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Health problems
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Hello, it's me again, Mrs. Defective. I'm just having a moan really, so feel free to tootle right on by if you don't like moaning.
Reading back the letter from yesterday's trip to the women's health doc made for sober reading. The surgery I had two years ago has partly failed. My other problems COULD be fixed surgically but it's looking increasingly like I'm hypermobile and so the risk of it failing is astronomical.
I'm not quite yet 37 but I am literally falling to pieces. Having more surgery would improve my quality of life for as long as it lasts, but the consequences of early failure is repeated surgery until the point where scar tissue would render me completely useless and everything would be stitched shut 
Urgh. Being a woman sucks, it really does. Why are there so many bits to go wrong???
*Moaning over*
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"Going on a limb but EDS?
Pm if you want, more experience than I'd possibly care to have.
Best wishes though."
Probably not EDS, but something very similar with similar symptoms, especially in my lower body. Thank you. |
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On your behalf can I say? Fuck, shit, bollocks. The universe sucks. More fuck and shit. Bollocks, bollocks. Sucking universe.
I don't really have any other words, there's nowt I can do to help. Best I can do is send good thoughts, which doesn't help you in any physical or practical way.  Polly xxxxx |
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By (user no longer on site)
over a year ago
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"Going on a limb but EDS?
Pm if you want, more experience than I'd possibly care to have.
Best wishes though.
Probably not EDS, but something very similar with similar symptoms, especially in my lower body. Thank you."
Good, that one can become a veritable shit show.
Sounds like your private little war against yourself is already one too though.
There are no neat helpful words sometimes.
But yeah, hope you guys can wrestle through this one.
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"Is it endometriosis you have?
This sucks so bad, I wish there was more than could be done for 'womens' health issues "
I might have that too. No, what I have is (look away if you are squeamish)
Triple prolapse
Flaccid bladder
Adenomyosis
Uterine polyps, possibly fibroids
Chronic cervicitis
Ongoing pelvic girdle dysfunction 6yrs after pregnancy
That's what we know about  |
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By (user no longer on site)
over a year ago
|
"Is it endometriosis you have?
This sucks so bad, I wish there was more than could be done for 'womens' health issues
I might have that too. No, what I have is (look away if you are squeamish)
Triple prolapse
Flaccid bladder
Adenomyosis
Uterine polyps, possibly fibroids
Chronic cervicitis
Ongoing pelvic girdle dysfunction 6yrs after pregnancy
That's what we know about "
Oh no
This is awful
Sorry to ask for specifics but I know the 2 common prolapses, where is the 3rd?
My mum had horrible womens health issues and she had to have a full hysterectomy at 34 she was decanted.
Hope this all gets sorted for you |
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By (user no longer on site)
over a year ago
|
"Is it endometriosis you have?
This sucks so bad, I wish there was more than could be done for 'womens' health issues
I might have that too. No, what I have is (look away if you are squeamish)
Triple prolapse
Flaccid bladder
Adenomyosis
Uterine polyps, possibly fibroids
Chronic cervicitis
Ongoing pelvic girdle dysfunction 6yrs after pregnancy
That's what we know about "
I hurt just reading that lot KC You're still more active and full of life than most people and I'm sure your spirit won't change no matter how your body resist. Un abrazo, Amiga x |
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By (user no longer on site)
over a year ago
|
"Hello, it's me again, Mrs. Defective. I'm just having a moan really, so feel free to tootle right on by if you don't like moaning.
Reading back the letter from yesterday's trip to the women's health doc made for sober reading. The surgery I had two years ago has partly failed. My other problems COULD be fixed surgically but it's looking increasingly like I'm hypermobile and so the risk of it failing is astronomical.
I'm not quite yet 37 but I am literally falling to pieces. Having more surgery would improve my quality of life for as long as it lasts, but the consequences of early failure is repeated surgery until the point where scar tissue would render me completely useless and everything would be stitched shut
Urgh. Being a woman sucks, it really does. Why are there so many bits to go wrong???
*Moaning over*
Normal broadcasts resume "
Are you going to have the surgery? Only 3 years till you're over the hill anyway so might as well have fun now.  |
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"Is it endometriosis you have?
This sucks so bad, I wish there was more than could be done for 'womens' health issues
I might have that too. No, what I have is (look away if you are squeamish)
Triple prolapse
Flaccid bladder
Adenomyosis
Uterine polyps, possibly fibroids
Chronic cervicitis
Ongoing pelvic girdle dysfunction 6yrs after pregnancy
That's what we know about
Oh no
This is awful
Sorry to ask for specifics but I know the 2 common prolapses, where is the 3rd?
My mum had horrible womens health issues and she had to have a full hysterectomy at 34 she was decanted.
Hope this all gets sorted for you "
Cystocele (front wall)
Rectocele (back wall)
Uterine prolapse.
There's others too, e.g. enterocele (bowel prolapse), but I don't have those. Yet |
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"Hello, it's me again, Mrs. Defective. I'm just having a moan really, so feel free to tootle right on by if you don't like moaning.
Reading back the letter from yesterday's trip to the women's health doc made for sober reading. The surgery I had two years ago has partly failed. My other problems COULD be fixed surgically but it's looking increasingly like I'm hypermobile and so the risk of it failing is astronomical.
I'm not quite yet 37 but I am literally falling to pieces. Having more surgery would improve my quality of life for as long as it lasts, but the consequences of early failure is repeated surgery until the point where scar tissue would render me completely useless and everything would be stitched shut
Urgh. Being a woman sucks, it really does. Why are there so many bits to go wrong???
*Moaning over*
Normal broadcasts resume
Are you going to have the surgery? Only 3 years till you're over the hill anyway so might as well have fun now. "
Not for now, no. Too much risk of it failing after a few years |
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"Is it endometriosis you have?
This sucks so bad, I wish there was more than could be done for 'womens' health issues
I might have that too. No, what I have is (look away if you are squeamish)
Triple prolapse
Flaccid bladder
Adenomyosis
Uterine polyps, possibly fibroids
Chronic cervicitis
Ongoing pelvic girdle dysfunction 6yrs after pregnancy
That's what we know about
Oh no
This is awful
Sorry to ask for specifics but I know the 2 common prolapses, where is the 3rd?
My mum had horrible womens health issues and she had to have a full hysterectomy at 34 she was decanted.
Hope this all gets sorted for you
Cystocele (front wall)
Rectocele (back wall)
Uterine prolapse.
There's others too, e.g. enterocele (bowel prolapse), but I don't have those. Yet "
Bloody hell that's tough on you.
I'm no help but I so hope you can find some relief |
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"Is it endometriosis you have?
This sucks so bad, I wish there was more than could be done for 'womens' health issues
I might have that too. No, what I have is (look away if you are squeamish)
Triple prolapse
Flaccid bladder
Adenomyosis
Uterine polyps, possibly fibroids
Chronic cervicitis
Ongoing pelvic girdle dysfunction 6yrs after pregnancy
That's what we know about "
Us?! squeamish...nope...well dunno about the men and the neurotypical people.
Sorry to hear about all of this.
I can only suggest second and third and fourth opinions.
yes being a woman sucks. Yesterday I was poked and prodded and pinned externally, interally in my body and in my mind.....was swearing that men have no idea what it's like...and I haven't had any children. Had a mini mental meltdown last night.
My body and my brain is screaming to pack it in but I don't want to give up just yet.
Multiple hugs to you. |
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"Is it endometriosis you have?
This sucks so bad, I wish there was more than could be done for 'womens' health issues
I might have that too. No, what I have is (look away if you are squeamish)
Triple prolapse
Flaccid bladder
Adenomyosis
Uterine polyps, possibly fibroids
Chronic cervicitis
Ongoing pelvic girdle dysfunction 6yrs after pregnancy
That's what we know about
Us?! squeamish...nope...well dunno about the men and the neurotypical people.
Sorry to hear about all of this.
I can only suggest second and third and fourth opinions.
yes being a woman sucks. Yesterday I was poked and prodded and pinned externally, interally in my body and in my mind.....was swearing that men have no idea what it's like...and I haven't had any children. Had a mini mental meltdown last night.
My body and my brain is screaming to pack it in but I don't want to give up just yet.
Multiple hugs to you."
This IS the third/fourth opinion after many years of fighting. I trust this gynae and she has sent me for a battery of tests that others discounted etc, including a specialist in London (awaiting more gruesome tests in Jan).
I'll take Nerø up on some n'duja pizza again then |
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"Is it endometriosis you have?
This sucks so bad, I wish there was more than could be done for 'womens' health issues
I might have that too. No, what I have is (look away if you are squeamish)
Triple prolapse
Flaccid bladder
Adenomyosis
Uterine polyps, possibly fibroids
Chronic cervicitis
Ongoing pelvic girdle dysfunction 6yrs after pregnancy
That's what we know about "
Fuck sake, is that all 
Hope you’re ok  |
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"Is it endometriosis you have?
This sucks so bad, I wish there was more than could be done for 'womens' health issues
I might have that too. No, what I have is (look away if you are squeamish)
Triple prolapse
Flaccid bladder
Adenomyosis
Uterine polyps, possibly fibroids
Chronic cervicitis
Ongoing pelvic girdle dysfunction 6yrs after pregnancy
That's what we know about
Fuck sake, is that all
Hope you’re ok "
Yeah, that's it for now. Well, the women's health bits |
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"Is it endometriosis you have?
This sucks so bad, I wish there was more than could be done for 'womens' health issues
I might have that too. No, what I have is (look away if you are squeamish)
Triple prolapse
Flaccid bladder
Adenomyosis
Uterine polyps, possibly fibroids
Chronic cervicitis
Ongoing pelvic girdle dysfunction 6yrs after pregnancy
That's what we know about
Us?! squeamish...nope...well dunno about the men and the neurotypical people.
Sorry to hear about all of this.
I can only suggest second and third and fourth opinions.
yes being a woman sucks. Yesterday I was poked and prodded and pinned externally, interally in my body and in my mind.....was swearing that men have no idea what it's like...and I haven't had any children. Had a mini mental meltdown last night.
My body and my brain is screaming to pack it in but I don't want to give up just yet.
Multiple hugs to you.
This IS the third/fourth opinion after many years of fighting. I trust this gynae and she has sent me for a battery of tests that others discounted etc, including a specialist in London (awaiting more gruesome tests in Jan).
°
I'll take Nerø up on some n'duja pizza again then "
°
We need an 'Nduja emoji. |
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"Is it endometriosis you have?
This sucks so bad, I wish there was more than could be done for 'womens' health issues
I might have that too. No, what I have is (look away if you are squeamish)
Triple prolapse
Flaccid bladder
Adenomyosis
Uterine polyps, possibly fibroids
Chronic cervicitis
Ongoing pelvic girdle dysfunction 6yrs after pregnancy
That's what we know about
Us?! squeamish...nope...well dunno about the men and the neurotypical people.
Sorry to hear about all of this.
I can only suggest second and third and fourth opinions.
yes being a woman sucks. Yesterday I was poked and prodded and pinned externally, interally in my body and in my mind.....was swearing that men have no idea what it's like...and I haven't had any children. Had a mini mental meltdown last night.
My body and my brain is screaming to pack it in but I don't want to give up just yet.
Multiple hugs to you.
This IS the third/fourth opinion after many years of fighting. I trust this gynae and she has sent me for a battery of tests that others discounted etc, including a specialist in London (awaiting more gruesome tests in Jan).
I'll take Nerø up on some n'duja pizza again then "
Pizza solves a lot. I had noodle soup instead. My mom use to give me chicken noodle soup when I was ill.
Comfort food when all else fails. |
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I have a leg condition that I have been offered another operation on. That would be my 11th Op with the last one going badly wrong with infection and a blood clot.
I’m terrified I will eventually end up in a chair but not sure I can undergo another OP. My legs are just knots of scar tissue as it is.
Not quite at your level OP but worrying none the less.
I hope you get some good news soon. |
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Never apologise for "moaning", KC. Sometimes we just need to 'say it'!
I'm sorry to read this, but hope you're doing ok. Sounds like you're doing all you can to get the best advice to make your decision(s).
And can I also come for the pizza with you and Nero? |
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"Never apologise for "moaning", KC. Sometimes we just need to 'say it'!
I'm sorry to read this, but hope you're doing ok. Sounds like you're doing all you can to get the best advice to make your decision(s).
And can I also come for the pizza with you and Nero? "
Yeah! Come and join us for pizza |
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"I have a leg condition that I have been offered another operation on. That would be my 11th Op with the last one going badly wrong with infection and a blood clot.
I’m terrified I will eventually end up in a chair but not sure I can undergo another OP. My legs are just knots of scar tissue as it is.
Not quite at your level OP but worrying none the less.
I hope you get some good news soon. "
Sorry to hear that. It's hard to get your head around, when your body fails you.
Honestly, wheelchairs aren't as scary as people think they are. If you were to end up needing one, get an active lifestyle chair like a Kuschall, Quickie or RGK or something. My wheelchair is a tool of enablement. I can do so much more with it, compared to without it. |
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May I also say, these problems happen relatively often in women (but more likely to a lesser extent/fewer concurrent things). However, too often, women are disbelieved, ignored or the problems treated like a joke. Just think how many make jokes about a weak bladder* or similar? But that is a sign of pelvic floor injury, for example, and can be treated.
We need better healthcare, not Tena lady!
*This is one I DON'T have. I have the opposite! |
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I'm hypermobile, not as much fun as it used to be, definitely not very flexible anymore!
As a result my body over compensates and I'm always very tense. Causes chronic pain and fatigue.
Think a new thing might be gluteal tendinopathy... Just debating if I can face going through the NHS process again to try and get help. |
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