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By *arkman69 OP Man
over a year ago
Erdington |
Hi there.
Are there any guys on here that have had that dreaded illness? I had surgery at the start of the year and I've had the all clear, the only problem now is the little man who has all but disappeared. I've been told he will come back eventually, it's just a case of when.
Just wondering if anyone has had it, how did you cope and how long did it take to get the big man back?  |
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I haven’t got it, but my brother died a few years ago as it was caught too late. Because of that I have regular blood tests for PSA and MRI scans if my levels rise. My PSA does go up and down.
I presume you have your prostate removed? |
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By *arkman69 OP Man
over a year ago
Erdington |
Sorry to hear about your brother. Its good that you're getting regular check ups. Yes i had it removed. Was either that or radiotherapy.
"I haven’t got it, but my brother died a few years ago as it was caught too late. Because of that I have regular blood tests for PSA and MRI scans if my levels rise. My PSA does go up and down.
I presume you have your prostate removed?"
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I’ve always thought about what I would do in your situation and I just don’t know. If it hadn’t been for my brother I’m not sure I’d even be having the PSA test. I think doctors should contact everyone over 50 yearly in the same way woman get reminded for smear tests |
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By (user no longer on site)
over a year ago
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I've recently been told I've stage 1 prostate cancer I'm lucky due to it being found very early they've said the cells are confined to the prostate and maybe take 20,30,40 years to grow or may never.
I'm on active surveillance where I get a PSA test every 3 months which I don't mind as I know should the results start to rise it's a MRI and biopsy once again and should it get alot worse then my prostate will be removed but until then it's one day at a time. |
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"I’ve always thought about what I would do in your situation and I just don’t know. If it hadn’t been for my brother I’m not sure I’d even be having the PSA test. I think doctors should contact everyone over 50 yearly in the same way woman get reminded for smear tests"
I agree. My dad died from prostate cancer 23yrs ago at aged 61. Had no symptoms but it showed up in a routine blood test. |
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By (user no longer on site)
over a year ago
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The most common male cancer, but it isn't taken seriously by the wider medical world. I have annual PSA tests, but I have to request them, they aren't automatic. |
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By (user no longer on site)
over a year ago
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I knew for a couple of years that I was having issues with my prostate but did nothing about it.
Why?
I was terrified of the “finger up the bum” examination
Eventually I blurted out about the issue when seeing my GP about something else and explained my fear.
She was very understanding and we agreed I would have a PSA test first and depending on the results we would take it from there.
Unsurprisingly the PSA result came back high. When I went back to see her she was really understanding about my fear and was really patient with me.
The upshot was, although very mildly uncomfortable the examination was nothing like as bad as I feared.
Like one of the previous posters I’ve been diagnosed with stage 1 cancer and, as my consultant has said, something else will probably kill me before the cancer does.
Now I’m like a zealot when it comes to getting tested. Men can be reluctant and embarrassed about such things …. don’t be, it could save your life.
I was lucky my delaying getting checked didn’t have an adverse impact, had my cancer been more aggressive it would have been the difference between life and death.
Get tested lads, especially if you have symptoms like needing to go for a wee more often |
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By (user no longer on site)
over a year ago
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I didn't have any symptoms. I was only being checked as there was a family history.
Last year I had a MRI and camera down my Japs eye that really hurt.
They found I had a enlarged prostate.
Then this year the PSA went from a 4.6 to 6.5
I had a MRI and biopsy done and it was the biopsy that confirmed it.
I would definitely recommend any guys worried go and get a test done.
At least now I'm getting regular check ups and I know worse case will be surgery but the odds are I'd die from something else first.
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"The most common male cancer, but it isn't taken seriously by the wider medical world. I have annual PSA tests, but I have to request them, they aren't automatic."
This is what I hate. Men should get regular reminders to have the PSA tests |
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By (user no longer on site)
over a year ago
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" My PSA does go up and down.
"
PSA is variable, for example if you ejaculate within 48 hours before your PSA test it can cause an increase in your PSA level (moreso if you're aged 49 - 78)
Also avoid strenuous activity for 48 hours before the test.
Also a test shouldn't be taken within 6 weeks of a biopsy
(Source NHS Guidance) |
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By (user no longer on site)
over a year ago
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My dad was diagnosed with it just a few months back, he's 87. Doctor gave him a tablet to take every day but my dad had a terrible reaction to it so he's now taking a different tablet. I guess it's just a case of wait and see how he goes on this one, so far he's not had any reaction x |
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"My dad was diagnosed with it just a few months back, he's 87. Doctor gave him a tablet to take every day but my dad had a terrible reaction to it so he's now taking a different tablet. I guess it's just a case of wait and see how he goes on this one, so far he's not had any reaction x"
Hope it goes ok for him xxx |
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By (user no longer on site)
over a year ago
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OP, I work within the pelvic health physio service for fe NHS and just wanted to check you’d been offered pelvic Health Physiotherapy as part of your treatment? If not, this is a service who can support you with this (many people don’t know about how it is there to help males alongside women as it is even now still often referred to as Women’s Health).
Happy for you to DM me if needs be. I know some great male physios who work privately too if needs be. |
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"The most common male cancer, but it isn't taken seriously by the wider medical world. I have annual PSA tests, but I have to request them, they aren't automatic."
It is now not just the most common male cancer, but THE most common cancer in the UK. 1 in 8 men will be diagnosed with it and that doubles to 1 in 4 for men of lack ethnicity.
It often doesn't have any symptoms, but certainly if you have any change in urinary habits or sexual function, get checked. If someone in your family has had it, the risk is increased for you and that also goes for any females who have had breast cancer, will increase the risk of related men getting prostate cancer (and vice versa for prostate cancer increasing the risk for related females getting breast cancer).
In reply to the OP, yes I've had surgery for prostate cancer and the old fella does recover.
If anyone wants to know more, feel free to DM me. |
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By (user no longer on site)
over a year ago
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My Dad had the surgery a few years ago when his aggressive prostate cancer was picked up due to high PSA levels and no other surgery. Thankfully he has recovered well. |
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"The most common male cancer, but it isn't taken seriously by the wider medical world. I have annual PSA tests, but I have to request them, they aren't automatic.
It is now not just the most common male cancer, but THE most common cancer in the UK. 1 in 8 men will be diagnosed with it and that doubles to 1 in 4 for men of lack ethnicity.
It often doesn't have any symptoms, but certainly if you have any change in urinary habits or sexual function, get checked. If someone in your family has had it, the risk is increased for you and that also goes for any females who have had breast cancer, will increase the risk of related men getting prostate cancer (and vice versa for prostate cancer increasing the risk for related females getting breast cancer).
In reply to the OP, yes I've had surgery for prostate cancer and the old fella does recover.
If anyone wants to know more, feel free to DM me."
Lack = black |
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By (user no longer on site)
over a year ago
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I wish you well with your recovery, OP. A close relative had surgery a few weeks ago, and we've all been worried about him. Its so prevalent now - I didn't know it was the most common cancer! That's scary, but what's scarier is if men don't get checked regularly. |
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"I wish you well with your recovery, OP. A close relative had surgery a few weeks ago, and we've all been worried about him. Its so prevalent now - I didn't know it was the most common cancer! That's scary, but what's scarier is if men don't get checked regularly. "
Absolutely! It's very treatable if detected early, so get checked guys and ladies, get the men in your lives to get checked too |
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Hi, I had it about 6 years ago and ended up with my prostate being removed. During the op, one of the 2 nerves that control my erection had to be removed too. I now take a Tadalafil daily and a half Sildenafil(Viagra) twice a week. Its not as good as it was, but at least im here to enjoy what Ive got. Have a word with your Oncology nurse and see if they have a specialist that can advise you further, I know my local NHS Trust had a guy that was clued up on worries that guys had, post op. |
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"Timbo, well done for bumping an important thread. Xx
"
Not shy about what Ive gone through. If it makes one guy concerned enough to think and get checked out, its worth it. 5 mins with a finger up your bum is better than an early appointment with an undertaker |
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I’ve been tested twice with the PSA test and the physical exam, been given the all clear both times, but it doesn’t stop me worrying about it. I have to go to the loo quite regularly, although only usually once in the night, and I can’t get as aroused as I used to. The doctors are so busy with people that are in far more need than me that I don’t like to keep bothering them. |
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"I’ve been tested twice with the PSA test and the physical exam, been given the all clear both times, but it doesn’t stop me worrying about it. I have to go to the loo quite regularly, although only usually once in the night, and I can’t get as aroused as I used to. The doctors are so busy with people that are in far more need than me that I don’t like to keep bothering them. "
If you have concerns and your last test was more than six months ago, go back to your doctor. Them being busy I'd no reason not to |
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By *mma29Couple
over a year ago
wirral |
"I’ve been tested twice with the PSA test and the physical exam, been given the all clear both times, but it doesn’t stop me worrying about it. I have to go to the loo quite regularly, although only usually once in the night, and I can’t get as aroused as I used to. The doctors are so busy with people that are in far more need than me that I don’t like to keep bothering them. "
Please do go back or contact your GP whenever you're worried, you aren't being a bother at all...if non urgent you might just have to wait a bit to be seen/referred but they can still send you for tests while you wait to be seen |
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"
Just wondering if anyone has had it, how did you cope and how long did it take to get the big man back? "
No and i am sorry to anyone who has or lost someone to it. 46 now, definitely going for tests regularly after my 50th in 2027.
But, i dug this up for someone i know who had a similar question...
"How long does ED last after a prostatectomy? Erectile dysfunction affects almost all men within the first months of a prostatectomy. Most, though, will experience significant improvement within a year or so. However, for some men, it may take up to two years to fully recover and have regular erections."
But as others have said, there is also a possibility that it may never return.
i hope it isn't too long for you dude! |
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By (user no longer on site)
over a year ago
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I am recovering from the surgery. It takes time but there are treatments that help, they are not a permanent solution, the only permanent one is further surgery. Guys, please, this is really important. A simple blood test PSA, is all it takes to find out if you need treatment. Catch it early enough and there maybe no need for the trauma of surgery or the emotional aftermath. |
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By (user no longer on site)
over a year ago
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"Hi there.
Are there any guys on here that have had that dreaded illness? I had surgery at the start of the year and I've had the all clear, the only problem now is the little man who has all but disappeared. I've been told he will come back eventually, it's just a case of when.
Just wondering if anyone has had it, how did you cope and how long did it take to get the big man back? "
Have you tried a pump? |
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"I've recently been told I've stage 1 prostate cancer I'm lucky due to it being found very early they've said the cells are confined to the prostate and maybe take 20,30,40 years to grow or may never.
I'm on active surveillance where I get a PSA test every 3 months which I don't mind as I know should the results start to rise it's a MRI and biopsy once again and should it get alot worse then my prostate will be removed but until then it's one day at a time."
Hi can't get through your filters can you private message me. |
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By (user no longer on site)
over a year ago
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Hi,im 2 years after surgery for prostate cancer at 48 gleeson 4+3.
I was lucky and had a brill surgeon and was getting a semi 3 days after surgery and i pushed myself after many catheter issues and had sex 3 weeks later.
You perhaps need to speak to urology or rapid access and get referred to a specialist for nerve damage.it can all be resolved and sildenifil helps me with nerve shooting pains in the groun.
Pm me if u wanna chat.i have all numbers and contacts for help.
Be well fellow survivors.x ryan and bec |
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By (user no longer on site)
over a year ago
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Im sure prostate cancer is hereditary. I was high risk and requested tests every 3mths since being 42.they went to 6mths at 45 and then stopped all of a sudden at 46.i saw bill turnbull on telly talking about it,got tested again and here i am. My psa was over 400 in 3 years.GET TESTED GUYS UT WILL SAVE YOUR LIFE LOKE BILL DID FOR ME.GOD BLESS HIM X |
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