Does anyone have any coping strategies for this kicker?
It's debilitating- eating next to nowt, putting weight on like a brood mare and in constant pain
Tried everything over the counter and on 2 prescriptions
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I've suffered for over 30 years and been on every medicine under the sun.
A couple of years ago I came off all meds, left a stressful job and ensure I eat 3 meals every day.
It's not gone away but it's the best its ever been. |
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By (user no longer on site)
over a year ago
|
Have yourself checked for bile acid malabsorption.
I was diagnosed years ago with IBS.
But more recently trialled a drug for BAM and it helps me loads. You can also get a scan but it's expensive and you'll be lucky if the NHS do it. Trial the medication and see if it works instead, that's what I did.
Also look at the FODMAP diet and use the Monash app. You have to pay for the app but it's a good one. Note your triggers. And triggers aren't always food!!
Inbox me if you want to. |
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By *ad NannaWoman
over a year ago
East London |
Has anyone suggested the Low FODMAP diet?
I found sticking to it did help a lot, but it's not meant for long term.
I'm doing the trial and error diet now and trying to eat more protein i.e. fish, chicken, beef.
I've been to a weight management meeting and the dietician said she's going to set up a meeting specifically for people with IBS as most of us there have it.
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By *ad NannaWoman
over a year ago
East London |
"Have yourself checked for bile acid malabsorption.
I was diagnosed years ago with IBS.
But more recently trialled a drug for BAM and it helps me loads. You can also get a scan but it's expensive and you'll be lucky if the NHS do it. Trial the medication and see if it works instead, that's what I did.
Also look at the FODMAP diet and use the Monash app. You have to pay for the app but it's a good one. Note your triggers. And triggers aren't always food!!
Inbox me if you want to."
I had the scan on the NHS. |
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By *ad NannaWoman
over a year ago
East London |
I get information from Monash by Googling whatever it is I'm looking to buy to see if it's low FODMAP.
I try to limit the FODMAPs but I don't cut them out completely.
Some weeks I'm ok, some I daren't stray from a toilet.
I am losing weight, so it is possible.
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By *ad NannaWoman
over a year ago
East London |
"Have yourself checked for bile acid malabsorption.
I was diagnosed years ago with IBS.
But more recently trialled a drug for BAM and it helps me loads. You can also get a scan but it's expensive and you'll be lucky if the NHS do it. Trial the medication and see if it works instead, that's what I did.
Lucky!!! They won't do it for me. Said I had good results on the meds and to stick with it.
Also look at the FODMAP diet and use the Monash app. You have to pay for the app but it's a good one. Note your triggers. And triggers aren't always food!!
Inbox me if you want to.
I had the scan on the NHS. "
I had it after my gallbladder was removed because I became so unwell.
I think limiting fat helps too.
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By (user no longer on site)
over a year ago
|
"Have yourself checked for bile acid malabsorption.
I was diagnosed years ago with IBS.
But more recently trialled a drug for BAM and it helps me loads. You can also get a scan but it's expensive and you'll be lucky if the NHS do it. Trial the medication and see if it works instead, that's what I did.
Also look at the FODMAP diet and use the Monash app. You have to pay for the app but it's a good one. Note your triggers. And triggers aren't always food!!
Inbox me if you want to.
I had the scan on the NHS. "
Lucky! They wouldn't do me, just said the meds worked enough so there was no point in the scan |
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By (user no longer on site)
over a year ago
|
"Have yourself checked for bile acid malabsorption.
I was diagnosed years ago with IBS.
But more recently trialled a drug for BAM and it helps me loads. You can also get a scan but it's expensive and you'll be lucky if the NHS do it. Trial the medication and see if it works instead, that's what I did.
Lucky!!! They won't do it for me. Said I had good results on the meds and to stick with it.
Also look at the FODMAP diet and use the Monash app. You have to pay for the app but it's a good one. Note your triggers. And triggers aren't always food!!
Inbox me if you want to.
I had the scan on the NHS.
I had it after my gallbladder was removed because I became so unwell.
I think limiting fat helps too.
"
Yes it does ...but I can't work out if the good fats help or hinder yet. I'm still new to the BAM side. |
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By *ad NannaWoman
over a year ago
East London |
"Have yourself checked for bile acid malabsorption.
I was diagnosed years ago with IBS.
But more recently trialled a drug for BAM and it helps me loads. You can also get a scan but it's expensive and you'll be lucky if the NHS do it. Trial the medication and see if it works instead, that's what I did.
Also look at the FODMAP diet and use the Monash app. You have to pay for the app but it's a good one. Note your triggers. And triggers aren't always food!!
Inbox me if you want to.
I had the scan on the NHS.
Lucky! They wouldn't do me, just said the meds worked enough so there was no point in the scan"
They gave you medication without checking to see if it's BAM?
Are you talking about a SeHCat scan? I might be talking about something different. |
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By (user no longer on site)
over a year ago
|
"Have yourself checked for bile acid malabsorption.
I was diagnosed years ago with IBS.
But more recently trialled a drug for BAM and it helps me loads. You can also get a scan but it's expensive and you'll be lucky if the NHS do it. Trial the medication and see if it works instead, that's what I did.
Also look at the FODMAP diet and use the Monash app. You have to pay for the app but it's a good one. Note your triggers. And triggers aren't always food!!
Inbox me if you want to.
I had the scan on the NHS.
Lucky! They wouldn't do me, just said the meds worked enough so there was no point in the scan
They gave you medication without checking to see if it's BAM?
Are you talking about a SeHCat scan? I might be talking about something different. "
Yes exactly that. And yes that scan. |
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By *ad NannaWoman
over a year ago
East London |
"Have yourself checked for bile acid malabsorption.
I was diagnosed years ago with IBS.
But more recently trialled a drug for BAM and it helps me loads. You can also get a scan but it's expensive and you'll be lucky if the NHS do it. Trial the medication and see if it works instead, that's what I did.
Lucky!!! They won't do it for me. Said I had good results on the meds and to stick with it.
Also look at the FODMAP diet and use the Monash app. You have to pay for the app but it's a good one. Note your triggers. And triggers aren't always food!!
Inbox me if you want to.
I had the scan on the NHS.
I had it after my gallbladder was removed because I became so unwell.
I think limiting fat helps too.
Yes it does ...but I can't work out if the good fats help or hinder yet. I'm still new to the BAM side."
I can't have dairy so started using Vitalite. I don't eat fatty meat or fry anything so it's mostly fat in wheat based foods, which I have to limit.
I had 3 pasta meals in two days recently and triggered a bad attack. I'm still settling my stomach down from it.
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By *ad NannaWoman
over a year ago
East London |
"Have yourself checked for bile acid malabsorption.
I was diagnosed years ago with IBS.
But more recently trialled a drug for BAM and it helps me loads. You can also get a scan but it's expensive and you'll be lucky if the NHS do it. Trial the medication and see if it works instead, that's what I did.
Also look at the FODMAP diet and use the Monash app. You have to pay for the app but it's a good one. Note your triggers. And triggers aren't always food!!
Inbox me if you want to.
I had the scan on the NHS.
Lucky! They wouldn't do me, just said the meds worked enough so there was no point in the scan
They gave you medication without checking to see if it's BAM?
Are you talking about a SeHCat scan? I might be talking about something different.
Yes exactly that. And yes that scan."
I wasn't offered medication. |
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By (user no longer on site)
over a year ago
|
I got crippling stomach pains lasting all night. Followed the FODMAP diet suggested above. Cut out all wheat flour products. I've been ok for two months now. I have a banana and porridge breakfast. Potato, carrots and fish or chicken dinner times. Not very exciting but slowly trying little bits of other foods |
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By (user no longer on site)
over a year ago
|
"Have yourself checked for bile acid malabsorption.
I was diagnosed years ago with IBS.
But more recently trialled a drug for BAM and it helps me loads. You can also get a scan but it's expensive and you'll be lucky if the NHS do it. Trial the medication and see if it works instead, that's what I did.
Also look at the FODMAP diet and use the Monash app. You have to pay for the app but it's a good one. Note your triggers. And triggers aren't always food!!
Inbox me if you want to.
I had the scan on the NHS.
Lucky! They wouldn't do me, just said the meds worked enough so there was no point in the scan
They gave you medication without checking to see if it's BAM?
Are you talking about a SeHCat scan? I might be talking about something different.
Yes exactly that. And yes that scan.
I wasn't offered medication."
Even now? |
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"I've suffered for over 30 years and been on every medicine under the sun.
A couple of years ago I came off all meds, left a stressful job and ensure I eat 3 meals every day.
It's not gone away but it's the best its ever been. "
Bit extreme, having to leave your job! Surely better to learn how to deal with the stress |
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I suggest anyone with Bowel issues watch this
https://youtu.be/db5yauyj6ao
I know it goes against the traditional food narrative but it really only is an extreme FODMAP diet.
Someone with UC and associated IBS issues now living a normal life.
Cures depression in weeks.
All the comments below stating how others with the same issues have put all symptoms into remission.
His channel is very interesting.
So, if you are at your wits end...why not see if it works for you.
|
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By (user no longer on site)
over a year ago
|
"I suggest anyone with Bowel issues watch this
https://youtu.be/db5yauyj6ao
I know it goes against the traditional food narrative but it really only is an extreme FODMAP diet.
Someone with UC and associated IBS issues now living a normal life.
Cures depression in weeks.
All the comments below stating how others with the same issues have put all symptoms into remission.
His channel is very interesting.
So, if you are at your wits end...why not see if it works for you.
"
That's really interesting. I'm going to look at that some more |
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By *aitonelMan
over a year ago
Liverpool |
The only thing that works for me is adjusting diet of course. Plenty of sleep (easier said than done) and buscopan when needed.
I need to check with my GP about changing one of the meds I'm on for it. It does absolutely nothing for the pain anymore. |
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By (user no longer on site)
over a year ago
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One of my mates has this and when we were in our 20s he got pissed off and genuinely ordered a really hot curry and said "fuck you insides see how you deal with this" haha turned out nothing happend but was funny that he was trying to punish him self lol |
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I had really bad ibs from 21 to 35 took tablets daily to cope i couldn't eat spicy foods, milk or bread untill i saw a very good doctor he gold me stop all tablets, i panicked i said i need them he told me tgey were making it worse as my body was now useing them instead of natural means. I came off tgem on his advice had a month of hell, went to see a srink she said whats making you worried about going out? I said what if i cant find a toilet and soil myself? She put it in the way of you need to go then go if a restaurant says no then say its coming one way or the other lol but i got a card from her you can download it from the ibs website it notifys whoever you show you have a hidden condition and i found it worked 90% i stayed off the tablets, as time passed i noticed it had stopped.
I do have attacks sometimes but icope hope you find a way to cope with yours hun i feel your pain xx |
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My husband suffers with it something rotten. When he gets a bout of it, the pain is crippling. He is on a couple of different varieties of medication in order to even attempt keeping the condition under control, but there's almost no telling when it's going to hit. At it's worst, he's been up all night in pain, akin to being knifed in the stomach.
On top of that, he's developed a gluten intolerance, which makes things worse. White bread can really nobble him, even just a single slice. As he says: "gluten free bread is as dry and a sun-baked dog turd and tastes about the same, but at least it helps a bit".
If anyone says that IBS is essentially trapped farts, then they've clearly never suffered with it. |
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