FabSwingers.com > Forums > The Lounge > All pray for MrC...xx
All pray for MrC...xx
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Carl's finally going into Hospital THIS FRIDAY (of all days!!!!)
for his "cancerous"
total~Prostate removal!!
NB:The only symptom he had (seriously) was going to the Lou 3/4 times per night which I personally thought was a little too much.
So I googled this & the "possibility" of 'Prostate Cancer' came up!!
That was in June 2016.
Bloods were slightly high & at this stage it was just "moderately "enlarged & was given medication to 'shrink it (the side effect was "Retograde ejaculation" & diminished Lobedo)
~bloody crap for both of us !!!
His GP told him at his annual check in June 2017..."I'll see you again Carl in 12months"(over my dead body I told him) & demanded he see Carl every month!!!!!
& BLOODY 'THANK GOD' I INSISTED HE SEE HIM EVERY MONTH ~ because by August's examination it had totally changed & felt different(HARDER)
His bloods were higher & at his 2nd MRI scan,BODY BONE SCAN & Biopsies it showed a 8mm tumour!! & Carl' STILL' feels absolutely NORMAL!!
His energy levels are normal,he works out for 2hrs 5 x a week & walks the dogs twice a day !! seriously normal!
So ...take note Fab Guys /peeps~
"there doesn't have to be ANY symptoms
AT ALL
for ya to have Prostate Cancer :o(
Carl's lucky he had a pushy Fiance LOL
All will go well ...i'm sure xx
Jules xxxx
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By (user no longer on site)
over a year ago
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Wish him all the best! And stay strong! Sending love and good vibes your way! xx |
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Wish him all the best and hope all works out, my youngest son is going through his 2nd bout of breast cancer and fingers crossed all seems to be going well for him at the moment....so sendong luck your way. |
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By (user no longer on site)
over a year ago
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Heres some positive wishes. I look forward to hearing all has gone well xxxx |
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By (user no longer on site)
over a year ago
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Nice work Jules, lots of love and luck to you both xxxx |
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By (user no longer on site)
over a year ago
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Wishing him and you all the absolute best and mr c a full recovery x |
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Thanks sweetheart!!...
I should add....over 40's go to ya GP's & ask for a test(it's a couple of mins slight discomfort at the most) & worth it to put ya mind at rest.
Apparently we've been told by Carl's Urologist~ "EVERYMAN" EVENTUALLY GETS PROSTATE CANCER~ but most die before they actually knew they had it~ EG: old age etc & ACTUALLY DIE having had it for yrs!!
as there can honestly be no symptoms for many (each man's different)
so don't take the risk..go and see ya GP's ASAP ~
Love Jules x
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By (user no longer on site)
over a year ago
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Thanks Jule's for your post x hope the Op goes well this Friday x |
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By (user no longer on site)
over a year ago
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Hope the operation goes well. Best wishes x |
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By (user no longer on site)
over a year ago
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All the best for Mr Cs procedure xx |
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By (user no longer on site)
over a year ago
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All the best and thanks for taking the time to pass on the information |
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By (user no longer on site)
over a year ago
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Lots of good wishes for you both.
Well done for pushing your gp, they are lazy buggers at best. I've got true stories about lazy gps that miss things, that could fill a book.
I know they are only human but I just wish more would listen to us when we tell them that something isn't right with our bodies. |
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"Carl's finally going into Hospital THIS FRIDAY (of all days!!!!)
for his "cancerous"
total~Prostate removal!!
NB:The only symptom he had (seriously) was going to the Lou 3/4 times per night which I personally thought was a little too much.
So I googled this & the "possibility" of 'Prostate Cancer' came up!!
That was in June 2016.
Bloods were slightly high & at this stage it was just "moderately "enlarged & was given medication to 'shrink it (the side effect was "Retograde ejaculation" & diminished Lobedo)
~bloody crap for both of us !!!
His GP told him at his annual check in June 2017..."I'll see you again Carl in 12months"(over my dead body I told him) & demanded he see Carl every month!!!!!
& BLOODY 'THANK GOD' I INSISTED HE SEE HIM EVERY MONTH ~ because by August's examination it had totally changed & felt different(HARDER)
His bloods were higher & at his 2nd MRI scan,BODY BONE SCAN & Biopsies it showed a 8mm tumour!! & Carl' STILL' feels absolutely NORMAL!!
His energy levels are normal,he works out for 2hrs 5 x a week & walks the dogs twice a day !! seriously normal!
So ...take note Fab Guys /peeps~
"there doesn't have to be ANY symptoms
AT ALL
for ya to have Prostate Cancer :o(
Carl's lucky he had a pushy Fiance LOL
All will go well ...i'm sure xx
Jules xxxx
"
Yes, all the best. Must be a complete nightmare for you both and your family. |
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By (user no longer on site)
over a year ago
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What a brilliant post for awareness.
Well done jules for telling your story.
Good luck Carl. Catching it early is the best thing. |
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By (user no longer on site)
over a year ago
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All the best to Carl |
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By (user no longer on site)
over a year ago
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Sending Carl all our best wishes .
Taff and Pooch |
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"All the best to you both. "
Good luck with it all x |
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By (user no longer on site)
over a year ago
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Sending all my love and best wishes |
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By (user no longer on site)
over a year ago
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Wish you guys all the best. |
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By (user no longer on site)
over a year ago
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Hope the OP goes well
Wishing you both hugs and the best of luck |
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By (user no longer on site)
over a year ago
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Sending best wishes to Mr and also to you xx
Mrs |
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By *s_macWoman
over a year ago
Traffic land |
Best wishes to you both! |
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By *yldstyleWoman
over a year ago
A world of my own |
Good luck to mr c. It must be a scary time for you both so sending lots of positive wishes x |
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I'm sat here with happy tears rolling
down my face
X ALL OF YOU THANK YOU SO VERY MUCH X
Carl's no idea I've wrote this ( & will no doubt) knowing how private he is LOL
INITIALLY say ..
"Julie" why did ya do that?
then ~ I'll just let him read
"ALL THESE GENUINELY LOVELY MESSAGES
..... FOR HIM!!"
keep em coming ..bless you all |
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By (user no longer on site)
over a year ago
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[Removed by poster at 22/11/17 07:41:23] |
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By (user no longer on site)
over a year ago
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"Lots of good wishes for you both.
Well done for pushing your gp, they are lazy buggers at best. I've got true stories about lazy gps that miss things, that could fill a book.
I know they are only human but I just wish more would listen to us when we tell them that something isn't right with our bodies. "
that's fucked up.
Well done op, on catching it and all the very best |
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By (user no longer on site)
over a year ago
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Aww aren't you awesome!? Well done doll! Sometimes we need to be!
Sending you all the luck in the world! Get well soon Carl!
Eve and Adam. Xx |
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By *uxom redCouple
over a year ago
Shrewsbury |
Sending all the best and boobie hugs to you both. X |
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By (user no longer on site)
over a year ago
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May Carl have a speedy recovery and a long and healthy life.
Well done OP for being pushy! |
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Having a family history if prostate cancer I have annual check-ups, and lasso support Orchid, the male cancer trust
Did you know that long term deficiency in vitamin D plays a role in the of prostate cancer?
Good luck with the op today, and keep well |
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By (user no longer on site)
over a year ago
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Good luck and a speedy recovery x |
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By (user no longer on site)
over a year ago
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This is a really important issue ...i believe all men should have Psa levels done above the age of 40. |
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Keeping things crossed, abd sending you both lots of love & hugs xxx |
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By *ransGuyTV/TS
over a year ago
Cardiff |
Good luck! Fingers crossed for a speedy recovery!
And from someone who also had to keep pushing when something was wrong with me - good going with the GP! |
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By (user no longer on site)
over a year ago
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I hope all goes well with a full recovery. All the very best to you both x |
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By (user no longer on site)
over a year ago
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Good luck and all the best for a speedy recovery x |
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By (user no longer on site)
over a year ago
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My brother-in-law went through this a few years ago with a good and positive outcome. I wish you the same |
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Hope it all goes well, thinking of you both xx |
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Thanks sooo much to ALL of you.
Carl's all ready & waiting to go in for his Operation in less than 8hrs !!! x
Will 100% keep ya ALL up to D8 how it goes
Once again thank you to everyone that has sent messages and all the positive vibes love Jules (and Carl) |
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By *ieman300Man
over a year ago
Best Greggs in Cheshire East |
Hope all goes well. X |
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Sending healthy and healing blessings for Carl. Supportive ones for you op. It'll be tough on you both but you seem to be strong.
Well done with GP too, myself and daughter and other family members have faced similar issues with GP's |
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By *isa 59Woman
over a year ago
Newcastle |
Well done Jules for pushing your GP and well done Carl for listening to Jules and getting checked out.
Hope everything goes well with your op today and look forward to hearing about a positive outcome |
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******NB: Mr C's UPDATE *******
========================================
I took Carl into the Theatre Admissions unit for 10.30am. They allow N.o.k to stay right up to going down for Theatre which is fantastic (so much better than our Local Hospital all round) His Op takes approx 3/4 Hrs,But as yet,he's still in theatre,so appears to taking longer than normal(he's opted for the "Nerve sparing" procedure,so this can take a little longer.As soon as i hear anything I'll up date ya !!
Just been told (6.35pm!!)
Mr C's back in Recovery...so I'm in the car NOW !!! |
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By *j48Man
over a year ago
Wigan |
Wow
A great post
Get well soon Carl, hugs and best wishes to you Jules
P |
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By (user no longer on site)
over a year ago
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Hope you're on the mend soon xx |
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By (user no longer on site)
over a year ago
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"Lots of good wishes for you both.
Well done for pushing your gp, they are lazy buggers at best. I've got true stories about lazy gps that miss things, that could fill a book.
I know they are only human but I just wish more would listen to us when we tell them that something isn't right with our bodies. "
Daily mail reader |
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By *ady LickWoman
over a year ago
Northampton Somewhere |
All the best for a speedy recovery. Look after yourselves x |
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Hi everyone x
~just to update you all ~
Carl was in Theatre for 6hrs 10mins!!!(having obviously opted for the much~lengthier "Nerve~ sparing" procedure.
He then went str8 to recovery & was then eventually transferred to the Clinical intensive care Unit(massive delay due to a terrible 8 car+ pile~up at Meadowhall on the M1 at Jct 34. Rotherham was Full,so all the 30+ ppl were sent to both Hallamshire & Northern General hospitals & obviously no spare beds were available in the ITC (bless them all !!)
Carl was then eventually allocated a bed in Clinical care & STAYED THERE until 7pm Saturday only 24hrs after arriving in ICU...He's now on the normal
Urology ward & unbelievably will possibly be being discharged at some point today (Sunday....less than 60hrs in Hospital) what a weekend!!! Lol x |
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Fantastic news glad all's going so well |
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All the best and hope everything will be for the best xx |
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By *ENGUYMan
over a year ago
Hull |
Superb news and I'm glad to see he is recovering fast; it's amazing how quickly some people can recover!!
My brother had a quadruple heart bypass 2 yrs ago; operated on a Thursday, discharged following Monday.
Good luck for your husbands recovery. |
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By (user no longer on site)
over a year ago
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" Hi everyone x
~just to update you all ~
Carl was in Theatre for 6hrs 10mins!!!(having obviously opted for the much~lengthier "Nerve~ sparing" procedure.
He then went str8 to recovery & was then eventually transferred to the Clinical intensive care Unit(massive delay due to a terrible 8 car+ pile~up at Meadowhall on the M1 at Jct 34. Rotherham was Full,so all the 30+ ppl were sent to both Hallamshire & Northern General hospitals & obviously no spare beds were available in the ITC (bless them all !!)
Carl was then eventually allocated a bed in Clinical care & STAYED THERE until 7pm Saturday only 24hrs after arriving in ICU...He's now on the normal
Urology ward & unbelievably will possibly be being discharged at some point today (Sunday....less than 60hrs in Hospital) what a weekend!!! Lol x"
Wow wonderful news x |
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By (user no longer on site)
over a year ago
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Awesome news. |
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By (user no longer on site)
over a year ago
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All the best to you both. |
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xx~ Carl's update Fab Peeps!! ~ xx
Well it's 6 days exactly since Mr C's op.
All 6 Portal sites on his tummy are healing fantastically well~ still stapled up & not a bit of infection in sight thank goodness!!!
His Catheter has been very uncomfortable though but since he was advised to wear a jockstrap over the pad(for more support and keep his penis in a constant upright position ,it's been lots more bearable and hasn't been as swollen.If only he'd been told this from day1 "bless him"
Was due to go back for his catheter removed tomorrow Friday (1 week post op) but unfortunately the Urology department is fully booked,so it's been scheduled for Monday instead!!(10 days post op)
We've been for a small walk with the dogs to the local park 3 mins away this afternoon (Carl's 1st time out) and
apart from being soooo cold Grrrr ,it went well.
Everyday is getting easier and all is going FAB so far....so gud!!
A massive TY for ALL the wonderful genuinely lovely messages and good wishes!! ...Bless u all xx
lots a luv
Jules & Carl xx |
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Glad to hear recovery is going well. Hopefully this is the last time x |
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By (user no longer on site)
over a year ago
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Fantastic news, wish you all the best in the world |
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By (user no longer on site)
over a year ago
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Sending lots of positive thoughts your way, wishing you a speedy recovery |
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By (user no longer on site)
over a year ago
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Best wishes and heaps of positive thoughts for you both here x |
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By (user no longer on site)
over a year ago
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Great to here it's positive and going well.
Big hugs to you both xx |
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By (user no longer on site)
over a year ago
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Glad to hear it's all going well xx |
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By (user no longer on site)
over a year ago
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Fingers crossed for you both, been in a similar situation.
You are in our thoughts.
xx |
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By (user no longer on site)
over a year ago
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Great to see a post drawing attention to prorate cancer
Finger and toes crossed it all goes well
And wishing a speedy recovery x |
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By (user no longer on site)
over a year ago
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By (user no longer on site)
over a year ago
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So pleased to hear the latest news xx |
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By (user no longer on site)
over a year ago
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Just seen this hugs to you both pleased to hear your other half is healing well wishing him a speedy recovery xx |
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"Carl's finally going into Hospital THIS FRIDAY (of all days!!!!)
for his "cancerous"
total~Prostate removal!!
NB:The only symptom he had (seriously) was going to the Lou 3/4 times per night which I personally thought was a little too much.
So I googled this & the "possibility" of 'Prostate Cancer' came up!!
That was in June 2016.
Bloods were slightly high & at this stage it was just "moderately "enlarged & was given medication to 'shrink it (the side effect was "Retograde ejaculation" & diminished Lobedo)
~bloody crap for both of us !!!
His GP told him at his annual check in June 2017..."I'll see you again Carl in 12months"(over my dead body I told him) & demanded he see Carl every month!!!!!
& BLOODY 'THANK GOD' I INSISTED HE SEE HIM EVERY MONTH ~ because by August's examination it had totally changed & felt different(HARDER)
His bloods were higher & at his 2nd MRI scan,BODY BONE SCAN & Biopsies it showed a 8mm tumour!! & Carl' STILL' feels absolutely NORMAL!!
His energy levels are normal,he works out for 2hrs 5 x a week & walks the dogs twice a day !! seriously normal!
So ...take note Fab Guys /peeps~
"there doesn't have to be ANY symptoms
AT ALL
for ya to have Prostate Cancer :o(
Carl's lucky he had a pushy Fiance LOL
All will go well ...i'm sure xx
Jules xxxx
"
Sending you 2 my best wishes op x |
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By (user no longer on site)
over a year ago
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Stay strong, think possitive and my very best wishes and hopes for you both. |
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Best of luck Carl xx And a big up to you for pursuing it!!!!!
Frank was diagnosed with non-Hodgkins Lymphoma last July. He had no symptoms until I had tonsillitis - we thought I’d given it to him too. It was a pure fluke - if I’d been ill a week earlier or later his immune system may not have been as low as it was & he’d still be undiagnosed now. Chemo & a stem cell transplant have sorted him though. 12 months in remission Our NHS is wonderful xx
B x |
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By (user no longer on site)
over a year ago
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Good luck |
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By (user no longer on site)
over a year ago
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Get well soon. |
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** 3RD UPDATE**
Carl's had a really awfully uncomfortable week with his catheter & the massively painful trauma swelling it's created (bless him)
So yesterday it was "finally" removed THANK GOD!!!along with all the staples from his 6 portal sites on his tummy(from where the surgeon went into his stomach to perform the keyhole procedure)
He's 'STILL' absolutely NO CONTROL over his bladder (as yet) and will need to work on this over the next 6 weeks (really annoying,very frustrating and embarrassing all at the same time)
Still very sore & swollen ,even his thighs are swelling & retaining fluid,But all is quite normal we've been reassured!!
Carl's just got to continue with the 250ml minimum of water every hour and have a small walk each hour to keep everything moving..
BUT~ HE'S SOOOO FED UP NOW 'BLESS HIM'X |
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By *at3232Woman
over a year ago
the moon |
You will get there xx
Keep strong
Hugs xx |
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By *amissCouple
over a year ago
chelmsford |
Ah bless you both. Doesn't sound too pleasant, but sounds like he's on the road to recovering from his Op. I'm sure each day, he will start to feel a little better. {{Hugs}} |
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By (user no longer on site)
over a year ago
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" ** 3RD UPDATE**
Carl's had a really awfully uncomfortable week with his catheter & the massively painful trauma swelling it's created (bless him)
So yesterday it was "finally" removed THANK GOD!!!along with all the staples from his 6 portal sites on his tummy(from where the surgeon went into his stomach to perform the keyhole procedure)
He's 'STILL' absolutely NO CONTROL over his bladder (as yet) and will need to work on this over the next 6 weeks (really annoying,very frustrating and embarrassing all at the same time)
Still very sore & swollen ,even his thighs are swelling & retaining fluid,But all is quite normal we've been reassured!!
Carl's just got to continue with the 250ml minimum of water every hour and have a small walk each hour to keep everything moving..
BUT~ HE'S SOOOO FED UP NOW 'BLESS HIM'X "
Aw it doesnt sound nice but its good hes on the mend. Much love to you both xx |
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The treatment isn’t any fun but keep thinking of the positives going forward xxx
B x |
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By (user no longer on site)
over a year ago
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Hope Carl is continuing to improve. Sending love xx |
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By *isa 59Woman
over a year ago
Newcastle |
Really glad to hear that things are still moving in the right direction.
I'm sure you will...but please insist on regular and thorough check-ups. Aftercare and continuous monitoring are so very important. |
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========================================
**** 4th update ****
========================================
Firstly~
THANK YOU SO VERY MUCH TO ALL OF YOU FOR TAKING THE TIME AND EFFORT TO READ MY THREAD ABT Mr C's operation! :o)
Well it's been 17 days since Carl's operation to removed his cancerous total Prostate Gland (24/11)
He's STILL very swollen in the penile~testicular,pubic,upper thigh & lower leg area's.This is quite normal apparently as fluid builds up and aren't able to drain as quickly,which results in this painful retention swollen build up(which is very uncomfortable 24/7) His balls are ONE MASSIVE GRAPEFRUIT in size & Penis is like a "beached twisted swollen Jurassic~slug" (there's really no other way of describing it at the moment)
His catheter was continually sore throughout the 7 days it was fitted and caused Carl severe discomfort & swelling throughout(I had him back to both Rotherham & Sheffield hospitals 3 times during this 1st week,convinced this swelling wasn't right,only to be discharged & reasurred "THIS WAS NORMAL SWELLING!!" So we assumed once this was removed it would settle back to it's NORMAL pre~op size,but to our shock & obvious disappointment this hasn't been the case so far.
But Carl's a born~fighter and not one to let anything get him down....so he's been determined to try his very best to get back to a slow normality
EG: walking the dogs & keep things
moving (as advised by the
Urologists)Eating & drinking as
required & resting in between as
also advised.
It will eventually settle we've been assured ~ but each day seems to last a lifetime at the moment and I feel totally helpless at the moment and can only try my best to be here for him,which is so bloody frustrating seeing Carl suffer so much x x x
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By (user no longer on site)
over a year ago
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Thanks for the update OP sending hugs across for you both.
Hope things do settle down in the swelling department so you both can have well deserved happy Christmas x |
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Hi Jules
I hope everything goes well and will keep him in my prayers. God bless you both. |
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By *amissCouple
over a year ago
chelmsford |
Ah bless you sweetie. You are obviously a great support to him. It does sound bloody uncomfortable for him, but it will improve with time, it's better than the alternative, if he hadn't had the op. |
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5th update ~ xx
Well it's been a while since my last update,so felt it only right I update you all ,after all the fantastic genuinely lovely messages Carl & I have received TY
Well it's been just over 7 weeks now since Carl had a complete Prostecomy
He's still very much dribbling & and in need of his pads :o) bless him,but his major swelling has at long last started to reduce slowly day by day ,over the last couple of weeks!!! Thank goodness!!
He's going back to see his urologist in 2 weeks so will know far more then(fingers & toes tightly X'ed they've removed it all)
It's gonna be a very long slow recovery
but we hope & pray...his feeling comes back soon& can get back his erections & control the bladder incontinence....but with strong pelvic floor muscles prior to his OP,hopefully things will soon be back to normal
TY SOOO much for ALL the positive messages & fab vibes Mwah!! Mwah!!
Jules (& Carl) xxx |
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I had mine taken out about 7 years ago ..i had the same symptoms. tho not as much as 4 times a nite .
my doctor said i didnt need to have a PSA test as i was too young .. luckily i didnt belive him and said i still wanted one .. tbh the worry of it all is far worse than the actual operation.. it was for me anyway.. hope all goes well |
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By (user no longer on site)
over a year ago
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Hope all goes well. And a speedy recovery |
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Hope all goes well for you op and your husband x |
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By (user no longer on site)
over a year ago
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Speedy recovery xx |
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By (user no longer on site)
over a year ago
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Aww hope your man gets back to himself. It's true that men can ignore things and brush them off as insignificant. Men sometimes see pushy woman when we are only looking out for them. All the best to you both x |
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By (user no longer on site)
over a year ago
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Good luck, hoping he has a speedy recovery.
Mr B |
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By *ieman300Man
over a year ago
Best Greggs in Cheshire East |
"5th update ~ xx
Well it's been a while since my last update,so felt it only right I update you all ,after all the fantastic genuinely lovely messages Carl & I have received TY
Well it's been just over 7 weeks now since Carl had a complete Prostecomy
He's still very much dribbling & and in need of his pads :o) bless him,but his major swelling has at long last started to reduce slowly day by day ,over the last couple of weeks!!! Thank goodness!!
He's going back to see his urologist in 2 weeks so will know far more then(fingers & toes tightly X'ed they've removed it all)
It's gonna be a very long slow recovery
but we hope & pray...his feeling comes back soon& can get back his erections & control the bladder incontinence....but with strong pelvic floor muscles prior to his OP,hopefully things will soon be back to normal
TY SOOO much for ALL the positive messages & fab vibes Mwah!! Mwah!!
Jules (& Carl) xxx "
Wishing him continued recovery. |
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All the best thank god you are persistent ! All the best wishes for you both ! I am glad he have you ! Because that way you can keep an eye on him because some guys just hate doctors ! Thinking of you both and speedy recovery xxx |
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By (user no longer on site)
over a year ago
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" ========================================
**** 4th update ****
========================================
Firstly~
THANK YOU SO VERY MUCH TO ALL OF YOU FOR TAKING THE TIME AND EFFORT TO READ MY THREAD ABT Mr C's operation! :o)
Well it's been 17 days since Carl's operation to removed his cancerous total Prostate Gland (24/11)
He's STILL very swollen in the penile~testicular,pubic,upper thigh & lower leg area's.This is quite normal apparently as fluid builds up and aren't able to drain as quickly,which results in this painful retention swollen build up(which is very uncomfortable 24/7) His balls are ONE MASSIVE GRAPEFRUIT in size & Penis is like a "beached twisted swollen Jurassic~slug" (there's really no other way of describing it at the moment)
His catheter was continually sore throughout the 7 days it was fitted and caused Carl severe discomfort & swelling throughout(I had him back to both Rotherham & Sheffield hospitals 3 times during this 1st week,convinced this swelling wasn't right,only to be discharged & reasurred "THIS WAS NORMAL SWELLING!!" So we assumed once this was removed it would settle back to it's NORMAL pre~op size,but to our shock & obvious disappointment this hasn't been the case so far.
But Carl's a born~fighter and not one to let anything get him down....so he's been determined to try his very best to get back to a slow normality
EG: walking the dogs & keep things
moving (as advised by the
Urologists)Eating & drinking as
required & resting in between as
also advised.
It will eventually settle we've been assured ~ but each day seems to last a lifetime at the moment and I feel totally helpless at the moment and can only try my best to be here for him,which is so bloody frustrating seeing Carl suffer so much x x x
"
No words except been there. Sending virtual hugs . |
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latest update for MrC XXX
Well the last almost 7months have flown by since MrC's Prostate cancer operation TYVVM to everyone for ALL the wonderful genuine messages and genuine concern for both of us x
Carl's still off work and unfortunately STILL "totally incontinent " and also still unable to achieve an erection as yet,
We were referred to the clinic who gave him a pump~ but no joy as yet!!!
He's still working on his pelvic floor exercises ,but has severe Lymphadema in his left leg still(due to the removal of all the nodes in both Groins(as a safe guard) The cancer was removed totally by robotic key hole surgery at the Hallamshire in Sheffield(so anyone with advice please feel free to PM us
love Jules & Carl xxx |
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"
As your status says you're looking for somebody younger than MrC now so none of this really matters.."
Swinging and health are two different.
A lot of people have followed this couple's experiences and will be glad of an update.
This has nothing to do with the decisions they have made regarding their sex life.
To be honest your reply appears rude, ever heard the saying " If you haven't got any thing nice to say, don't say anything!"
The scars from cancer run deep, let people deal with these scars as they see fit.
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By (user no longer on site)
over a year ago
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"latest update for MrC XXX
Well the last almost 7months have flown by since MrC's Prostate cancer operation TYVVM to everyone for ALL the wonderful genuine messages and genuine concern for both of us x
Carl's still off work and unfortunately STILL "totally incontinent " and also still unable to achieve an erection as yet,
We were referred to the clinic who gave him a pump~ but no joy as yet!!!
He's still working on his pelvic floor exercises ,but has severe Lymphadema in his left leg still(due to the removal of all the nodes in both Groins(as a safe guard) The cancer was removed totally by robotic key hole surgery at the Hallamshire in Sheffield(so anyone with advice please feel free to PM us
love Jules & Carl xxx "
XXX |
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By (user no longer on site)
over a year ago
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All the best with his recovery |
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By (user no longer on site)
over a year ago
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"latest update for MrC XXX
Well the last almost 7months have flown by since MrC's Prostate cancer operation TYVVM to everyone for ALL the wonderful genuine messages and genuine concern for both of us x
Carl's still off work and unfortunately STILL "totally incontinent " and also still unable to achieve an erection as yet,
We were referred to the clinic who gave him a pump~ but no joy as yet!!!
He's still working on his pelvic floor exercises ,but has severe Lymphadema in his left leg still(due to the removal of all the nodes in both Groins(as a safe guard) The cancer was removed totally by robotic key hole surgery at the Hallamshire in Sheffield(so anyone with advice please feel free to PM us
love Jules & Carl xxx "
Glad the surgery seems to have gone well, despite the unfortunate side effects. Fingers crossed things improve for you both x |
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By (user no longer on site)
over a year ago
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I hope that you are both getting the help and support that you need. I’m sorry to read about the ongoing effects but I’m glad the initial cancer has been successfully removed and treated.
Sending you both big hugs |
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Good job on getting those regular checks which hopefully meant catching it early. Sending you the best wishes for the treatment to go as well as it can.
I had cancer when I was 23, and found that once they got on it and get going with everything they were bloody amazing. |
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By (user no longer on site)
over a year ago
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Best wishes to you both and Carl I hope you make a speedy recovery. |
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By *ooner2Man
over a year ago
peterborough |
been inexactly the same situation.
mine was found because I was being monitored because my brother had it.
I was,also symptom free.
had the same surgery using the robot.
I didn't end up with lymphoddeama tho.
there be a specialist service in your areato deal with that.
treatment involves massage and wearing a stocking.
I had my surgery in 2012. took 18 months for waterworks to settle. important that he does the keegle exercises.
erections took about 12months to come back.
and that with the aid of viagra.
has,he gone through the array of erection aids?
pellet?
injection?
patience is the key.
and stay strong.
both needed to get the swelling down
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THANK YOU (gonna2) for that lovely genuine reply xx bless you xxx
That gives us real hope that his incontinence will "eventually" get back to normal (fingers and toes ALL X'ed very tightly !! It has only been approx 8 months so far (still on 4/5 pads per day)
But the swelling in his left leg is bad
The massage & stockings help,but by 2/3pm his leg is double the size
He has been told to still go to the gym & walk the dogs with me for 30 mins each day ...then get his legs up on the stool and rest as much as possible...It's just a waiting game now & staying positive,
& for the record .....I've waited 8 months with zero sex!!!!!
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By *amissCouple
over a year ago
chelmsford |
Good luck you two. Hopefully it will sort itself out soon. Best wishes. xx |
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By (user no longer on site)
over a year ago
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Sending positive vibes to you both!! Xx |
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Well done for posting about this to raise awareness & I’m glad to hear Carl is fighting back & on the mend!! And well done you for being pushy!
You’re totally right on what you say about not waiting for symptoms to ge checked though.
My Dad was diagnosed in 2009 only because he was having trouble peeing. Turned out he had one tumour the size of a lemon & a smaller one about the size of a grape. No symptoms until the large tumour started pressing on his urethra, stopping him from peeing.
The oncologist said he’d likely had it for up to 6 years at that point without a single symptom.
He was 64 when he was diagnosed. Unfortunately, by then, it was already in his lymph nodes & surgery was pointless. Radiotherapy shrank the tumours followed by chemo a couple of years later when it came back, but by then it had spread to his spine.
He died in the hospice in 2012, aged 67
Standard screening after 60 would have caught it early & he’d still be here
Just because it’s not standard, or even advised (like smears & mammograms) doesn’t mean it’s not a potentially life saving check ... so please get it done guys!! And get your dads, uncles, brothers, grandads to get it done too!! Be pushy like Jules - because she saved Carl’s life!
Keep your chin up guys & use all the tools available- therapy, counselling, support groups, the Prostate Cancer website have a lot of rally good stuff to help you deal with post op issues too!
Big love, M xx |
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Gonner2*** tyvm xx
Viagra(equivalent)didn't work either...
So yes!! ~ the next stage will be the other options you've mentioned TY sweetheart!! xxxxx
and TYVM FOR ALL the private messages we've just received as well xxxxx
** all saying exactly the same **
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By *ugby 123Couple
over a year ago
Forum Mod O o O oo |
"
I've waited 8 months with zero sex!!!!!
"
I am sure with what your husband has gone through that is insignificant |
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By *sGivesWoodWoman
over a year ago
ST. AUSTELL, CORNWALL |
Best of luck to him, I'm sure everyone wishes you both well xxx |
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By *tonMessCouple
over a year ago
Slough Windsor ish |
Goodness you have been through the mill. Well done for making him keep going back.... Hope he is now on the road to a full recovery.
The after effects should settle with time.
My dad has lymphodema following surgery. He finds regular massage and the surgical stockings helpful but gets most benefit from using their jucuzzi hot tub (keeping the water temperature slightly cooler than he used to).
Sending love and best wishes xx |
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Best wishes to you both. I’ve just been diagnosed with an enlarged prostate. 40% of men over 40 have this. Also have a slightly raised PSA level. GP is 80% sure I don’t have cancer but has referred me to a specialist to make sure.
I was pretty relaxed about the whole thing until I met a guy a few weeks back with prostate cancer, age 72 and on medication, he looked and said he felt awful.
Now reading your post - suddenly I’m getting worried especially as I’m just about to move in with my girlfriend- a very naughty nurse by the way. Here’s hoping and as I said, best wishes |
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"
I've waited 8 months with zero sex!!!!!
I am sure with what your husband has gone through that is insignificant"
I believe she was making the point to the poster above that said Mr C’s issues were now irrelevant because she was looking for a younger guy.
Sad that she feels the need to defend herself from really heartless & cruel comments like that in the first place, or that unpleasant & unnecessary comments like that are even allowed to remain when they have clearly caused so much disgust & pain |
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"Best wishes to you both. I’ve just been diagnosed with an enlarged prostate. 40% of men over 40 have this. Also have a slightly raised PSA level. GP is 80% sure I don’t have cancer but has referred me to a specialist to make sure.
I was pretty relaxed about the whole thing until I met a guy a few weeks back with prostate cancer, age 72 and on medication, he looked and said he felt awful.
Now reading your post - suddenly I’m getting worried especially as I’m just about to move in with my girlfriend- a very naughty nurse by the way. Here’s hoping and as I said, best wishes"
It affects everyone differently, and the positive for you is that you are already due to see a specialist - it’s is one of the most treatable cancers if caught early, which is why I’ve never understood the lack of a screening programme.
It sounds like you’re doing all the right things & I'm sure you will be fine!! Especially with a nurse right there to look after you xx |
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By (user no longer on site)
over a year ago
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Great to see Mr C doing well, keep fighting mate, you're a star!!!!!
It helps so much when you have an amazing partner like Jules in your corner.. you are a superstar Jules for always being there for your loved ones.
We salute you XXX
Some really unnecessary comments in here, shame on you nasty people.
The couple have been swinging for more than a decade (read the veris). It's obvious they took a break over the last 10 months or so, nothing wrong with coming back on here and having some fun.
Some of you guys need to lay off, get a life and stop judging.
LOVE AND PEACE TO ALL X |
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By *ugby 123Couple
over a year ago
Forum Mod O o O oo |
"
I've waited 8 months with zero sex!!!!!
I am sure with what your husband has gone through that is insignificant
I believe she was making the point to the poster above that said Mr C’s issues were now irrelevant because she was looking for a younger guy.
Sad that she feels the need to defend herself from really heartless & cruel comments like that in the first place, or that unpleasant & unnecessary comments like that are even allowed to remain when they have clearly caused so much disgust & pain
."
I know why it was made, I chose to answer it.
It isn't against rules to have an opinion even if people don't like it. If mods took down every post that someone didn't like there would be hardly any posts at all.She didn't have to defend herself
The only reason why it was removed was because it mentioned it was on a status. |
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By (user no longer on site)
over a year ago
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Don't know why my last post was deleted
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By *ugby 123Couple
over a year ago
Forum Mod O o O oo |
As always....if anyone quoted any posts that needed removing your post will have gone to.
Ok lets get back to the OP please |
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=========================================Latest update Sat 7/7/18 xxx
=========================================
Carl's still recovering (but very slowly)
His Incontinence is getting better daily
thank goodness!! down to 2/3 pads!!
Our 1st Visit to the Erectile Dysfunction clinic,gave him a "penile Pump" which didn't work really(obviously due to the incontinence)We go again this Thursday,when we'll be offered "we've been told by other fellow sufferers on Fabs /family/friends etc etc that Carl will now be offered "pellets" and "Injections" (which apparently work brilliantly!!) positive vibes yeahhhhh!!
His Lymphoma/LYMPHADEMA is still bad in his thighs and left leg especially(due to the removal of ALL the Lymph nodes in each groin ,as a precaution to stop the cancer spreading outside the area(it was contained to the Prostate) an 8mm cancer ,but wasn't shown to have spread outside the area in Carl's Bone and MRI scans thank God!!
It's been soooo bloody hard for both of us ~ x
After 8months of Nothing we both felt we needed some kind of sexual normality,hence why Carl "insisted" we return to Fabs !!
Carl's loving the social side of our chosen "lifestyle" and after 9 very long months (miss minx has been well & truly BBC laid again
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By *isa 59Woman
over a year ago
Newcastle |
Hi guys
It's great to see you back and to hear that Carl is still improving.
Keep up the good fight. |
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By (user no longer on site)
over a year ago
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Just wanted to wish you both well for the future....hope your health continues to improve carl x |
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It must be a relief that it hasn’t spread xxx It’s 2 years since Frank was diagnosed (non-Hodgkin) so we sort of know what you’re going through xx
Fingers crossed you find a treatment to help - it can be frustrating at times can’t it??
Sending love xxx
B x |
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Thank you all sooo very very much!!
I sit and read this thread and every single time "it reduces me to happy tears"
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By *sGivesWoodWoman
over a year ago
ST. AUSTELL, CORNWALL |
Again, thinking of you both xxx |
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By *ooner2Man
over a year ago
peterborough |
couple of things.
as been thru the same.
is he doing his keegle exercises every few hours? message me if you don't know,whatthey are.
they help with the incontinence.
has he seen the lymphodema specialist and had stockings fitted?
at the incontinence clinic, persevere with viagra.
I went through the whole range of aids that were available. only months,later by a different nurses specialist was I told that I should have stuckwith viagara longer instead of trying pellets and injections etc etc. |
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All the best for you both ! You are a strong woman ! Who gives Carl strenght and support ! You both been trough a lots ! Sending my love xxx |
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By *good-being-badMan
over a year ago
mis-types and auto corrects leads cock leeds |
I cannot imagine what you've both been through...I've read one or two posts and the few words I can offer will hopefully be a little comfort
Wishing you both the strength and courage you need and here's to a full recovery |
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"couple of things.
as been thru the same.
is he doing his keegle exercises every few hours? message me if you don't know,whatthey are.
they help with the incontinence.
has he seen the lymphodema specialist and had stockings fitted?
at the incontinence clinic, persevere with viagra.
I went through the whole range of aids that were available. only months,later by a different nurses specialist was I told that I should have stuckwith viagara longer instead of trying pellets and injections etc etc."
yes!! yes!! and yes!! to stockings ,lymphatic massage and specialist nurse
tried Viagra,pump and pellets ,now awaiting the injection day appointment
he does his pelvic floor and has a keegle x |
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By (user no longer on site)
over a year ago
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Best wishes and love xx |
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With the Incontinence,the pump obviously didn't work !!
Still on 3/5 pads per day !!
now awaiting the appointment from his specialist Nurse..for penile injections
fingers and toes crossed these work?
Although reading back,maybe we too should stick with the V tabs longer then
Any more advice would be very greatly received TYVM ..Jules & Carl xxx |
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Well it's NOW A YEAR!! Since Carl had his operation (24/11/17) & OMG!! what a yr it's been!!!
Unfortunately~ I have to say that Carl's STILL "TOTALLY erectile & still incontinent & has severe Lymphadema in his left leg as a result of the removal of the groin nodes(as a precaution)
He also (unluckily) has an inqenial Hernia(from lifting a very heavy heavy washer drier with s friend on a removal day) & is awaiting a date for his op.
We still keep smiling and try our best not to allow this to get us both down!!
I'm (obviously) now in need of sex!!! and have now started to meet other BBC's again (with the 100% blessing of my gawjus beautiful Fiance Carl xx bless him x
love Jules xx |
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By *amissCouple
over a year ago
chelmsford |
"Well it's NOW A YEAR!! Since Carl had his operation (24/11/17) & OMG!! what a yr it's been!!!
Unfortunately~ I have to say that Carl's STILL "TOTALLY erectile & still incontinent & has severe Lymphadema in his left leg as a result of the removal of the groin nodes(as a precaution)
He also (unluckily) has an inqenial Hernia(from lifting a very heavy heavy washer drier with s friend on a removal day) & is awaiting a date for his op.
We still keep smiling and try our best not to allow this to get us both down!!
I'm (obviously) now in need of sex!!! and have now started to meet other BBC's again (with the 100% blessing of my gawjus beautiful Fiance Carl xx bless him x
love Jules xx "
Aah, bless you both Jules, it's a hard road, but Carl is still here. Wishing you lots of luck for the future! |
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By (user no longer on site)
over a year ago
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It's called the silent killer
All men need to have check-ups
Good luck x |
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By (user no longer on site)
over a year ago
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Jules.
Carl and you are in my thoughts and prayers at this time.
Patrick. |
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By (user no longer on site)
over a year ago
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May good fortune be Mr Cs |
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By *isa 59Woman
over a year ago
Newcastle |
So glad you're both still with us and wishing you all the very best as always. Mwah |
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By (user no longer on site)
over a year ago
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Your both in my thoughts and I hope all goes well |
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Hi everyone!!~ Happy new year to u ALL ~x
It's a while since my last update!!!
Carl's Prostate CANCER op was just over 14 months ago now & sadly he's still totally erectile & still suffering with severe Lymphadema in his left leg (although with the use of a 5/7 days a weeks use of the Inovo It's very gradually getting a little bit better
a device he wears rather like a tens machine that "restores the floor!!"
I've also had a sudden stroke on dec3rd and that resulted in my having to have an emergency Carotid Endarterectomy 2 weeks LATER ,SO recovering with a massive bloody scar :o( but ce la vie I'm sooo very lucky to be here thank goodness & to have recovered sooo very well xx
THANK YOU ALL FOR THE CONTINUED FAB SUPPORT !!! MWAH!! MWAH!! XXXX
Jules and Carl xxx
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By (user no longer on site)
over a year ago
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Good luck |
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By (user no longer on site)
over a year ago
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All the best. Fuck you cancer |
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Here's to a great 2019 for you both...xxx |
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Best wishes for both of you xxx |
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By *ikeC81Man
over a year ago
harrow |
I am going to post something very important. Lads please get your prostate checked
I have had to have a check a couple of weeks ago, not the nicest thing in the world but very important that you do.
For those that haven’t had it it requires you to have a finger in your bum. They do use lube and you do feel a bit eww for a few hours after.
It’s actually not as bad as people make out, and rather have that than the blood tests that I have had
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Best wishes to ye both.. Stay strong x |
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By (user no longer on site)
over a year ago
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Sending love x |
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By (user no longer on site)
over a year ago
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Hope it all goes to plan good luck guys |
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Good luck and guys take note please xx |
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By (user no longer on site)
over a year ago
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Sending positive thoughts and good wishes for you both x |
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By *ost SockMan
over a year ago
West Wales and Cardiff |
"I am going to post something very important. Lads please get your prostate checked
I have had to have a check a couple of weeks ago, not the nicest thing in the world but very important that you do.
For those that haven’t had it it requires you to have a finger in your bum. They do use lube and you do feel a bit eww for a few hours after.
It’s actually not as bad as people make out, and rather have that than the blood tests that I have had
"
Best wishes to the OP and thanks for sharing.
I had the finger and the blood test the other day.
Doctor was very apologetic when he stuck it up there. It was ok - got all nostalgic for a woman on Fab I knew in the wilds of Wales |
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"Hi everyone!!~ Happy new year to u ALL ~x
It's a while since my last update!!!
Carl's Prostate CANCER op was just over 14 months ago now & sadly he's still totally erectile & still suffering with severe Lymphadema in his left leg (although with the use of a 5/7 days a weeks use of the Inovo It's very gradually getting a little bit better
a device he wears rather like a tens machine that "restores the floor!!"
I've also had a sudden stroke on dec3rd and that resulted in my having to have an emergency Carotid Endarterectomy 2 weeks LATER ,SO recovering with a massive bloody scar :o( but ce la vie I'm sooo very lucky to be here thank goodness & to have recovered sooo very well xx
THANK YOU ALL FOR THE CONTINUED FAB SUPPORT !!! MWAH!! MWAH!! XXXX
Jules and Carl xxx
"
Sorry to hear about your stroke Jules but glad you've recovered well
About Carl's left leg lymphedema though... is he still getting regular scans and biopsies? Because my father-in-law had one swollen leg for a year and a half after his TURP and they never thought to investigate that. Turned out his prostate cancer had spread and it was a metastasis in the lymph node in that's legs groin |
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By *uxom redCouple
over a year ago
Shrewsbury |
"Hi everyone!!~ Happy new year to u ALL ~x
It's a while since my last update!!!
Carl's Prostate CANCER op was just over 14 months ago now & sadly he's still totally erectile & still suffering with severe Lymphadema in his left leg (although with the use of a 5/7 days a weeks use of the Inovo It's very gradually getting a little bit better
a device he wears rather like a tens machine that "restores the floor!!"
I've also had a sudden stroke on dec3rd and that resulted in my having to have an emergency Carotid Endarterectomy 2 weeks LATER ,SO recovering with a massive bloody scar :o( but ce la vie I'm sooo very lucky to be here thank goodness & to have recovered sooo very well xx
THANK YOU ALL FOR THE CONTINUED FAB SUPPORT !!! MWAH!! MWAH!! XXXX
Jules and Carl xxx
"
Just read this . Wishing you both a fast recovery x
Big boobie hugs to you both.
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By (user no longer on site)
over a year ago
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Wish you both the very best of luck and I'm sorry to hear about MrC.
Fingers and toes crossed. |
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By *evaquitCouple
over a year ago
Catthorpe |
Wowza!
Came across your profile quite a few times, circles and all that. Best of wishes to the both of you during these testing times. x |
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By (user no longer on site)
over a year ago
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Sending love xxxx |
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Hiya everyone !!
"THANK YOU SOOO MUCH" For all your continuing support *after well~over 16 months now!! :o)
Carl had all the groin Lymphs removed at the same time of his Prostate removal in November 2017!!! and is still suffering with a left leg total Lymphadema & has a massage with his specialist nurse ,but it's noway often enough!! NHS for ya!!
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also just a reminder to all you boys 40+
THE TEST FOR "P R O S T A T E CANCER"
IS SIMPLY A TINY SINGLE "BLOOD TEST" DONE AT YOUR OWN GP SURGERY
the golden age "appears to be 40!!"
when every man should 100% GO AND GET THIS SIMPLE BLOOD TEST DONE !!
no need for an anal feel 100% not needed ..please don't not go for this blood test ..as my Carl Had Prostate Cancer & was totally fit & very healthy with absolute ZERO side effects "what so ever!!" xx
love & Kisses to you all ...Jules & Carl xxx
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"Hiya everyone !!
"THANK YOU SOOO MUCH" For all your continuing support *after well~over 16 months now!! :o)
Carl had all the groin Lymphs removed at the same time of his Prostate removal in November 2017!!! and is still suffering with a left leg total Lymphadema & has a massage with his specialist nurse ,but it's noway often enough!! NHS for ya!!
"
Whilst I appreciate you are going through a difficult time perhaps remember that it was the NHS that provided treatment to save his life in the first place.
Are there any charatirs you can go yo for additional massages? |
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another update fab peeps!!!
IT'S BEEN A WHILE ..Since our last update
so here goes !!
Carl's been back into hospital for his inquenial hernia operation
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Carl's STILL totally incontinent and erectile & has severe Lymphoedema in his left leg still !!
Now he's had his hernia op, He can now start to use his penile pump in conjunction with the penile injections
( so FINGERS & TOES tightly X'ed this works )
WOULD WELCOME ANY ADVICE HERE WITH REGARDS THIS !! PM US TYVM X
Jules & Carl xx
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we are 100% well aware the NHS did a fantastic job …!!! |
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By *ikeC81Man
over a year ago
harrow |
"also just a reminder to all you boys 40+
THE TEST FOR "P R O S T A T E CANCER"
IS SIMPLY A TINY SINGLE "BLOOD TEST" DONE AT YOUR OWN GP SURGERY
the golden age "appears to be 40!!"
when every man should 100% GO AND GET THIS SIMPLE BLOOD TEST DONE !!
no need for an anal feel 100% not needed ..please don't not go for this blood test ..as my Carl Had Prostate Cancer & was totally fit & very healthy with absolute ZERO side effects "what so ever!!" xx
love & Kisses to you all ...Jules & Carl xxx
"
Can I also say, I have issues with my prostate not cancer but Prosititus. I had the anal feel not idea but it’s not as bad as people make out. |
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thanks for posting that love ...xx
hope all's well now with you
LOVE Jules xx |
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My husband had prostate cancer another symptom for him was a decreasing amount of cum over time
Great post.....guys keep an eye on things.
Sending positive vibes and best wishes your way OP xx |
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By (user no longer on site)
over a year ago
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There but for grace go all of us men.
Thoughts and best wishes for a good recovery to Mr C and you x |
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By (user no longer on site)
over a year ago
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XXX |
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"Carl's STILL totally incontinent and erectile & has severe Lymphoedema in his left leg still !!
Now he's had his hernia op, He can now start to use his penile pump in conjunction with the penile injections
( so FINGERS & TOES tightly X'ed this works )
WOULD WELCOME ANY ADVICE HERE WITH REGARDS THIS !! PM US TYVM X
Jules & Carl xx
"
Best wishes and big hugs to both of you xx |
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By (user no longer on site)
over a year ago
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"Carl's finally going into Hospital THIS FRIDAY (of all days!!!!)
for his "cancerous"
total~Prostate removal!!
NB:The only symptom he had (seriously) was going to the Lou 3/4 times per night which I personally thought was a little too much.
So I googled this & the "possibility" of 'Prostate Cancer' came up!!
That was in June 2016.
Bloods were slightly high & at this stage it was just "moderately "enlarged & was given medication to 'shrink it (the side effect was "Retograde ejaculation" & diminished Lobedo)
~bloody crap for both of us !!!
His GP told him at his annual check in June 2017..."I'll see you again Carl in 12months"(over my dead body I told him) & demanded he see Carl every month!!!!!
& BLOODY 'THANK GOD' I INSISTED HE SEE HIM EVERY MONTH ~ because by August's examination it had totally changed & felt different(HARDER)
His bloods were higher & at his 2nd MRI scan,BODY BONE SCAN & Biopsies it showed a 8mm tumour!! & Carl' STILL' feels absolutely NORMAL!!
His energy levels are normal,he works out for 2hrs 5 x a week & walks the dogs twice a day !! seriously normal!
So ...take note Fab Guys /peeps~
"there doesn't have to be ANY symptoms
AT ALL
for ya to have Prostate Cancer :o(
Carl's lucky he had a pushy Fiance LOL
All will go well ...i'm sure xx
Jules xxxx
" wow well done you for pushing it ,hope they get it |
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By *HX6969Man
over a year ago
St Albans |
Thank you for this...
Hope for the best... |
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Just to update you all .. x
It’s been just about 22months now since MrC ‘s prosate cancer removal in November 2017
& unfortunately he’s still 100% erectile & still
Suffering with urine incontinance (down to 2:3 pads a day .. compared to double this amount a year ago) so we should be like ??????????well that’s a bonus surely ??
Carl’s left leg Lymphadema is horrendous now
& is suffering with severe discomfort with this being 3 times the size of his right leg
He’s awaiting his 1st appointment with strapping bandages .. as the compression tights aren’t working as good as they should be doing
The recovery had been very very slow .. but
There is now a support group locally Every 2months .. we’ve both been to the 1st two meetings .. and cane vack feeling very angry & annoyed .. that we jumped wayy too
Soon on for total removal .. without getting wayyy more advise regarding treatments available .. as 13/18 of the men at the initial support group meeting .. had all opted for treatment & all 13 were now ok !!
The 5 of the men who were all under Carl’s neurologist .. were all advised removal
We are soo
Angry
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