FabSwingers.com > Forums > The Lounge > Britain's tourette's mystery
Britain's tourette's mystery
Jump to: Newest in thread
 |
By (user no longer on site) OP
over a year ago
|
Currently Watching Scarlett Moffatt's investigative documentary on C4+1 about Tourette syndrome.
100% an issue that we need to be more accepting and aware of.
Although quite interesting and informative. Not sure how I feel about it. Claiming that it's now a predominantly a female issue due to lockdown.
Anyone else watching this and have an opinion? |
Reply privately, Reply in forum +quote
or View forums list | |
|
By (user no longer on site)
over a year ago
|
I haven't watched it but I recorded it.
My niece has severe verbal and physical Tourette's that started just after lockdown. She did have a major trauma not long before and we are assuming that that is what triggered it but we are not sure. The specialist who is Helping her said that she has seen more teenage girls than ever before and they don't know why. |
Reply privately, Reply in forum +quote
or View forums list | |
|
By (user no longer on site) OP
over a year ago
|
"Not watching it but have seen previous documentaries on the subject, many of which have been pure exploitative trash TV.
Hopefully this one is different.
A"
Totally agree. Most exploit the syndrome for entertainment value.
So far this seems in good taste. To an extent. Regarding the struggles of the syndrome anyway.
Not in agreement with some of the claims at all. Tourette's is 100% not circumstantial in my opinion. As they are claiming. |
Reply privately, Reply in forum +quote
or View forums list | |
"My sauté has Tourette syndrome she has motor and verbal tick’s but not the swearing ones she is 12 and has had them for years it can be very hard for her as kids at school can be very cruel."
Daughter not sauté
|
Reply privately, Reply in forum +quote
or View forums list | |
|
By (user no longer on site)
over a year ago
|
I just wanted to make people aware how serious this condition can be for many.
Tourette's Can take many forms and vary in severity.
For some people the verbal tics can be funny when you hear them However they can be very frustrating for the person experiencing them As they can't always get their point across or be taken seriously.
It can also be physically dangerous, My sister had to have her house adapted.
She had to have Lagging put on the Bannister rail as my niece fractured her wrist after having a physical tic walking down the stairs and wacked her hand so hard against the Bannister rail. The downstairs toilet had to have the sink removed as she had a tic whilst on the toilet and smacked her head on the sink and needed stitches. She cannot be left alone for very long and cannot cook or use a kettle without close supervision. My niece had to drop out of college and will not be going to University for the faceable future, She has been threatened with violence because of her Verbal tics and even had someone demanding she was removed from a holiday camp restaurant but thankfully the staff told the complainer in no uncertain terms if they had a problem they need to leave. Not everyone with terrorists will experience the same however I just wanted to point out this can be a life changing condition and debilitating. |
Reply privately, Reply in forum +quote
or View forums list | |
|
By (user no longer on site) OP
over a year ago
|
"My sauté has Tourette syndrome she has motor and verbal tick’s but not the swearing ones she is 12 and has had them for years it can be very hard for her as kids at school can be very cruel.Daughter not sauté "
Very sorry to hear this. Kids in school can be horrible wee bast#@ds as you say. This is why education is so important. I hope she stays strong and doesn't let it get to her.
When was she diagnosed? Is it hereditary? |
Reply privately, Reply in forum +quote
or View forums list | |
|
By (user no longer on site)
over a year ago
|
"My sauté has Tourette syndrome she has motor and verbal tick’s but not the swearing ones she is 12 and has had them for years it can be very hard for her as kids at school can be very cruel.Daughter not sauté
Very sorry to hear this. Kids in school can be horrible wee bast#@ds as you say. This is why education is so important. I hope she stays strong and doesn't let it get to her.
When was she diagnosed? Is it hereditary?"
Unfortunately I have found adults can be far crueller. |
Reply privately, Reply in forum +quote
or View forums list | |
She has asd and adhd to she had the diagnosis for them around age 5-6 the Tourette syndrom came a couple of years later and as she was already with camhs they diagnosed her after a few months as it didn’t go and she had various ones which continue to this day and she has an older brother who is 21 who also has them but nowhere near as bad. |
Reply privately, Reply in forum +quote
or View forums list | |
|
By (user no longer on site) OP
over a year ago
|
"I just wanted to make people aware how serious this condition can be for many.
Tourette's Can take many forms and vary in severity.
For some people the verbal tics can be funny when you hear them However they can be very frustrating for the person experiencing them As they can't always get their point across or be taken seriously.
It can also be physically dangerous, My sister had to have her house adapted.
She had to have Lagging put on the Bannister rail as my niece fractured her wrist after having a physical tic walking down the stairs and wacked her hand so hard against the Bannister rail. The downstairs toilet had to have the sink removed as she had a tic whilst on the toilet and smacked her head on the sink and needed stitches. She cannot be left alone for very long and cannot cook or use a kettle without close supervision. My niece had to drop out of college and will not be going to University for the faceable future, She has been threatened with violence because of her Verbal tics and even had someone demanding she was removed from a holiday camp restaurant but thankfully the staff told the complainer in no uncertain terms if they had a problem they need to leave. Not everyone with terrorists will experience the same however I just wanted to point out this can be a life changing condition and debilitating. "
100% agree although verbal tick’s are only a small part of the syndrome they are through education the most recognised. Usually people with vocal tick’s recognise that there tick’s are inappropriate and appreciate the laughter rather than people being offended. Hopefully we can have the same response to all tick’s through time.
I don't think this C4 documentary helped in the end. It basically claimed it had a cause and a cure.
Absolute bullshit. |
Reply privately, Reply in forum +quote
or View forums list | |
|
By (user no longer on site) OP
over a year ago
|
"She has asd and adhd to she had the diagnosis for them around age 5-6 the Tourette syndrom came a couple of years later and as she was already with camhs they diagnosed her after a few months as it didn’t go and she had various ones which continue to this day and she has an older brother who is 21 who also has them but nowhere near as bad."
So when did she have the neurological scans that diagnosed her x |
Reply privately, Reply in forum +quote
or View forums list | |
|
By (user no longer on site)
over a year ago
|
"I just wanted to make people aware how serious this condition can be for many.
Tourette's Can take many forms and vary in severity.
For some people the verbal tics can be funny when you hear them However they can be very frustrating for the person experiencing them As they can't always get their point across or be taken seriously.
It can also be physically dangerous, My sister had to have her house adapted.
She had to have Lagging put on the Bannister rail as my niece fractured her wrist after having a physical tic walking down the stairs and wacked her hand so hard against the Bannister rail. The downstairs toilet had to have the sink removed as she had a tic whilst on the toilet and smacked her head on the sink and needed stitches. She cannot be left alone for very long and cannot cook or use a kettle without close supervision. My niece had to drop out of college and will not be going to University for the faceable future, She has been threatened with violence because of her Verbal tics and even had someone demanding she was removed from a holiday camp restaurant but thankfully the staff told the complainer in no uncertain terms if they had a problem they need to leave. Not everyone with terrorists will experience the same however I just wanted to point out this can be a life changing condition and debilitating.
100% agree although verbal tick’s are only a small part of the syndrome they are through education the most recognised. Usually people with vocal tick’s recognise that there tick’s are inappropriate and appreciate the laughter rather than people being offended. Hopefully we can have the same response to all tick’s through time.
I don't think this C4 documentary helped in the end. It basically claimed it had a cause and a cure.
Absolute bullshit. "
There is no cure for Tourette's but it can be treated and managed like lots of conditions. It's not about people being offended it's about people thinking it's funny and often it's not funny. It's exceptionally frustrating for the person in more cases than it isn't. My niece has no other neurological conditions and this came on suddenly. |
Reply privately, Reply in forum +quote
or View forums list | |
|
By (user no longer on site) OP
over a year ago
|
"I just wanted to make people aware how serious this condition can be for many.
Tourette's Can take many forms and vary in severity.
For some people the verbal tics can be funny when you hear them However they can be very frustrating for the person experiencing them As they can't always get their point across or be taken seriously.
It can also be physically dangerous, My sister had to have her house adapted.
She had to have Lagging put on the Bannister rail as my niece fractured her wrist after having a physical tic walking down the stairs and wacked her hand so hard against the Bannister rail. The downstairs toilet had to have the sink removed as she had a tic whilst on the toilet and smacked her head on the sink and needed stitches. She cannot be left alone for very long and cannot cook or use a kettle without close supervision. My niece had to drop out of college and will not be going to University for the faceable future, She has been threatened with violence because of her Verbal tics and even had someone demanding she was removed from a holiday camp restaurant but thankfully the staff told the complainer in no uncertain terms if they had a problem they need to leave. Not everyone with terrorists will experience the same however I just wanted to point out this can be a life changing condition and debilitating.
100% agree although verbal tick’s are only a small part of the syndrome they are through education the most recognised. Usually people with vocal tick’s recognise that there tick’s are inappropriate and appreciate the laughter rather than people being offended. Hopefully we can have the same response to all tick’s through time.
I don't think this C4 documentary helped in the end. It basically claimed it had a cause and a cure.
Absolute bullshit.
There is no cure for Tourette's but it can be treated and managed like lots of conditions. It's not about people being offended it's about people thinking it's funny and often it's not funny. It's exceptionally frustrating for the person in more cases than it isn't. My niece has no other neurological conditions and this came on suddenly. "
I do agree it has no cure I was echoing what I made out from the C4 documentary. I in no way agree with this opinion. As u say it can be managed through medication. But to what detriment to those on those meds. It's heartbreaking the effect those meds have on them.
My humble opinion by the way x |
Reply privately, Reply in forum +quote
or View forums list | |
|
By (user no longer on site)
over a year ago
|
"I just wanted to make people aware how serious this condition can be for many.
Tourette's Can take many forms and vary in severity.
For some people the verbal tics can be funny when you hear them However they can be very frustrating for the person experiencing them As they can't always get their point across or be taken seriously.
It can also be physically dangerous, My sister had to have her house adapted.
She had to have Lagging put on the Bannister rail as my niece fractured her wrist after having a physical tic walking down the stairs and wacked her hand so hard against the Bannister rail. The downstairs toilet had to have the sink removed as she had a tic whilst on the toilet and smacked her head on the sink and needed stitches. She cannot be left alone for very long and cannot cook or use a kettle without close supervision. My niece had to drop out of college and will not be going to University for the faceable future, She has been threatened with violence because of her Verbal tics and even had someone demanding she was removed from a holiday camp restaurant but thankfully the staff told the complainer in no uncertain terms if they had a problem they need to leave. Not everyone with terrorists will experience the same however I just wanted to point out this can be a life changing condition and debilitating.
100% agree although verbal tick’s are only a small part of the syndrome they are through education the most recognised. Usually people with vocal tick’s recognise that there tick’s are inappropriate and appreciate the laughter rather than people being offended. Hopefully we can have the same response to all tick’s through time.
I don't think this C4 documentary helped in the end. It basically claimed it had a cause and a cure.
Absolute bullshit.
There is no cure for Tourette's but it can be treated and managed like lots of conditions. It's not about people being offended it's about people thinking it's funny and often it's not funny. It's exceptionally frustrating for the person in more cases than it isn't. My niece has no other neurological conditions and this came on suddenly.
I do agree it has no cure I was echoing what I made out from the C4 documentary. I in no way agree with this opinion. As u say it can be managed through medication. But to what detriment to those on those meds. It's heartbreaking the effect those meds have on them.
My humble opinion by the way x"
Again it's like any medication it will suit some and not others and for some it can be life changing.
Sometimes the side effects can be horrible but worth it to the person if it eases their symptoms. |
Reply privately, Reply in forum +quote
or View forums list | |
|
By (user no longer on site) OP
over a year ago
|
"I just wanted to make people aware how serious this condition can be for many.
Tourette's Can take many forms and vary in severity.
For some people the verbal tics can be funny when you hear them However they can be very frustrating for the person experiencing them As they can't always get their point across or be taken seriously.
It can also be physically dangerous, My sister had to have her house adapted.
She had to have Lagging put on the Bannister rail as my niece fractured her wrist after having a physical tic walking down the stairs and wacked her hand so hard against the Bannister rail. The downstairs toilet had to have the sink removed as she had a tic whilst on the toilet and smacked her head on the sink and needed stitches. She cannot be left alone for very long and cannot cook or use a kettle without close supervision. My niece had to drop out of college and will not be going to University for the faceable future, She has been threatened with violence because of her Verbal tics and even had someone demanding she was removed from a holiday camp restaurant but thankfully the staff told the complainer in no uncertain terms if they had a problem they need to leave. Not everyone with terrorists will experience the same however I just wanted to point out this can be a life changing condition and debilitating.
100% agree although verbal tick’s are only a small part of the syndrome they are through education the most recognised. Usually people with vocal tick’s recognise that there tick’s are inappropriate and appreciate the laughter rather than people being offended. Hopefully we can have the same response to all tick’s through time.
I don't think this C4 documentary helped in the end. It basically claimed it had a cause and a cure.
Absolute bullshit.
There is no cure for Tourette's but it can be treated and managed like lots of conditions. It's not about people being offended it's about people thinking it's funny and often it's not funny. It's exceptionally frustrating for the person in more cases than it isn't. My niece has no other neurological conditions and this came on suddenly.
I do agree it has no cure I was echoing what I made out from the C4 documentary. I in no way agree with this opinion. As u say it can be managed through medication. But to what detriment to those on those meds. It's heartbreaking the effect those meds have on them.
My humble opinion by the way x
Again it's like any medication it will suit some and not others and for some it can be life changing.
Sometimes the side effects can be horrible but worth it to the person if it eases their symptoms."
Cannot disagree with you there. The individual case is the most important. I just feel that the meds generally make people lose their personality. This is completely circumstantial to each individual tho. X |
Reply privately, Reply in forum +quote
or View forums list | |
"She has asd and adhd to she had the diagnosis for them around age 5-6 the Tourette syndrom came a couple of years later and as she was already with camhs they diagnosed her after a few months as it didn’t go and she had various ones which continue to this day and she has an older brother who is 21 who also has them but nowhere near as bad.
So when did she have the neurological scans that diagnosed her x"
they don’t do scans to specifically diagnose Tourette’s she did have a scan to check she wasn’t having seizures though which she wasn’t. |
Reply privately, Reply in forum +quote
or View forums list | |
Diagnosing Tourette's syndrome
There's no single test for Tourette's syndrome. Tests and scans, such as an MRI scan, may be used to rule out other conditions. You can be diagnosed with Tourette's syndrome if you've had several tics for at least a year. From the nhs website |
Reply privately, Reply in forum +quote
or View forums list | |
To me, the documentary was not about Tourette's as much as it was about the rise of 'tourette's' and tics in females especially and the effect of social media on this phenomenon during and since lockdown..... The documentary attempted, to a degree, to differentiate between someone with Tourette's and others who may be exhibiting certain acquired behaviours. |
Reply privately, Reply in forum +quote
or View forums list | |
I've seen a few documentaries on this subject over the years, I remember one in 2007 and I think 2014. Both times I felt they were at least a year behind the curve. I feel the same now. The difference now is, I've noticed it in myself...saying things randomly. I don't want to repeat what came out of my mouth the other day as I walked across the kitchen - it just fell out of my mouth. I have developed verbal tics, a kind of oral twitch. Sometimes I just go "yeah yeah" for no reason or "I don't know" or "oh bite me toots". I do it in my sleep too, or so I'm told. Yeah this is on the rise all right but I personally don't believe it's attributable soley to the lockdowns. |
Reply privately, Reply in forum +quote
or View forums list | |
|
By (user no longer on site)
over a year ago
|
"She has asd and adhd to she had the diagnosis for them around age 5-6 the Tourette syndrom came a couple of years later and as she was already with camhs they diagnosed her after a few months as it didn’t go and she had various ones which continue to this day and she has an older brother who is 21 who also has them but nowhere near as bad.
So when did she have the neurological scans that diagnosed her xthey don’t do scans to specifically diagnose Tourette’s she did have a scan to check she wasn’t having seizures though which she wasn’t."
That was the same as my niece had. |
Reply privately, Reply in forum +quote
or View forums list | |
» Add a new message to this topic
