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Now I understand
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"How can anyone function under these circumstances. It sounds like bedlam, literally."
No-one can function. A woman who hitherto appeared mentally competent is, this morning, showing signs of confusion. I swear some of the residents have been made worse cognitively, due to lack of rest.
Our new overnight entrant is very, VERY rude and awful and shouts constantly.
Tomorrow cannot come soon enough. |
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"How can anyone function under these circumstances. It sounds like bedlam, literally.
No-one can function. A woman who hitherto appeared mentally competent is, this morning, showing signs of confusion. I swear some of the residents have been made worse cognitively, due to lack of rest.
Our new overnight entrant is very, VERY rude and awful and shouts constantly.
Tomorrow cannot come soon enough. "
The majority are fortunate enough to not have long stays in hospital or to spend time in a and e departments. It can truly be a small slice of hell on earth.
I wish all politicians could experience it.
One more night... |
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"How can anyone function under these circumstances. It sounds like bedlam, literally.
No-one can function. A woman who hitherto appeared mentally competent is, this morning, showing signs of confusion. I swear some of the residents have been made worse cognitively, due to lack of rest.
Our new overnight entrant is very, VERY rude and awful and shouts constantly.
Tomorrow cannot come soon enough. "
Feel for you. |
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"How can anyone function under these circumstances. It sounds like bedlam, literally.
No-one can function. A woman who hitherto appeared mentally competent is, this morning, showing signs of confusion. I swear some of the residents have been made worse cognitively, due to lack of rest.
Our new overnight entrant is very, VERY rude and awful and shouts constantly.
Tomorrow cannot come soon enough.
The majority are fortunate enough to not have long stays in hospital or to spend time in a and e departments. It can truly be a small slice of hell on earth.
I wish all politicians could experience it.
One more night..."
I'm not willing to top & tail with Wes Streeting tonight. The hozzy is full, no room at the inn  |
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Although I have sympathy that you have had little sleep, it isn't very nice to hear you be so derogative and judgemental about the other patients. Having had to spend time on on wards when my daughter with learning disabilities had major surgery, I can tell you that it's very stressful to have other patients judging behaviours. Not everyone can be a perfect patient like you, can they |
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By *hilloutMan 2 days ago
All over the place! Northwesr, , Southwest |
"Although I have sympathy that you have had little sleep, it isn't very nice to hear you be so derogative and judgemental about the other patients. Having had to spend time on on wards when my daughter with learning disabilities had major surgery, I can tell you that it's very stressful to have other patients judging behaviours. Not everyone can be a perfect patient like you, can they "
I have to agree. I can sympathise with anyone spending time in a hospital as it can be a stressful or unsettling experience, but belittling others in similar circumstances is inappropriate. People deal with stressors in all manner of ways and we've no idea how much someone might be struggling unless in their shoes.
Speedy recovery Op. |
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I really hope that you’re doing ok and that the reason for you being in hospital has been a helpful one?
Words don’t really cover it but I’m sending you love and thought, I do care about my friends |
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"People deal with stressors in all manner of ways and we've no idea how much someone might be struggling unless in their shoes.
Speedy recovery Op."
Eeee, I get where you're coming from. But also I have been in regular touch with Mrs KC and I can assure that she cares very much about the other people on the ward. That she has been in serious pain and dismissed by the doctors until stuff started showing up in blood tests. And so so much more that is not my story to tell. I think you have no idea of what her shoes are like before you judge yourself. |
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"Although I have sympathy that you have had little sleep, it isn't very nice to hear you be so derogative and judgemental about the other patients. Having had to spend time on on wards when my daughter with learning disabilities had major surgery, I can tell you that it's very stressful to have other patients judging behaviours. Not everyone can be a perfect patient like you, can they
I have to agree. I can sympathise with anyone spending time in a hospital as it can be a stressful or unsettling experience, but belittling others in similar circumstances is inappropriate. People deal with stressors in all manner of ways and we've no idea how much someone might be struggling unless in their shoes.
Speedy recovery Op."
I have every sympathy for the people on these wards with dementia. I've helped feed elderly patients here during my stay, I've passed them their buzzers and fetched the staff when they need the loo. I've told them what time it is every five minutes and listened over and over, attentively, to their stories. When they've told me there are cats on the ward, I've smiled and said "ok". When they've thought I'm their granddaughter, I've gently said I'm not. The woman opposite has been having major delusions and bursting into tears and I've gone to comfort her many times.
However. I've been here for three weeks. In that three weeks, I don't think I've EVER had more than 3 or 4 hours of consecutive sleep and there have been several nights with zero sleep. I'm almost delusional with the lack of sleep.
This has been an outlet for the distress of lacking sleep when I am also ill. Staff do not come to comfort me when I'm crying and wanting to go home and see my child because they have to focus on the people with dementia who are at risk of falling out of bed. I understand that, but it has been one lonely, lonely experience. For three weeks, I've had to look after and advocate for myself at every juncture because of the high needs of all the people around me and the low staffing levels. My toileting needs, my hygiene needs, my emotional and psychological health have all taken a firm backseat to all the others on the ward.
The ward is in a basement and we have no windows at all. I've not been outside or seen natural light for three weeks.
I have a father with dementia who most likely behaved in much the same way when he was an inpatient and who needed high levels of care and supervision. If his behaviour overnight meant someone else got no sleep, then I have every sympathy and feel they have the right to complain in a way that does not impact the dementia patients, e.g. in an anonymous forum like this.
Furthermore, the HCA on duty last night would most likely have laughed in my face, had I burst into tears on her, due to exhaustion and the stress of being in hospital. She's not a very pleasant person and I think we have her again tonight.
I am supposed to finally go home tomorrow and am very keen to get there. |
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Hey OP, sleep deprivation is no joke. It affected me to the point I was delusional when my eldest was ill. And I don't know what happened but I thought he was downstairs crying and flew downstairs, falling down it in my panic and injuring myself. He was fast asleep in the cot next to me.
It is not unreasonable to have had enough of others noise, that are exacerbating your illness and hindering your recovery. You've not blamed them just said you've had enough, which is fair enough. I'm sure you'd happily swap places with anyone who disagree with you. |
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Honestly, I'm at the end of what I can tolerate, in all ways. Mentally, physically and emotionally. I'm a total failure in all ways and there seems no purpose to my existence. What's the point of living in an ever degrading body, in constant and unremitting pain? |
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"Honestly, I'm at the end of what I can tolerate, in all ways. Mentally, physically and emotionally. I'm a total failure in all ways and there seems no purpose to my existence. What's the point of living in an ever degrading body, in constant and unremitting pain? "
You are a special person with a wonderful mind that is needed by many people. That lifts up many people and makes the world better and easier for them.
You keep going because you love them and they love you. You keep going because you want to be enough for them. And you are. Keep being enough for them KC. Keep inspiring us. Keep just doing you. We love you. And we love the struggles as much as we love the highlights. You are an amazing person. Everyone that’s met you can swear to that. Even those that haven’t met you can probably swear to that. Your body lets you down and it’s hard. But you’ve got so much to keep going for. And so many to keep going for. And we have got you. We are here to laugh. And love. And rant to.
There’s good days and bad days. Don’t give up when the bad days come around. The good days are coming tomorrow. |
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"Hoping the night passes speedily and without too much disruption x"
I just came out of the loo and was informed I'm moving wards. Immediately. So now I'm in some other random ward until the morning. All my stuff (not much, to be fair) got hurriedly lobbed on my bed and I got carted off by a porter. They need the bed space.
I'll escape later and say bye bye to my friend in the side room. We had planned a night time cuppa and chat later on. |
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"Hoping the night passes speedily and without too much disruption x
I just came out of the loo and was informed I'm moving wards. Immediately. So now I'm in some other random ward until the morning. All my stuff (not much, to be fair) got hurriedly lobbed on my bed and I got carted off by a porter. They need the bed space.
I'll escape later and say bye bye to my friend in the side room. We had planned a night time cuppa and chat later on. "
Oh lovely, hopefully it means you are somewhere quieter and escape from the unpleasant HCA if nothing else. And yes you absolutely need to have a chat with your friend x |
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"Honestly, I'm at the end of what I can tolerate, in all ways. Mentally, physically and emotionally. I'm a total failure in all ways and there seems no purpose to my existence. What's the point of living in an ever degrading body, in constant and unremitting pain?
You are a special person with a wonderful mind that is needed by many people. That lifts up many people and makes the world better and easier for them.
You keep going because you love them and they love you. You keep going because you want to be enough for them. And you are. Keep being enough for them KC. Keep inspiring us. Keep just doing you. We love you. And we love the struggles as much as we love the highlights. You are an amazing person. Everyone that’s met you can swear to that. Even those that haven’t met you can probably swear to that. Your body lets you down and it’s hard. But you’ve got so much to keep going for. And so many to keep going for. And we have got you. We are here to laugh. And love. And rant to.
There’s good days and bad days. Don’t give up when the bad days come around. The good days are coming tomorrow. "
Pickle got this absolutely spot on. ❤️ |
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"Hoping the night passes speedily and without too much disruption x
I just came out of the loo and was informed I'm moving wards. Immediately. So now I'm in some other random ward until the morning. All my stuff (not much, to be fair) got hurriedly lobbed on my bed and I got carted off by a porter. They need the bed space.
I'll escape later and say bye bye to my friend in the side room. We had planned a night time cuppa and chat later on.
Oh lovely, hopefully it means you are somewhere quieter and escape from the unpleasant HCA if nothing else. And yes you absolutely need to have a chat with your friend x"
The staff here seem nice. The exit is right at the end of my bed now and it's bloody freezing. People are going to be leaving through the exit throughout the night. Maybe freezing to death would be peaceful?!
I'm plotting a night time escape in my wheelchair back to my other ward for the brew.
It's not going to be quiet here, unfortunately. But yes, much nicer staff than Ms. HCA. |
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