Last night on BBC2 at 9pm there was a very good documentary about this horrible illness. Well worth watching as both sad and educational. Disappointed it was not on BBC 1 as was probably missed by many. |
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By *oozleMan 35 weeks ago
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It’s a horrible illness and I’m glad a documentary was made to highlight how cruel it can be for both the person and the family members.
I think these documentaries should be made on all platforms including streaming to make everyone aware of the issues and how to care for people. |
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My Dad is declining due to vascular dementia (obviously similar symptoms to Alzheimer's). I want to watch it but couldn't last night. I'll watch on iPlayer. It's a horrible and very difficult set of circumstances  |
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Hi B, I'm going to catch it tonight. Terrible disease - utterly heartbreaking.
This song makes encompasses the grief. And makes me cry everytime I hear it
https://youtu.be/U8TsAh-zYFI?si=smixeItYYNeJyTys |
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"Hi B, I'm going to catch it tonight. Terrible disease - utterly heartbreaking.
This song makes encompasses the grief. And makes me cry everytime I hear it
https://youtu.be/U8TsAh-zYFI?si=smixeItYYNeJyTys"
That is lovely. I will share this with my work colleagues. |
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"My Dad is declining due to vascular dementia (obviously similar symptoms to Alzheimer's). I want to watch it but couldn't last night. I'll watch on iPlayer. It's a horrible and very difficult set of circumstances "
•
KC²  , and all those living with/affected by it. |
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My father in law died following a long battle with Vascular Dementia. A terrible disease that, just like Alzhiemers, means you lose your loved one twice.
My hubby has suffered a stroke a couple of years ago and it's been a real struggle at times. He tries to put on a brave face and is aware it could have so much worse.
But in the back of his mind is the knowledge that Vascular Dementia is caused by series of small strokes, killing of parts of the sufferers brain. Statistically his chances of contracting Vascular Dementia are elevated.
His worries aren't for himself but for those he'd leave behind and the toll it places on a sufferers.
He cared for his Dad on a daily basis, more than willingly, but he does not want that for me or our kids. It's the one thing that scares him.
Sympathise with anyone, sufferer or their family who are going through any brain degenerative condition.
Love to everyone dealing with this now,
Mrs x |
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"My father in law died following a long battle with Vascular Dementia. A terrible disease that, just like Alzhiemers, means you lose your loved one twice.
My hubby has suffered a stroke a couple of years ago and it's been a real struggle at times. He tries to put on a brave face and is aware it could have so much worse.
But in the back of his mind is the knowledge that Vascular Dementia is caused by series of small strokes, killing of parts of the sufferers brain. Statistically his chances of contracting Vascular Dementia are elevated.
His worries aren't for himself but for those he'd leave behind and the toll it places on a sufferers.
He cared for his Dad on a daily basis, more than willingly, but he does not want that for me or our kids. It's the one thing that scares him.
Sympathise with anyone, sufferer or their family who are going through any brain degenerative condition.
Love to everyone dealing with this now,
Mrs x"
Ah, lots of love to you both Fingers crossed he remains OK and no more strokes.
My dad had both vascular dementia and Alzheimer's, but it was still quite mild when he passed away from cancer.
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"Hi B, I'm going to catch it tonight. Terrible disease - utterly heartbreaking.
This song makes encompasses the grief. And makes me cry everytime I hear it
https://youtu.be/U8TsAh-zYFI?si=smixeItYYNeJyTys
That is lovely. I will share this with my work colleagues. "
x |
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"My father in law died following a long battle with Vascular Dementia. A terrible disease that, just like Alzhiemers, means you lose your loved one twice.
My hubby has suffered a stroke a couple of years ago and it's been a real struggle at times. He tries to put on a brave face and is aware it could have so much worse.
But in the back of his mind is the knowledge that Vascular Dementia is caused by series of small strokes, killing of parts of the sufferers brain. Statistically his chances of contracting Vascular Dementia are elevated.
His worries aren't for himself but for those he'd leave behind and the toll it places on a sufferers.
He cared for his Dad on a daily basis, more than willingly, but he does not want that for me or our kids. It's the one thing that scares him.
Sympathise with anyone, sufferer or their family who are going through any brain degenerative condition.
Love to everyone dealing with this now,
Mrs x
Ah, lots of love to you both Fingers crossed he remains OK and no more strokes.
My dad had both vascular dementia and Alzheimer's, but it was still quite mild when he passed away from cancer.
"
Omg that's just so sad,
Mrs x |
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Such a sad illness where you can lose your family member years before they pass away. There is now a test you can take that isolates the gene that causes it. 95% of getting it off you have the gene. I dont know whether i would take the test or not as there is nothing you can do about it.
Hopefully the future will bring s cure. |
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It's great that we have public service broadcasting, that means not everything has to be about ratings and profits.
Awful suite of diseases and my heart goes out to anyone affected by them or other dementia. |
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"Such a sad illness where you can lose your family member years before they pass away. There is now a test you can take that isolates the gene that causes it. 95% of getting it off you have the gene. I dont know whether i would take the test or not as there is nothing you can do about it.
Hopefully the future will bring s cure."
This only applies to early onset Alzheimer's, as far as I know. There are many other causes and forms of dementia that have no specific tests. My Dad has vascular dementia, which is essentially lots of little mini strokes and changes in the blood vessels in the brain, which slowly erodes function. There's many other types too. |
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"Such a sad illness where you can lose your family member years before they pass away. There is now a test you can take that isolates the gene that causes it. 95% of getting it off you have the gene. I dont know whether i would take the test or not as there is nothing you can do about it.
Hopefully the future will bring s cure.
This only applies to early onset Alzheimer's, as far as I know. There are many other causes and forms of dementia that have no specific tests. My Dad has vascular dementia, which is essentially lots of little mini strokes and changes in the blood vessels in the brain, which slowly erodes function. There's many other types too. "
Over 400 which will surprise many as it did me. |
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I didn't watch it.
I know two people with it and they are polar opposites.
One is an 86 year old woman who doesn't recognize anyone but is happy in her own little world.
The other is a 40 year old man with a young family and was in the army. He was lovely then started to become violent. He got so violent he has had to go to a special unit in Manchester. Last time I saw him he was just telling everyone to fuck off. So very sad for him and his family |
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"I didn't watch it.
I know two people with it and they are polar opposites.
One is an 86 year old woman who doesn't recognize anyone but is happy in her own little world.
The other is a 40 year old man with a young family and was in the army. He was lovely then started to become violent. He got so violent he has had to go to a special unit in Manchester. Last time I saw him he was just telling everyone to fuck off. So very sad for him and his family"
My Dad veers somewhere between these two extremes. Most of the time, he floats about in his own world but he can become very verbally aggressive and also physically aggressive. He recently assaulted a responder who went out to him, for example.
It's very challenging. |
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My mum has vascular dementia caused again by strokes.
We have just been given a diagnosis of lung cancer for her, they cannot treat it so I am torn whether to attempt to tell her or not. During her lucid moments she would understand it. I just don't want her to be scared though. The lucid moments are precious. |
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"My mum has vascular dementia caused again by strokes.
We have just been given a diagnosis of lung cancer for her, they cannot treat it so I am torn whether to attempt to tell her or not. During her lucid moments she would understand it. I just don't want her to be scared though. The lucid moments are precious. "
I think it would be better if she was not told but entirely the decision for your family to make. |
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By (user no longer on site) 35 weeks ago
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Horrible disease my Grandad had it had a really bad few years routine is the key, but you have to get your head round the fact that they are gone and it’s not the same person, that they were you get snippets but towards the end it’s tough, good luck to anyone going through it x |
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"My mum has vascular dementia caused again by strokes.
We have just been given a diagnosis of lung cancer for her, they cannot treat it so I am torn whether to attempt to tell her or not. During her lucid moments she would understand it. I just don't want her to be scared though. The lucid moments are precious. "
I'll reply to the other message soon, Lois, but I agree with Sally. It might be best not to tell your Mum about the cancer. However, you'd need to make sure every medical professional who sees her knows that, because one of them will say something at some point.
It's so hard. So so hard. Sending all our love |
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"My mum has vascular dementia caused again by strokes.
We have just been given a diagnosis of lung cancer for her, they cannot treat it so I am torn whether to attempt to tell her or not. During her lucid moments she would understand it. I just don't want her to be scared though. The lucid moments are precious.
I'll reply to the other message soon, Lois, but I agree with Sally. It might be best not to tell your Mum about the cancer. However, you'd need to make sure every medical professional who sees her knows that, because one of them will say something at some point.
It's so hard. So so hard. Sending all our love "
I spoke with the two docs on her ward who have been looking after her today and said we had not been sure whether to tell her or not. They said I probably should. As they were supposed to be discharging her today I thought it would give me time to consult with my siblings and if we wanted to as a collective we could do it all together on Saturday.
As she knew she could "escape" today she was in quite good form. Which was just as well as all of a sudden the specialist lung cancer nurse turned up to have a chat with us. I mouthed across the bed "she doesn't know yet" and with that she told her.
So the deed was done.
I have no idea now whether she was better to be told or not.
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"My mum has vascular dementia caused again by strokes.
We have just been given a diagnosis of lung cancer for her, they cannot treat it so I am torn whether to attempt to tell her or not. During her lucid moments she would understand it. I just don't want her to be scared though. The lucid moments are precious.
I'll reply to the other message soon, Lois, but I agree with Sally. It might be best not to tell your Mum about the cancer. However, you'd need to make sure every medical professional who sees her knows that, because one of them will say something at some point.
It's so hard. So so hard. Sending all our love
I spoke with the two docs on her ward who have been looking after her today and said we had not been sure whether to tell her or not. They said I probably should. As they were supposed to be discharging her today I thought it would give me time to consult with my siblings and if we wanted to as a collective we could do it all together on Saturday.
As she knew she could "escape" today she was in quite good form. Which was just as well as all of a sudden the specialist lung cancer nurse turned up to have a chat with us. I mouthed across the bed "she doesn't know yet" and with that she told her.
So the deed was done.
I have no idea now whether she was better to be told or not.
"
So nice that you as a family were consulted! I hope your Mum has coped with receiving the news? Or has she forgotten now? My Dad was upset recently when told that his mother died in 1998 so I can imagine your Mum might have been upset, at least in the moment.
Are you finding medics don't listen to you about your Mum and what she is/isn't able to do or cope with? |
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"My mum has vascular dementia caused again by strokes.
We have just been given a diagnosis of lung cancer for her, they cannot treat it so I am torn whether to attempt to tell her or not. During her lucid moments she would understand it. I just don't want her to be scared though. The lucid moments are precious.
I'll reply to the other message soon, Lois, but I agree with Sally. It might be best not to tell your Mum about the cancer. However, you'd need to make sure every medical professional who sees her knows that, because one of them will say something at some point.
It's so hard. So so hard. Sending all our love
I spoke with the two docs on her ward who have been looking after her today and said we had not been sure whether to tell her or not. They said I probably should. As they were supposed to be discharging her today I thought it would give me time to consult with my siblings and if we wanted to as a collective we could do it all together on Saturday.
As she knew she could "escape" today she was in quite good form. Which was just as well as all of a sudden the specialist lung cancer nurse turned up to have a chat with us. I mouthed across the bed "she doesn't know yet" and with that she told her.
So the deed was done.
I have no idea now whether she was better to be told or not.
So nice that you as a family were consulted! I hope your Mum has coped with receiving the news? Or has she forgotten now? My Dad was upset recently when told that his mother died in 1998 so I can imagine your Mum might have been upset, at least in the moment.
Are you finding medics don't listen to you about your Mum and what she is/isn't able to do or cope with?"
She was a gem today. I was so proud of her. She was telling the nurse about my dad dying so I know it frightened her.
And yes re the medics. Seemingly the nutritionist popped by this morning with a whole verbal list of things for mum to do. Yeah right tell the woman who has a short term memory of a flea if you are lucky. Or at least leave a list of what was discussed or pick up the phone and facetime me with mum.
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So sad, such an awful disease. My mum took early retirement to move my gran in when hers progressed to the point it wasn't safe for her to be at home alone. As awful as it was it was far easier once she past the point of being lucid still, as she'd been a carer for her own mum and it was her biggest fear. There were lots of bright moments still, and plenty where whilst she was still mobile she enjoyed (or appeared to) a lot. I don't think my mum ever recovered from the guilt of putting her into a home for a weeks respite though. As it ended in a fall, and her returning with bed sores. She passed away a fortnight later. Which did throw up many questions regarding the standard of care there as she was completely immobile at that point, and we'd managed well between ourselves previously with neither issue happening. But I guess you just can't say if it was an issue around lack of suitable care provided, or if it was just progressive deteriorating at that point. |
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"My Dad is declining due to vascular dementia (obviously similar symptoms to Alzheimer's). I want to watch it but couldn't last night. I'll watch on iPlayer. It's a horrible and very difficult set of circumstances "
Alzheimer's mainly destroys the memory and one can gauge the stage by the person's "age". My maternal grandmother and paternal siblings had this. My dad has frontotemporal love dementia (loss of social filters) and my mother has vascular dementia.
A decent lifestyle can may hold back onset, and keeping the brain active can help make new neuron pathways when neurons are damaged by small bleeds/hypoxia (strokes) or plaques (Alzheimer's, lewey bodies).
Obviously early onset Alzheimer's due to the mutant gene like the Jennings family in the documentary, is a very bitter pill to swallow.
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"My father in law died following a long battle with Vascular Dementia. A terrible disease that, just like Alzhiemers, means you lose your loved one twice.
My hubby has suffered a stroke a couple of years ago and it's been a real struggle at times. He tries to put on a brave face and is aware it could have so much worse.
But in the back of his mind is the knowledge that Vascular Dementia is caused by series of small strokes, killing of parts of the sufferers brain. Statistically his chances of contracting Vascular Dementia are elevated.
His worries aren't for himself but for those he'd leave behind and the toll it places on a sufferers.
He cared for his Dad on a daily basis, more than willingly, but he does not want that for me or our kids. It's the one thing that scares him.
Sympathise with anyone, sufferer or their family who are going through any brain degenerative condition.
Love to everyone dealing with this now,
Mrs x"
Admiral nurses are a good support.
I'm sure there's research on learning a new language is very good at exercising the brain and gaining the new pathways (connections between the neurons). |
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"My Dad is declining due to vascular dementia (obviously similar symptoms to Alzheimer's). I want to watch it but couldn't last night. I'll watch on iPlayer. It's a horrible and very difficult set of circumstances "
My grandad had it too, for about 5 years before his death. The worst thing was seeing the toll it took on my gran. |
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