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Dementia Awareness
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By (user no longer on site) OP
over a year ago
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Just completed a 2 day course on Dementia and found it bloomin' brilliant. Think its a shame that so many of us will get it yet the funding isnt there to research more into it.
I think in a few years time i will make a living will and insist that no intervention be made if i were to fall ill. Having a form of Dementia i expect is a very very horrible thing to experience. |
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By (user no longer on site)
over a year ago
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"Just completed a 2 day course on Dementia and found it bloomin' brilliant. Think its a shame that so many of us will get it yet the funding isnt there to research more into it.
I think in a few years time i will make a living will and insist that no intervention be made if i were to fall ill. Having a form of Dementia i expect is a very very horrible thing to experience. "
That's a great thing to do. Did they say anything about dehydration on the course? |
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By (user no longer on site)
over a year ago
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Yes one of my grandmother's had it and subsequently died from it. I hope they do carry out more research into it.
It was sad but we did have some funny moments, especially when on my one sister's birthday -.my Nan decided it was hers so my sis had to handover some of her presents for Nan to open.
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By (user no longer on site) OP
over a year ago
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"Just completed a 2 day course on Dementia and found it bloomin' brilliant. Think its a shame that so many of us will get it yet the funding isnt there to research more into it.
I think in a few years time i will make a living will and insist that no intervention be made if i were to fall ill. Having a form of Dementia i expect is a very very horrible thing to experience.
That's a great thing to do. Did they say anything about dehydration on the course? "
Not specifically but think i know from years in health care that dehydration can lead to UTI's in the elderly quite quickly which can have symptoms of confusion and forgetfulness.
Where i work we are shit hot on fluid balance charts. |
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By (user no longer on site) OP
over a year ago
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"Yes one of my grandmother's had it and subsequently died from it. I hope they do carry out more research into it.
It was sad but we did have some funny moments, especially when on my one sister's birthday -.my Nan decided it was hers so my sis had to handover some of her presents for Nan to open.
"
Such a lovely thing to do.. it harmed no one by doing that and saved your nan the anxiety/stress from not understanding the current situation. x |
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By (user no longer on site)
over a year ago
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"Yes one of my grandmother's had it and subsequently died from it. I hope they do carry out more research into it.
It was sad but we did have some funny moments, especially when on my one sister's birthday -.my Nan decided it was hers so my sis had to handover some of her presents for Nan to open.
Such a lovely thing to do.. it harmed no one by doing that and saved your nan the anxiety/stress from not understanding the current situation. x "
Yes, we just used to go with wherever Nan thought was real at the time. |
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By (user no longer on site)
over a year ago
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No some one who has Vascular dementia o believe I have the right one way it was explained to me is that one day her brain may just not tell her to breath
Awful thing to get |
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By (user no longer on site) OP
over a year ago
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"No some one who has Vascular dementia o believe I have the right one way it was explained to me is that one day her brain may just not tell her to breath
Awful thing to get"
yeah sadly thats the case with Vascular.. 
the connections in the brain slowly die off and then one day the connection that tells the lungs to work will shut off.. |
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By (user no longer on site)
over a year ago
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Yes that it's and I just realised I need to go back to school as no is not know
Thing we have all noticed the most is she as a short attention span when you first go in she's happy but it doesn't take long until she is staring out the window |
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By (user no longer on site)
over a year ago
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I think one reason why there isn't enough funding is because dementia of any kind isn't "fashionable".
People shy away from it. Also the people who have dementia are elderly and to many people the elderly are invisible.
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By (user no longer on site)
over a year ago
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"Just completed a 2 day course on Dementia and found it bloomin' brilliant. Think its a shame that so many of us will get it yet the funding isnt there to research more into it.
I think in a few years time i will make a living will and insist that no intervention be made if i were to fall ill. Having a form of Dementia i expect is a very very horrible thing to experience.
That's a great thing to do. Did they say anything about dehydration on the course?
Not specifically but think i know from years in health care that dehydration can lead to UTI's in the elderly quite quickly which can have symptoms of confusion and forgetfulness.
Where i work we are shit hot on fluid balance charts. "
Being incontinent can cause UTIs aswell. So many elderly people don't want to drink to much cus then they worry about getting to the loo. |
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By (user no longer on site)
over a year ago
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"Just completed a 2 day course on Dementia and found it bloomin' brilliant. Think its a shame that so many of us will get it yet the funding isnt there to research more into it.
I think in a few years time i will make a living will and insist that no intervention be made if i were to fall ill. Having a form of Dementia i expect is a very very horrible thing to experience.
That's a great thing to do. Did they say anything about dehydration on the course?
Not specifically but think i know from years in health care that dehydration can lead to UTI's in the elderly quite quickly which can have symptoms of confusion and forgetfulness.
Where i work we are shit hot on fluid balance charts. "
From my father's condition, personally, I feel that dehydration can lead to those symptoms without a uti. Thanks for responding |
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By (user no longer on site) OP
over a year ago
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"It's Dementia Awareness Week (14-20th May).
Keep physically and mentally active to help yourself prevent dementia.
"
Good point :D
Vascular Dementia is linked with TIA's (mini strokes) so keeping the bloody supply oxygenated to the brain is vital.
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By (user no longer on site)
over a year ago
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"Yes one of my grandmother's had it and subsequently died from it. I hope they do carry out more research into it.
It was sad but we did have some funny moments, especially when on my one sister's birthday -.my Nan decided it was hers so my sis had to handover some of her presents for Nan to open.
Such a lovely thing to do.. it harmed no one by doing that and saved your nan the anxiety/stress from not understanding the current situation. x
Yes, we just used to go with wherever Nan thought was real at the time. "
Brilliant programme about that a couple of months ago.  Just go with what they say because it's more comforting. |
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By (user no longer on site)
over a year ago
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"Just completed a 2 day course on Dementia and found it bloomin' brilliant. Think its a shame that so many of us will get it yet the funding isnt there to research more into it.
I think in a few years time i will make a living will and insist that no intervention be made if i were to fall ill. Having a form of Dementia i expect is a very very horrible thing to experience.
That's a great thing to do. Did they say anything about dehydration on the course?
Not specifically but think i know from years in health care that dehydration can lead to UTI's in the elderly quite quickly which can have symptoms of confusion and forgetfulness.
Where i work we are shit hot on fluid balance charts.
From my father's condition, personally, I feel that dehydration can lead to those symptoms without a uti. Thanks for responding "
I didn't know that. That's really useful, thank you. That might help my relative. x |
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By *icketysplitsWoman
over a year ago
Way over Yonder, that's where I'm bound |
"this is my job caring for severe dementia sufferers - awful for all concerned friends family and sufferer alike - "
Thank you for doing it. I couldn't manage with my mother when she became violent. I'm not sure we would have coped if we hadn't put her in care.
We could not have asked for a more caring service. When she in her final few days last year every single staff member came into her room to say goodbye. We were very touched. Then, four of the staff came to the funeral on their day off.
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By (user no longer on site)
over a year ago
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"this is my job caring for severe dementia sufferers - awful for all concerned friends family and sufferer alike - "
Your work is appreciated. I used to do an admin job that involved contact with healthcare staff, and I went through a brief dementia awareness course to better understand the pressures of their role. |
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By (user no longer on site) OP
over a year ago
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Not sure if i enjoy my work as a HCA or an Activities Coordinator more...
We have a whole floor dedicated to those with Dementia. Not one day is ever the same |
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By *icketysplitsWoman
over a year ago
Way over Yonder, that's where I'm bound |
"Not sure if i enjoy my work as a HCA or an Activities Coordinator more...
We have a whole floor dedicated to those with Dementia. Not one day is ever the same"
I know my mother enjoyed some of the activities sometimes. It did depend on how she was on that day, though. I am convinced that the activities kept her going.
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By (user no longer on site) OP
over a year ago
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"Not sure if i enjoy my work as a HCA or an Activities Coordinator more...
We have a whole floor dedicated to those with Dementia. Not one day is ever the same
I know my mother enjoyed some of the activities sometimes. It did depend on how she was on that day, though. I am convinced that the activities kept her going.
"
I introduced a 'scrap book' type thing for every resident we had. I believe in photo evidencing things for families who perhaps visit less frequently. Also some people saw comfort in looking back at things they had done but couldn't remember.
When they would pass on, families were presented with these.
CQC also liked the idea rather than a standard written daily record.
I found it frustrating that a previous manager i worked for wanted the show home.. the big parties, the masses of group activities. I believe she saw it from the business point of view, not from the nursing point of view.
Its very hard to plan activity with an entire floor of people who may not even know what time of day it is, sometimes you just have to go with the flow and whatever makes the individual less stressed and happy. |
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My Mum has Alzheimer's and Dementia. I only just got back in touch with her three years ago.
Within the Space of a Month nearly in 2015 I lost her to this terrible disease. It struck her so fast.
She is now in a fantastic care home where the staff ratio on her ward is 1-1 I'm so lucky to have got her in somewhere that was purpose built. I was also lucky that the Governement funded it without question.
I was reading today as I get a Newsletter from a research charity that you would need to save £800 a month for 125 year to pay for the care needed for a family member. Staggering. |
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"Not sure if i enjoy my work as a HCA or an Activities Coordinator more...
We have a whole floor dedicated to those with Dementia. Not one day is ever the same
I know my mother enjoyed some of the activities sometimes. It did depend on how she was on that day, though. I am convinced that the activities kept her going.
I introduced a 'scrap book' type thing for every resident we had. I believe in photo evidencing things for families who perhaps visit less frequently. Also some people saw comfort in looking back at things they had done but couldn't remember.
When they would pass on, families were presented with these.
CQC also liked the idea rather than a standard written daily record.
I found it frustrating that a previous manager i worked for wanted the show home.. the big parties, the masses of group activities. I believe she saw it from the business point of view, not from the nursing point of view.
Its very hard to plan activity with an entire floor of people who may not even know what time of day it is, sometimes you just have to go with the flow and whatever makes the individual less stressed and happy. "
My Mums home has lockable photo frames in each room with pictures from her life and children. She also has a doll which she finds soothing on a caring/nurturing level if it makes sense.
They have done the home out fantastic with pictures of The town back in the day which the residents all love to talk about. |
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By *icketysplitsWoman
over a year ago
Way over Yonder, that's where I'm bound |
"Not sure if i enjoy my work as a HCA or an Activities Coordinator more...
We have a whole floor dedicated to those with Dementia. Not one day is ever the same
I know my mother enjoyed some of the activities sometimes. It did depend on how she was on that day, though. I am convinced that the activities kept her going.
I introduced a 'scrap book' type thing for every resident we had. I believe in photo evidencing things for families who perhaps visit less frequently. Also some people saw comfort in looking back at things they had done but couldn't remember.
When they would pass on, families were presented with these.
CQC also liked the idea rather than a standard written daily record.
I found it frustrating that a previous manager i worked for wanted the show home.. the big parties, the masses of group activities. I believe she saw it from the business point of view, not from the nursing point of view.
Its very hard to plan activity with an entire floor of people who may not even know what time of day it is, sometimes you just have to go with the flow and whatever makes the individual less stressed and happy. "
I can imagine that is tough. The home my mother was in has only 30 residents (10 on each floor) and four people on at every shift. Daily activities happen for different floors with some things, like singing, for everyone all together. They also do the individual scrap book and it was lovely to have after Mum died.
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By (user no longer on site) OP
over a year ago
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"My Mums home has lockable photo frames in each room with pictures from her life and children. She also has a doll which she finds soothing on a caring/nurturing level if it makes sense.
They have done the home out fantastic with pictures of The town back in the day which the residents all love to talk about. "
Our floor has been painted by local artists with scenes from down town. We also have a cash free shop, post office and a bus shelter :D
We do have dolls for those ladies who enjoy them and also some toy cats and dogs (of real size)..
There are reasons for every single thing a person with Dementia does, its our job as a carer to figure that out if possible.
We had a gent who would walk the hallways early in the morning.. it was simply because he was a postman so we gave him a satchel and some envelopes. His ability to write had vanished but the marks he made certainly meant something to him.
Another gent was in security,, so we gave him a desk and a clipboard to job down his findings and he was there at the start of every shift clocking us in
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"My Mums home has lockable photo frames in each room with pictures from her life and children. She also has a doll which she finds soothing on a caring/nurturing level if it makes sense.
They have done the home out fantastic with pictures of The town back in the day which the residents all love to talk about.
Our floor has been painted by local artists with scenes from down town. We also have a cash free shop, post office and a bus shelter :D
We do have dolls for those ladies who enjoy them and also some toy cats and dogs (of real size)..
There are reasons for every single thing a person with Dementia does, its our job as a carer to figure that out if possible.
We had a gent who would walk the hallways early in the morning.. it was simply because he was a postman so we gave him a satchel and some envelopes. His ability to write had vanished but the marks he made certainly meant something to him.
Another gent was in security,, so we gave him a desk and a clipboard to job down his findings and he was there at the start of every shift clocking us in
"
I am still struggling to get my head round it all. She's so good at describing her childhood to her 30's then struggles.
She bangs on about her horse all the time but I think they would struggle facilitating that memory for her. |
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By (user no longer on site) OP
over a year ago
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"I am still struggling to get my head round it all. She's so good at describing her childhood to her 30's then struggles.
She bangs on about her horse all the time but I think they would struggle facilitating that memory for her. "
Dementia wipes out short term memory unfortunately.
Her horse clearly meant a lot to her, do you have any pictures of the horse? If you dont what about showing her pictures of various horses, bring in a pair of jodhpurs, perhaps a riding hat. Something with texture. (id not suggest a crop as that could be dangerous).. rosettes if she was a show jumper.
As long as your mother is content and not distressed just try to seek comfort from simple things. |
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By *elson61Man
over a year ago
WELWYN GARDEN CITY |
I lost my father to vascular dementia 4 years ago. He had been in a nursing home for 5 years prior to his passing and watching him slowly losing his dignity and his character is one of the worst things you can ever witness. I really hope enough resources are put towards researching this awful terminal condition. |
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By (user no longer on site)
over a year ago
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"I think one reason why there isn't enough funding is because dementia of any kind isn't "fashionable".
People shy away from it. Also the people who have dementia are elderly and to many people the elderly are invisible.
"
Actually you're wrong there. Due to the huge cost of dementia in both health and social care costs, the government is working with the Alzheimer's society re research. |
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By (user no longer on site)
over a year ago
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"Just completed a 2 day course on Dementia and found it bloomin' brilliant. Think its a shame that so many of us will get it yet the funding isnt there to research more into it.
I think in a few years time i will make a living will and insist that no intervention be made if i were to fall ill. Having a form of Dementia i expect is a very very horrible thing to experience.
That's a great thing to do. Did they say anything about dehydration on the course?
Not specifically but think i know from years in health care that dehydration can lead to UTI's in the elderly quite quickly which can have symptoms of confusion and forgetfulness.
Where i work we are shit hot on fluid balance charts.
From my father's condition, personally, I feel that dehydration can lead to those symptoms without a uti. Thanks for responding "
Low salt can cause similar symptoms, hence intravenous fluids (with salt) helps. |
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By *icketysplitsWoman
over a year ago
Way over Yonder, that's where I'm bound |
"I think one reason why there isn't enough funding is because dementia of any kind isn't "fashionable".
People shy away from it. Also the people who have dementia are elderly and to many people the elderly are invisible.
Actually you're wrong there. Due to the huge cost of dementia in both health and social care costs, the government is working with the Alzheimer's society re research."
It's the ticking care time-bomb as we're physically living longer.
Many of us will have spent everything on care for our parents and won't have enough to pay for our own care when we need it.
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By (user no longer on site)
over a year ago
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"My Mums home has lockable photo frames in each room with pictures from her life and children. She also has a doll which she finds soothing on a caring/nurturing level if it makes sense.
They have done the home out fantastic with pictures of The town back in the day which the residents all love to talk about.
Our floor has been painted by local artists with scenes from down town. We also have a cash free shop, post office and a bus shelter :D
We do have dolls for those ladies who enjoy them and also some toy cats and dogs (of real size)..
There are reasons for every single thing a person with Dementia does, its our job as a carer to figure that out if possible.
We had a gent who would walk the hallways early in the morning.. it was simply because he was a postman so we gave him a satchel and some envelopes. His ability to write had vanished but the marks he made certainly meant something to him.
Another gent was in security,, so we gave him a desk and a clipboard to job down his findings and he was there at the start of every shift clocking us in
"
Wandering = purposeful walking. It sounds like your workplace is giving brilliant evidence-based care.
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By (user no longer on site)
over a year ago
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"My Mums home has lockable photo frames in each room with pictures from her life and children. She also has a doll which she finds soothing on a caring/nurturing level if it makes sense.
They have done the home out fantastic with pictures of The town back in the day which the residents all love to talk about.
Our floor has been painted by local artists with scenes from down town. We also have a cash free shop, post office and a bus shelter :D
We do have dolls for those ladies who enjoy them and also some toy cats and dogs (of real size)..
There are reasons for every single thing a person with Dementia does, its our job as a carer to figure that out if possible.
We had a gent who would walk the hallways early in the morning.. it was simply because he was a postman so we gave him a satchel and some envelopes. His ability to write had vanished but the marks he made certainly meant something to him.
Another gent was in security,, so we gave him a desk and a clipboard to job down his findings and he was there at the start of every shift clocking us in
I am still struggling to get my head round it all. She's so good at describing her childhood to her 30's then struggles.
She bangs on about her horse all the time but I think they would struggle facilitating that memory for her. "
Get her to paint her horse, or do a horse collage, jigsaw... |
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"My Mums home has lockable photo frames in each room with pictures from her life and children. She also has a doll which she finds soothing on a caring/nurturing level if it makes sense.
They have done the home out fantastic with pictures of The town back in the day which the residents all love to talk about.
Our floor has been painted by local artists with scenes from down town. We also have a cash free shop, post office and a bus shelter :D
We do have dolls for those ladies who enjoy them and also some toy cats and dogs (of real size)..
There are reasons for every single thing a person with Dementia does, its our job as a carer to figure that out if possible.
We had a gent who would walk the hallways early in the morning.. it was simply because he was a postman so we gave him a satchel and some envelopes. His ability to write had vanished but the marks he made certainly meant something to him.
Another gent was in security,, so we gave him a desk and a clipboard to job down his findings and he was there at the start of every shift clocking us in
I am still struggling to get my head round it all. She's so good at describing her childhood to her 30's then struggles.
She bangs on about her horse all the time but I think they would struggle facilitating that memory for her.
Get her to paint her horse, or do a horse collage, jigsaw..."
Once my mind has left my body I want to be put to sleep. The kids know to take me to Switzerland and push me off a mountain. I do not want to burden them. when my mind has gone and I am incapable of eating washing and pooing without assistance I do not want to stay. My Auntie had some form of paranoia/ dementia after my Uncle died and thought everyone was stealing from her etc. She was put into a home and remained there for 10 years and died at 93 in January. Knowing no one. The expense to the council was huge.
not for me thanks.  |
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"My Mums home has lockable photo frames in each room with pictures from her life and children. She also has a doll which she finds soothing on a caring/nurturing level if it makes sense.
They have done the home out fantastic with pictures of The town back in the day which the residents all love to talk about.
Our floor has been painted by local artists with scenes from down town. We also have a cash free shop, post office and a bus shelter :D
We do have dolls for those ladies who enjoy them and also some toy cats and dogs (of real size)..
There are reasons for every single thing a person with Dementia does, its our job as a carer to figure that out if possible.
We had a gent who would walk the hallways early in the morning.. it was simply because he was a postman so we gave him a satchel and some envelopes. His ability to write had vanished but the marks he made certainly meant something to him.
Another gent was in security,, so we gave him a desk and a clipboard to job down his findings and he was there at the start of every shift clocking us in
I am still struggling to get my head round it all. She's so good at describing her childhood to her 30's then struggles.
She bangs on about her horse all the time but I think they would struggle facilitating that memory for her.
Get her to paint her horse, or do a horse collage, jigsaw..."
If it was this Country I would literally ride a horse up and down the road for her to see. It's in Gib so I can only get out about four times a year. Will take her some stuff to do next time she may struggle with the painting but I'm sure a jigsaw may be possible.
Thanks for the suggestion. |
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By (user no longer on site)
over a year ago
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I work with many people with dementia in my professional life and it's at times heartbreaking. I have signed up as a Dementia Friend and I'm taking extra courses in my spare time as it's something that will touch all of our lives in some way. |
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By (user no longer on site)
over a year ago
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"My Mums home has lockable photo frames in each room with pictures from her life and children. She also has a doll which she finds soothing on a caring/nurturing level if it makes sense.
They have done the home out fantastic with pictures of The town back in the day which the residents all love to talk about.
Our floor has been painted by local artists with scenes from down town. We also have a cash free shop, post office and a bus shelter :D
We do have dolls for those ladies who enjoy them and also some toy cats and dogs (of real size)..
There are reasons for every single thing a person with Dementia does, its our job as a carer to figure that out if possible.
We had a gent who would walk the hallways early in the morning.. it was simply because he was a postman so we gave him a satchel and some envelopes. His ability to write had vanished but the marks he made certainly meant something to him.
Another gent was in security,, so we gave him a desk and a clipboard to job down his findings and he was there at the start of every shift clocking us in
I am still struggling to get my head round it all. She's so good at describing her childhood to her 30's then struggles.
She bangs on about her horse all the time but I think they would struggle facilitating that memory for her.
Get her to paint her horse, or do a horse collage, jigsaw...
If it was this Country I would literally ride a horse up and down the road for her to see. It's in Gib so I can only get out about four times a year. Will take her some stuff to do next time she may struggle with the painting but I'm sure a jigsaw may be possible.
Thanks for the suggestion. "
You're welcome. |
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By (user no longer on site)
over a year ago
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"Just completed a 2 day course on Dementia and found it bloomin' brilliant. Think its a shame that so many of us will get it yet the funding isnt there to research more into it.
I think in a few years time i will make a living will and insist that no intervention be made if i were to fall ill. Having a form of Dementia i expect is a very very horrible thing to experience. "
It's bloody heartbreaking watching someone with this.
I care full time for my mum and she has vascular dementia.
Everyday I lose a little of my mum and it's so upsetting.
I agree more funding and research should go into this.
It's sad to think that a high percentage of people will suffer with this |
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By (user no longer on site)
over a year ago
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some of our residents have memory boxes and we keep an individual blog for them (done mostly by their keyworkers)- photos are the best but even those arent recognised = we have activities but most are unable to participate= singsongs and dancing are the faves (kareoke) - a few games like skittles and batting balloons about = some can do jigsaws and floor dominoes - hard work for all |
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By (user no longer on site)
over a year ago
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"I think one reason why there isn't enough funding is because dementia of any kind isn't "fashionable".
People shy away from it. Also the people who have dementia are elderly and to many people the elderly are invisible.
Actually you're wrong there. Due to the huge cost of dementia in both health and social care costs, the government is working with the Alzheimer's society re research."
Im not wrong. There isnt enough funding. Yes dementia is costing the NHS and social care lots of money and there is research being done but its not enough. I got that information from dementia charities, the NHS, care homes etc during my training and also my research.
There was also research done on why people don't donate as much towards dementia charities as they do towards other charities.
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By (user no longer on site)
over a year ago
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"I think one reason why there isn't enough funding is because dementia of any kind isn't "fashionable".
People shy away from it. Also the people who have dementia are elderly and to many people the elderly are invisible.
Actually you're wrong there. Due to the huge cost of dementia in both health and social care costs, the government is working with the Alzheimer's society re research.
Im not wrong. There isnt enough funding. Yes dementia is costing the NHS and social care lots of money and there is research being done but its not enough. I got that information from dementia charities, the NHS, care homes etc during my training and also my research.
There was also research done on why people don't donate as much towards dementia charities as they do towards other charities.
"
When was your research? |
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By (user no longer on site)
over a year ago
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A man I once knew died a few years ago due to dementia. He and his wife gave a baby a home when he was only a few weeks old. A true gentleman who showed great love to both his wife and his adopted son. He never raised a hand in anger and always gave good advice to the boy as he grew. Nobody could have ever have been a better father and husband. Rip dad. Still missed so very much. |
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By (user no longer on site)
over a year ago
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I remember visiting my mum in respite care. She was screaming at me to go away as she didn't know who I was. The nurse came along, gently settled my mum, then came to me and wrapped her arms around me as I stood with tears pouring down my face. I will never forget her kindness to us both so hats off to all those nurses who care for dementia patients and their families. |
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"No some one who has Vascular dementia o believe I have the right one way it was explained to me is that one day her brain may just not tell her to breath
Awful thing to get
yeah sadly thats the case with Vascular..
the connections in the brain slowly die off and then one day the connection that tells the lungs to work will shut off.. "
This is what my last grandmother has right now
Fucking awful disease... it's not a dignified way for anyone to go.. I go to visit her.. she can't remember anything.. what she just ate.. peoples names it's shite
She would be better off slipping away |
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By (user no longer on site)
over a year ago
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"I dont know too much about it,i know it affects the brain and momory,some info please?"
Alzheimer's Society gives good info.
There are different dementias. Alzheimer's and vascular dementia are the most common, although research suggests mixed dementia is.
Causes: Proteins destroying brain cells or lack of oxygen getting to certain areas of the brain causing death of the brain cells. |
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By (user no longer on site)
over a year ago
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Earlier this year it was revealed that dementia is now the leading cause of death in England and Wales. For the first time, more people are dying of dementia than heart disease – in 2015, 1 in 9 people died of dementia...Age is the biggest risk factor for dementia and our ageing population means that more people are living for longer and spending more years in ill health
Changes to the way cause of death is recorded have also meant more people have dementia recorded on their death certificate
But, the figures also reflect that there are more people living with dementia and that, sadly, there is still no cure. Dementia is the only one we can’t prevent, cure or even slow down. Xmas 2016 my Mum who is 76 now has Dementia its so hard to see a woman who was so independent fun loving change in front of my eyes. At first she just wished to be dead now we have care but that still is not right .. She has good and bad days its all still new and she don't understand it . Its like at times she is going back to child .
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By (user no longer on site)
over a year ago
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"I dont know too much about it,i know it affects the brain and momory,some info please?
Alzheimer's Society gives good info.
There are different dementias. Alzheimer's and vascular dementia are the most common, although research suggests mixed dementia is.
Causes: Proteins destroying brain cells or lack of oxygen getting to certain areas of the brain causing death of the brain cells."
The area destroyed results in the symptoms of dementia. |
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By (user no longer on site)
over a year ago
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"A man I once knew died a few years ago due to dementia. He and his wife gave a baby a home when he was only a few weeks old. A true gentleman who showed great love to both his wife and his adopted son. He never raised a hand in anger and always gave good advice to the boy as he grew. Nobody could have ever have been a better father and husband. Rip dad. Still missed so very much."
Big hugs |
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By (user no longer on site)
over a year ago
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"No some one who has Vascular dementia o believe I have the right one way it was explained to me is that one day her brain may just not tell her to breath
Awful thing to get
yeah sadly thats the case with Vascular..
the connections in the brain slowly die off and then one day the connection that tells the lungs to work will shut off..
This is what my last grandmother has right now
Fucking awful disease... it's not a dignified way for anyone to go.. I go to visit her.. she can't remember anything.. what she just ate.. peoples names it's shite
She would be better off slipping away"
This is what my mum has and it's aweful just watching the person you love dwindle away |
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By (user no longer on site)
over a year ago
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Dementia It's the thief that comes steal memories and thoughts, bit by bit, from the minds of those we love and care about deeply. It gives no precedence to wealth, culture, stature, life accomplishments or contributions. That's how I see Dementia as a thief. |
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By (user no longer on site)
over a year ago
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Wife had early-onset, fronto-temporal dementia - diagnosed at 52 and died at 61.
Watching everything about the person you love, gradually disappear, is a heartbreaking process.
Having them die in your arms, and being able to do absolutely nothing, even more so.
Choosing to become her fulltime carer, at least allowed her the dignity of not being handled by strangers, when the physical problems became more pronounced. She was able to pass peacefully and comfortably, in her own home, with her favourite music and Spring flowers from our garden.
There is a lot of help out there, for carers and sufferers:- financially, with carer's allowance; practically - in terms of specialist (loan) equipment for the home; and emotionally, with counsellors and support groups.
The load on the NHS, is greatly _educed, by family members taking on the caring role. According to Altzheimers org, about 2/3 of the £26bn costs are cove_ed this way. |
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"No some one who has Vascular dementia o believe I have the right one way it was explained to me is that one day her brain may just not tell her to breath
Awful thing to get
yeah sadly thats the case with Vascular..
the connections in the brain slowly die off and then one day the connection that tells the lungs to work will shut off..
This is what my last grandmother has right now
Fucking awful disease... it's not a dignified way for anyone to go.. I go to visit her.. she can't remember anything.. what she just ate.. peoples names it's shite
She would be better off slipping away
This is what my mum has and it's aweful just watching the person you love dwindle away "
Yup hugs to you... it's rubbish
Can only hope she is taken soon x |
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By (user no longer on site)
over a year ago
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If you have savings under £23,250 (meaning the council will contribute to your care home fees), So if you have savings and a house you will get very little help with costs. |
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This is a terrible condition to have the patient and all family and friends suffer my own mom does not always know who I am and does not know my partner of 30 years at all my dad died 2 years ago and she keeps asking where he is I am lucky that I have a brilliant carer looking after her who makes her life a little more happy |
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By (user no longer on site) OP
over a year ago
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I have a hunch that the pharmaceutical companies even if they found a cure for Dementia possibly wouldn't release it, or it would be a really really highly priced medication..
They make billions of pounds/dollars from relieving the symptoms of Dementia.. why would they sell a 'cure'
Horrible theory i know,, and i really do hope i'm wrong but its certainly a money maker |
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By (user no longer on site)
over a year ago
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My nan has dementia and its heartbreaking, she is being ca_ed for in a home now. I cried bucket loads last time I saw her and she never recognised me, She's lost so much weight and can no longer walk. Its a hard thing to watch!
Doll x |
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By *elson61Man
over a year ago
WELWYN GARDEN CITY |
"If you have savings under £23,250 (meaning the council will contribute to your care home fees), So if you have savings and a house you will get very little help with costs."
That all depends if your needs are deemed as primary health needs or social care needs. If a person is deemed to have primary health needs then the NHS have to pay all care costs. If it is deemed to be social care then if you have assets then they will go after them.
That is a very simplified way of putting it, it is a lot more complex than that, and you will find social services and the NHS will do their best to hoodwink people. |
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By (user no longer on site)
over a year ago
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"I have a hunch that the pharmaceutical companies even if they found a cure for Dementia possibly wouldn't release it, or it would be a really really highly priced medication..
They make billions of pounds/dollars from relieving the symptoms of Dementia.. why would they sell a 'cure'
Horrible theory i know,, and i really do hope i'm wrong but its certainly a money maker "
Lifestyle choices is a determinant, especially in vascular dementia. |
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By (user no longer on site)
over a year ago
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"I have a hunch that the pharmaceutical companies even if they found a cure for Dementia possibly wouldn't release it, or it would be a really really highly priced medication..
They make billions of pounds/dollars from relieving the symptoms of Dementia.. why would they sell a 'cure'
Horrible theory i know,, and i really do hope i'm wrong but its certainly a money maker
Lifestyle choices is a determinant, especially in vascular dementia."
I have heard the theory knocked around about current generations setting themselves up for dementia - drug and alcohol abuse combined with lack of intellectual pursuits. |
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By (user no longer on site)
over a year ago
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"I have a hunch that the pharmaceutical companies even if they found a cure for Dementia possibly wouldn't release it, or it would be a really really highly priced medication..
They make billions of pounds/dollars from relieving the symptoms of Dementia.. why would they sell a 'cure'
Horrible theory i know,, and i really do hope i'm wrong but its certainly a money maker
Lifestyle choices is a determinant, especially in vascular dementia.
I have heard the theory knocked around about current generations setting themselves up for dementia - drug and alcohol abuse combined with lack of intellectual pursuits. "
Years ago it was never the cause but new Changes to the way cause of death is recorded have also meant more people have dementia recorded on their death certificate so the numbers of people with dementia could have been big for years just we never new. |
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"If you have savings under £23,250 (meaning the council will contribute to your care home fees), So if you have savings and a house you will get very little help with costs."
This does vary in different areas. My Aunt had her own flat and was in a locked ward for 10 years and the Oxen council cove_ed costs. The flat remained empty all that time. She had no children so in fact they could have taken that to pay her costs.I believe £1000 a week Not good in the scheme of things.
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Oral health can be a real challenge to those with dementia.
Keeping their mouth and teeth clean so folk can eat, speak and be pain free.
We have a great programme called Caring for Smiles up in Scotland.
PM for more details. |
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By (user no longer on site)
over a year ago
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"If you have savings under £23,250 (meaning the council will contribute to your care home fees), So if you have savings and a house you will get very little help with costs.
This does vary in different areas. My Aunt had her own flat and was in a locked ward for 10 years and the Oxen council cove_ed costs. The flat remained empty all that time. She had no children so in fact they could have taken that to pay her costs.I believe £1000 a week Not good in the scheme of things.
"
Well around here we get very little help all because my mum saved and had her own house we have now sold. |
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By (user no longer on site)
over a year ago
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Thankfully, not all help is means-tested (carer's allowance, for example). Our savings were above the threshold, which did prevent us from having financial help with certain things.
'Crossroads' still provided a free carer to sit with mrs, for a couple of hours a week.
All of the NHS equipment was provided free, on loan. (Hospital bed, ceiling hoist, commode, oxygen machine, etc).
In the final couple of months, her palliative care was free anyway, regardless of savings. |
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By (user no longer on site)
over a year ago
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"If you have savings under £23,250 (meaning the council will contribute to your care home fees), So if you have savings and a house you will get very little help with costs.
This does vary in different areas. My Aunt had her own flat and was in a locked ward for 10 years and the Oxen council cove_ed costs. The flat remained empty all that time. She had no children so in fact they could have taken that to pay her costs.I believe £1000 a week Not good in the scheme of things.
Well around here we get very little help all because my mum saved and had her own house we have now sold."
No finacial help for my parent either due to property and a lump sum pension but if someone has the money then they should pay. |
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By (user no longer on site)
over a year ago
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Currently have a relative in a care home with Dementia.
Lost my Grandfather almost 2 years ago to Dementia
And had a Great Aunt with the condition a few years before that, although it was a return of cancer that finished her off - sparing her a prolonged decline of the mind.
It is a cruel and sad condition |
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By (user no longer on site)
over a year ago
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"
No finacial help for my parent either due to property and a lump sum pension but if someone has the money then they should pay.
Even if the reason for care is primary health needs? "
It would depend on the circumstances. |
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By (user no longer on site)
over a year ago
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"...if someone has the money then they should pay. "
Everyone pays for the right to NHS care, through national insurance.
What makes you think some people should be disqualified from medical care, just because they've managed to scrimp away some savings, during their lifetime?
If your house was burgled, you'd be a bit pissed off, if the insurance company said "you've got money to buy new stuff, so why should we pay out?" |
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By (user no longer on site)
over a year ago
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"
No finacial help for my parent either due to property and a lump sum pension but if someone has the money then they should pay.
Even if the reason for care is primary health needs? "
It isnt primary health needs. |
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By (user no longer on site)
over a year ago
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"...if someone has the money then they should pay.
Everyone pays for the right to NHS care, through national insurance.
What makes you think some people should be disqualified from medical care, just because they've managed to scrimp away some savings, during their lifetime?
If your house was burgled, you'd be a bit pissed off, if the insurance company said "you've got money to buy new stuff, so why should we pay out?""
My parent hasnt scrimped and saved.
They are happy to pay.
They have no other use for the money.
They are living in what appears to be a 5 star hotel and they like that.
They chose to live there.
Im happy because they are safe, ca_ed for and happy.
In fact if anyone should be annoyed it should be me because the money would be mine when they die. |
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By (user no longer on site)
over a year ago
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"
No finacial help for my parent either due to property and a lump sum pension but if someone has the money then they should pay.
Even if the reason for care is primary health needs? "
Health needs (primary and acute) are paid for by NHS. Social care is not.
Sometimes people need both so the health care element is paid by NHS. |
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By (user no longer on site)
over a year ago
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I just spent 3hours getting home from work, as a sweet lady with dementia on the bus was completely lost and in a state. Got the bus stopped, decanted everyone to next bus, driver called police whilst I sat and held her hand and chatted with her and kept her calm, whilst piecing together who she was, and where she needed to get to and who we needed to contact. She was so distressed initially she couldn't remember her name and was in tears but in the end she was all giggles and had taught me how to cook an amazing sounding Jamaican ginger cake. I'd just like to shout out (in the ether) to the the driver, to the police involved and another passenger who all worked without care for the rain or delay to their day in order to help this lovely lady, and to all the decanted passengers who made not one grumble for being thrown off a bus in the rain halfway on their journey. She was without any form of ID and in completely the wrong area of London to where she lived and travelling even further away, and we have no idea how on earth she got there, but I've just been called by the police to confirm she is home safe with her daughter and insisting that there be cake made.
It must be terrifying to have dementia. I hope that I am treated with such love by strangers (or any of my family/friends) coming together to help, and it was such an honour to see everyone just really give her some their time and care. She was a delight. Faith resto_ed in humanity. |
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By (user no longer on site)
over a year ago
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"If you have savings under £23,250 (meaning the council will contribute to your care home fees), So if you have savings and a house you will get very little help with costs.
This does vary in different areas. My Aunt had her own flat and was in a locked ward for 10 years and the Oxen council cove_ed costs. The flat remained empty all that time. She had no children so in fact they could have taken that to pay her costs.I believe £1000 a week Not good in the scheme of things.
Well around here we get very little help all because my mum saved and had her own house we have now sold.
No finacial help for my parent either due to property and a lump sum pension but if someone has the money then they should pay. "
My mum pays and alot in her care home don't as don't have the funs or own there house so I am told from staff.. There is no difference in room or care its just she pay . |
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By (user no longer on site)
over a year ago
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"If you have savings under £23,250 (meaning the council will contribute to your care home fees), So if you have savings and a house you will get very little help with costs.
This does vary in different areas. My Aunt had her own flat and was in a locked ward for 10 years and the Oxen council cove_ed costs. The flat remained empty all that time. She had no children so in fact they could have taken that to pay her costs.I believe £1000 a week Not good in the scheme of things.
Well around here we get very little help all because my mum saved and had her own house we have now sold.
No finacial help for my parent either due to property and a lump sum pension but if someone has the money then they should pay. My mum pays and alot in her care home don't as don't have the funs or own there house so I am told from staff.. There is no difference in room or care its just she pay ."
I don't know which residents pay and which residents don't pay in my parents care home as the staff never discuss other residents private and personal circumstances. All residents are treated the same though.
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By (user no longer on site)
over a year ago
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"If you have savings under £23,250 (meaning the council will contribute to your care home fees), So if you have savings and a house you will get very little help with costs.
This does vary in different areas. My Aunt had her own flat and was in a locked ward for 10 years and the Oxen council cove_ed costs. The flat remained empty all that time. She had no children so in fact they could have taken that to pay her costs.I believe £1000 a week Not good in the scheme of things.
Well around here we get very little help all because my mum saved and had her own house we have now sold.
No finacial help for my parent either due to property and a lump sum pension but if someone has the money then they should pay. My mum pays and alot in her care home don't as don't have the funs or own there house so I am told from staff.. There is no difference in room or care its just she pay ."
Social care is means tested. |
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By (user no longer on site)
over a year ago
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"If you have savings under £23,250 (meaning the council will contribute to your care home fees), So if you have savings and a house you will get very little help with costs.
This does vary in different areas. My Aunt had her own flat and was in a locked ward for 10 years and the Oxen council cove_ed costs. The flat remained empty all that time. She had no children so in fact they could have taken that to pay her costs.I believe £1000 a week Not good in the scheme of things.
Well around here we get very little help all because my mum saved and had her own house we have now sold.
No finacial help for my parent either due to property and a lump sum pension but if someone has the money then they should pay. My mum pays and alot in her care home don't as don't have the funs or own there house so I am told from staff.. There is no difference in room or care its just she pay .
I don't know which residents pay and which residents don't pay in my parents care home as the staff never discuss other residents private and personal circumstances. All residents are treated the same though.
"
well theres a new wing and it cost more and only people who will pay more go in there I am told .. But really only difference is the bath rooms . Staff tell me this how I know. |
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By *edMan
over a year ago
cambridgeshire |
Interestingly I had a flyer through the door from some legal beagle. Apparently there us a way to write your will in such a way that a big chunk of the value of the sufferers property value is protected from being robbed to pay for care.
For my closest ones, the money would just be used to make sure they are comfortable
But it is wrong that some ppl piss all their money away all their life and we all pick up their old age bills. Must be more encouragement to save for your future needs. |
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My mother passed away a couple of years ago with dementia. It was very sad watching her fade away from within. At the end she didn't know me or my sisters. The only blessing was that she passed away resting on in the garden, on a chair, looking out over the garden. I have every sympathy with anyone looking after a loved one with this illness. |
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By *sGivesWoodWoman
over a year ago
ST. AUSTELL, CORNWALL |
I work as a community care worker and see this on a daily basis, it's truly heartbreaking for both the sufferers? and their families more money needs to go into social care and research. This is very informative thread OP well done for posting on such a difficult issue and truly sorry for those on here who have lost family members to this awful disease. Xxx |
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By *elson61Man
over a year ago
WELWYN GARDEN CITY |
"
No finacial help for my parent either due to property and a lump sum pension but if someone has the money then they should pay.
Even if the reason for care is primary health needs?
It would depend on the circumstances."
If a person has had a continuing care assessment by the NHS and it shows their needs are primary health needs then that is that, the NHS has to fund their care. It's all in the National Framework. |
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By *elson61Man
over a year ago
WELWYN GARDEN CITY |
"
No finacial help for my parent either due to property and a lump sum pension but if someone has the money then they should pay.
Even if the reason for care is primary health needs?
Health needs (primary and acute) are paid for by NHS. Social care is not.
Sometimes people need both so the health care element is paid by NHS. "
The problem is there are people who should be funded in full by the NHS, but social services and the NHS work hard to not inform families of the various assessments that need to be carried out, nor of the processes.
It is very much a postcode lottery, despite the National Framework being what it says on the tin, a national framework. |
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By (user no longer on site)
over a year ago
|
"
No finacial help for my parent either due to property and a lump sum pension but if someone has the money then they should pay.
Even if the reason for care is primary health needs?
Health needs (primary and acute) are paid for by NHS. Social care is not.
Sometimes people need both so the health care element is paid by NHS.
The problem is there are people who should be funded in full by the NHS, but social services and the NHS work hard to not inform families of the various assessments that need to be carried out, nor of the processes.
It is very much a postcode lottery, despite the National Framework being what it says on the tin, a national framework."
Cove_ed by the Care Act 2014. |
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By (user no longer on site)
over a year ago
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"It only covers the local authorities responsibilities, not the NHS.
It covers the integration of the services."
Relates primarily to LAs who are the ones being inspected although part of it has been put on hold, also I thought the 2014 Act was updated. Given the Tory manifesto it will no doubt be revisited if they are voted back in |
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By (user no longer on site)
over a year ago
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"Interestingly I had a flyer through the door from some legal beagle. Apparently there us a way to write your will in such a way that a big chunk of the value of the sufferers property value is protected from being robbed to pay for care.
For my closest ones, the money would just be used to make sure they are comfortable
But it is wrong that some ppl piss all their money away all their life and we all pick up their old age bills. Must be more encouragement to save for your future needs."
So what about people who work hard all their life but earn minimum wage and arnt able to buy their home nor save money for their old age ? Who do you think should pay for them ? |
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By *icketysplitsWoman
over a year ago
Way over Yonder, that's where I'm bound |
"Interestingly I had a flyer through the door from some legal beagle. Apparently there us a way to write your will in such a way that a big chunk of the value of the sufferers property value is protected from being robbed to pay for care.
For my closest ones, the money would just be used to make sure they are comfortable
But it is wrong that some ppl piss all their money away all their life and we all pick up their old age bills. Must be more encouragement to save for your future needs."
PLEASE listen to this before entering these 'deals': http://www.bbc.co.uk/programmes/b08m8q7z |
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By *icketysplitsWoman
over a year ago
Way over Yonder, that's where I'm bound |
"Oral health can be a real challenge to those with dementia.
Keeping their mouth and teeth clean so folk can eat, speak and be pain free.
We have a great programme called Caring for Smiles up in Scotland.
PM for more details. "
I read a report about mouth pain and dementia a couple of years ago. People were saying they were in pain but couldn't then find the words, or ways to indicate, that it was their teeth or jaws. My mother started to bite down and grind her teeth (so loud, so irritating when you're ti_ed of caring). She could clamp her mouth shut when we tried to brush her teeth sometimes. It is a problem.
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I work for NHS n work on dementia ward n my dad suffers from it too n it's bloody heartbreaking to see people who were strong suffer from this diesease ... today I worked all shift on dementia ward n had a women throw water n food at me n accused me of poisionig her it's a horrid disease x |
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By *icketysplitsWoman
over a year ago
Way over Yonder, that's where I'm bound |
"I work for NHS n work on dementia ward n my dad suffers from it too n it's bloody heartbreaking to see people who were strong suffer from this diesease ... today I worked all shift on dementia ward n had a women throw water n food at me n accused me of poisionig her it's a horrid disease x "
Thank you for your work.
I'm considering getting the genetic test. If it shows a likelihood then I can plan for the care and end being sooner rather than later.
If anyone didn't see it, David Baddiel's The Trouble with Dad is on again tonight on More4 at 10pm.
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By (user no longer on site)
over a year ago
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"I work for NHS n work on dementia ward n my dad suffers from it too n it's bloody heartbreaking to see people who were strong suffer from this diesease ... today I worked all shift on dementia ward n had a women throw water n food at me n accused me of poisionig her it's a horrid disease x
Thank you for your work.
I'm considering getting the genetic test. If it shows a likelihood then I can plan for the care and end being sooner rather than later.
If anyone didn't see it, David Baddiel's The Trouble with Dad is on again tonight on More4 at 10pm.
"
My father was diagnosed with Alzheimer's disease around 2 years ago. The fact three-quarters of the sufferers are female, I'm very interested in the APOE4 gene. Also, the proteins that cause the disease can occur 10-15 years before symptoms appear. |
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By *icketysplitsWoman
over a year ago
Way over Yonder, that's where I'm bound |
"I work for NHS n work on dementia ward n my dad suffers from it too n it's bloody heartbreaking to see people who were strong suffer from this diesease ... today I worked all shift on dementia ward n had a women throw water n food at me n accused me of poisionig her it's a horrid disease x
Thank you for your work.
I'm considering getting the genetic test. If it shows a likelihood then I can plan for the care and end being sooner rather than later.
If anyone didn't see it, David Baddiel's The Trouble with Dad is on again tonight on More4 at 10pm.
My father was diagnosed with Alzheimer's disease around 2 years ago. The fact three-quarters of the sufferers are female, I'm very interested in the APOE4 gene. Also, the proteins that cause the disease can occur 10-15 years before symptoms appear."
My paternal grandmother had Alzheimer's, but at a suitably old age.
My mother, looking back, developed symptoms at 63/4 and I got a diagnosis of Fronto-temporal and Alzheimer's for her 5 years later, at the same time as I got her much younger sister a diagnosis of MND. Now two of her other younger sisters (one at 62) have Alzheimer's.
If there is a genetic link then I have some strong lived experience.
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By (user no longer on site)
over a year ago
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"I work for NHS n work on dementia ward n my dad suffers from it too n it's bloody heartbreaking to see people who were strong suffer from this diesease ... today I worked all shift on dementia ward n had a women throw water n food at me n accused me of poisionig her it's a horrid disease x
Thank you for your work.
I'm considering getting the genetic test. If it shows a likelihood then I can plan for the care and end being sooner rather than later.
If anyone didn't see it, David Baddiel's The Trouble with Dad is on again tonight on More4 at 10pm.
My father was diagnosed with Alzheimer's disease around 2 years ago. The fact three-quarters of the sufferers are female, I'm very interested in the APOE4 gene. Also, the proteins that cause the disease can occur 10-15 years before symptoms appear.
My paternal grandmother had Alzheimer's, but at a suitably old age.
My mother, looking back, developed symptoms at 63/4 and I got a diagnosis of Fronto-temporal and Alzheimer's for her 5 years later, at the same time as I got her much younger sister a diagnosis of MND. Now two of her other younger sisters (one at 62) have Alzheimer's.
If there is a genetic link then I have some strong lived experience.
"
This may be useful if you haven't seen it before
https://www.alzheimers.org.uk/info/20010/risk_factors_and_prevention/150/genetic_testing_kits |
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My sympathys for anyone who experiences this cruelty.x
/I'm kidding.
