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Restless Leg Syndrome
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Restless legs syndrome, also known as Willis-Ekbom disease, does anyone here suffer with it or know anyone that does? If so do you have any tips on how to cope with it?
It does my head in, it's just another thing keeping me up all night! |
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By (user no longer on site)
over a year ago
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"It's very likely to be caused by lack of sleep. If you can get your sleep sorted, it should go away by itself."
No it doesn't and I suspect for sufferers, they would wish it was that simple |
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By (user no longer on site)
over a year ago
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Wikipedia says:
Restless legs syndrome (RLS) also known as Willis-Ekbom disease (WED) or Wittmaack-Ekbom syndrome, is a neurological disorder characterized by an irresistible urge to move one's body to stop uncomfortable or odd sensations. It most commonly affects the legs, but can affect the arms, torso, head, and even phantom limbs. Moving the affected body part modulates the sensations, providing temporary relief.
RLS sensations range from pain or an aching in the muscles, to "an itch you can't scratch", an unpleasant "tickle that won't stop", or even a "crawling" feeling. The sensations typically begin or intensify during quiet wakefulness, such as when relaxing, reading, studying, or trying to sleep.
Additionally, most individuals with RLS suffer from periodic limb movement disorder (limbs jerking during sleep), which is an objective physiologic marker of the disorder and is associated with sleep disruption.
Some controversy surrounds the marketing of drug treatments for RLS. It is a "spectrum" disease with some people experiencing only a minor annoyance and others suffering major disruption of sleep and significant impairments in quality of life.
My ex girlfriend suffered and not much fun being kicked in the night but then she couldn't help it and slept little |
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Am I misunderstanding you comment, or does your evidence below point to the suggestion, that RLS is connected to sleep disturbance? I know two people, who, when their sleep apnea was treated, the RLS, which severely effected both arms and legs was instantly cured. Hey! I'm not a medical practitioner, just someone who has read a little on the subject, and has experience of the misery it causes. |
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"Restless legs syndrome, also known as Willis-Ekbom disease, does anyone here suffer with it or know anyone that does? If so do you have any tips on how to cope with it?
It does my head in, it's just another thing keeping me up all night!"
I had some kind of issue with very disturbed sleep until I had a course of treatment from a Chinese medical herbalist (a very well qualified one). I went to try and sort something else out, but I have slept like a log ever since. Worth a try maybe. |
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By (user no longer on site)
over a year ago
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I get it from time to time too, but only ever in my right leg.
I find tensing my leg, bending it as far as I can backwards (the normal direction lol) and stretching helps. It usually passes in 5-10 minutes or so but you're right, if it happens when you're trying to get to sleep it can be a right pain, pardon the pun. |
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By (user no longer on site)
over a year ago
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Oh and just to add, I only get it whilst I'm awake, can't say that I've been woken up by it. As the wiki link said though, I tend to get it whilst I'm relaxing on the sofa etc. |
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By (user no longer on site)
over a year ago
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"Restless legs syndrome, also known as Willis-Ekbom disease, does anyone here suffer with it or know anyone that does? If so do you have any tips on how to cope with it?
It does my head in, it's just another thing keeping me up all night!"
Perhaps it's worth mentioning the drug quinine to your Dr. Execellent medication for restless legs  |
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By (user no longer on site)
over a year ago
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A friend developed it after using tramadol for a while. The doc reduced the dose until she was off it but the problem remained. I think it was eventually a case of cold turkey for her and it went off on its own. She did carry out some leg exercises but they had limited success.
Hope it clears up. |
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By (user no longer on site)
over a year ago
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"Restless legs syndrome, also known as Willis-Ekbom disease, does anyone here suffer with it or know anyone that does? If so do you have any tips on how to cope with it?
It does my head in, it's just another thing keeping me up all night!"
I have it and it also affects my arms. And it drives me barmy.
I was prescribed "quinine" which did help until my body simply rejected it. and now i become violently ill if i take quinine. Now i have amiltriptyline. Which takes the edge off a little. |
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"Restless legs syndrome, also known as Willis-Ekbom disease, does anyone here suffer with it or know anyone that does? If so do you have any tips on how to cope with it?
It does my head in, it's just another thing keeping me up all night!
I have it and it also affects my arms. And it drives me barmy.
I was prescribed "quinine" which did help until my body simply rejected it. and now i become violently ill if i take quinine. Now i have amiltriptyline. Which takes the edge off a little. "
A friend tskes amaltryptyline for other issues, still gets it quite bad sometimes. So god knows what it would be like without taking it. I will suggest quinine to them and see if that helps |
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By (user no longer on site)
over a year ago
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I have it but it only affects my legs. And it drives me barmy.
It does my head in, it's just another thing keeping me up all night!
And Sammi doesn't exactly like the idea of being kicked during the night although she is aware its not on purpose and i can't help it.
Billy |
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Thank you, everyone, for your comments and suggestions. There is no proved cause, or cure, for this condition, I think that probably means it has more than one cause and therefore different people find different things that help. I'm going to try the tonic water, mainly because its a pretty easy one to try with no side effects (if in leave out the gin). One thing I have tried is vitamin B12 and magnesium. I read it was sometimes helpful and happened to have some multi vitamins (Premense) so thought I would give it a go. There has been a dramatic improvement since I took the pills but I can't say i am 100% sure thats not a coincidence. It's definitely worth a go if you're suffering though. |
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By (user no longer on site)
over a year ago
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"Am I misunderstanding you comment, or does your evidence below point to the suggestion, that RLS is connected to sleep disturbance? I know two people, who, when their sleep apnea was treated, the RLS, which severely effected both arms and legs was instantly cured. Hey! I'm not a medical practitioner, just someone who has read a little on the subject, and has experience of the misery it causes."
I copied it from Wikipedia so not a link but your comment links in with the sleep bit as therefore someone is 'relaxing' and I think someone on this thread also said they find they suffer a bit when they were relaxing so the two people who's sleep apnea being treated there effectively cured the RLS would make perfect sense. If all that makes sense so nothing to do with being a medical practitioner, just made perfect sense  |
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By (user no longer on site)
over a year ago
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I suffer really badly with this in my right leg, the only way I can try and relieve it is to stretch my leg right out.., I put it down to a riding accident I had a few years ago! |
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I have this problem a lot and have recently brought a tens machine. I put one pad above the calf muscle and one below and choose a massage setting. This has so far helped relieve the problem. The machine is only a basic one from the local chemist for under 20quid.
Once the restless legs are sorted I then move the pads and enjoy some alternate stimulation  |
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By (user no longer on site)
over a year ago
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Dee gets it....infact hes taken ibruphrophen tonight for it he says they work..only speaking for him as I wouldnt have a clue what its like!...ironic you should post this...bambi x |
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Probably not much help if you get it later in the evening when your winding down like me but i tend to find going out for a short walk helps. Gets the blood flowing in my legs and it seems to dissappear. |
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By (user no longer on site)
over a year ago
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Try Magnesium oil spray, available cheapest from Amazon, just under £10. I used to have terrible aching legs at work, tried everything, soaking in hot bath, massage, pain killers from doc etc and nothing worked until I read about the spray and bought it. Amazing, takes any pain away in minutes. Worth a try ? |
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"Try Magnesium oil spray, available cheapest from Amazon, just under £10. I used to have terrible aching legs at work, tried everything, soaking in hot bath, massage, pain killers from doc etc and nothing worked until I read about the spray and bought it. Amazing, takes any pain away in minutes. Worth a try ?"
Everything is worth a try when you haven't slept for nights! |
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