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Horizon: curing Alzheimer's
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By (user no longer on site)
over a year ago
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Watching it too....helped look after my mum for many years as she suffered vascular dementia which is similar in how impacts the mind. Memory loss...highs...loss....anger...shutting out....you'd never know what you would face next...often all of these in a day. To care for someone like this tests you like few things in life...it's very hard... And distressing for the sufferer too. My mum has gone and is free now. |
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By (user no longer on site) OP
over a year ago
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"Watching it too....helped look after my mum for many years as she suffered vascular dementia which is similar in how impacts the mind. Memory loss...highs...loss....anger...shutting out....you'd never know what you would face next...often all of these in a day. To care for someone like this tests you like few things in life...it's very hard... And distressing for the sufferer too. My mum has gone and is free now."
Sorry to hear about your loss and suffering.
Just been balling my eyes out over the hardships the patients and relatives endures.
Where does one find the strength to cope & care for those with the illness?
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By (user no longer on site)
over a year ago
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Well for me...I just did have the strength. I had carers look after my mum...but on many occasions I did it for weeks at a time on my own. Emotionally and physically tough at times. She might make a mess..you'd have to shower her..she could spit and shout and hit you when dealing with that... Then she could be awake all nite....when you need to sleep. If you love and care deeply..you can deal with it.I happen to be a hands on type anyway. |
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By *icketysplitsWoman
over a year ago
Way over Yonder, that's where I'm bound |
"Well for me...I just did have the strength. I had carers look after my mum...but on many occasions I did it for weeks at a time on my own. Emotionally and physically tough at times. She might make a mess..you'd have to shower her..she could spit and shout and hit you when dealing with that... Then she could be awake all nite....when you need to sleep. If you love and care deeply..you can deal with it.I happen to be a hands on type anyway."
You did better than I did. I found the violence and the fact that she couldn't be left for a minute exhausting and I wasn't even doing it full time.
My mother seems to have improved since she's been in a home. She can read again but she can't write. It's odd seeing which functions have returned.
It's good to see that there are good breakthroughs in Alzheimer's but the trials need longer to know whether it's short-lived and to see if there are any side effects that may affect health in other ways.
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Alzheimers, god awful thing to try and understand and I won't try to pretend I do.
I do however raise a hell of alot of money for cancer and Alzheimers and just last summer me and my 2 children 6 and 8 at the time took part in the WALK FOR ALZHEIMERS event in Gateshead.
My little people got their medals at the end and then decided they hadn't done enough for the medal so off they went back to the start line and did it all again. I have never felt so proud until the late Denise Roberts came over as they finished for the second time got her photo taken with them and told them both just how much of a difference they make.
xx |
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By (user no longer on site) OP
over a year ago
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"Alzheimers, god awful thing to try and understand and I won't try to pretend I do.
I do however raise a hell of alot of money for cancer and Alzheimers and just last summer me and my 2 children 6 and 8 at the time took part in the WALK FOR ALZHEIMERS event in Gateshead.
My little people got their medals at the end and then decided they hadn't done enough for the medal so off they went back to the start line and did it all again. I have never felt so proud until the late Denise Roberts came over as they finished for the second time got her photo taken with them and told them both just how much of a difference they make.
xx"
How commendable, what good hearts your children have..  |
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By (user no longer on site)
over a year ago
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"Well for me...I just did have the strength. I had carers look after my mum...but on many occasions I did it for weeks at a time on my own. Emotionally and physically tough at times. She might make a mess..you'd have to shower her..she could spit and shout and hit you when dealing with that... Then she could be awake all nite....when you need to sleep. If you love and care deeply..you can deal with it.I happen to be a hands on type anyway.
You did better than I did. I found the violence and the fact that she couldn't be left for a minute exhausting and I wasn't even doing it full time.
My mother seems to have improved since she's been in a home. She can read again but she can't write. It's odd seeing which functions have returned.
It's good to see that there are good breakthroughs in Alzheimer's but the trials need longer to know whether it's short-lived and to see if there are any side effects that may affect health in other ways.
"
I didn't always have the patience... That is hard....but it was disruptive to my life....and no doubt a contributing factor to ending my marriage. Having kids...your own business and keeping a handle on my mum's care was a balancing act I failed in despite my best intentions. Glad to hear there is some improvement in your case....that is always good to see. X |
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By *icketysplitsWoman
over a year ago
Way over Yonder, that's where I'm bound |
"Well for me...I just did have the strength. I had carers look after my mum...but on many occasions I did it for weeks at a time on my own. Emotionally and physically tough at times. She might make a mess..you'd have to shower her..she could spit and shout and hit you when dealing with that... Then she could be awake all nite....when you need to sleep. If you love and care deeply..you can deal with it.I happen to be a hands on type anyway.
You did better than I did. I found the violence and the fact that she couldn't be left for a minute exhausting and I wasn't even doing it full time.
My mother seems to have improved since she's been in a home. She can read again but she can't write. It's odd seeing which functions have returned.
It's good to see that there are good breakthroughs in Alzheimer's but the trials need longer to know whether it's short-lived and to see if there are any side effects that may affect health in other ways.
I didn't always have the patience... That is hard....but it was disruptive to my life....and no doubt a contributing factor to ending my marriage. Having kids...your own business and keeping a handle on my mum's care was a balancing act I failed in despite my best intentions. Glad to hear there is some improvement in your case....that is always good to see. X"
I remember a previous thread on Alzheimer's where you said it was probably a contributing factor in ending your marriage.
I'm self-employed and those two years before she went into a home saw my income drop so low I had to use up my savings. I would spend time trying to work out whether it would be more cost effective to buy in care but the reality was that she found different people coming in even more confusing and when she was really violent it wasn't fair to leave someone with her on their own.
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"Alzheimers, god awful thing to try and understand and I won't try to pretend I do.
I do however raise a hell of alot of money for cancer and Alzheimers and just last summer me and my 2 children 6 and 8 at the time took part in the WALK FOR ALZHEIMERS event in Gateshead.
My little people got their medals at the end and then decided they hadn't done enough for the medal so off they went back to the start line and did it all again. I have never felt so proud until the late Denise Roberts came over as they finished for the second time got her photo taken with them and told them both just how much of a difference they make.
xx
How commendable, what good hearts your children have.. "
I was very proud considering it is one of the things we raise money for that the kids have not yet witnessed x |
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By (user no longer on site) OP
over a year ago
|
"Alzheimers, god awful thing to try and understand and I won't try to pretend I do.
I do however raise a hell of alot of money for cancer and Alzheimers and just last summer me and my 2 children 6 and 8 at the time took part in the WALK FOR ALZHEIMERS event in Gateshead.
My little people got their medals at the end and then decided they hadn't done enough for the medal so off they went back to the start line and did it all again. I have never felt so proud until the late Denise Roberts came over as they finished for the second time got her photo taken with them and told them both just how much of a difference they make.
xx
How commendable, what good hearts your children have..
I was very proud considering it is one of the things we raise money for that the kids have not yet witnessed x"
Hope that's one of those things they won't grow out of.
They grow so fast..  |
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By (user no longer on site)
over a year ago
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"Well for me...I just did have the strength. I had carers look after my mum...but on many occasions I did it for weeks at a time on my own. Emotionally and physically tough at times. She might make a mess..you'd have to shower her..she could spit and shout and hit you when dealing with that... Then she could be awake all nite....when you need to sleep. If you love and care deeply..you can deal with it.I happen to be a hands on type anyway.
You did better than I did. I found the violence and the fact that she couldn't be left for a minute exhausting and I wasn't even doing it full time.
My mother seems to have improved since she's been in a home. She can read again but she can't write. It's odd seeing which functions have returned.
It's good to see that there are good breakthroughs in Alzheimer's but the trials need longer to know whether it's short-lived and to see if there are any side effects that may affect health in other ways.
I didn't always have the patience... That is hard....but it was disruptive to my life....and no doubt a contributing factor to ending my marriage. Having kids...your own business and keeping a handle on my mum's care was a balancing act I failed in despite my best intentions. Glad to hear there is some improvement in your case....that is always good to see. X
I remember a previous thread on Alzheimer's where you said it was probably a contributing factor in ending your marriage.
I'm self-employed and those two years before she went into a home saw my income drop so low I had to use up my savings. I would spend time trying to work out whether it would be more cost effective to buy in care but the reality was that she found different people coming in even more confusing and when she was really violent it wasn't fair to leave someone with her on their own.
"
yes.,.I understand that...and it is a difficult decision to make...and we all have to take it as we see it at the time. I believed that my mum was best cared for at home. I have a sister that helped at times. I was local so I could be about and support the carers. We had direct payments which helped pay the costs and were fully funded for the last year.I have now doubt that if I'd have put her in a home she would have died years ago. She had relatively good quality of life to the end. I was with her at her final moments. |
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By (user no longer on site)
over a year ago
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"Watching it too....helped look after my mum for many years as she suffered vascular dementia which is similar in how impacts the mind. Memory loss...highs...loss....anger...shutting out....you'd never know what you would face next...often all of these in a day. To care for someone like this tests you like few things in life...it's very hard... And distressing for the sufferer too. My mum has gone and is free now.
Sorry to hear about your loss and suffering.
Just been balling my eyes out over the hardships the patients and relatives endures.
Where does one find the strength to cope & care for those with the illness?
"
sometimes you don't have a choice and just have to find the strength from somewhere. its the toughest thing ever but someone has to do it |
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By (user no longer on site) OP
over a year ago
|
"Watching it too....helped look after my mum for many years as she suffered vascular dementia which is similar in how impacts the mind. Memory loss...highs...loss....anger...shutting out....you'd never know what you would face next...often all of these in a day. To care for someone like this tests you like few things in life...it's very hard... And distressing for the sufferer too. My mum has gone and is free now.
Sorry to hear about your loss and suffering.
Just been balling my eyes out over the hardships the patients and relatives endures.
Where does one find the strength to cope & care for those with the illness?
sometimes you don't have a choice and just have to find the strength from somewhere. its the toughest thing ever but someone has to do it"
moves me the strengths people find to cope with difficult times |
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