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Fibromyalgia
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"I suffer with Fibromyalgia quite bad....Does anyone else here suffer with it?! How does it affect your sex drive/life?! Do any of you know what it actually is?! Sometimes I get asked for meets but can't always manage n trying to explain to a guy the reasons is head hitting wall as most people it's don't understand it!!! I try not to let it affect my 'fun times' but sometimes it does get the better of me!! " just read up on this,sounds awful | |||
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"No idea what it is. Please correct my ignorance "Posted on thred | |||
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"I know someone with it. It can be quite debilitating and I can imagine it makes arranging meets difficult as you don't know how you'll feel one day to the next. " Indeedly so, and then some get told they time wasting once arranged if need to cancel last minute....I never make plans anymore lol easier to go by day by day xx | |||
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"It's a poorly researched condition, but most recent research points to a lack of efficacy of pharmacological management and, particularly, opoid usage. Physical exercise and psychological treatment is the recommended pathway." If some of us who could physically excerise could do it without being in severe discomfort and pain don't you think we would?!....I've tried the exercising n the gym etc and I usually end up bed bound for 4 days after....sorry but it doesn't work for everyone!! | |||
"No idea what it is. Please correct my ignorance
Posted on thred "Wow that's some list of symptoms and I mean about the flu. Kudos to you for posting and thanks for enlightening me  | |||
"No idea what it is. Please correct my ignorance
Posted on thred
Wow that's some list of symptoms and I mean about the flu. Kudos to you for posting and thanks for enlightening me "This has nothing to do with flu.... | |||
"No idea what it is. Please correct my ignorance
Posted on thred
Wow that's some list of symptoms and I mean about the flu. Kudos to you for posting and thanks for enlightening me
This has nothing to do with flu...."No I know I was taking the piss out of myself for feeling sorry for myself when I have the flu. Just my daft sense of humour that all | |||
"It's a poorly researched condition, but most recent research points to a lack of efficacy of pharmacological management and, particularly, opoid usage. Physical exercise and psychological treatment is the recommended pathway. If some of us who could physically excerise could do it without being in severe discomfort and pain don't you think we would?!....I've tried the exercising n the gym etc and I usually end up bed bound for 4 days after....sorry but it doesn't work for everyone!!" No offence but the gym isn't the be all and end all of exercise, have you thought about swimming? It's low impact and you can exert as much energy as you want! I see as many people at the pool doing a slow breast stoke as I do smashing it freestyle | |||
"No idea what it is. Please correct my ignorance
Posted on thred
Wow that's some list of symptoms and I mean about the flu. Kudos to you for posting and thanks for enlightening me
This has nothing to do with flu....
No I know I was taking the piss out of myself for feeling sorry for myself when I have the flu. Just my daft sense of humour that all "Ahhhh ok, kinda didn't say you had flu | |||
"It's a poorly researched condition, but most recent research points to a lack of efficacy of pharmacological management and, particularly, opoid usage. Physical exercise and psychological treatment is the recommended pathway. If some of us who could physically excerise could do it without being in severe discomfort and pain don't you think we would?!....I've tried the exercising n the gym etc and I usually end up bed bound for 4 days after....sorry but it doesn't work for everyone!! No offence but the gym isn't the be all and end all of exercise, have you thought about swimming? It's low impact and you can exert as much energy as you want! I see as many people at the pool doing a slow breast stoke as I do smashing it freestyle " Yes I've tried all that, have had this now for over 3yrs so tried a lot of things....I have to use crutches sometimes to get about, I can't stand at for longer then 5 mins, I use a mobility scooter as can't walk too far....everyone is different n everyone doesn't have such severe symptoms....I wouldn't wish this on anyone and would love just one day pain free n be able to walk a few miles.... | |||
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"My sister in law suffers with it. Kudos to you for raising a bit awareness. I had no idea what it was until my sil was diagnosed and I consulted google. She has been recommended to excercise more to help combat it, she goes swimming and she's in agony for days afterwards. Good luck to you mrs it must be so frustrating! " It very frustrating when people don't understand it or suffer themselves and think that we can just crack on with it and our day....last time I exercised, went swimming or a long walk I was bed bound for 4 days....not great as a single parent with 2 young kids n no help or support from friends n family | |||
"It's a poorly researched condition, but most recent research points to a lack of efficacy of pharmacological management and, particularly, opoid usage. Physical exercise and psychological treatment is the recommended pathway. If some of us who could physically excerise could do it without being in severe discomfort and pain don't you think we would?!....I've tried the exercising n the gym etc and I usually end up bed bound for 4 days after....sorry but it doesn't work for everyone!! No offence but the gym isn't the be all and end all of exercise, have you thought about swimming? It's low impact and you can exert as much energy as you want! I see as many people at the pool doing a slow breast stoke as I do smashing it freestyle Yes I've tried all that, have had this now for over 3yrs so tried a lot of things....I have to use crutches sometimes to get about, I can't stand at for longer then 5 mins, I use a mobility scooter as can't walk too far....everyone is different n everyone doesn't have such severe symptoms....I wouldn't wish this on anyone and would love just one day pain free n be able to walk a few miles...." Did you not find the weightless feeling of being in water helped relieve the pain in any way? | |||
"It's a poorly researched condition, but most recent research points to a lack of efficacy of pharmacological management and, particularly, opoid usage. Physical exercise and psychological treatment is the recommended pathway. If some of us who could physically excerise could do it without being in severe discomfort and pain don't you think we would?!....I've tried the exercising n the gym etc and I usually end up bed bound for 4 days after....sorry but it doesn't work for everyone!! No offence but the gym isn't the be all and end all of exercise, have you thought about swimming? It's low impact and you can exert as much energy as you want! I see as many people at the pool doing a slow breast stoke as I do smashing it freestyle Yes I've tried all that, have had this now for over 3yrs so tried a lot of things....I have to use crutches sometimes to get about, I can't stand at for longer then 5 mins, I use a mobility scooter as can't walk too far....everyone is different n everyone doesn't have such severe symptoms....I wouldn't wish this on anyone and would love just one day pain free n be able to walk a few miles.... Did you not find the weightless feeling of being in water helped relieve the pain in any way?" I'm in constant pain often, I've lost some strength in both arms so no it's not really helped me at all....it's when you get out the water n all the feeling comes back it hits you twice as hard pain wise n numbness...it's great lol not!! | |||
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"It's a poorly researched condition, but most recent research points to a lack of efficacy of pharmacological management and, particularly, opoid usage. Physical exercise and psychological treatment is the recommended pathway. If some of us who could physically excerise could do it without being in severe discomfort and pain don't you think we would?!....I've tried the exercising n the gym etc and I usually end up bed bound for 4 days after....sorry but it doesn't work for everyone!!" I was simply pointing the overwhelming conclusion of current research in the management of the condition. It was by no means individual | |||
"Respect .. I admit I have never heard of it and now I have read a bit about it I am sorry that you have been affected . Its nice to see you are able to still enjoy fab though . Happy fabbing " Thank you very much | |||
"Sympathies to you as suffering with any chronic disease is hard work. I suffer with a life limiting chronic illness. I won't post it here as there are only about 100 of us in the country. I get huge fatigues at times and can barely get out of bed. It has got in the way of meets at times, and we have been blocked because of it. However, when I am in flare meets have to take second place. I'm always glad when I come through them as one day I won't come out the other side It not only affects my sex drive but my confidence as well. Everyone deals with illness differently but I sincerely believe winning with the brain game first helps you deal with the illness. Like you, most people have never heard of my illness. Most doctors have never heard of my illness either. But that never stops people telling me how to 'cure' my illness. Funny but it the 'cure' often means I'll never eat another bacon sandwich!" I'm sorry you are going thru such a torment too, it is plenty hard work....I get no help or support from family n friends.... Meets do come second or not at all....tho I've now made a point of telling guys about my illness as it will help seek out the genuine to the desperate only after a quick fling lol Hope you get some rest n comfort tho xx | |||
"It's a poorly researched condition, but most recent research points to a lack of efficacy of pharmacological management and, particularly, opoid usage. Physical exercise and psychological treatment is the recommended pathway. If some of us who could physically excerise could do it without being in severe discomfort and pain don't you think we would?!....I've tried the exercising n the gym etc and I usually end up bed bound for 4 days after....sorry but it doesn't work for everyone!! No offence but the gym isn't the be all and end all of exercise, have you thought about swimming? It's low impact and you can exert as much energy as you want! I see as many people at the pool doing a slow breast stoke as I do smashing it freestyle Yes I've tried all that, have had this now for over 3yrs so tried a lot of things....I have to use crutches sometimes to get about, I can't stand at for longer then 5 mins, I use a mobility scooter as can't walk too far....everyone is different n everyone doesn't have such severe symptoms....I wouldn't wish this on anyone and would love just one day pain free n be able to walk a few miles.... Did you not find the weightless feeling of being in water helped relieve the pain in any way? I'm in constant pain often, I've lost some strength in both arms so no it's not really helped me at all....it's when you get out the water n all the feeling comes back it hits you twice as hard pain wise n numbness...it's great lol not!! " Such a shame to hear that  I only suggested swimming as it helped me get into exercising due to a medical condition, admitted not as painful as yours sounds! | |||
" Thank you very much "No problem and if you ever feel like a msg chat feel free to say hi.. No strings btw hehe just being nice  | |||
"I suffer with Fibromyalgia quite bad....Does anyone else here suffer with it?! How does it affect your sex drive/life?! Do any of you know what it actually is?! Sometimes I get asked for meets but can't always manage n trying to explain to a guy the reasons is head hitting wall as most people it's don't understand it!!! I try not to let it affect my 'fun times' but sometimes it does get the better of me!! " One of my very good friends has recently been diagnosed with fibro. The change in her in the last 12 months has been frightening to say the least. She has gone from a swinging party girl to a woman who has to wait till the day to see if she has the strength. A little known illness with very tough symptoms.... LMP | |||
"Sympathies to you as suffering with any chronic disease is hard work. I suffer with a life limiting chronic illness. I won't post it here as there are only about 100 of us in the country. I get huge fatigues at times and can barely get out of bed. It has got in the way of meets at times, and we have been blocked because of it. However, when I am in flare meets have to take second place. I'm always glad when I come through them as one day I won't come out the other side It not only affects my sex drive but my confidence as well. Everyone deals with illness differently but I sincerely believe winning with the brain game first helps you deal with the illness. Like you, most people have never heard of my illness. Most doctors have never heard of my illness either. But that never stops people telling me how to 'cure' my illness. Funny but it the 'cure' often means I'll never eat another bacon sandwich! I'm sorry you are going thru such a torment too, it is plenty hard work....I get no help or support from family n friends.... Meets do come second or not at all....tho I've now made a point of telling guys about my illness as it will help seek out the genuine to the desperate only after a quick fling lol Hope you get some rest n comfort tho xx" I have a friend with fibro and quite often our symptoms are similar. If ever you want a chat, drop us a line. I'm no expert but can offer a shoulder...... | |||
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"Sympathies to you as suffering with any chronic disease is hard work. I suffer with a life limiting chronic illness. I won't post it here as there are only about 100 of us in the country. I get huge fatigues at times and can barely get out of bed. It has got in the way of meets at times, and we have been blocked because of it. However, when I am in flare meets have to take second place. I'm always glad when I come through them as one day I won't come out the other side It not only affects my sex drive but my confidence as well. Everyone deals with illness differently but I sincerely believe winning with the brain game first helps you deal with the illness. Like you, most people have never heard of my illness. Most doctors have never heard of my illness either. But that never stops people telling me how to 'cure' my illness. Funny but it the 'cure' often means I'll never eat another bacon sandwich! I'm sorry you are going thru such a torment too, it is plenty hard work....I get no help or support from family n friends.... Meets do come second or not at all....tho I've now made a point of telling guys about my illness as it will help seek out the genuine to the desperate only after a quick fling lol Hope you get some rest n comfort tho xx I have a friend with fibro and quite often our symptoms are similar. If ever you want a chat, drop us a line. I'm no expert but can offer a shoulder......" Thank you very much | |||
"So sorry to hear about your circumstances, we have a good friend who has this to and she can suffer terribly from it, she can spend days in bed completely paralysed from it and yet it's only just been recognised as an actual illness, I believe that managing her diet has helped her the most with her symptoms, take care and wish you well x" Same for me too days in bed or on sofa as I've a 3yr old to try n entertain too lol I hardly eat as such as just not hungry lol but I make sure I eat one healthy meal a day n snack so my busy gets something xx | |||
"My mother has ot and its awful , I pity you as i lnow its horrendous , Please take care xx" Thanks very much | |||
"It's a poorly researched condition, but most recent research points to a lack of efficacy of pharmacological management and, particularly, opoid usage. Physical exercise and psychological treatment is the recommended pathway. If some of us who could physically excerise could do it without being in severe discomfort and pain don't you think we would?!....I've tried the exercising n the gym etc and I usually end up bed bound for 4 days after....sorry but it doesn't work for everyone!! I was simply pointing the overwhelming conclusion of current research in the management of the condition. It was by no means individual "Supported, gradual swimming programme and support with mental health, was the most successful treatment I witnessed too. This was backed up, and followed by the research you mentioned  | |||
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"My ex had/has this and it took over a year for diagnosis. The difficulty is the wide variety of symptoms and that it will flare and fade according to a myriad of reasons. Also general ignorance and lack of understanding within the medical profession doesn't help. " Took them 2yrs to give me a diagnosis....I pushed n pushed so much and didn't back down, even changed a few Drs too find the right understanding one!! | |||
"Fm sufferer here " Sorry to read this....hope it's not too severe for you and that you're well xx | |||
"Fm sufferer here Sorry to read this....hope it's not too severe for you and that you're well xx" Pm us Hun x | |||
"That's quite a list" Isn't it!  | |||
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"My wife has fibro and was diagnosed a few years ago. She is not as severe as yourself OP, whereby she doesn't use crutches etc. I sympathise with you and continue to hope that one day they find something that will at least reduce the discomfort that people suffer. Before the cheating police jump on me, she does know I'm here and am often encouraged to go and "have some fun". My wife suffers with many of those symptoms listed. She has good spells and some that leave her in (at her worse) in bed for a few days. She's currently (since beginning of September) in lots of pain which has reduced drastically how much she wants/can do. As her husband I obviously sympathise and wish I could do something to help her. Epsom Salts was recommended by a friend and also read an article that it helps people with fibro. Consequently it appeared on Groupon recently and we bought some, she's used it twice so far and I'll happily keep you updated on how it goes. " Yes please do keep me posted on the salts!! And I sympathise also on her condition it's not an ice illness to have x | |||
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"I have it and its a fucking nightmare! I have hardly any sex drive these days, too tired most of the time, can sleep 13hrs a day and still be tired then some nights sleep about 4 hours " I feel your pain....my sex drive has taken a nose dive....I mean I wanna have fun n be naughty but the thought of it and knowing that afterwards I'm in too much pain and suffer for the day and makes me spasm too it's shitty lol It's not often insleep much lucky if I get 4/5 hours and am constantly tired too xxx | |||
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"Where did you get that list from?" It was posted on a fibromyalgia group on facebook that are there for support etc for sufferers | |||
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"Hi op I'm a fibro warrior too. Havin a flair up atm. Are you on the fibro uk group on fb? The support is excellent I had a delicate issue to discuss this am. I asked for a 121 n senior was there for me within mins to reassure me. Xxx" Sorry in delay of replying, I was banned from forum posting for 24hrs!! Yeah I'm in a few fibro groups on fb and the one you mention too, they are a good help n great to rant on when having a bad day!! I hope you got the delicate issue sorted xxx | |||
"Hi op I'm a fibro warrior too. Havin a flair up atm. Are you on the fibro uk group on fb? The support is excellent I had a delicate issue to discuss this am. I asked for a 121 n senior was there for me within mins to reassure me. Xxx Sorry in delay of replying, I was banned from forum posting for 24hrs!! Yeah I'm in a few fibro groups on fb and the one you mention too, they are a good help n great to rant on when having a bad day!! I hope you got the delicate issue sorted xxx" Lol yes I did thank you fibro isn't very dignified some times is it? Xxx | |||
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"Hi op I'm a fibro warrior too. Havin a flair up atm. Are you on the fibro uk group on fb? The support is excellent I had a delicate issue to discuss this am. I asked for a 121 n senior was there for me within mins to reassure me. Xxx Sorry in delay of replying, I was banned from forum posting for 24hrs!! Yeah I'm in a few fibro groups on fb and the one you mention too, they are a good help n great to rant on when having a bad day!! I hope you got the delicate issue sorted xxx Lol yes I did thank you fibro isn't very dignified some times is it? Xxx" No it's not....I get spasms in my back, they just come from no where....sat playing bingo the other night am sure people were wondering why I was dancing about to the numbers lol | |||
"Until recently I wouldn't have had a clue, but a close relative developed it and it sounds awful. Glad to see you're fighting it and not letting the condition rule your life. Patience and understanding from others helps a lot." Thank you and a lot of understanding is needed... | |||
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"Hi op I'm a fibro warrior too. Havin a flair up atm. Are you on the fibro uk group on fb? The support is excellent I had a delicate issue to discuss this am. I asked for a 121 n senior was there for me within mins to reassure me. Xxx Sorry in delay of replying, I was banned from forum posting for 24hrs!! Yeah I'm in a few fibro groups on fb and the one you mention too, they are a good help n great to rant on when having a bad day!! I hope you got the delicate issue sorted xxx Lol yes I did thank you fibro isn't very dignified some times is it? Xxx No it's not....I get spasms in my back, they just come from no where....sat playing bingo the other night am sure people were wondering why I was dancing about to the numbers lol " Bless you. That sounds like my jumpy leg disease. xxx | |||
"Yep got ito. Sex helps with the pain. Keep fighting.x " Sex does NOT help with the pain...in fact it makes it worse for me....I'm not sure and don't totally understand why all you guys think sex helps with everything!!! | |||
"Yep got ito. Sex helps with the pain. Keep fighting.x Sex does NOT help with the pain...in fact it makes it worse for me....I'm not sure and don't totally understand why all you guys think sex helps with everything!!! " I was waiting to see if you would answer this. id love it if sex did help. I took a few pics last nite ended up on the bed gasping for breath! Think id end up in hospital if I tryed to have sex atm. I'll be back on it in the summer. xxx | |||
"Yep got ito. Sex helps with the pain. Keep fighting.x Sex does NOT help with the pain...in fact it makes it worse for me....I'm not sure and don't totally understand why all you guys think sex helps with everything!!! I was waiting to see if you would answer this. id love it if sex did help. I took a few pics last nite ended up on the bed gasping for breath! Think id end up in hospital if I tryed to have sex atm. I'll be back on it in the summer. xxx"Well it clearly shows where his mind set is at...and all they think about!!! They don't think about how the other person feels or how much pain it can cause....I would love to get on it and have fun n sex...but, I suffer the next day for a day or two....is it worth it, sometimes!! But NO sex does NOT help with pain lol....Deary me...if it helped then I'd be a fucking rampant bunny as I'm in constant pain 24/7....lol | |||
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"It's not a great thing to live with my ex had it, but I think what makes it worse is that a lot of doctors still don't see it as an illness " Nope they don't and it's a chronic illness...you have it for life all the pain aches n crap that come with it and it should be recognised as one lol xx | |||
"Yep got ito. Sex helps with the pain. Keep fighting.x Sex does NOT help with the pain...in fact it makes it worse for me....I'm not sure and don't totally understand why all you guys think sex helps with everything!!! " With respect as I have it and a couple of other related illnesses. sex helps during the act as the body releases endorphins - now not saying jumping round or in the same position for any length of time is without pain and being knackered for days afterwards does not happen to me as it mostly does. | |||
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"Yep got ito. Sex helps with the pain. Keep fighting.x Sex does NOT help with the pain...in fact it makes it worse for me....I'm not sure and don't totally understand why all you guys think sex helps with everything!!! With respect as I have it and a couple of other related illnesses. sex helps during the act as the body releases endorphins - now not saying jumping round or in the same position for any length of time is without pain and being knackered for days afterwards does not happen to me as it mostly does. " With my fibro I lack the strength and energy for sex. On a bad day I have to rest after just doing the washing up! But I'm happy and to me that's all that matters. I cope with my fibro far better when I'm happy. I've a lot to be happy about. For me im Cath and I'm a mother, daugther, sister and niece. I'm not cath with fibro. Xxx | |||
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"It's a poorly researched condition, but most recent research points to a lack of efficacy of pharmacological management and, particularly, opoid usage. Physical exercise and psychological treatment is the recommended pathway. If some of us who could physically excerise could do it without being in severe discomfort and pain don't you think we would?!....I've tried the exercising n the gym etc and I usually end up bed bound for 4 days after....sorry but it doesn't work for everyone!! No offence but the gym isn't the be all and end all of exercise, have you thought about swimming? It's low impact and you can exert as much energy as you want! I see as many people at the pool doing a slow breast stoke as I do smashing it freestyle " Swimming is amazing and the only time im not in pain... | |||
hate fibro. Xxx | |||
"I suffer with Fibromyalgia quite bad....Does anyone else here suffer with it?! How does it affect your sex drive/life?! Do any of you know what it actually is?! Sometimes I get asked for meets but can't always manage n trying to explain to a guy the reasons is head hitting wall as most people it's don't understand it!!! I try not to let it affect my 'fun times' but sometimes it does get the better of me!! One of my very good friends has recently been diagnosed with fibro. The change in her in the last 12 months has been frightening to say the least. She has gone from a swinging party girl to a woman who has to wait till the day to see if she has the strength. A little known illness with very tough symptoms.... LMP" This letter was wrote as if "YOU actually knew me personally!! 100% this is just ME You ...WOULDN'T wish Fibro on you're worst enermy. No 2 days are ever alike I used to teach 22 freelance fitness Classes per week and wasn't over weight,had no Diabetes or Fibro!! 4 stone heavier,I now have Type2 Diabetes,suffer with depression, Fibromyalgia,have IBS,have recently started have severe tension Migraines every day also(when I never ever have suffered with any type of headaches at all)I sleep terribly ,often staying up for days at a time,never really getting quality sleep.Then sleep for days at a time!! I suffer also with vivid nitemares (which again have been lined to Anti depressants) I'm 100% going to continue swimming when I feel I have the NRG & WILL RESEARCH the diet=fibro ratio and look at cutting out bad foods etc and take a far more Holistic approach,as it appears this seems to work for a good %age of Fibro sufferers | |||
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"I suffer with Fibromyalgia quite bad....Does anyone else here suffer with it?! How does it affect your sex drive/life?! Do any of you know what it actually is?! Sometimes I get asked for meets but can't always manage n trying to explain to a guy the reasons is head hitting wall as most people it's don't understand it!!! I try not to let it affect my 'fun times' but sometimes it does get the better of me!! " Looking at ALL THE THREADS on Fibromyalgia here on fabswingers,it appears we have that many of us that are fellow "sufferers" we could quite easily start our own "fibromyalgia support group!" I started a new thread earlier today,then found out that a massive 7/8 other threads over the past 2 yrs had also been started on exactly the same topic (all of which have been really worth reading 100%) TYVM everyone that wrote them...As a fellow sufferer of Fibro,It really is the case that it does "take one to know one~ " what living with Fibro" really is like..it's bloody horrid and to think that a large %age of GP's STILL today think it's STILL all in the mind!! | |||
"I know someone with it. It can be quite debilitating and I can imagine it makes arranging meets difficult as you don't know how you'll feel one day to the next. Indeedly so, and then some get told they time wasting once arranged if need to cancel last minute....I never make plans anymore lol easier to go by day by day xx" I've been very very lucky so far and blessed,that the PPL I've arranged to meet,have been so understanding about my condition,...and totally appreciate that I'm certainly "not a t/w" at all and on the few unfortunate occasions I've had no alternative but to cancel a meet ,due to my illness,every one of my meets has been really lovely and totally understanding xx | |||
"It's a poorly researched condition, but most recent research points to a lack of efficacy of pharmacological management and, particularly, opoid usage. Physical exercise and psychological treatment is the recommended pathway. If some of us who could physically excerise could do it without being in severe discomfort and pain don't you think we would?!....I've tried the exercising n the gym etc and I usually end up bed bound for 4 days after....sorry but it doesn't work for everyone!!" | |||
"My wife has fibro and was diagnosed a few years ago. She is not as severe as yourself OP, whereby she doesn't use crutches etc. I sympathise with you and continue to hope that one day they find something that will at least reduce the discomfort that people suffer. Before the cheating police jump on me, she does know I'm here and am often encouraged to go and "have some fun". My wife suffers with many of those symptoms listed. She has good spells and some that leave her in (at her worse) in bed for a few days. She's currently (since beginning of September) in lots of pain which has reduced drastically how much she wants/can do. As her husband I obviously sympathise and wish I could do something to help her. Epsom Salts was recommended by a friend and also read an article that it helps people with fibro. Consequently it appeared on Groupon recently and we bought some, she's used it twice so far and I'll happily keep you updated on how it goes. " Yes!! I totally agree ~ "Epsom Salts" warm long baths in my Spa bath with the jets on full ~ also 100% helped ease my pain as well,especially in my upper arms | |||
"I have it and its a fucking nightmare! I have hardly any sex drive these days, too tired most of the time, can sleep 13hrs a day and still be tired then some nights sleep about 4 hours " Well said love!! I like you,can stay up for days on end,then sleep for 13rs + exactly the same.My body clock is totally "fcuked up" when I have a Fibro "episode" flare up.What's worse,is there's absolutely NO WARNING ..When an episode will begin or end!! IT'S BLOODY CRAP~ I'D HAVE TO AGREE !! | |||
"Yep got ito. Sex helps with the pain. Keep fighting.x Sex does NOT help with the pain...in fact it makes it worse for me....I'm not sure and don't totally understand why all you guys think sex helps with everything!!! With respect as I have it and a couple of other related illnesses. sex helps during the act as the body releases endorphins - now not saying jumping round or in the same position for any length of time is without pain and being knackered for days afterwards does not happen to me as it mostly does. With my fibro I lack the strength and energy for sex. On a bad day I have to rest after just doing the washing up! But I'm happy and to me that's all that matters. I cope with my fibro far better when I'm happy. I've a lot to be happy about. For me im Cath and I'm a mother, daugther, sister and niece. I'm not cath with fibro. Xxx" CATH ..i love that !! bless ya xx | |||
"It does depend on how severe it is acting up. Some days can't tolerate even being touched." TOO RIGHT...i have days that I wake up and am convinced that "I've been in a boxing match ALL NIGHT!! and didn't get one punch in !! | |||
"I've had M.E. since I was 13 and Fibromyalgia since I was around 16. I think after years of people telling you about "cures" their friend's friend had, it does get pretty easy to get angry at people's suggestions. Sometimes it feels like they think we don't even want to get better! However, people are only trying to help and sometimes think a quick Google is suffice for them to recommend something. Graded exercise is a pretty outdated policy for treatment but one that many NHS doctors still push because many don't really have any other information to go on. I think it's understandable that many may not see the difficulty in going swimming etc but it's not just the time in the pool, it's the travelling to, getting changed, swimming, getting changed and then travelling back again. There are many days where it's difficult to even lift my arms to brush my hair (which hurts as my skin, my scalp in particular, feels permanently bruised). Your entire body can feel like that, your muscles are weak and it can even be tricky to eat on bad days as the muscles in your jaw/face are painful when trying to chew. Generally have the attention span of a gnat and brain fog that just doesn't lift. Constant sore throat from swollen glands being ever present and a fatigue that is so overwhelming that my body physically shuts down and I cannot move (totally awake but cannot move or speak). Thankfully that happens very rarely now. I'm convinced that hormones play a massive part as the body just can't cope with the ever changing levels (which is why I think more women have it than men). Even though I don't have any allergies I did did that cutting out sugar, wheat, gluten and dairy helped with my levels of pain but it's not something I can keep up long term. If it cured me completely then it's a sacrifice I'd have to make but as it stands it just makes a small improvement. Yes any improvement is a hugely important thing but food is one of my few true pleasures in life. When you're limited on what you can do and friends tend to stop asking you out because they know the answer will likely be no, it can be pretty easy to turn to the comfort of food. I've been slim and suffered badly with my FM and I've been the size I am now and managed to stay level so while being overweight does put extra strain on the body, it's certainly not the cause or way to "cure" it. Neither is aromatherapy, acupuncture, massage, Chinese remedies, small regular increases of exercise, change of diet, vitamin supplements, B12 injections, acupressure, yoga, Pilates, Cognitive Behavioural Therapy or many other things I've tried and tested along the way. Of all the endless medicines I've tried, Duloxetine was probably best. I'm not currently on any painkillers or antidepressants as I'm trying to clear my body out of as many toxins as possible but it's not something I'd rule out for the future. There is no cure for this condition, hopefully there will be. For now all people can do is support those who suffer from it and those around them as it's really tough on them too. " | |||
