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By (user no longer on site) OP
over a year ago
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Is apparently a "social" problem and not a "medical" issue. Therefore very few people with genuine care needs qualify for any funding help until they have sold everything they have and their money runs out. So much for a caring society. Makes you wonder why we bother paying any tax or NI when at the point of need you are forced to pay an effective tax rate of 100%  |
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By (user no longer on site)
over a year ago
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"Is apparently a "social" problem and not a "medical" issue. Therefore very few people with genuine care needs qualify for any funding help until they have sold everything they have and their money runs out. So much for a caring society. Makes you wonder why we bother paying any tax or NI when at the point of need you are forced to pay an effective tax rate of 100% "
Who's told you that?
I do community nursing and go out to lots of people with Alzheimer's and dementia all of who lives in their own homes, everybody with health needs get free care |
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By (user no longer on site) OP
over a year ago
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"Is apparently a "social" problem and not a "medical" issue. Therefore very few people with genuine care needs qualify for any funding help until they have sold everything they have and their money runs out. So much for a caring society. Makes you wonder why we bother paying any tax or NI when at the point of need you are forced to pay an effective tax rate of 100%
Who's told you that?
I do community nursing and go out to lots of people with Alzheimer's and dementia all of who lives in their own homes, everybody with health needs get free care"
Sad to say, but no they don't. Some may receive a contribution, but many who have saved and own a property have to meet 100% of the costs, either at home or in an institution. |
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By (user no longer on site)
over a year ago
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"'when you've met one person with Dementia, you've met one person with Dementia'
Care to elaborate?"
Thats no 2 people are ever the same, Dementia is a very individual thing,
There's over 100 types of Dementia, Alzheimers being the main one. Sadly its degenerative and there is no cure.
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By (user no longer on site)
over a year ago
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I currently have two elderly relatives suffering with dementia.
It affects everybody around them.
I hope that when I reach that age and stage in life, we'll have got round the whole right to die / assisted dying debate and actually be in a position to do the humane thing.
After all, when my dog got to the point that his suffering was too great, I took him to the vet and he was relieved of his misery.
We say that this is the humane thing to do.
Humane. See that word Humane. It has Human in it, yet we can't do the Humane thing to a Human.
When I get to the point where I am going through the conversation loops 12 or 13 times over and over again could someone please just turn out the lights |
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By (user no longer on site)
over a year ago
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"Is apparently a "social" problem and not a "medical" issue. Therefore very few people with genuine care needs qualify for any funding help until they have sold everything they have and their money runs out. So much for a caring society. Makes you wonder why we bother paying any tax or NI when at the point of need you are forced to pay an effective tax rate of 100%
Who's told you that?
I do community nursing and go out to lots of people with Alzheimer's and dementia all of who lives in their own homes, everybody with health needs get free care
Sad to say, but no they don't. Some may receive a contribution, but many who have saved and own a property have to meet 100% of the costs, either at home or in an institution."
Depends what your talking about, they will and do get free medical care if your talking personal care with things such as washing, dressing etc no that's not free but nobody with money gets that for free regardless of their condition |
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By (user no longer on site) OP
over a year ago
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"'when you've met one person with Dementia, you've met one person with Dementia'
Care to elaborate?
Thats no 2 people are ever the same, Dementia is a very individual thing,
There's over 100 types of Dementia, Alzheimers being the main one. Sadly its degenerative and there is no cure.
"
 Got it, thanks! And yes, very different for everyone, although very similar for many when it comes to providing help when it is most need and punitive for many who have responsibly saved etc. |
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By (user no longer on site)
over a year ago
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I was a support worker in the community and now I'm working in a different area. Firstly care at home is not always totally funded it is dependant on income and level of care required. Some may have complex needs as well as dementia. I now work with adults with learning disabilities and we have a couple who have Down's syndrome and dementia. Best way to communicate with them is go with their flow, be very specific and simple in language. |
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By (user no longer on site)
over a year ago
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"I currently have two elderly relatives suffering with dementia.
It affects everybody around them.
I hope that when I reach that age and stage in life, we'll have got round the whole right to die / assisted dying debate and actually be in a position to do the humane thing.
After all, when my dog got to the point that his suffering was too great, I took him to the vet and he was relieved of his misery.
We say that this is the humane thing to do.
Humane. See that word Humane. It has Human in it, yet we can't do the Humane thing to a Human.
When I get to the point where I am going through the conversation loops 12 or 13 times over and over again could someone please just turn out the lights"
I understand that a lot of people suffer terribly with dementia but I don't think it is an excuse to euthanise them. When my nan had dementia it was the happiest time of her life. She turned from a grumpy old cow into a sweet old woman.
I know it's a horrible time for many but we can't just go around killing the old just because they lose it. |
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By (user no longer on site)
over a year ago
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"I currently have two elderly relatives suffering with dementia.
It affects everybody around them.
I hope that when I reach that age and stage in life, we'll have got round the whole right to die / assisted dying debate and actually be in a position to do the humane thing.
After all, when my dog got to the point that his suffering was too great, I took him to the vet and he was relieved of his misery.
We say that this is the humane thing to do.
Humane. See that word Humane. It has Human in it, yet we can't do the Humane thing to a Human.
When I get to the point where I am going through the conversation loops 12 or 13 times over and over again could someone please just turn out the lights"
Whilst i too would like to see a world where we can choose how and when as individuals we would like to die, id like to see a world where there is a cure for Dementia
Cancer funding far exceeds the research that is put into Dementia yet its a know fact that more people die with Dementia then they do with cancer.
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By (user no longer on site)
over a year ago
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Dementia is a term to describe the symptoms there are many types of dementia ie Alzheimer's or vascular dementia.
Yes it can be debilitating but to discuss euthanasia is wrong-many People I've looked after have enjoyed their life and with support maintained their indepedance. |
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By (user no longer on site) OP
over a year ago
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Dementia kills in the same way that cancer does. Should there be a differentiation between what illness you have in terms of how much you have to contribute to pay for it? As an example, a multi-millionaire who has cancer will be fully cared for and treated care of the NHS. A dementia sufferer who has paid off his mortgage, paid his taxes and has a house worth £300k has to sell it and use all of that cash before receiving help. Fair? |
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By (user no longer on site)
over a year ago
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"'when you've met one person with Dementia, you've met one person with Dementia'
Care to elaborate?
Thats no 2 people are ever the same, Dementia is a very individual thing,
There's over 100 types of Dementia, Alzheimers being the main one. Sadly its degenerative and there is no cure.
"
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By (user no longer on site)
over a year ago
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Should we put down the 19 year old with severe learning disabilities and autism because he repeats himself a lot should we put down someone with Down's syndrome? I work with these people and let me tell you they love their love they love day services which in our unit is on site and includes an art centre a working farm cookery IT work experience. We have clients access it with dementia. |
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By (user no longer on site)
over a year ago
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"Sorry I thought this was perhaps a help group for Hilda
Rude and uncalled for. Bullying is a horrible trait. "
You're right I shouldn't stop to that level. Apologies |
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By (user no longer on site)
over a year ago
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"Should we put down the 19 year old with severe learning disabilities and autism because he repeats himself a lot should we put down someone with Down's syndrome? I work with these people and let me tell you they love their love they love day services which in our unit is on site and includes an art centre a working farm cookery IT work experience. We have clients access it with dementia. "
Its a case of personal choice
There are many people who would choose to end their own lives due to illness if they had the choice, sadly they dont
Is down to if they want to end their lives not if we think it should happen |
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By (user no longer on site)
over a year ago
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We tried everything possible to keep our relative with dementia in her own home, her main problem was wandering. Short of locking her in, we could not keep her in the house. Tried alarms, monitoring her movements electronically for a week, looking for a pattern, carers at home, but she was rarely in the house for them to give medications etc. It was deemed the last resort to put her into secure care. She got no funding help, until she gave up her £88,0000 from the sale of her house, towards the care home fees |
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By (user no longer on site) OP
over a year ago
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"We tried everything possible to keep our relative with dementia in her own home, her main problem was wandering. Short of locking her in, we could not keep her in the house. Tried alarms, monitoring her movements electronically for a week, looking for a pattern, carers at home, but she was rarely in the house for them to give medications etc. It was deemed the last resort to put her into secure care. She got no funding help, until she gave up her £88,0000 from the sale of her house, towards the care home fees "
It is horrible to see people who have saved, paid taxes and been good citizens penalised for being ill. |
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My father died with dementia .. A confused shell of his former self .. And yesterday went to the funeral of another family member similarly afflicted .. Like all progressive diseases your family stands helplessly by as You degenerate to a being unrecognisable from your former self.. |
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By (user no longer on site) OP
over a year ago
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"My father died with dementia .. A confused shell of his former self .. And yesterday went to the funeral of another family member similarly afflicted .. Like all progressive diseases your family stands helplessly by as You degenerate to a being unrecognisable from your former self.. "
It is a horrible disease and the only one where the patient is financially penalised as well as dealing with the problems. |
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