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FIBROMYALGIA...Q:? Who else suffers with this?

By *issminxandmrc OP Couple over a year ago

Rotherham

I've been very fit and Healthy for the majority of my life,then for no apparent reason I was diagnosed with "Type2" Diabetes!!

Then a few months later,I then STARTED to suffer with Fibromyalgia also?

I do have on/off depression also,for which I take Antidepressants (Venlafaxine) 150MG daily

I've done quite a lot of research into "Fibro" and it does appear to be 'linked' to ppl that (a) suffer with depression &/or/(b) Type 2 sufferers!!(or both)

Out of curiosity~ Does anyone else suffer with Fibromyalgia(and) also Type 2 Diabetes and depression with Fibro(like me)

Would really appreciate any replies TYVM ~ Jules xxx

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By *issminxandmrc OP Couple over a year ago

Rotherham

"I've been very fit and Healthy for the majority of my life,then for no apparent reason I was diagnosed with "Type2" Diabetes!!

Then a few months later,I then STARTED to suffer with Fibromyalgia also?

I do have on/off depression also,for which I take Antidepressants (Venlafaxine) 150MG daily

I've just seen the numerous other threads ...that have all been extremely helpful tyvm x

I've done quite a lot of research into "Fibro" and it does appear to be 'linked' to ppl that (a) suffer with depression &/or/(b) Type 2 sufferers!!(or both)

Out of curiosity~ Does anyone else suffer with Fibromyalgia(and) also Type 2 Diabetes and depression with Fibro(like me)

Would really appreciate any replies TYVM ~ Jules xxx

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By (user no longer on site) over a year ago

I have fibromyalgia with chronic fatigue syndrome..

Fibromyalgia is a kind of umbrella diagnosis that covers a lot of different symptoms and everyone is different ..

I have never heard of it with diabetes for instance but you must be relieved you have a diagnosis..

It was being diagnosed that sent me into depression and anxiety but as i am not a believer in taking pills for the sake of it i had councelling instead

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By (user no longer on site) over a year ago

Try CDB oil from Holland & Barratt, a mate of mine suffer Fibro and swears by the legal drug. Get the capsules as the oil tastes disgusting.

The oil is from cold pressed hemp (cannibis) seeds but they remove the chemical THC that get you hooked.

You'll notice a difference in less fibro fog, sore joints etc within 3-4 days.

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By *rs mischiefWoman over a year ago

Manchester

"I've been very fit and Healthy for the majority of my life,then for no apparent reason I was diagnosed with "Type2" Diabetes!!

Then a few months later,I then STARTED to suffer with Fibromyalgia also?

I do have on/off depression also,for which I take Antidepressants (Venlafaxine) 150MG daily

I've done quite a lot of research into "Fibro" and it does appear to be 'linked' to ppl that (a) suffer with depression &/or/(b) Type 2 sufferers!!(or both)

Out of curiosity~ Does anyone else suffer with Fibromyalgia(and) also Type 2 Diabetes and depression with Fibro(like me)

Would really appreciate any replies TYVM ~ Jules xxx

I have fibro. And suffered depression a while ago. I have to be checked for diabetes every year, after gestational diabetes and family history.

My fibro is bad at the moment due to the extreme hot weather. On all types of pills. I am going to ask for some herbal cannabis or get my own cbd oil. Feel free to pm me if you want xx

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By *_Yeah19Couple over a year ago

Lincoln

No not personally but have seen a lot of research and heard from people who swear a real food, low carb diet is good for fibro, and it’s definitey awesome for T2D.

Feel free to message if you want any info, as I’ve started as an Ambassador for a charity trying to get this exact message across

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By *oodmessMan over a year ago

yumsville

I have cfs, no diabetes, no depression.. There was a period a good few years ago where I caught a bad cold and was off work for around 6 weeks. I pushed myself back into work but was physically unfit at my desk and after few months after I came down with total body pain leaving me bedridden. I am better than I was though it's not for want of nagging Dr's to look into endless things they don't want to.

When I looked at CBD it was expensive, showed little pain relief and wasn't available on prescription. As far as diet, cutting sugar is a major factor. I eat fruit but am mindful some fruit are very high in fructose too. Gluten free foods are good but I don't have Crohns where wheat is a major factor, but eating fresh is with good veg obv helps.

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By *oodmessMan over a year ago

yumsville

^ Sorry celiac disease, where wheat would be an issue.

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By *innamon!Woman over a year ago

no matter

Lady gaga suffers with it too . Horrid painful condition

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By *hoenixAdAstraWoman over a year ago

Hiding in the shadows

I don't.. But after a lot of health issues, my best friend was diagnosed with this last October.

On a good day, she's OK, but the bad days hit & just getting out of bed exhausts her.

I've cut down my work hours over the last couple of months to be able to help her out.

It's devastating to watch the changes its caused to her life

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By *issminxandmrc OP Couple over a year ago

Rotherham

Thank you all sooo much for these messages!! ~ x

I too have days/weeks where I haven't got the NRG to even lift my arm up to brush my own hair~it's crap!!Yes! it's like a fog type lifestyle when you have an episode(I walk round in circles and get nothing done)It's like your out of your own body"so hard to try and describe to people"

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By (user no longer on site) over a year ago

Ello... first off, massive hugs to you.

I've also recently been diagnosed with fibromyalgia, following a whole bunch of stress plus an infection (nothing *that* nasty, just fighting off a bad bite on holiday).

My first attempt at TGirl sex following this was, to put it mildly, not great. Even with full and correct prep on both sides the initial pain was nausea-inducing. I also seem to have issues orgasming even solo.

All that said: how do you manage it, and is there an option for a decent sex life - kinky or otherwise? At this point, quite seriously considering hie'ing myself to a nunnery.

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By *issminxandmrc OP Couple over a year ago

Rotherham

Hi there x

It’s been ages since my last reply .. so

Thought I owed it to you all .. to say thank you

To all who took the time out to reply to my thread !!

I’ve since had a stroke .. followed by an emergency Carotid Endarterectomy in December!! .. which had only

added to my chronic fatigue syndrome that I suffered with my fibromyalgia condition

I’ve been put on 30mg of Amytriptaline

& 80mg of quinine

Since my stroke I’m now on a much higher dose 80me of Atorvastatin for chlorestrol

& a blood thinner clopidigeral

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By *issminxandmrc OP Couple over a year ago

Rotherham

I’m seriously considering getting some capsule version of the CBD oil

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By (user no longer on site) over a year ago

I've heard this bizarre story that it's almost impossible to diagnose and can be a bit of a meal ticket for those who have no fancy for going out and doing a days graft - but I'm sure that isn't true ?

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By (user no longer on site) over a year ago

"I’m seriously considering getting some capsule version of the CBD oil

Ive had fibro for 17 years. I was bed ridden for 8 years, unable to even stand up for 10. Last 7 years ive claimed my life back thanks to cbd. Im off all the crap meds docs pile on you that make symptoms worse and only dealing with 'livable' pain now on a daily basis. I flare bad if i get a virus but cbd controls the pain enough for me to live again. I even started full time uni this year, its a challenge but one im greatful to have the opportunity for. xx

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By (user no longer on site) over a year ago

I use cbd jellies not the capsules as it gets into your system faster if its dissolved under the tongue, however they probs contain sugar so i dont know if that would effect diabetes

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By (user no longer on site) over a year ago

"I've heard this bizarre story that it's almost impossible to diagnose and can be a bit of a meal ticket for those who have no fancy for going out and doing a days graft - but I'm sure that isn't true ?"

If only ppl who believe that could live with it for just one day and see what they think then. 24/7 pain isn't funny and the pain is only one of a hundred symptoms

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By *rufinWoman over a year ago

notts

I had fibro symptoms that went once I treated my severely low vit d levels and borderline hypothyroidism.

Vit d levels are often not tested but cause a lot of pain and tiredness.

Hope you all find a way out of this pain and tiredness. It was horrible.

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By *ublinGirl92Woman over a year ago

Hell

I have fibro. Got diagnosed with it when I was 20. CBD is fantastic for it imo.

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By *tevenwantstoMan over a year ago

n dorset

I fortunatly dont suffer but i know how destructive both mentally and physically it can be.

I have heard that wxercicise can be benificial in managing it?

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By *tevenwantstoMan over a year ago

n dorset

CBD has no solid scientific proven benifits

Some people have said they may have felt some

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By *a LunaWoman over a year ago

South Wales

We have a work colleague who suffers with this condition. She rarely goes sick with anything, but when she comes into the office you can see the pain she is in -you can see it in her eyes. She is not making it up. She looks exhausted and so sad, on the verge of tears if you ask her how she is. But she comes into work.

Now imagine being in constant physical pain daily, where painkillers don’t help. Dr’s are a bit “no idea what it could be really”. It affects your sleep, your moods and personal relationships (hard to be a ray of sunshine when in constant agony)...now Imagine confiding in someone about it in a bid for some emotional support and then them telling you you’re just workshy and making it up.

A bit unfeeling don’t you think?

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By *erfumedpornovampireWoman over a year ago

Swindon

Was diagnosed with it in 2007 after suffering with chronic fatigue for 20 years. Less than 6 months I was diagnosed with it I had a bad case of optic neuritis which led to a diagnosis of MS three years later so now I have both

I actually cried with relief when I was diagnosed, I was so tired of feeling like a hypochondriac for so many years.

Heaven help any normal person who says 'oh, I get tired like that' though, be thankful you can't read minds

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By *rebs001Man over a year ago

Widnes

I know couple of people with fybro and completely whacks them. Can only imagine what it's like - I'm falling apart as it is but still rather have what I have rather than fybro

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By (user no longer on site) over a year ago

L has fibro and arthritis, the only time she doesnt feel pain is during sex

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By (user no longer on site) over a year ago

My wife suffers from fibro, ME/CFS, yet I'm type 2 diabetic, it's no fun for her thats for sure, shes on pregabalin for hers, tho she finds magnesium suppliments and spray helps a bit

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By (user no longer on site) over a year ago

"My wife suffers from fibro, ME/CFS, yet I'm type 2 diabetic, it's no fun for her thats for sure, shes on pregabalin for hers, tho she finds magnesium suppliments and spray helps a bit"

My wife too suffers badly, shes on pregablin, Tramadol, ibuprofen, anti depressants, and a few other things to treat the side effects of the pain killers.

She is still in agony most of the time and gets little sleep at night. She is not diagnosed with fibro but has most of the symptoms, she has been diagnosed weih ME/CFS though.

I wouldn’t wish it on my worst enemy

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By (user no longer on site) over a year ago

My mum has fibro and suffers terribly so I really feel for anyone who has it as it's one of those illnesses with a stigma because it is still really misunderstood, including GPs.

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By (user no longer on site) over a year ago

As well as mentioned above she also takes Naproxen and recently changed to slow release Tramadol x

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By *gcw2014Couple over a year ago

just outside of liverpool

Tracey suffers with it bad. Constantly tired and feeling drained. Doesnt sleep much and always in pain. Too reliant on tramadol but it helps

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By (user no longer on site) over a year ago

Where is the best place to get the CBD capsules?

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By *andKBCouple over a year ago

Plymouth

I have fibro and mine is linked to the past. As is my mental health.

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By *ogNMuseCouple over a year ago

Surrey

Our daughter has had fibro, ME/CFS (plus hydrocephalus requiring lumbar punctures) for coming up 4 years - Poor soul has missed out on nearly all her teenage years, what a battle it’s been trying to get any sort of treatment plan - we’ve ended taking her private as our local NHS trust have proven to be clueless when it comes to adolescent ME/CFS

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By *rufinWoman over a year ago

notts

"Our daughter has had fibro, ME/CFS (plus hydrocephalus requiring lumbar punctures) for coming up 4 years - Poor soul has missed out on nearly all her teenage years, what a battle it’s been trying to get any sort of treatment plan - we’ve ended taking her private as our local NHS trust have proven to be clueless when it comes to adolescent ME/CFS "

That's v sad. I had cfs as a teen and missed a lot of school. I had hoped things might have improved.

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By *omesticated_VixenWoman over a year ago

sw London

That's v sad. I had cfs as a teen and missed a lot of school. I had hoped things might have improved. "

Sadly not our last conversation with her consultant was she doesn’t know how to treat her. The arguments we have had which is why we have decided to go private to s lovely consultant who also is doing research into the illness as well

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By (user no longer on site) over a year ago

I’ve had 25+ years of this chronic debilitating illness and been bedridden multiple times

Viewers by many ignorant people as an excuse for laziness

Rarely accepted by DWP or employers when it comes to benefit claims and sickness absences

Unfortunately as it’s a hidden disability many people interpret it as being a fake illness

Only those who live with the condition knows how horrendous it can be

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By *omesticated_VixenWoman over a year ago

sw London

"I’ve had 25+ years of this chronic debilitating illness and been bedridden multiple times

Viewers by many ignorant people as an excuse for laziness

Rarely accepted by DWP or employers when it comes to benefit claims and sickness absences

Unfortunately as it’s a hidden disability many people interpret it as being a fake illness

Only those who live with the condition knows how horrendous it can be"

Oh yes we have had the comments that’s when over protective mum comes out and will say something.

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By *ogNMuseCouple over a year ago

Surrey

"I’ve had 25+ years of this chronic debilitating illness and been bedridden multiple times

Viewers by many ignorant people as an excuse for laziness

Rarely accepted by DWP or employers when it comes to benefit claims and sickness absences

Unfortunately as it’s a hidden disability many people interpret it as being a fake illness

Only those who live with the condition knows how horrendous it can be

Oh yes we have had the comments that’s when over protective mum comes out and will say something. "

Gobby moo!

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By *_Yeah19Couple over a year ago

Lincoln

Further to my previous message, if you haven’t already, please look into a change of diet (may well have to be fairly drastic but what’s worse!)

Not saying it’s a miracle cure but I have heard of a lot of people who’ve seen improvements.

Always willing to help via message

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By (user no longer on site) over a year ago

Im currently being told it’s hard to determine wether it’s fibro/cfs/ms as all my symptoms common in each

I also have erratic blood pressure, am diabetic and have gastroparesis

I’ve lived with the pain for so long but now I feel like I have no quality of life sometimes with all the other symptoms.

I’ve had CBT and now been referred for physio so as not to loose muscle and to my local pain clinic to look at alternatives and to a neurologist

Due to the gastroparesis I have poor absorption with tablets so I’ve been looking at CBD oil myself but still on the fence with it

My GP is pushing for me to try antidepressants but I’m still fighting as I’m only down due to my collective illnesses I will keep on smiling as long as I can

It’s also an invisible disability and visibility I look fit and well but inside feel like I’m dying

It’s hard to explain to people they just think I’m tired or not well again

I do have a few close friends I’ve confided in who are a great support

If anyone can recommend any support groups I’d be grateful thanks xxx

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By *rufinWoman over a year ago

notts

"Im currently being told it’s hard to determine wether it’s fibro/cfs/ms as all my symptoms common in each