 |
By (user no longer on site) OP
over a year ago
|
Hello my fellow fables, I know this is not the nicest of posts but I was just wondering if any of you had had 1st hand dealing ls with this awful condition and you would be willing to talk to me about it.
Thanks hope everyone has a great weekend xxx |
Reply privately, Reply in forum +quote
or View forums list | |
|
By (user no longer on site) OP
over a year ago
|
My grandad has just been diagnosed with it. They have had to start feeding him through a tube as when he eats it's pooling on his chest. I suppose what I really want to know is how long does he have. I know your not a Dr but you've dealt with it xxx |
Reply privately, Reply in forum +quote
or View forums list | |
|
By *adcowWoman
over a year ago
kirkcaldy |
I used to care for people who had Parkinsons. Some lived for 20 years after diagnosis but deteriorating gradually, mostly memory and movement. They can still live a full life it just means adjusting their care as the disease progresses. |
Reply privately, Reply in forum +quote
or View forums list | |
|
By (user no longer on site) OP
over a year ago
|
Thank you folks. I get the feeling family are keeping things from me. (I suffer with depression) It's only 12 months since I lost my nanna plus a few other stuff going on. Am really struggling at the mo just wanted a little support |
Reply privately, Reply in forum +quote
or View forums list | |
|
By (user no longer on site)
over a year ago
|
"My grandad has just been diagnosed with it. They have had to start feeding him through a tube as when he eats it's pooling on his chest. I suppose what I really want to know is how long does he have. I know your not a Dr but you've dealt with it xxx "
When you say tube do you mean he has a peg feed or a tube in his mouth?
I do community nursing and have worked with a few peoples with Parkinson's over the years, I'm by no means an expert on the condition but I know a bit x
How long somebody lives with this condition is case to case really, I know of one lady who lived 22 years with it |
Reply privately, Reply in forum +quote
or View forums list | |
|
By (user no longer on site)
over a year ago
|
"Can you not talk to his GP/consultant/him/relative in the know?"
His GP/consultant are legally not allowed to discuss his case with others until he's diagnosed as not having mental capacity |
Reply privately, Reply in forum +quote
or View forums list | |
"Hello my fellow fables, I know this is not the nicest of posts but I was just wondering if any of you had had 1st hand dealing ls with this awful condition and you would be willing to talk to me about it.
Thanks hope everyone has a great weekend xxx "
My mother in law has had it for about 5 years. Controlled with co-beneldopa tablets 8 times a day (both slow release and quick release).
Drop me a line if you want to know more (I'm not an expert though) |
Reply privately, Reply in forum +quote
or View forums list | |
|
By (user no longer on site)
over a year ago
|
"Hello my fellow fables, I know this is not the nicest of posts but I was just wondering if any of you had had 1st hand dealing ls with this awful condition and you would be willing to talk to me about it.
Thanks hope everyone has a great weekend xxx "
I suffer from RLS which is related to Parkinsons so am susceptible to develop it later in life. How do I feel about it? Well all I can say is "it is what it is" hopefully my nearest and dearest will carry me through until it's my time to separate over to the next part of the journey x |
Reply privately, Reply in forum +quote
or View forums list | |
|
By (user no longer on site)
over a year ago
|
"Hello my fellow fables, I know this is not the nicest of posts but I was just wondering if any of you had had 1st hand dealing ls with this awful condition and you would be willing to talk to me about it.
Thanks hope everyone has a great weekend xxx
I suffer from RLS which is related to Parkinsons so am susceptible to develop it later in life. How do I feel about it? Well all I can say is "it is what it is" hopefully my nearest and dearest will carry me through until it's my time to separate over to the next part of the journey x"
Step* |
Reply privately, Reply in forum +quote
or View forums list | |
Your best trying to remember your grandàd when he was more active and healthy .. These diseases and conditions rob people of their personality and dignity .. He has lived a full life and you are part of his story |
Reply privately, Reply in forum +quote
or View forums list | |
|
By (user no longer on site)
over a year ago
|
"Can you not talk to his GP/consultant/him/relative in the know?
His GP/consultant are legally not allowed to discuss his case with others until he's diagnosed as not having mental capacity "
Mental capacity is assessed and is time and event specific.
Her grandad may have consented to healthcare professionals discussing his diagnosis/prognosis. |
Reply privately, Reply in forum +quote
or View forums list | |
|
By (user no longer on site)
over a year ago
|
"Also you could check your local area for Parkinson support groups. They give great advice and support for those family members caring for the person with the disease."
And this. |
Reply privately, Reply in forum +quote
or View forums list | |
» Add a new message to this topic
My grandad had it but not sure how much I can help or if at all??