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By *opinovMan
over a year ago
Point Nemo, Cumbria |
It's so heartening to read all the supportive posts here, as well as all the blue avatars.
I know I'm paraphrasing and, to an extent, repeating what I wrote about this last year - specifically concerning having an Aspie child - but I think, given today is World Autism Day, it bears the repetition.
I have an autistic son and I spent many years as a stay-at-home-dad while my partner went to work, and I still take on most of the child rearing duties. Bringing up an autistic child is a lifetime's hard work, and every circumstance is as different as the personalities involved - the child, the parents and siblings ... friends, society. The journey isn't an easy one.
Part of the problem is that there are far too many myths accepted as wisdom and far too many people who've seen "Rain Man" and think they know what it means to be autistic. I imagine there are many parents out there who've rolled their eyes in the face of the many misconceptions that abound. Frankly, so much crap is spouted in the dumbed-down media about autism, and regurgitated by those who read it and think they know all about it all of a sudden, that it would be decidedly off-pissing if I hadn't learned to ignore it. The truth is that most NTs (neurotypicals, ie. non-autistic people) haven't the first idea of what it's like - including many who purport to be "professionals" in the field.
I know this because I'm also autistic. I've had to endure a lifetime of so-called experts trying to tell me what was going on inside my head and how I might best fit back into society ... all have been so far wide of the mark that I wonder who, exactly, confers upon them the mantle of "expert" and upon what virtue. I've had all the confusion and heartbreak of trying to integrate myself only to be misunderstood or ostracized for being too "shy" or "introverted" or "quiet" or "strange" or "detached" (or whatever the fuck else), whereupon I inevitably say "sod it" and give up trying to buy into all the mainstream bullshit about what it takes to be "happy" or, at the very least, "integrated" - when it's clear to me (and many others like me) that it's more often than not the prejudiced intransigence of NTs that cause a great deal of the unhappiness and disenfranchisement in the first place - and I end up asking to no avail: we accept your shortcomings so why can't you accept ours?
My upbringing was centred around the idea that I should "learn to be normal" when, in fact, I knew from an early age that I was already normal and everybody else was bordering on the insane. As time has gone by, I've realised that NTs are fixated upon the idea that Aspies should aim to be "cured" in order to rejoin society. However, most Aspies would argue that it is the NTs who need to be cured on the strength of the fucked up neurotic society they've created in which anyone who doesn't fit with their idea of "normal" is "damaged" somehow. I try to remind them that my view of the world is every bit as valid as theirs - it's just that I'm looking at things from a slightly different perspective.
This often leads me to take issue with the "D" in the ASD - as I see it, I and others like me don't consider ourselves to be victims of a "disorder" as much as being of a mind set which might be characterised loosely as having certain traits or proclivities that differ from the accepted norm - many of which are actually beneficial to the pursuit of numeracy, lateral thinking, creative composition, innovative design, artistic perception and the like. The Victorians recognised this and referred to what we now call Asperger's Syndrome as "the Engineer's Disease". In light of this, and considering that our screwed up world (environment, society, economy, etc.) is the product mainly of those whom convention calls "normal", I prefer to substitute the letter C in place of the D to denote the word "condition" or "characteristic" in place of "disorder".
That said, you might think that it would be easier to bring up an autistic child if you, yourself, are autistic - but please take my word that nothing could be further from the truth. My son is as different from me, in his view of the world, as I am from most NTs - and I'll admit it was quite a shock for me to realise this. There's no easy path, every person touched is different and the only reason we cope is because we have no choice. I can only suggest parents carry on talking with their children and doing whatever it takes to understand, and accept, their different view of the world. When they hit their teens, they're more than ever going to need you to be an understanding friend as well as a supportive mum or dad. Don't be afraid of their differences - embrace them, understand them and, above all, respect them.
Well, that's my take on it anyway. I hope nobody minds if I post a link to the National Autistic Society's donation page for those with a little spare change:
http://www.autism.org.uk/donatenow
Kop xx |