"In what capacity do you have access to her file?

You say she is a colleague so you are not her line manager.

Are you an occupational therapist and shw has been referred to you?

Has she given consent for you to access her medical information?

Never miss an opportunity do you ?

Perfectly valid questions really given what you have divulged. You may not like that you are being called out on you abusing your position but like I said.... I say as I see.

You do indeed. Always positive "

Thanks

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By *oxy_minxWoman  over a year ago

Scotland - Aberdeen

Can I please just bring this back on track? Unless you have experienced any of this then please don't derail it!

I suffered from this condition for years and never felt the need to seek out medication intervention as it wasn't really affecting my life apart from knowing I had the condition, oh and problems with applying mascara lol

Then just over two years ago, someone made a malicious anonymous 'concern' (my fucking arse!) that I was an alcoholic as I had 'the shakes' and it needed to be looked into.

My work did not use any tact or use any diplomacy and called me into the office to speak about it. I have never been soo humiliated in all my life!

All this spiteful person did was cause me paranoia, my weekend (yes my work did this on a Friday and I walked out) was full of depression and tears and that was what made me seek out whether there was medication I could take to prevent the shakes and will no doubt be on it for the rest of my working life at least!

People are nasty, people are sly, so please don't try and derail a thread that is trying to do positive to highlight this condition, as it is more prevalent than people think, but soo many are embarrassed by it and suffer in silence because others like to always think the worst of others.

As this thread has clearly shown

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By *ittle_brat_evie!!Woman  over a year ago

evesham


"I have a new colleague at work with this, I don't know a lot about it. She is quite shy and doesn't talk a lot, so I don't want to make her uncomfortable pointing it out.

Is it going to get worse ? Or is it something that stays the same ?

How do you know that she has this?

.

Because I have access to her personal file in my position. I saw her hand shakes and checked her file.

Sorry but whilst the intention of your post is very nice I'm afraid this bit is a tad concerning. While you might have access to her personal file you really shouldn't access it without good reason and that to me is not a good reason.

Of course not, you have never posted anything positive when replying to any of my posts. For some reason you always see the negative with me.

To be aware of someone's health condition, and to find out how best to support someone in the future, is a good enough reason to me, and I know my team better than someone looling for a pot shot.

I can't ever remember responding to one of your posts to be honest so can't say wether I'm always negative or not. I just say how I see.

If she wanted you to be aware of her condition she would tell you about it. For you to go into her personal file to nose about and see why she was shaking is an abuse of trust. I am fairly certain that if I worked where you worked and found out you had been dipping in my personal file to have a nose about my personal medical conditions I would be well within my rights to make a formal complaint against you and I would win it.

Like I said, the intention of this thread was good, educating yourself about a colleagues medical condition but the way in which you discovered that they had it is underhand and an abuse of trust in your position.

What if she is in HR ?"

Still doesn't give her the right to access files without permission to gain knowledge of people's medical history without good reason. Just seeing someone shake and wanting to be nosey is not a good reason really.

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By (user no longer on site)  over a year ago


"I have a new colleague at work with this, I don't know a lot about it. She is quite shy and doesn't talk a lot, so I don't want to make her uncomfortable pointing it out.

Is it going to get worse ? Or is it something that stays the same ?

How do you know that she has this?

.

Because I have access to her personal file in my position. I saw her hand shakes and checked her file.

Sorry but whilst the intention of your post is very nice I'm afraid this bit is a tad concerning. While you might have access to her personal file you really shouldn't access it without good reason and that to me is not a good reason.

Of course not, you have never posted anything positive when replying to any of my posts. For some reason you always see the negative with me.

To be aware of someone's health condition, and to find out how best to support someone in the future, is a good enough reason to me, and I know my team better than someone looling for a pot shot.

I can't ever remember responding to one of your posts to be honest so can't say wether I'm always negative or not. I just say how I see.

If she wanted you to be aware of her condition she would tell you about it. For you to go into her personal file to nose about and see why she was shaking is an abuse of trust. I am fairly certain that if I worked where you worked and found out you had been dipping in my personal file to have a nose about my personal medical conditions I would be well within my rights to make a formal complaint against you and I would win it.

Like I said, the intention of this thread was good, educating yourself about a colleagues medical condition but the way in which you discovered that they had it is underhand and an abuse of trust in your position.

What if she is in HR ?"

Does that give her the authority to check up on someone's health records-as she's not concerned about her work, but worried about how to address the woman's problem , for whatever reason?

I know your intentions are well placed, but I do think it's a breach of privacy, looking into her records then coming on here to ask about her condition.

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By *radleywigginsMan  over a year ago

northwest

I think the key is in the name. Essential.

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By *litterbabeWoman  over a year ago

hiding from cock pics.

I feel its good of you to research in order to understand her work situation.

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By *ittle_brat_evie!!Woman  over a year ago

evesham


"Can I please just bring this back on track? Unless you have experienced any of this then please don't derail it!

I suffered from this condition for years and never felt the need to seek out medication intervention as it wasn't really affecting my life apart from knowing I had the condition, oh and problems with applying mascara lol

Then just over two years ago, someone made a malicious anonymous 'concern' (my fucking arse!) that I was an alcoholic as I had 'the shakes' and it needed to be looked into.

My work did not use any tact or use any diplomacy and called me into the office to speak about it. I have never been soo humiliated in all my life!

All this spiteful person did was cause me paranoia, my weekend (yes my work did this on a Friday and I walked out) was full of depression and tears and that was what made me seek out whether there was medication I could take to prevent the shakes and will no doubt be on it for the rest of my working life at least!

People are nasty, people are sly, so please don't try and derail a thread that is trying to do positive to highlight this condition, as it is more prevalent than people think, but soo many are embarrassed by it and suffer in silence because others like to always think the worst of others.

As this thread has clearly shown

"

I dint think anyone (myself included) have said anything negative about the condition. I absolutely agree that education and awareness is a good thing.

Perhaps the 'how' should not have been discussed but it kind of highlights what you are talking about. This poor woman is having her health condition discussed by someone who she has not chosen to confide in and that could impact on her quote severely.

I know the op has said she won't bring it up with her which is a good thing (positive there) but things like that aren't for other people to know about unless the person chooses them to know about them.

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By *oxy_minxWoman  over a year ago

Scotland - Aberdeen


"Can I please just bring this back on track? Unless you have experienced any of this then please don't derail it!

I suffered from this condition for years and never felt the need to seek out medication intervention as it wasn't really affecting my life apart from knowing I had the condition, oh and problems with applying mascara lol

Then just over two years ago, someone made a malicious anonymous 'concern' (my fucking arse!) that I was an alcoholic as I had 'the shakes' and it needed to be looked into.

My work did not use any tact or use any diplomacy and called me into the office to speak about it. I have never been soo humiliated in all my life!

All this spiteful person did was cause me paranoia, my weekend (yes my work did this on a Friday and I walked out) was full of depression and tears and that was what made me seek out whether there was medication I could take to prevent the shakes and will no doubt be on it for the rest of my working life at least!

People are nasty, people are sly, so please don't try and derail a thread that is trying to do positive to highlight this condition, as it is more prevalent than people think, but soo many are embarrassed by it and suffer in silence because others like to always think the worst of others.

As this thread has clearly shown

I dint think anyone (myself included) have said anything negative about the condition. I absolutely agree that education and awareness is a good thing.

Perhaps the 'how' should not have been discussed but it kind of highlights what you are talking about. This poor woman is having her health condition discussed by someone who she has not chosen to confide in and that could impact on her quote severely.

I know the op has said she won't bring it up with her which is a good thing (positive there) but things like that aren't for other people to know about unless the person chooses them to know about them. "

I didn't say you or anyone else have said anything derogatory about the condition itself but continually derailing about the subject to nit pick at some different thing is not doing it any favours!

Do you realise how hard it was for me to reveal what I have and possibly others have gone through in order to discuss a condition that even doctors know so little about and can't explain? I don't find it particularly helpful to be honest

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By (user no longer on site) OP     over a year ago

In your experience Foxy, would you have viewed my interest in your condition so negatively, trying to seek ways to best help you in your future employment ?

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By *ittle_brat_evie!!Woman  over a year ago

evesham


"Can I please just bring this back on track? Unless you have experienced any of this then please don't derail it!

I suffered from this condition for years and never felt the need to seek out medication intervention as it wasn't really affecting my life apart from knowing I had the condition, oh and problems with applying mascara lol

Then just over two years ago, someone made a malicious anonymous 'concern' (my fucking arse!) that I was an alcoholic as I had 'the shakes' and it needed to be looked into.

My work did not use any tact or use any diplomacy and called me into the office to speak about it. I have never been soo humiliated in all my life!

All this spiteful person did was cause me paranoia, my weekend (yes my work did this on a Friday and I walked out) was full of depression and tears and that was what made me seek out whether there was medication I could take to prevent the shakes and will no doubt be on it for the rest of my working life at least!

People are nasty, people are sly, so please don't try and derail a thread that is trying to do positive to highlight this condition, as it is more prevalent than people think, but soo many are embarrassed by it and suffer in silence because others like to always think the worst of others.

As this thread has clearly shown

I dint think anyone (myself included) have said anything negative about the condition. I absolutely agree that education and awareness is a good thing.

Perhaps the 'how' should not have been discussed but it kind of highlights what you are talking about. This poor woman is having her health condition discussed by someone who she has not chosen to confide in and that could impact on her quote severely.

I know the op has said she won't bring it up with her which is a good thing (positive there) but things like that aren't for other people to know about unless the person chooses them to know about them.

I didn't say you or anyone else have said anything derogatory about the condition itself but continually derailing about the subject to nit pick at some different thing is not doing it any favours!

Do you realise how hard it was for me to reveal what I have and possibly others have gone through in order to discuss a condition that even doctors know so little about and can't explain? I don't find it particularly helpful to be honest "

I do understand it is hard for you or anyone else that has experienced this of any other health condition to speak up about it. Especially one that, as your experience shows, can be misconstrued as something else.

I am in awe of anyone strong enough to share their experiences but that's just it.... It's your experience, your choice on who to share it with and when to share it. Not a work colleague who happens to have access to your file. I'm sorry you see my points as nit picking. I've said my piece on that now so will leave it there.

This thread has been positive as a number have admitted to googling the condition and so raising awareness.

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By *oxy_minxWoman  over a year ago

Scotland - Aberdeen


"In your experience Foxy, would you have viewed my interest in your condition so negatively, trying to seek ways to best help you in your future employment ? "

Personally no I wouldn't, to be called into an office on a Friday morning to ask if I was an alcoholic was the most demoralising thing I have ever undergone even though I had mentioned my condition to a previous manager.

So the little malicious cunt was allowed to keep their anonymity whilst I suffered one of the worst weekends of my life just to be told we are dropping it on the Tuesday!

Like I said people can be nasty cunts with their own agendas and get away with it!

Oh and I still look about the office thinking 'Was it you, you, you, or you?

Understand things before you open your bloody mouth is how I think! So well done into doing some research! I've done enough myself over the years x

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By *iamondsmiles.Woman  over a year ago

little house on the praire

Wow some people on this thread

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By *ugs and JunkCouple  over a year ago

Bellshill


"I have a new colleague at work with this, I don't know a lot about it. She is quite shy and doesn't talk a lot, so I don't want to make her uncomfortable pointing it out.

Is it going to get worse ? Or is it something that stays the same ?

How do you know that she has this?

.

Because I have access to her personal file in my position. I saw her hand shakes and checked her file.

Sorry but whilst the intention of your post is very nice I'm afraid this bit is a tad concerning. While you might have access to her personal file you really shouldn't access it without good reason and that to me is not a good reason. "

I totally agree with this. I know if I take my inhaler too much my hands shake. I would be livid if my employer saw this and decided to wade through my personal file looking to see what it could possibly be.

It’s also a bit crass after looking in this persons file to start a thread on an Internet forum about it

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By *oxy_minxWoman  over a year ago

Scotland - Aberdeen

I'm going to let Sophee off the hitlist here, we were personally having a conversation last night about my condition and I have had other small symptoms that have popped up that I was wondering if they were interlinked with each other in some way. Possibly related to the nerves speaking incorrectly with each other.

She suggested doing a thread to ask about others experiences etc as it wasn't something she had a lot of experience with despite her working background. I automatically said 'no way' as the pack is always saying why are you asking here, go to your GP etc which I fully intend doing BTW or all the usual shite that some get support and others get shit on from a great height depending on your popularity.

So whilst she may have worded things to save me, the thread did in some way go the way I thought it would.

It is disappointing that you can predict how some threads will go before you even post them, but some people do always seem to set out to see the worst either in people or a situation, so hopefully I have set the record straight but the subject matter is still as important

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By *hubaysiWoman  over a year ago

Leeds


"I have a new colleague at work with this, I don't know a lot about it. She is quite shy and doesn't talk a lot, so I don't want to make her uncomfortable pointing it out.

Is it going to get worse ? Or is it something that stays the same ?

How do you know that she has this?

.

Because I have access to her personal file in my position. I saw her hand shakes and checked her file."

I also have access to the staff files at work but I would never dream of just checking a staff file to nosey a medical condition. I would only check the file if I was asked by the Managing Director/Line Manager for certain information which usually equates to their employment.

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By (user no longer on site)  over a year ago

The actress Katherine Hepburn had Essential Tremor, i read it in a Biography about her. I’d always enjoyed her films and noticed her head shook a bit in On Golden Pond but had just thought it was old age, and then read the Book and it was mentioned in there.

Just a bit of useless info...

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By *oxy_minxWoman  over a year ago

Scotland - Aberdeen

So my condition had been disclosed but still didn't stop the situation I found myself in, yeah great! Maybe putting the leaflet on everyone's desk was the best idea going!

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By *ugby 123Couple  over a year ago
Forum Mod

O o O oo

There is nothing wrong with discussing what people write on a forum, people can't decide how a thread will pan out so no abuse please

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By *amissCouple  over a year ago

chelmsford

I would think the only person who should have access to an employee's medical condition, would be their line manager. They are the ones who will be aware of these conditions and ensure they are given every assistance in carrying out their job.

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By *ENGUYMan  over a year ago

Hull


"I would think the only person who should have access to an employee's medical condition, would be their line manager. They are the ones who will be aware of these conditions and ensure they are given every assistance in carrying out their job."

Agreed. In fact in a lot of Companies this wouldn't get out past both HR and immediate Line Management.

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By *amissCouple  over a year ago

chelmsford


"I would think the only person who should have access to an employee's medical condition, would be their line manager. They are the ones who will be aware of these conditions and ensure they are given every assistance in carrying out their job.

Agreed. In fact in a lot of Companies this wouldn't get out past both HR and immediate Line Management."

And rightly so..colleagues shouldn't have access to this personal information, they have no need to know.

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By *ENGUYMan  over a year ago

Hull


"I would think the only person who should have access to an employee's medical condition, would be their line manager. They are the ones who will be aware of these conditions and ensure they are given every assistance in carrying out their job.

Agreed. In fact in a lot of Companies this wouldn't get out past both HR and immediate Line Management.

And rightly so..colleagues shouldn't have access to this personal information, they have no need to know."

If colleagues were to have access to the more sensitive aspects of an Employee's File, then the Company's integrity comes into question and surely is a breach of contract!

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By (user no longer on site)  over a year ago


"I'm going to let Sophee off the hitlist here, we were personally having a conversation last night about my condition and I have had other small symptoms that have popped up that I was wondering if they were interlinked with each other in some way. Possibly related to the nerves speaking incorrectly with each other.

She suggested doing a thread to ask about others experiences etc as it wasn't something she had a lot of experience with despite her working background. I automatically said 'no way' as the pack is always saying why are you asking here, go to your GP etc which I fully intend doing BTW or all the usual shite that some get support and others get shit on from a great height depending on your popularity.

So whilst she may have worded things to save me, the thread did in some way go the way I thought it would.

It is disappointing that you can predict how some threads will go before you even post them, but some people do always seem to set out to see the worst either in people or a situation, so hopefully I have set the record straight but the subject matter is still as important "

So she lied about looking at a colleague's medical information?

The whole OP was a lie?

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By *tonMessCouple  over a year ago

Slough Windsor ish


"I'm going to let Sophee off the hitlist here, we were personally having a conversation last night about my condition and I have had other small symptoms that have popped up that I was wondering if they were interlinked with each other in some way. Possibly related to the nerves speaking incorrectly with each other.

She suggested doing a thread to ask about others experiences etc as it wasn't something she had a lot of experience with despite her working background. I automatically said 'no way' as the pack is always saying why are you asking here, go to your GP etc which I fully intend doing BTW or all the usual shite that some get support and others get shit on from a great height depending on your popularity.

So whilst she may have worded things to save me, the thread did in some way go the way I thought it would.

It is disappointing that you can predict how some threads will go before you even post them, but some people do always seem to set out to see the worst either in people or a situation, so hopefully I have set the record straight but the subject matter is still as important

So she lied about looking at a colleague's medical information?

The whole OP was a lie? "

That's how I read it too.

If the OP has looked at this 'colleagues' file and medical notes they need to hope the content of this thread doesn't find its way to their management.

I think misuse of private information is a data protection breach and not only sackable but punishable by law too

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By *icketysplitsWoman  over a year ago

Way over Yonder, that's where I'm bound


"So my condition had been disclosed but still didn't stop the situation I found myself in, yeah great! Maybe putting the leaflet on everyone's desk was the best idea going! "

So the thread is about your workplace experience and finding out others' experience of Essential Tremor?

Your workplace behaved insensitively, you have been hurt and that should be addressed. Have you taken advice on this? I think you should formally discuss it with your manager. I know that's hard, stressful and puts the onus on you but you are clearly angry and upset and that isn't good for you.

I assume that no one looked through your file, found the information and used it against you or in support of you, or is the OP's example of seeing the information in the file what happened?

Learning about different conditions and how they affect people to support them is a good thing, if someone has disclosed to you. The new knowledge may change behaviours, however slightly, that may make the colleague wonder who has been talking about them.

Checking someone's file is wrong. Discussing the person on an open forum is wrong. However discreet we might think our photos and information on here are there are always identifiable factors. The colleague could be reading it and feeling that their personal data has been breached.

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By *otSoNewWalesCoupleCouple  over a year ago

South Wales


"I have a new colleague at work with this, I don't know a lot about it. She is quite shy and doesn't talk a lot, so I don't want to make her uncomfortable pointing it out.

Is it going to get worse ? Or is it something that stays the same ?

How do you know that she has this?

.

Because I have access to her personal file in my position. I saw her hand shakes and checked her file."

Wow! So you're posting private details of this woman's medical condition on a SWINGER'S website to people you don't even know!

Absolutely disgusting!

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By (user no longer on site)  over a year ago


"I have a new colleague at work with this, I don't know a lot about it. She is quite shy and doesn't talk a lot, so I don't want to make her uncomfortable pointing it out.

Is it going to get worse ? Or is it something that stays the same ?

How do you know that she has this?

.

Because I have access to her personal file in my position. I saw her hand shakes and checked her file.

Sorry but whilst the intention of your post is very nice I'm afraid this bit is a tad concerning. While you might have access to her personal file you really shouldn't access it without good reason and that to me is not a good reason. "

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By (user no longer on site)  over a year ago


"I actually suffer with this and have done for at least ten years.

Mine unfortunately is full body tremor and if I wear high heels it becomes more noticeable in my legs.

I take gabapentin daily, which has helped with my hand shakes, enough so that I can sign my signature again which is all good.

My doctor also said that for some reason or another, alcohol helps settle this condition also, so glass of wine any one? "

I have this too and I was also told alcohol helps- It really does

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By (user no longer on site)  over a year ago

I have a tremor too, not so noticible unless someone knows me well.

I wouldn't point it out, sounds like she likes to keep herself to herself. And if she is concious of it it may make her withdraw further.

Chat get to know her, but don't mention her tremor.

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By (user no longer on site)  over a year ago


"I feel its good of you to research in order to understand her work situation.

"

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By (user no longer on site)  over a year ago


"In your experience Foxy, would you have viewed my interest in your condition so negatively, trying to seek ways to best help you in your future employment ?

Personally no I wouldn't, to be called into an office on a Friday morning to ask if I was an alcoholic was the most demoralising thing I have ever undergone even though I had mentioned my condition to a previous manager.

So the little malicious cunt was allowed to keep their anonymity whilst I suffered one of the worst weekends of my life just to be told we are dropping it on the Tuesday!

Like I said people can be nasty cunts with their own agendas and get away with it!

Oh and I still look about the office thinking 'Was it you, you, you, or you?

Understand things before you open your bloody mouth is how I think! So well done into doing some research! I've done enough myself over the years x"

Have your work colleagues been more supportive since they know the truth? Sorry you had to go through that. x

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By *oxy_minxWoman  over a year ago

Scotland - Aberdeen


"In your experience Foxy, would you have viewed my interest in your condition so negatively, trying to seek ways to best help you in your future employment ?

Personally no I wouldn't, to be called into an office on a Friday morning to ask if I was an alcoholic was the most demoralising thing I have ever undergone even though I had mentioned my condition to a previous manager.

So the little malicious cunt was allowed to keep their anonymity whilst I suffered one of the worst weekends of my life just to be told we are dropping it on the Tuesday!

Like I said people can be nasty cunts with their own agendas and get away with it!

Oh and I still look about the office thinking 'Was it you, you, you, or you?

Understand things before you open your bloody mouth is how I think! So well done into doing some research! I've done enough myself over the years x

Have your work colleagues been more supportive since they know the truth? Sorry you had to go through that. x"

Not really, because it is not a condition that causes pain or anything, I am however more vocal about it and speak openly about if only to make the person who made the anonymous report feel embarrassed about their actions but I’d still love to know what outcome they had hoped to achieve, but I suppose I will never know

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By (user no longer on site) OP     over a year ago


"I have a new colleague at work with this, I don't know a lot about it. She is quite shy and doesn't talk a lot, so I don't want to make her uncomfortable pointing it out.

Is it going to get worse ? Or is it something that stays the same ?

How do you know that she has this?

.

Because I have access to her personal file in my position. I saw her hand shakes and checked her file.

Wow! So you're posting private details of this woman's medical condition on a SWINGER'S website to people you don't even know!

Absolutely disgusting!"

What woman ? You have absolutely no idea who I am talking about

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By (user no longer on site)  over a year ago


"I have a new colleague at work with this, I don't know a lot about it. She is quite shy and doesn't talk a lot, so I don't want to make her uncomfortable pointing it out.

Is it going to get worse ? Or is it something that stays the same ?

How do you know that she has this?

.

Because I have access to her personal file in my position. I saw her hand shakes and checked her file.

Wow! So you're posting private details of this woman's medical condition on a SWINGER'S website to people you don't even know!

Absolutely disgusting!"

Don’t be so judgemental. The person with the condition hasn’t been named so they remain totally anonymous and oblivious. It’s no different to talking about cancer or Parkinson’s, lots of people have it. Would that be disgusting too?

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By (user no longer on site)  over a year ago


"I have a new colleague at work with this, I don't know a lot about it. She is quite shy and doesn't talk a lot, so I don't want to make her uncomfortable pointing it out.

Is it going to get worse ? Or is it something that stays the same ?

How do you know that she has this?

.

Because I have access to her personal file in my position. I saw her hand shakes and checked her file.

Wow! So you're posting private details of this woman's medical condition on a SWINGER'S website to people you don't even know!

Absolutely disgusting!

Don’t be so judgemental. The person with the condition hasn’t been named so they remain totally anonymous and oblivious. It’s no different to talking about cancer or Parkinson’s, lots of people have it. Would that be disgusting too? "

Reading through this post i have seen the best and the worst of fab ...but foxy minx has already stated the person in question is her so can we please take that on board and move on..

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By *ady LickWoman  over a year ago

Northampton Somewhere


"I have a new colleague at work with this, I don't know a lot about it. She is quite shy and doesn't talk a lot, so I don't want to make her uncomfortable pointing it out.

Is it going to get worse ? Or is it something that stays the same ?

How do you know that she has this?

.

Because I have access to her personal file in my position. I saw her hand shakes and checked her file.

Wow! So you're posting private details of this woman's medical condition on a SWINGER'S website to people you don't even know!

Absolutely disgusting!

Don’t be so judgemental. The person with the condition hasn’t been named so they remain totally anonymous and oblivious. It’s no different to talking about cancer or Parkinson’s, lots of people have it. Would that be disgusting too?

Reading through this post i have seen the best and the worst of fab ...but foxy minx has already stated the person in question is her so can we please take that on board and move on..

"

You know what I wondered that then I thought no way would someone start a thread like this!!!

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By *amissCouple  over a year ago

chelmsford


"I have a new colleague at work with this, I don't know a lot about it. She is quite shy and doesn't talk a lot, so I don't want to make her uncomfortable pointing it out.

Is it going to get worse ? Or is it something that stays the same ?

How do you know that she has this?

.

Because I have access to her personal file in my position. I saw her hand shakes and checked her file.

Wow! So you're posting private details of this woman's medical condition on a SWINGER'S website to people you don't even know!

Absolutely disgusting!

Don’t be so judgemental. The person with the condition hasn’t been named so they remain totally anonymous and oblivious. It’s no different to talking about cancer or Parkinson’s, lots of people have it. Would that be disgusting too?

Reading through this post i have seen the best and the worst of fab ...but foxy minx has already stated the person in question is her so can we please take that on board and move on..

"

Ah ok maybe the OP could have been a general 'has anybody had any experience of this condition'? It would have turned out so differently.

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By (user no longer on site)  over a year ago


"Can I please just bring this back on track? Unless you have experienced any of this then please don't derail it!

I suffered from this condition for years and never felt the need to seek out medication intervention as it wasn't really affecting my life apart from knowing I had the condition, oh and problems with applying mascara lol

Then just over two years ago, someone made a malicious anonymous 'concern' (my fucking arse!) that I was an alcoholic as I had 'the shakes' and it needed to be looked into.

My work did not use any tact or use any diplomacy and called me into the office to speak about it. I have never been soo humiliated in all my life!

All this spiteful person did was cause me paranoia, my weekend (yes my work did this on a Friday and I walked out) was full of depression and tears and that was what made me seek out whether there was medication I could take to prevent the shakes and will no doubt be on it for the rest of my working life at least!

People are nasty, people are sly, so please don't try and derail a thread that is trying to do positive to highlight this condition, as it is more prevalent than people think, but soo many are embarrassed by it and suffer in silence because others like to always think the worst of others.

As this thread has clearly shown

"

Well said

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By *iamondsmiles.Woman  over a year ago

little house on the praire

Well foxyminx/sophee ive learnt a lot about the consition. As for the negative people some people thrive on it

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By *abs..Woman  over a year ago

..


"Well foxyminx/sophee ive learnt a lot about the consition. As for the negative people some people thrive on it"

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By (user no longer on site)  over a year ago


"Well foxyminx/sophee ive learnt a lot about the consition. As for the negative people some people thrive on it"

I don't see anything negative about her condition on this thread.

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By (user no longer on site)  over a year ago


"I have a new colleague at work with this, I don't know a lot about it. She is quite shy and doesn't talk a lot, so I don't want to make her uncomfortable pointing it out.

Is it going to get worse ? Or is it something that stays the same ?

How do you know that she has this?

.

Because I have access to her personal file in my position. I saw her hand shakes and checked her file.

Wow! So you're posting private details of this woman's medical condition on a SWINGER'S website to people you don't even know!

Absolutely disgusting!

Don’t be so judgemental. The person with the condition hasn’t been named so they remain totally anonymous and oblivious. It’s no different to talking about cancer or Parkinson’s, lots of people have it. Would that be disgusting too?

Reading through this post i have seen the best and the worst of fab ...but foxy minx has already stated the person in question is her so can we please take that on board and move on..

Ah ok maybe the OP could have been a general 'has anybody had any experience of this condition'? It would have turned out so differently. "

Or the person who has the condition could have asked for herself instead of the OP making up a story.

That would have been the sensible thing to do.

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By *abs..Woman  over a year ago

..


"Well foxyminx/sophee ive learnt a lot about the consition. As for the negative people some people thrive on it

I don't see anything negative about her condition on this thread."

Mi don’t think she meant negativity about the condition. I didn’t take it that way anyway but I’m sure she can speak for herself

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By *iamondsmiles.Woman  over a year ago

little house on the praire


"Well foxyminx/sophee ive learnt a lot about the consition. As for the negative people some people thrive on it

I don't see anything negative about her condition on this thread.

Mi don’t think she meant negativity about the condition. I didn’t take it that way anyway but I’m sure she can speak for herself "

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By *amissCouple  over a year ago

chelmsford


"I have a new colleague at work with this, I don't know a lot about it. She is quite shy and doesn't talk a lot, so I don't want to make her uncomfortable pointing it out.

Is it going to get worse ? Or is it something that stays the same ?

How do you know that she has this?

.

Because I have access to her personal file in my position. I saw her hand shakes and checked her file.

Wow! So you're posting private details of this woman's medical condition on a SWINGER'S website to people you don't even know!

Absolutely disgusting!

Don’t be so judgemental. The person with the condition hasn’t been named so they remain totally anonymous and oblivious. It’s no different to talking about cancer or Parkinson’s, lots of people have it. Would that be disgusting too?

Reading through this post i have seen the best and the worst of fab ...but foxy minx has already stated the person in question is her so can we please take that on board and move on..

Ah ok maybe the OP could have been a general 'has anybody had any experience of this condition'? It would have turned out so differently.

Or the person who has the condition could have asked for herself instead of the OP making up a story.

That would have been the sensible thing to do.

"

Yes this

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By *ittle_brat_evie!!Woman  over a year ago

evesham

Is questionninb the integrity of someone who claimed to have access to peoples personal information really 'the worst of fab'?

Pretty sure if a guy had posted how he accessed women's files to see if they were single or not would have received mass outrage by the very same people who claim I'm so bloody awful.

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By (user no longer on site)  over a year ago


"Well foxyminx/sophee ive learnt a lot about the consition. As for the negative people some people thrive on it

I don't see anything negative about her condition on this thread.

Mi don’t think she meant negativity about the condition. I didn’t take it that way anyway but I’m sure she can speak for herself "

If the subject of the OP had spoken for herself in the beginning there wouldn't have been all this hoo ha over what happened (which didn't actually happen).

I think the managers were at fault for not looking in her file and seeing her condition; instead, calling her in for a meeting about her being an alcoholic.

Which is what the OP said happened.

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By (user no longer on site) OP     over a year ago

To close......

Ok, I could have phrased my post differently, but the person I was trying to help, was having this medical condition hanging over her, she has other major difficulties going on right now in her life.

Having seen another poster ask for medical advice, and receiving quite positive replies, I suggested she tried the same. She felt too vulnerable to open up to here, for fear of negativity.

We jokingly mentioned a couple of regulars who would probably find fault, which they predictably did.

The plus side, people have mailed privately with positive research we were not aware of, and forimites with the same condition, are mailing each other with suppport.

Thanks to those who recognised that someone was trying to help someone, rather than the how

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By *tonMessCouple  over a year ago

Slough Windsor ish

I don't think anybody had a problem with you wanting to help a colleague... It was the way you embellished the story by 'looking at her personal file to see what was wrong' that caused the outcry... Surely you can see how incredibly wrong that would be? I truly hope you never feel tempted to actually do that?

The positive outcome is fellow sufferers are now in touch with eachother and can offer support. And of course hopefully a few have found out a little about the condition too.

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By *ugby 123Couple  over a year ago
Forum Mod

O o O oo


"

We jokingly mentioned a couple of regulars who would probably find fault, which they predictably did.

)"

Then maybe you should have worded your OP and answers differently as you made yourself look like you were doing something you shouldn't at work.

people commenting on what YOU wrote is not them finding fault, it was pointing out that it wasn't the right thing to do

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By *ittle_brat_evie!!Woman  over a year ago

evesham


"To close......

Ok, I could have phrased my post differently, but the person I was trying to help, was having this medical condition hanging over her, she has other major difficulties going on right now in her life.

Having seen another poster ask for medical advice, and receiving quite positive replies, I suggested she tried the same. She felt too vulnerable to open up to here, for fear of negativity.

We jokingly mentioned a couple of regulars who would probably find fault, which they predictably did.

The plus side, people have mailed privately with positive research we were not aware of, and forimites with the same condition, are mailing each other with suppport.

Thanks to those who recognised that someone was trying to help someone, rather than the how "

The fault wasn't found in your intention behind your post, I even said as much in a couple of my posts yet you chose to overlook that part.

The fault lay in your supposed fabrication about going through a personnel file. One could almost say you were flaming the forums by posting an untruth that you knew would raise issues.

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By (user no longer on site) OP     over a year ago

I did not intend to flame anything. My intent was to help someone feeling very vulnerable as I have just damn well posted. Stop raking up shit

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By *ugs and JunkCouple  over a year ago

Bellshill


"I did not intend to flame anything. My intent was to help someone feeling very vulnerable as I have just damn well posted. Stop raking up shit "

Well why not put a post up saying anyone have experience of this and say you were looking for information or fellow sufferers to help a friend? Instead you made up a whole lot of bullshit, getting defensive at people saying you did wrong over a LIE you told. It’s all really sad especially as it’s evolved into this and you could of avoided it

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By *hubaysiWoman  over a year ago

Leeds


"I did not intend to flame anything. My intent was to help someone feeling very vulnerable as I have just damn well posted. Stop raking up shit "

Popcorn moment....

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By *icketysplitsWoman  over a year ago

Way over Yonder, that's where I'm bound


"I did not intend to flame anything. My intent was to help someone feeling very vulnerable as I have just damn well posted. Stop raking up shit "

Hmmm, I may well be in your, "We jokingly mentioned a couple of regulars who would probably find fault, which they predictably did" category...

You posted that two hours ago in your 'putting this to bed' post. Perhaps try to be as forgiving as you are expecting others to be about the "how" of your OP?

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By (user no longer on site) OP     over a year ago

Yes, and so I just posted to say sorry is I worded it wrong.

What the fuck do you want ?

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By (user no longer on site)  over a year ago


"To close......

Ok, I could have phrased my post differently, but the person I was trying to help, was having this medical condition hanging over her, she has other major difficulties going on right now in her life.

Having seen another poster ask for medical advice, and receiving quite positive replies, I suggested she tried the same. She felt too vulnerable to open up to here, for fear of negativity.

We jokingly mentioned a couple of regulars who would probably find fault, which they predictably did.

The plus side, people have mailed privately with positive research we were not aware of, and forimites with the same condition, are mailing each other with suppport.

Thanks to those who recognised that someone was trying to help someone, rather than the how "

So you knew when you posted it it was bollocks and people would call you out on it?

Why look for sympathy from here if that's the view you have of people.

Your predicament at your place of work was a management error.

The person raising a concern was doing what they should have been doing-raising a concern.

You have no idea who it was or why they raised the concert yet you flew into a rage about being called into a meeting about it.

If your managers, or whoever deals with it had looked at your medical files that you disclosed to them, they would have seen the reason for your tremors and told the "tell tale" thank you for raising your concern and don't speak of it any more please.

You're assuming they did it out of spite or something, where they might actually be concerned about you.

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By *iamondsmiles.Woman  over a year ago

little house on the praire

At least some good has come from this thread

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By (user no longer on site) OP     over a year ago


"To close......

Ok, I could have phrased my post differently, but the person I was trying to help, was having this medical condition hanging over her, she has other major difficulties going on right now in her life.

Having seen another poster ask for medical advice, and receiving quite positive replies, I suggested she tried the same. She felt too vulnerable to open up to here, for fear of negativity.

We jokingly mentioned a couple of regulars who would probably find fault, which they predictably did.

The plus side, people have mailed privately with positive research we were not aware of, and forimites with the same condition, are mailing each other with suppport.

Thanks to those who recognised that someone was trying to help someone, rather than the how

So you knew when you posted it it was bollocks and people would call you out on it?

Why look for sympathy from here if that's the view you have of people.

Your predicament at your place of work was a management error.

The person raising a concern was doing what they should have been doing-raising a concern.

You have no idea who it was or why they raised the concert yet you flew into a rage about being called into a meeting about it.

If your managers, or whoever deals with it had looked at your medical files that you disclosed to them, they would have seen the reason for your tremors and told the "tell tale" thank you for raising your concern and don't speak of it any more please.

You're assuming they did it out of spite or something, where they might actually be concerned about you.

"

You are mixing my post to find out about a 'colleague' with Foxys recent encounter at work. Now people are saying management should have checked her records before accusing her of being an alcoholic. Yet people are ranting about my claim to have checked her files

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By (user no longer on site) OP     over a year ago

Sorry, stupid phone added wrong emoji's

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By (user no longer on site)  over a year ago


"To close......

Ok, I could have phrased my post differently, but the person I was trying to help, was having this medical condition hanging over her, she has other major difficulties going on right now in her life.

Having seen another poster ask for medical advice, and receiving quite positive replies, I suggested she tried the same. She felt too vulnerable to open up to here, for fear of negativity.

We jokingly mentioned a couple of regulars who would probably find fault, which they predictably did.

The plus side, people have mailed privately with positive research we were not aware of, and forimites with the same condition, are mailing each other with suppport.

Thanks to those who recognised that someone was trying to help someone, rather than the how

So you knew when you posted it it was bollocks and people would call you out on it?

Why look for sympathy from here if that's the view you have of people.

Your predicament at your place of work was a management error.

The person raising a concern was doing what they should have been doing-raising a concern.

You have no idea who it was or why they raised the concert yet you flew into a rage about being called into a meeting about it.

If your managers, or whoever deals with it had looked at your medical files that you disclosed to them, they would have seen the reason for your tremors and told the "tell tale" thank you for raising your concern and don't speak of it any more please.

You're assuming they did it out of spite or something, where they might actually be concerned about you.

You are mixing my post to find out about a 'colleague' with Foxys recent encounter at work. Now people are saying management should have checked her records before accusing her of being an alcoholic. Yet people are ranting about my claim to have checked her files

"

You were talking about checking her file to see if there was something wrong.

Her actual manager, after someone raising a concern about her being an alcoholic (if that's what they said) should have checked her medical file before accusing her of being a d*unk. They weren't talking about how to approach a work colleague who had tremors.

I think that would have been a more apt thread, if Foxy wanted people's opinions of how they would have approached her.

That wasn't what her issue was though; it was with someone raising a concern about her well being.

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By *ittle_brat_evie!!Woman  over a year ago

evesham


"To close......

Ok, I could have phrased my post differently, but the person I was trying to help, was having this medical condition hanging over her, she has other major difficulties going on right now in her life.

Having seen another poster ask for medical advice, and receiving quite positive replies, I suggested she tried the same. She felt too vulnerable to open up to here, for fear of negativity.

We jokingly mentioned a couple of regulars who would probably find fault, which they predictably did.

The plus side, people have mailed privately with positive research we were not aware of, and forimites with the same condition, are mailing each other with suppport.

Thanks to those who recognised that someone was trying to help someone, rather than the how

So you knew when you posted it it was bollocks and people would call you out on it?

Why look for sympathy from here if that's the view you have of people.

Your predicament at your place of work was a management error.

The person raising a concern was doing what they should have been doing-raising a concern.

You have no idea who it was or why they raised the concert yet you flew into a rage about being called into a meeting about it.

If your managers, or whoever deals with it had looked at your medical files that you disclosed to them, they would have seen the reason for your tremors and told the "tell tale" thank you for raising your concern and don't speak of it any more please.

You're assuming they did it out of spite or something, where they might actually be concerned about you.

You are mixing my post to find out about a 'colleague' with Foxys recent encounter at work. Now people are saying management should have checked her records before accusing her of being an alcoholic. Yet people are ranting about my claim to have checked her files

"

Because as a 'colleague' who simply saw someone shake you have not right to go through her file. Management, who have had someone accuse an employee of being d*unk on duty would have a reason to check the file, although I still believe they would have to have consent for them to access medical stuff.

Why is this so hard for people to understand? It's basic data protection rules wether your scenario was real or not.

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By (user no longer on site) OP     over a year ago

It is not hard to understand. What I don't understand is why that 'point' is being raked up over and over again, despite Foxy admitting it was about her, and me saying I could have worded it better. I have admitted it was a mistake, yet with good intent.

SORRY

SORRY

SORRY

SORRY

SORRY

SORRY

SORRY

SORRY

SORRY

SORRY

SORRY

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By *amissCouple  over a year ago

chelmsford


"It is not hard to understand. What I don't understand is why that 'point' is being raked up over and over again, despite Foxy admitting it was about her, and me saying I could have worded it better. I have admitted it was a mistake, yet with good intent.

SORRY

SORRY

SORRY

SORRY

SORRY

SORRY

SORRY

SORRY

SORRY

SORRY

SORRY

"

Ok...lesson learnt and hopefully Foxy would have got some useful feedback.

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By *oxy_minxWoman  over a year ago

Scotland - Aberdeen

Personally I doubt I would have:

If your face doesn't fit and you are not one of the popular gang, I would have got all the 'Why are you asking here and not your own GP'

Which is why I was loath to post in the first place.

My original question wasn't even asked so therefore not answered and I definitely wont ask it now!

But I have been given new links to enable me to possibly find out the answers I seek.

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By *amissCouple  over a year ago

chelmsford


"Personally I doubt I would have:

If your face doesn't fit and you are not one of the popular gang, I would have got all the 'Why are you asking here and not your own GP'

Which is why I was loath to post in the first place.

My original question wasn't even asked so therefore not answered and I definitely wont ask it now!

But I have been given new links to enable me to possibly find out the answers I seek. "

So that's a good thing Foxy and I hope you find those answers. We have a family member with the same condition and we are struggling to find any answers, even from the medical profession

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By *icketysplitsWoman  over a year ago

Way over Yonder, that's where I'm bound


"Personally I doubt I would have:

If your face doesn't fit and you are not one of the popular gang, I would have got all the 'Why are you asking here and not your own GP'

Which is why I was loath to post in the first place.

My original question wasn't even asked so therefore not answered and I definitely wont ask it now!

But I have been given new links to enable me to possibly find out the answers I seek. "

Your threads get posts - I've read them. People have empathised and offered advice about your ongoing building issues.

Every thread about something medical will have *someone* come on and say that you need to go to your GP and not take advice from a bunch of swingers. Those same threads also have advice and ideas, good and bad.

We'll never know because you didn't ask the question you wanted answers to and, therefore, it's not surprising you didn't get the answers you sought.

I truly hope the links do lead you to some answers.

Good luck.

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By *oxy_minxWoman  over a year ago

Scotland - Aberdeen


"Personally I doubt I would have:

If your face doesn't fit and you are not one of the popular gang, I would have got all the 'Why are you asking here and not your own GP'

Which is why I was loath to post in the first place.

My original question wasn't even asked so therefore not answered and I definitely wont ask it now!

But I have been given new links to enable me to possibly find out the answers I seek.

So that's a good thing Foxy and I hope you find those answers. We have a family member with the same condition and we are struggling to find any answers, even from the medical profession "

Exactly what I am finding so going to your own GP isn't always the answer as they don't know! It is a relatively new condition and some say it is genetically related, which was my worry as my sibling has been given an undisclosed ME diagnosis which I don't know is related but her consultant was very interested about the fact that I also suffer even though hers' came on later than mine!

But there is some research going on about laser treatment to a certain brain area (nerve endings) which is non intrusive which may help, so I will be looking into this further, if anyone wants further info, feel free to message me

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By *amissCouple  over a year ago

chelmsford


"Personally I doubt I would have:

If your face doesn't fit and you are not one of the popular gang, I would have got all the 'Why are you asking here and not your own GP'

Which is why I was loath to post in the first place.

My original question wasn't even asked so therefore not answered and I definitely wont ask it now!

But I have been given new links to enable me to possibly find out the answers I seek.

So that's a good thing Foxy and I hope you find those answers. We have a family member with the same condition and we are struggling to find any answers, even from the medical profession

Exactly what I am finding so going to your own GP isn't always the answer as they don't know! It is a relatively new condition and some say it is genetically related, which was my worry as my sibling has been given an undisclosed ME diagnosis which I don't know is related but her consultant was very interested about the fact that I also suffer even though hers' came on later than mine!

But there is some research going on about laser treatment to a certain brain area (nerve endings) which is non intrusive which may help, so I will be looking into this further, if anyone wants further info, feel free to message me

"

Yes, there is always lots of research going on with all sorts of conditions...but how far down the line are the answers. Neurological disorders are very difficult to control, the brain is a very complicated thing and yes I do have personal experience, but hopefully, in the future, they will find some answers for us all.

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By (user no longer on site)  over a year ago

I have this condition but it may be in the early stages as I can stop it happening if it is noticed just by concentrating on the shake and I can stop it happening. I have spoken about it to my GP ...who didn't seem too interested as it was not evident when I brought it up..but friends have noticed it and some are diplomatic in fetching it up whilst others are not so and think I've gone back on the drink...so summing up.

I feel it is still at the cinderella stages of illness's with the medical profession on the whole...so I'm pleased this post was made to make some awareness to this condition

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By *ittle_brat_evie!!Woman  over a year ago

evesham


"It is not hard to understand. What I don't understand is why that 'point' is being raked up over and over again, despite Foxy admitting it was about her, and me saying I could have worded it better. I have admitted it was a mistake, yet with good intent.

SORRY

SORRY

SORRY

SORRY

SORRY

SORRY

SORRY

SORRY

SORRY

SORRY

SORRY

"

Because you keep insinuating people are wrong to have raised the issue after you posted about it. Are we not allowed to reply to your comments about us?

I've never asked you to apologise for what you posted. My reaction was perfectly valid because at the time we didn't know you made it up.

Rugby has already said it is not against any rules for us to react to statements made, we there true or not.

I even made a separate thread about it to avoid carrying it on here yet you continued to post comments about it, trying to get people on your fictitious side.

I'll not mention my view on the situation provided you don't post comments implying I am wrong or the worst of fab or anything else derogatory.

Foxy, I do empathise for your situation. I have never had it happen to me and I have no experience of the condition myself but as a manager I can see that you have not been treated right through this process. I hope you find support and advice needed.

As Someone else has said none of the 'negativity' has been aimed at the condition or yourself and my comments regarding personal data were not made for any other reason than protecting just that.... People's private data.

I have posted medical problems on here and whilst you do get the predictable comments about going to the Dr the vast majority of posts have received good personal anecdotes and support much like a lot of posts on here. I do feel it would have been better of it had been posted in the first person.

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By (user no longer on site) OP     over a year ago

The whole point of it not been posted in the first person, is that person didn't feel comfortable doing so. This thread was turning positive again, acknowledging mistakes in posting had occurred and supporting the person who this thread was all about.

But here you go again, raking it up again.

SORRY Evie, sorry again.

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By *ittle_brat_evie!!Woman  over a year ago

evesham


"The whole point of it not been posted in the first person, is that person didn't feel comfortable doing so. This thread was turning positive again, acknowledging mistakes in posting had occurred and supporting the person who this thread was all about.

But here you go again, raking it up again.

SORRY Evie, sorry again."

Once again..... Never asked for an apology from you and never will.

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By *ittle_brat_evie!!Woman  over a year ago

evesham


"The whole point of it not been posted in the first person, is that person didn't feel comfortable doing so. This thread was turning positive again, acknowledging mistakes in posting had occurred and supporting the person who this thread was all about.

But here you go again, raking it up again.

SORRY Evie, sorry again.

Once again..... Never asked for an apology from you and never will. "

Also.... Why is it only me raking it up if you feel compelled to reply to every post I make? Perhaps you should take some of your own advice. If you continue to make reference to me and my posts I shall continue to reply.

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By (user no longer on site) OP     over a year ago


"The whole point of it not been posted in the first person, is that person didn't feel comfortable doing so. This thread was turning positive again, acknowledging mistakes in posting had occurred and supporting the person who this thread was all about.

But here you go again, raking it up again.

SORRY Evie, sorry again.

Once again..... Never asked for an apology from you and never will.

Also.... Why is it only me raking it up if you feel compelled to reply to every post I make? Perhaps you should take some of your own advice. If you continue to make reference to me and my posts I shall continue to reply. "

The same reason you keep replying. You quote my posts. I reply.

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By *ittle_brat_evie!!Woman  over a year ago

evesham


"The whole point of it not been posted in the first person, is that person didn't feel comfortable doing so. This thread was turning positive again, acknowledging mistakes in posting had occurred and supporting the person who this thread was all about.

But here you go again, raking it up again.

SORRY Evie, sorry again.

Once again..... Never asked for an apology from you and never will.

Also.... Why is it only me raking it up if you feel compelled to reply to every post I make? Perhaps you should take some of your own advice. If you continue to make reference to me and my posts I shall continue to reply.

The same reason you keep replying. You quote my posts. I reply."

Ah... One of those...i see....

*doffs cap and leaves the saloon.... Much better things to do*

Laters

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By (user no longer on site) OP     over a year ago

*waves goodbye* Thanks for coming by. Have a fabulous weekend.

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By *amissCouple  over a year ago

chelmsford

Everything aside, this has been an interesting subject. Tremor is very difficult to control. Essential Tremor is nothing to do with Parkinson's, that is a resting tremor, but it is very difficult to medicate and the drugs that do, have side effects. Good luck to anyone with this condition.

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By (user no longer on site) OP     over a year ago


"Everything aside, this has been an interesting subject. Tremor is very difficult to control. Essential Tremor is nothing to do with Parkinson's, that is a resting tremor, but it is very difficult to medicate and the drugs that do, have side effects. Good luck to anyone with this condition."

Have you seen the post about the laser treatment ? I also have private mail about some research if it affects someone you know ?

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By *amissCouple  over a year ago

chelmsford


"Everything aside, this has been an interesting subject. Tremor is very difficult to control. Essential Tremor is nothing to do with Parkinson's, that is a resting tremor, but it is very difficult to medicate and the drugs that do, have side effects. Good luck to anyone with this condition.

Have you seen the post about the laser treatment ? I also have private mail about some research if it affects someone you know ?"

I'm a carer for someone with Parkinson's, the tremors are very similar, but Parkinson's is due to the lack of dopamine in the brain. A friend, last year had something inserted in his brain, to try and control the tremor, like a pacemaker, unfortunately it didn't work for him. I don't know if this is something they would use for essential tremor, as its quite a big operation.

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By (user no longer on site) OP     over a year ago

Ah right. No, the link I have is specifically for essential tremors.

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By *ottie_84Woman  over a year ago

Nottingham

I have ET and it’s bloody horrible! I’m medicated for it but recently had to double my meds, it’s horrible when customers ask me if I’ve been drinking etc

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By *amissCouple  over a year ago

chelmsford


"Ah right. No, the link I have is specifically for essential tremors."

Thank you anyway It's the same old story, there are never enough funds for research into these debilitating conditions. We have come on leaps and bounds, in cancer research, in the last few years, and rightly so, but many people are affected and deserve treatment that can reduce the symptoms of essential tremor and Parkinson's.

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By *amissCouple  over a year ago

chelmsford


"I have ET and it’s bloody horrible! I’m medicated for it but recently had to double my meds, it’s horrible when customers ask me if I’ve been drinking etc "

Yes, it's not very nice and people can be judgemental

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By (user no longer on site) OP     over a year ago


"I have ET and it’s bloody horrible! I’m medicated for it but recently had to double my meds, it’s horrible when customers ask me if I’ve been drinking etc "

Would you like the research link ? Or mail Foxy, she has it now and sharing what she knows.

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By *ottie_84Woman  over a year ago

Nottingham


"I have ET and it’s bloody horrible! I’m medicated for it but recently had to double my meds, it’s horrible when customers ask me if I’ve been drinking etc

Would you like the research link ? Or mail Foxy, she has it now and sharing what she knows."

. Ooh yes please

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By *ottie_84Woman  over a year ago

Nottingham


"I have ET and it’s bloody horrible! I’m medicated for it but recently had to double my meds, it’s horrible when customers ask me if I’ve been drinking etc

Yes, it's not very nice and people can be judgemental "

oh definitely, especially when I’m trying to have a drink & need a straw. When I was diagnosed at 32 I asked the dr if they were sure because I didn’t think young people could be diagnosed with it I always thought it was a old persons thing if that makes sense?

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By (user no longer on site)  over a year ago


"I have ET and it’s bloody horrible! I’m medicated for it but recently had to double my meds, it’s horrible when customers ask me if I’ve been drinking etc

Yes, it's not very nice and people can be judgemental

oh definitely, especially when I’m trying to have a drink & need a straw. When I was diagnosed at 32 I asked the dr if they were sure because I didn’t think young people could be diagnosed with it I always thought it was a old persons thing if that makes sense? "

I think most people think it’s an old persons condition yet I had it young and so has my son. X

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By *amissCouple  over a year ago

chelmsford


"I have ET and it’s bloody horrible! I’m medicated for it but recently had to double my meds, it’s horrible when customers ask me if I’ve been drinking etc

Yes, it's not very nice and people can be judgemental

oh definitely, especially when I’m trying to have a drink & need a straw. When I was diagnosed at 32 I asked the dr if they were sure because I didn’t think young people could be diagnosed with it I always thought it was a old persons thing if that makes sense? "

Bless you and yes it does make sense. From this thread, it's surprising how common this condition is and that people need to be made aware of it, so they can be more understanding towards those with it.

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By (user no longer on site)  over a year ago

I have it. I try to hide it as much as possible because a few of the people i work with mentioned it and one told me i should keep going doctors until they sorted it !! I wish it was that simple !!

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By *amissCouple  over a year ago

chelmsford


"I have ET and it’s bloody horrible! I’m medicated for it but recently had to double my meds, it’s horrible when customers ask me if I’ve been drinking etc

Yes, it's not very nice and people can be judgemental

oh definitely, especially when I’m trying to have a drink & need a straw. When I was diagnosed at 32 I asked the dr if they were sure because I didn’t think young people could be diagnosed with it I always thought it was a old persons thing if that makes sense?

I think most people think it’s an old persons condition yet I had it young and so has my son. X "

Just been reading that Angie. Do any meds help you?

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By *amissCouple  over a year ago

chelmsford


"I have it. I try to hide it as much as possible because a few of the people i work with mentioned it and one told me i should keep going doctors until they sorted it !! I wish it was that simple !!"

It really isn't that simple is it. It does appear to be a common condition,it makes me wonder why more research hasn't been done, although I appreciate any neurological condition is hard to treat. The brain is a very complex thing and there is still a lot we don't know about its functions.

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By *ottie_84Woman  over a year ago

Nottingham


"I have it. I try to hide it as much as possible because a few of the people i work with mentioned it and one told me i should keep going doctors until they sorted it !! I wish it was that simple !!

It really isn't that simple is it. It does appear to be a common condition,it makes me wonder why more research hasn't been done, although I appreciate any neurological condition is hard to treat. The brain is a very complex thing and there is still a lot we don't know about its functions."

Neurological conditions suck ass! I have cluster headaches and my son has Tourette’s

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By *amissCouple  over a year ago

chelmsford


"I have it. I try to hide it as much as possible because a few of the people i work with mentioned it and one told me i should keep going doctors until they sorted it !! I wish it was that simple !!

It really isn't that simple is it. It does appear to be a common condition,it makes me wonder why more research hasn't been done, although I appreciate any neurological condition is hard to treat. The brain is a very complex thing and there is still a lot we don't know about its functions.

Neurological conditions suck ass! I have cluster headaches and my son has Tourette’s "

Gosh, doesn't sound great for you, sorry to hear that.

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By *ottie_84Woman  over a year ago

Nottingham


"I have it. I try to hide it as much as possible because a few of the people i work with mentioned it and one told me i should keep going doctors until they sorted it !! I wish it was that simple !!

It really isn't that simple is it. It does appear to be a common condition,it makes me wonder why more research hasn't been done, although I appreciate any neurological condition is hard to treat. The brain is a very complex thing and there is still a lot we don't know about its functions.

Neurological conditions suck ass! I have cluster headaches and my son has Tourette’s

Gosh, doesn't sound great for you, sorry to hear that."

Ah it’s ok, you learn to live with this stuff that’s thrown at you

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By (user no longer on site)  over a year ago


"I have ET and it’s bloody horrible! I’m medicated for it but recently had to double my meds, it’s horrible when customers ask me if I’ve been drinking etc

Yes, it's not very nice and people can be judgemental

oh definitely, especially when I’m trying to have a drink & need a straw. When I was diagnosed at 32 I asked the dr if they were sure because I didn’t think young people could be diagnosed with it I always thought it was a old persons thing if that makes sense?

I think most people think it’s an old persons condition yet I had it young and so has my son. X

Just been reading that Angie. Do any meds help you?"

We’ve never been offered meds, but I think it’s time for us to ask about it. X

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By *amissCouple  over a year ago

chelmsford


"I have it. I try to hide it as much as possible because a few of the people i work with mentioned it and one told me i should keep going doctors until they sorted it !! I wish it was that simple !!

It really isn't that simple is it. It does appear to be a common condition,it makes me wonder why more research hasn't been done, although I appreciate any neurological condition is hard to treat. The brain is a very complex thing and there is still a lot we don't know about its functions.

Neurological conditions suck ass! I have cluster headaches and my son has Tourette’s

Gosh, doesn't sound great for you, sorry to hear that.

Ah it’s ok, you learn to live with this stuff that’s thrown at you "

You are quite right and a good attitude to have. My family are in the same position, we concentrate on what we can do rather than what we can't do.

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By *amissCouple  over a year ago

chelmsford


"I have ET and it’s bloody horrible! I’m medicated for it but recently had to double my meds, it’s horrible when customers ask me if I’ve been drinking etc

Yes, it's not very nice and people can be judgemental

oh definitely, especially when I’m trying to have a drink & need a straw. When I was diagnosed at 32 I asked the dr if they were sure because I didn’t think young people could be diagnosed with it I always thought it was a old persons thing if that makes sense?

I think most people think it’s an old persons condition yet I had it young and so has my son. X

Just been reading that Angie. Do any meds help you?

We’ve never been offered meds, but I think it’s time for us to ask about it. X "

Well I knew very little about ET until I googled it and there are several different meds on the market, it's finding the one that works for you

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By *ottie_84Woman  over a year ago

Nottingham


"I have it. I try to hide it as much as possible because a few of the people i work with mentioned it and one told me i should keep going doctors until they sorted it !! I wish it was that simple !!

It really isn't that simple is it. It does appear to be a common condition,it makes me wonder why more research hasn't been done, although I appreciate any neurological condition is hard to treat. The brain is a very complex thing and there is still a lot we don't know about its functions.

Neurological conditions suck ass! I have cluster headaches and my son has Tourette’s

Gosh, doesn't sound great for you, sorry to hear that.

Ah it’s ok, you learn to live with this stuff that’s thrown at you

You are quite right and a good attitude to have. My family are in the same position, we concentrate on what we can do rather than what we can't do. "

If I didn’t have that attitude I would be the one in the corner lol, it comes with its tribulations and no point dwelling on something we can’t change

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By *amissCouple  over a year ago

chelmsford


"I have it. I try to hide it as much as possible because a few of the people i work with mentioned it and one told me i should keep going doctors until they sorted it !! I wish it was that simple !!

It really isn't that simple is it. It does appear to be a common condition,it makes me wonder why more research hasn't been done, although I appreciate any neurological condition is hard to treat. The brain is a very complex thing and there is still a lot we don't know about its functions.

Neurological conditions suck ass! I have cluster headaches and my son has Tourette’s

Gosh, doesn't sound great for you, sorry to hear that.

Ah it’s ok, you learn to live with this stuff that’s thrown at you

You are quite right and a good attitude to have. My family are in the same position, we concentrate on what we can do rather than what we can't do.

If I didn’t have that attitude I would be the one in the corner lol, it comes with its tribulations and no point dwelling on something we can’t change "

Exactly this

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By (user no longer on site)  over a year ago


"I have it. I try to hide it as much as possible because a few of the people i work with mentioned it and one told me i should keep going doctors until they sorted it !! I wish it was that simple !!

It really isn't that simple is it. It does appear to be a common condition,it makes me wonder why more research hasn't been done, although I appreciate any neurological condition is hard to treat. The brain is a very complex thing and there is still a lot we don't know about its functions."

Its a nightmare

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By *amissCouple  over a year ago

chelmsford


"I have it. I try to hide it as much as possible because a few of the people i work with mentioned it and one told me i should keep going doctors until they sorted it !! I wish it was that simple !!

It really isn't that simple is it. It does appear to be a common condition,it makes me wonder why more research hasn't been done, although I appreciate any neurological condition is hard to treat. The brain is a very complex thing and there is still a lot we don't know about its functions.

Its a nightmare "

I can appreciate that.x

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By (user no longer on site)  over a year ago


"I have ET and it’s bloody horrible! I’m medicated for it but recently had to double my meds, it’s horrible when customers ask me if I’ve been drinking etc

Yes, it's not very nice and people can be judgemental

oh definitely, especially when I’m trying to have a drink & need a straw. When I was diagnosed at 32 I asked the dr if they were sure because I didn’t think young people could be diagnosed with it I always thought it was a old persons thing if that makes sense?

I think most people think it’s an old persons condition yet I had it young and so has my son. X

Just been reading that Angie. Do any meds help you?

We’ve never been offered meds, but I think it’s time for us to ask about it. X

Well I knew very little about ET until I googled it and there are several different meds on the market, it's finding the one that works for you "

Yes, that’s the problem. I’m wary of the meds as my son had lots of them when he was younger due to his epilepsy and suffered bad side effects. I don’t want to take a step back x

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By *amissCouple  over a year ago

chelmsford


"I have ET and it’s bloody horrible! I’m medicated for it but recently had to double my meds, it’s horrible when customers ask me if I’ve been drinking etc

Yes, it's not very nice and people can be judgemental

oh definitely, especially when I’m trying to have a drink & need a straw. When I was diagnosed at 32 I asked the dr if they were sure because I didn’t think young people could be diagnosed with it I always thought it was a old persons thing if that makes sense?

I think most people think it’s an old persons condition yet I had it young and so has my son. X

Just been reading that Angie. Do any meds help you?

We’ve never been offered meds, but I think it’s time for us to ask about it. X

Well I knew very little about ET until I googled it and there are several different meds on the market, it's finding the one that works for you

Yes, that’s the problem. I’m wary of the meds as my son had lots of them when he was younger due to his epilepsy and suffered bad side effects. I don’t want to take a step back x "

I understand that..some of these meds do have some horrible side effects

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