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£4000 per week
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By (user no longer on site) OP
over a year ago
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To look after an advanced dementia patient, but according to the NHS the person has no medical needs and therefore has to pay for themselves until all their cash runs out. Feels like the thin end of the wedge. |
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By (user no longer on site)
over a year ago
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"To look after an advanced dementia patient, but according to the NHS the person has no medical needs and therefore has to pay for themselves until all their cash runs out. Feels like the thin end of the wedge."
Our wonderful government once again neglecting those without whilst those with enjoy the fruits of their lack of labours |
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"To look after an advanced dementia patient, but according to the NHS the person has no medical needs and therefore has to pay for themselves until all their cash runs out. Feels like the thin end of the wedge."
I know someone who was in the same position in a nursing home, they couldn't even get out of bed on there own and needed someone to give them a drink and feed them and still where not entitled to any funding
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By (user no longer on site)
over a year ago
Forum Mod |
Generally an advanced dementia patient has functional care needs rather than clinical nursing needs that is why they probably didn't qualify for continuing care funding
Im not saying thats right but thats how it is |
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By (user no longer on site) OP
over a year ago
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"Generally an advanced dementia patient has functional care needs rather than clinical nursing needs that is why they probably didn't qualify for continuing care funding
Im not saying thats right but thats how it is"
Totally true. But those functional care needs are the result of an illness, unfortunately current legislation doesn't see dementia as an illness. |
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By (user no longer on site)
over a year ago
Forum Mod |
Ive just looked at alzheimers society website,average cost for a live in carer is £800 - 900 per week so at most if 2 carers were required it would be £1800
Is the £4000 for a care home? |
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By (user no longer on site)
over a year ago
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"  seriously?"
Yeah, seriously.
Just think, if all that "growth" under NuLabour, Balir, Brown had been real rather than £700bn of debt, what the country could have done with genuine growth. |
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By (user no longer on site)
over a year ago
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I cared for my severely disabled sister at home until she died. She was double incontinent couldn't walk or speak,had to be bathed,fed,have physio by me and medicines administered. I'm assuming the same as someone in late stages of dementia? Where does the £4000 go? The price of a room can't be that much can it? I managed it alone with 3 children and a husband to look after too |
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By (user no longer on site) OP
over a year ago
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"there is only so much money in the kitty ...everyones needs cannot be met ...i wouldnt like the job of deciding who can/cant have "
Hard indeed, but there are huge variations across the country. In my area I am 6 times less likely to receive help than someone 10 miles away, something somewhere is going seriously wrong.  |
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By (user no longer on site) OP
over a year ago
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"Ive just looked at alzheimers society website,average cost for a live in carer is £800 - 900 per week so at most if 2 carers were required it would be £1800
Is the £4000 for a care home?"
Person has complex needs which sadly can no longer be met with care at home. Costs are for 24 hour one to one care in a nursing home. |
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By (user no longer on site)
over a year ago
Forum Mod |
"Ive just looked at alzheimers society website,average cost for a live in carer is £800 - 900 per week so at most if 2 carers were required it would be £1800
Is the £4000 for a care home?
Person has complex needs which sadly can no longer be met with care at home. Costs are for 24 hour one to one care in a nursing home."
Its a very sad and frustrating situation to be in |
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By (user no longer on site)
over a year ago
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I think there is a very fine line between what is classed as residential care and nursing care which in most cases (in my area of Wales at least) would make someone eligible for continuing care funding. However, despite being an incurable illness, Dementia (in whatever form) alone does not automatically make someone entitled to nursing care and the associated funding. It's a very grey area. A lot of politics and bullshit. It's a shambles. |
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By (user no longer on site) OP
over a year ago
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"I think there is a very fine line between what is classed as residential care and nursing care which in most cases (in my area of Wales at least) would make someone eligible for continuing care funding. However, despite being an incurable illness, Dementia (in whatever form) alone does not automatically make someone entitled to nursing care and the associated funding. It's a very grey area. A lot of politics and bullshit. It's a shambles."
It is a difficult area. The person here can't make any decisions for themselves, needs feeding, cannot communicate, is doubly incontinent, is mobile and quite nocturnal. All as a result of frontal temporal disorder dementia. But according to our NHS he has no medical needs. It really does need looking at. |
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By (user no longer on site)
over a year ago
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"I think there is a very fine line between what is classed as residential care and nursing care which in most cases (in my area of Wales at least) would make someone eligible for continuing care funding. However, despite being an incurable illness, Dementia (in whatever form) alone does not automatically make someone entitled to nursing care and the associated funding. It's a very grey area. A lot of politics and bullshit. It's a shambles.
It is a difficult area. The person here can't make any decisions for themselves, needs feeding, cannot communicate, is doubly incontinent, is mobile and quite nocturnal. All as a result of frontal temporal disorder dementia. But according to our NHS he has no medical needs. It really does need looking at."
Probably because they are saying that the person does not need a qualified nurse to meet their needs. Things like feeding, continence etc can be managed by unqualified staff. That is why, wrongfully in my eyes, it is not (or at least dementia alone is not) classed as a "nursing" need, hence is not entitled to funding in it's own right. |
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By *issmorganWoman
over a year ago
Calderdale innit |
"To look after an advanced dementia patient, but according to the NHS the person has no medical needs and therefore has to pay for themselves until all their cash runs out. Feels like the thin end of the wedge."
How sad |
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As a family had to pay private to see the top psychogeriatrician in the midlands who told us categorically dementia is a medical problem and a terminal one at that.... primary care trusts and the like don't want to acknowledge because of funding but a patient with advanced or end stage dementia can and should be treated on the continuing health care pathway if possible at home and or with palliative input ... we had to pay to get right medication and input for both my nan and her sister but if u push enough u can get it.
Xx |
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By *osieWoman
over a year ago
Wembley |
"To look after an advanced dementia patient, but according to the NHS the person has no medical needs and therefore has to pay for themselves until all their cash runs out. Feels like the thin end of the wedge."
Who pays for all of this??? The unemployed masses??? |
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By (user no longer on site)
over a year ago
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"
The weird thing is, it's all well and good saying NHS but the £4000 ends up in someone's (multiple) pockets.
They won't be complaining. "
I think I'd want a hefty lump for wiping piss and shit of a 90 yr old on a daily basis |
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By (user no longer on site)
over a year ago
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"Hows it cost £4,000 a week? Carers allowance is only £60 a week, same thing being done."
It's not the same thing being done if the person has to be admitted to a care home. If it was the same thing there would be no need for the care home at all. The £4000 will roughly be divided up between your "rent" which in my area averages £500 per week, paying the care staff for 24 hr care, hire of equipment such as profiling bed hoists and slings from the care trust, and visits from district nurses if required which cost around £150 a day (ball park figure) it dosnt ever cost the client £4000 from thier own pocket the most they will pay is the "rent" and even then new legislation only allows a person to spend so much of thier own money before hitting a threshold when the state will then fund you minus your pention. Also each client is put on a banding to determine the level of care they require which in turn determines the cost of care x |
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By (user no longer on site)
over a year ago
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"I think there is a very fine line between what is classed as residential care and nursing care which in most cases (in my area of Wales at least) would make someone eligible for continuing care funding. However, despite being an incurable illness, Dementia (in whatever form) alone does not automatically make someone entitled to nursing care and the associated funding. It's a very grey area. A lot of politics and bullshit. It's a shambles.
It is a difficult area. The person here can't make any decisions for themselves, needs feeding, cannot communicate, is doubly incontinent, is mobile and quite nocturnal. All as a result of frontal temporal disorder dementia. But according to our NHS he has no medical needs. It really does need looking at."
The family need to get a social worker... Its the only way to crack the system, get an assessment for an EMI need.
Look on care quality commission for homes with vacancies that match needs. If private income doesn't cover costs, council tops it up... Currently.
Been through it. |
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"I cared for my severely disabled sister at home until she died. She was double incontinent couldn't walk or speak,had to be bathed,fed,have physio by me and medicines administered. I'm assuming the same as someone in late stages of dementia? Where does the £4000 go? The price of a room can't be that much can it? I managed it alone with 3 children and a husband to look after too "
I have a huge Respect for you |
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By (user no longer on site)
over a year ago
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this is my job and i often wonder at the cost of dementia care homes and just about to move into one - i earn just above the min wage but see ads for private care at say £10 ph - that would cost 800 a week ish for 12 hour days and thats one to one - two i think would be needed - and maybe a night care so looking at most 2500 a week - not sure where the other 1500 comes from - surely nowhere near that to run a home with its management and facilities - i may be saying different in a few months when i have worked in one - and hold my hands up as i dont know how much homes cost on average
i would however say that dementia is indeed an illness that has medical needs |
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By (user no longer on site) OP
over a year ago
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"Wonder who printed this story ? The mail.
Very complex area but The legislation and guidance are there for a reason. "
Not a story, a real case with a relative at the moment. Average care costs for standard nursing home in London currently around £900 to £1250 for the "hotel" costs of room, food etc. The difference being the cost of someone being present for one to one 24 hour care to keep the patient and other patients safe, upwards of £12 per hour.
Social services believe that the patient should be being paid for, what is called the Clinical commissioning group responsible for medical care says no.
Does make you think that you are better off spending what you have while fit and healthy and enjoying life. Perhaps not the most responsible approach, but in this case, all of the persons cash and assets will be gone within a year or two. The govt saying that there will be a lifetime cap on care is totally misleading, as it excludes the "hotel" costs of needing to be in a home.
A complex area of legislation and it does seem that dementia patients are treated differently to others with terminal illnesses. |
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"
The weird thing is, it's all well and good saying NHS but the £4000 ends up in someone's (multiple) pockets.
They won't be complaining. "
And let's be honest, it doesn't cost £4k to look after someone with care and no clinical needs for a week, so whoever quoted that is just on the make from others misery. |
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By (user no longer on site) OP
over a year ago
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"
The weird thing is, it's all well and good saying NHS but the £4000 ends up in someone's (multiple) pockets.
They won't be complaining.
And let's be honest, it doesn't cost £4k to look after someone with care and no clinical needs for a week, so whoever quoted that is just on the make from others misery. "
The standard weekly costs are very high, there is very good profit to be made. The 24 hour one to one cost is basically the cost to bring in an agency care worker at anywhere between £12 and £17 per hour depending on time of day etc. There appears to be no regulation of these costs and fees only ever go up. |
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By *oodmessMan
over a year ago
yumsville |
"To look after an advanced dementia patient, but according to the NHS the person has no medical needs and therefore has to pay for themselves until all their cash runs out. Feels like the thin end of the wedge."
My aunt had dementia, along with a few other ills. The BUPA care home we eventually found (as all the others were found wanting) didn't cost this. In fact, I think it may have cost around this per month! |
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By *oodmessMan
over a year ago
yumsville |
"If its costing 4000 a week they need to look into it ... maybe have small care homes just for them .. its a lot of money ."
wouldn't this be one of those sticking points where the public dont want to see the NHS privatised though? As much as it may potentially get better value for money - it could also be opened up for exploitation too |
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By (user no longer on site) OP
over a year ago
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"If its costing 4000 a week they need to look into it ... maybe have small care homes just for them .. its a lot of money ."
Over 50 homes have been approached, only 3 will accept the patient, and all 3 saying the same thing because of extremely challenging behaviours. It is this dilema which I struggle with. The behaviours are caused by the illness, but the illness is not considered a medical issue. The patient has lived with dementia for 20 years and has been cared for at home at considerable cost, but it is only now that the care needs have become so intensive that nursing home care is required. And sadly the condition is degenerative and terminal and will only get worse |
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By (user no longer on site) OP
over a year ago
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"If its costing 4000 a week they need to look into it ... maybe have small care homes just for them .. its a lot of money .
wouldn't this be one of those sticking points where the public dont want to see the NHS privatised though? As much as it may potentially get better value for money - it could also be opened up for exploitation too "
I recently met the local MP, I think there should be more state provision for very later stage high end dementia patients. As I pointed out, the private sector is not obligated to help, and will only do so at very high cost, so therefore it would be more efficient for the state to re-introduce some smaller cottage hospitals to provide for those most vulnerable and challenging. |
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By (user no longer on site)
over a year ago
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"To look after an advanced dementia patient, but according to the NHS the person has no medical needs and therefore has to pay for themselves until all their cash runs out. Feels like the thin end of the wedge."
this isn't just dementia this is anyone who needs care, care is paid for by your local council so essentially your council tax and the council will not pay for care for anyone untill your have nothing
I work for a private company that provides home care and nursing for people who want to stay in their own home, it's a loop hole round the system as if you live in your house they can not force you to sell it so you can get funding while owning a property but as soon as you move out they can force you to sell it, that's why more and more people are opting for home care now days |
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By (user no longer on site) OP
over a year ago
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"To look after an advanced dementia patient, but according to the NHS the person has no medical needs and therefore has to pay for themselves until all their cash runs out. Feels like the thin end of the wedge.
this isn't just dementia this is anyone who needs care, care is paid for by your local council so essentially your council tax and the council will not pay for care for anyone untill your have nothing
I work for a private company that provides home care and nursing for people who want to stay in their own home, it's a loop hole round the system as if you live in your house they can not force you to sell it so you can get funding while owning a property but as soon as you move out they can force you to sell it, that's why more and more people are opting for home care now days "
They will only contribute a certain amount, unfortunately in this case, to look after the patient at home will require 2 people 24 hours a day and social services will not fund this. |
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By (user no longer on site)
over a year ago
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"To look after an advanced dementia patient, but according to the NHS the person has no medical needs and therefore has to pay for themselves until all their cash runs out. Feels like the thin end of the wedge.
this isn't just dementia this is anyone who needs care, care is paid for by your local council so essentially your council tax and the council will not pay for care for anyone untill your have nothing
I work for a private company that provides home care and nursing for people who want to stay in their own home, it's a loop hole round the system as if you live in your house they can not force you to sell it so you can get funding while owning a property but as soon as you move out they can force you to sell it, that's why more and more people are opting for home care now days
They will only contribute a certain amount, unfortunately in this case, to look after the patient at home will require 2 people 24 hours a day and social services will not fund this."
that's all depends case to cace, no they do not provide 24 hour home care, nobody gets that, not all cases need two people either, I go into a lot of homes with dementia some are double ups some are single calls, at most they will get 4 calls a day depending on their needs and how advanced their dementia is, you can get full founding if its decided you can not afford to contribute, each case if different though, there is no clear cut answer
I assume your talking about particular case close to you rather than in general? |
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By (user no longer on site)
over a year ago
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Dementia is not going away and they need 24 hour care .. so small care homes where they can have that .. I am sure it would not cost as much and better care . Small is better i feel. |
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By *bi HaiveMan
over a year ago
Forum Mod Cheeseville, Somerset |
I'm confused (and also pissed off!) by anyone who doesn't class dementia as an illness.
From the Alzheimer's Society:
"Dementia is caused when the brain is damaged by diseases, such as Alzheimer's disease or a series of strokes. Alzheimer's disease is the most common cause of dementia but not all dementia is due to Alzheimer's. The specific symptoms that someone with dementia experiences will depend on the parts of the brain that are damaged and the disease that is causing the dementia."
As dementia is caused by diseases damaging the brain how can it not be classified as an illness?
Seriously, seriously fucks me off.
A |
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By (user no longer on site) OP
over a year ago
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"I'm confused (and also pissed off!) by anyone who doesn't class dementia as an illness.
From the Alzheimer's Society:
"Dementia is caused when the brain is damaged by diseases, such as Alzheimer's disease or a series of strokes. Alzheimer's disease is the most common cause of dementia but not all dementia is due to Alzheimer's. The specific symptoms that someone with dementia experiences will depend on the parts of the brain that are damaged and the disease that is causing the dementia."
As dementia is caused by diseases damaging the brain how can it not be classified as an illness?
Seriously, seriously fucks me off.
A"
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By (user no longer on site) OP
over a year ago
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" Dementia is not going away and they need 24 hour care .. so small care homes where they can have that .. I am sure it would not cost as much and better care . Small is better i feel."
I agree, smaller is definitely better. |
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By (user no longer on site)
over a year ago
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"Hows it cost £4,000 a week? Carers allowance is only £60 a week, same thing being done.
It's not the same thing being done if the person has to be admitted to a care home. If it was the same thing there would be no need for the care home at all. The £4000 will roughly be divided up between your "rent" which in my area averages £500 per week, paying the care staff for 24 hr care, hire of equipment such as profiling bed hoists and slings from the care trust, and visits from district nurses if required which cost around £150 a day (ball park figure) it dosnt ever cost the client £4000 from thier own pocket the most they will pay is the "rent" and even then new legislation only allows a person to spend so much of thier own money before hitting a threshold when the state will then fund you minus your pention. Also each client is put on a banding to determine the level of care they require which in turn determines the cost of care x"
Thanks. Wow rent is a lot. Yeah all that other stuff i hadn't thought of. |
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By (user no longer on site)
over a year ago
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"If its costing 4000 a week they need to look into it ... maybe have small care homes just for them .. its a lot of money .
Over 50 homes have been approached, only 3 will accept the patient, and all 3 saying the same thing because of extremely challenging behaviours. It is this dilema which I struggle with. The behaviours are caused by the illness, but the illness is not considered a medical issue. The patient has lived with dementia for 20 years and has been cared for at home at considerable cost, but it is only now that the care needs have become so intensive that nursing home care is required. And sadly the condition is degenerative and terminal and will only get worse "
As I said earlier you need an assessment for an EMI bed in care home.. |
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By *icketysplitsWoman
over a year ago
Way over Yonder, that's where I'm bound |
" Dementia is not going away and they need 24 hour care .. so small care homes where they can have that .. I am sure it would not cost as much and better care . Small is better i feel."
My mother is in a small home - excellent care with really good staff ratios. Unfortunately, the local authority and CCG now deem this an unaffordable model as most residents have reached the point where state payments start to kick in rather than private payment. They will be looking to close it soon.
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By (user no longer on site)
over a year ago
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if its funded its about 900 pounds a month if its private its prob that aweek..I know I just been through it as my father died of his dementia last week..some of these posts are way off in what some think they know ! |
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By (user no longer on site) OP
over a year ago
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"If its costing 4000 a week they need to look into it ... maybe have small care homes just for them .. its a lot of money .
Over 50 homes have been approached, only 3 will accept the patient, and all 3 saying the same thing because of extremely challenging behaviours. It is this dilema which I struggle with. The behaviours are caused by the illness, but the illness is not considered a medical issue. The patient has lived with dementia for 20 years and has been cared for at home at considerable cost, but it is only now that the care needs have become so intensive that nursing home care is required. And sadly the condition is degenerative and terminal and will only get worse
As I said earlier you need an assessment for an EMI bed in care home.. "
The patient will qualify for funded nursing care, which equates to £110 per week, but no more. All of the homes approached are aware of the needs and he is above just EMI. But as Lickety says, very few places are geared up in the private sector to deal with complex needs and because over the years the NHS has closed virtually all of the specialist units there is a chronic shortage. Given the increasing incidence of dementia it really does need looking at. |
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By (user no longer on site)
over a year ago
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We had no money and the NHS would not look after my nan until they found her walking the freezing streets for the 3rd time in her nightdress.
Put her in an awful council run place but `luckily` and I mean that in a nice way she died within 4 weeks |
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By (user no longer on site) OP
over a year ago
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"We had no money and the NHS would not look after my nan until they found her walking the freezing streets for the 3rd time in her nightdress.
Put her in an awful council run place but `luckily` and I mean that in a nice way she died within 4 weeks "
So sorry to hear that, unfortunately there are so many stories like this. |
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By (user no longer on site)
over a year ago
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"Hows it cost £4,000 a week? Carers allowance is only £60 a week, same thing being done.
It's not the same thing being done if the person has to be admitted to a care home. If it was the same thing there would be no need for the care home at all. The £4000 will roughly be divided up between your "rent" which in my area averages £500 per week, paying the care staff for 24 hr care, hire of equipment such as profiling bed hoists and slings from the care trust, and visits from district nurses if required which cost around £150 a day (ball park figure) it dosnt ever cost the client £4000 from thier own pocket the most they will pay is the "rent" and even then new legislation only allows a person to spend so much of thier own money before hitting a threshold when the state will then fund you minus your pention. Also each client is put on a banding to determine the level of care they require which in turn determines the cost of care x
Thanks. Wow rent is a lot. Yeah all that other stuff i hadn't thought of."
Yea the rent is pretty horrific but the owners have to make money somewhere, the rent includes utilities, food bed and board the rest is profit x |
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By *icketysplitsWoman
over a year ago
Way over Yonder, that's where I'm bound |
"if i ever get something like that i'll do myself in ..wouldnt want to live like that and be a burden on my kids "
It's very likely I will be demented: paternal grandmother, mother, two of my aunts (one not much older than me). I'm checking out at the first sign.
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By (user no longer on site)
over a year ago
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"Ive just looked at alzheimers society website,average cost for a live in carer is £800 - 900 per week so at most if 2 carers were required it would be £1800
Is the £4000 for a care home?"
The prices you quote are for a 40 hour week. At that price times 4 works out about right. |
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By (user no longer on site)
over a year ago
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My Grandad had dementia, it was awful to see him deteriorate into what he became. We cared for his at home (carers also came 3 times a day) as long as we could. He qualified to go to an EMI nursing home so he didn't need to lose his house. He died four months later!
It's best to get carers in and they help your case when going to panel! |
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By (user no longer on site)
over a year ago
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"
The weird thing is, it's all well and good saying NHS but the £4000 ends up in someone's (multiple) pockets.
They won't be complaining. "
The bloated public sector.
Another of Labours legacies. |
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By *icketysplitsWoman
over a year ago
Way over Yonder, that's where I'm bound |
"
The weird thing is, it's all well and good saying NHS but the £4000 ends up in someone's (multiple) pockets.
They won't be complaining.
The bloated public sector.
Another of Labours legacies."
The home in question is private, I believe.
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By (user no longer on site)
over a year ago
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"if its funded its about 900 pounds a month if its private its prob that aweek..I know I just been through it as my father died of his dementia last week..some of these posts are way off in what some think they know !"
How awful for you xx |
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By *icketysplitsWoman
over a year ago
Way over Yonder, that's where I'm bound |
"I work in a dementia home for ladies and they dont pay that amount a month and they have hairdressers and outside entertainment coming in "
We pay for the hairdresser and others to come on top of the usual fees.
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By (user no longer on site)
over a year ago
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"
The weird thing is, it's all well and good saying NHS but the £4000 ends up in someone's (multiple) pockets.
They won't be complaining.
And let's be honest, it doesn't cost £4k to look after someone with care and no clinical needs for a week, so whoever quoted that is just on the make from others misery. "
Definitely  |
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By (user no longer on site) OP
over a year ago
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"
The weird thing is, it's all well and good saying NHS but the £4000 ends up in someone's (multiple) pockets.
They won't be complaining.
And let's be honest, it doesn't cost £4k to look after someone with care and no clinical needs for a week, so whoever quoted that is just on the make from others misery.
Definitely "
Sadly over 50 homes have rejected this particular patient and the only ones willing to take him are quoting similar fees. It is disgusting. |
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By (user no longer on site) OP
over a year ago
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"
The weird thing is, it's all well and good saying NHS but the £4000 ends up in someone's (multiple) pockets.
They won't be complaining.
And let's be honest, it doesn't cost £4k to look after someone with care and no clinical needs for a week, so whoever quoted that is just on the make from others misery.
Definitely
Sadly over 50 homes have rejected this particular patient and the only ones willing to take him are quoting similar fees. It is disgusting. "
Found somewhere! Still not cheap at £1350 a week (£70k per year), but hopefully it works out. Does make you think about the future, I suspect many of us seriously underestimate the costs of our old age care. |
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By (user no longer on site)
over a year ago
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"there is only so much money in the kitty ...everyones needs cannot be met ...i wouldnt like the job of deciding who can/cant have "
Understand your point here and it is correct but what irritates me about the current government is they say if we have savings of a certain amount we must use it to pay towards costs of care as there are limited funds but in the next breath they argue against a mansion tax as where those who can comfortably afford to pay more are not required to.
I personally feel those that are on high incomes and with millions in their bank accounts and have huge assets should be told to contribute more, what is the point of having millions in the bank that they will probably never spend in their lifetime taxing them would allow more low income people to keep the little pot of money they have |
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By (user no longer on site) OP
over a year ago
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"What happens to people with dementia who have no assets and only have state pension and DLA.
How do they pay for care if they need it?"
They get means tested and funded, so someone who has been prudent, saved, maybe paid of their mortgage etc has to sell to fund their care. Johnny who has lived the life of riley, holidays, drink, parties etc and has nothing left gets looked after. The current legislation does seem to encourage a certain type of behaviour! |
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Already suggested to my son that I stay in my home set up the downstairs and put in a set of carers upstairs. Cant really see how taking dementia patients out the home environment helps. Got to be cheaper to be at home with rotating help surely. |
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By (user no longer on site) OP
over a year ago
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"Already suggested to my son that I stay in my home set up the downstairs and put in a set of carers upstairs. Cant really see how taking dementia patients out the home environment helps. Got to be cheaper to be at home with rotating help surely."
That was what we did, but eventually the care needs and behaviours got beyond what could be dealt with in the home without 2 people on call 24 hours. It was safer and ultimately cheaper to find a proper nursing home. This is the conundrum, how much should one have to contribute? Care at home over the past 5 years has cost over £300k. |
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My Mam died a year ago today of Dementia, she worked all her life and paid her taxes, but when she got ill and had to go in a home, they made her sell her house to pay for care.. Its so very wrong. rip mam x |
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By (user no longer on site)
over a year ago
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I personally think that people with mon medical care needs (and more functional care needs) should pay towards their treatment if they have the assets. If They are not using the money for much else it will just sit there until it is inherited after death when it could contribute to care costs. We have an aging population and can't afford to pay for everyone, so those that can should contribute where possible |
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By (user no longer on site) OP
over a year ago
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"I personally think that people with mon medical care needs (and more functional care needs) should pay towards their treatment if they have the assets. If They are not using the money for much else it will just sit there until it is inherited after death when it could contribute to care costs. We have an aging population and can't afford to pay for everyone, so those that can should contribute where possible"
I agree, but at the moment we have a pretty much all or nothing approach. If you are skint or qualify for continuing care funding, you get 100% paid for. If you have a house and don't qualify for CCF, you get pretty much 0%. That system is flawed. |
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By (user no longer on site) OP
over a year ago
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"I think the £4000 a week figure is a work of fiction. "
If you would like me to send you the written proposal from the homes that were going to charge that, I can! |
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By (user no longer on site)
over a year ago
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I'm a nurse and take part in screening patients to see who qualifies for continuing care funding or state funding.
It really is down to does it need to be a qualified nurse to meet the need of the patient or can trained staff/family do it? Are theor needs as a result of a medical condition or general deteriation? Can their behaviour and needs be anticipated and planned? (scheduled visits)
it breaks my heart sometimes when I have advanced dementia patients who really need constant supervision and are mentally and emotionally draining on their carers receive not a penny as it's not a medical condition.
society sucks balls! |
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By (user no longer on site) OP
over a year ago
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"I'm a nurse and take part in screening patients to see who qualifies for continuing care funding or state funding.
It really is down to does it need to be a qualified nurse to meet the need of the patient or can trained staff/family do it? Are theor needs as a result of a medical condition or general deteriation? Can their behaviour and needs be anticipated and planned? (scheduled visits)
it breaks my heart sometimes when I have advanced dementia patients who really need constant supervision and are mentally and emotionally draining on their carers receive not a penny as it's not a medical condition.
society sucks balls!"
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By (user no longer on site)
over a year ago
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Food for thought:
We should place all elderly in Prison
They will get a warm shower a day, video surveillance in case of problems
3 healthy meals a day
access to a library
access to a computer, gym, tv
Doctors on site and Free medication
put criminals in nursing homes
they will have cold meals and lights off at 7pm
2 showers a week
Live in a small room and pay rent of £4000 a month
very sad that we treat prisoners better than our old folks
.
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By (user no longer on site)
over a year ago
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"Food for thought:
We should place all elderly in Prison
They will get a warm shower a day, video surveillance in case of problems
3 healthy meals a day
access to a library
access to a computer, gym, tv
Doctors on site and Free medication
put criminals in nursing homes
they will have cold meals and lights off at 7pm
2 showers a week
Live in a small room and pay rent of £4000 a month
very sad that we treat prisoners better than our old folks
.
"
Father in law has early stages of vascular dementia but has just been diagnosed with Parkinsons too.
Doubt he will receive any funding and I know it is horrible for him but it is so stressful for my hubby, he is even talking about having to leave work to care for him, it is very difficult at the moment x
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By (user no longer on site)
over a year ago
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"Food for thought:
We should place all elderly in Prison
They will get a warm shower a day, video surveillance in case of problems
3 healthy meals a day
access to a library
access to a computer, gym, tv
Doctors on site and Free medication
put criminals in nursing homes
they will have cold meals and lights off at 7pm
2 showers a week
Live in a small room and pay rent of £4000 a month
very sad that we treat prisoners better than our old folks
.
"
Well we all want a Rolls Royce service but are we prepared to pay for it? For example here, in France the NI equivalent is 25% of income! No long queue but it hurts your pocket. No simple answer, the current system was set up after the war, needs change & updating which party has the balls to do it? |
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By (user no longer on site) OP
over a year ago
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"Food for thought:
We should place all elderly in Prison
They will get a warm shower a day, video surveillance in case of problems
3 healthy meals a day
access to a library
access to a computer, gym, tv
Doctors on site and Free medication
put criminals in nursing homes
they will have cold meals and lights off at 7pm
2 showers a week
Live in a small room and pay rent of £4000 a month
very sad that we treat prisoners better than our old folks
.
"
|
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By (user no longer on site)
over a year ago
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I'd rather not(if I eventually come to a point in having an irreversible condition that effectively stops 'me' being me), want to have anyone need to care for me.
its a grey area..but if my minds gone..I dont see why my body should be held onto..in the hope my sufferings being eased.... |
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By (user no longer on site) OP
over a year ago
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"I'd rather not(if I eventually come to a point in having an irreversible condition that effectively stops 'me' being me), want to have anyone need to care for me.
its a grey area..but if my minds gone..I dont see why my body should be held onto..in the hope my sufferings being eased...."
It is a horrible grey area. No one knows exactly what is going on in the mind of a dementia patient. They may well be in the happiest place in the universe, we just don't know. At what point do you say "times up"? |
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