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By (user no longer on site) OP
over a year ago
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Anyone else with a chronic illness(es) tired of being fobbed off by the doctors? I remember when I got diagnosed with my chronic daily headaches and he said ‘go get some ibuprofen’ like wow! I definitely haven’t thought of that before!
Maybe it’s just my GP? I have a lot of respect for the NHS; they’ve been wonderful these past few months for me; but they royally fucked me over in my teen years. I remember when I was denied birth control for being fat.
Rant over. Just tired of living with chronic illness, both mentally and physically. |
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By (user no longer on site) OP
over a year ago
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"Yep.
The pain can be tolerated some days, others less so.
I’m still waiting for a referral that was originally done back in 2017  "
It’s crazy how they expect people to just live like this! I don’t want to waste NHS resources by constantly having appointments; but they also aren’t doing anything! I’m just going in circles |
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By (user no longer on site) OP
over a year ago
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"Some diseases are difficult to diagnose and therefore treat.
I hope they figure it out soon."
That’s the problem…they don’t even run any tests. With my headaches; he didn’t even bother to ask if I want any tests or to run any tests. He just said, get some ibuprofen. 6 years on and I’m still suffering. |
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By *harpDressed ManMan
over a year ago
Here occasionally, but mostly somewhere else |
I know this is easily said, but if the IT help desk tell me to switch it off and on again, and that doesn't work, I ask them what their next guess is.
If they tried to get me to do it again, we'd be having the talk about doing the same thing and expecting a different outcome.
You were a vocal advocate for Pride on another thread - is that something you can carry in to your doctor (the self-advocacy, not the pride)? |
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By (user no longer on site) OP
over a year ago
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"I know this is easily said, but if the IT help desk tell me to switch it off and on again, and that doesn't work, I ask them what their next guess is.
If they tried to get me to do it again, we'd be having the talk about doing the same thing and expecting a different outcome.
You were a vocal advocate for Pride on another thread - is that something you can carry in to your doctor (the self-advocacy, not the pride)?"
I’ve tried…I stopped when I got laughed at. That was probably the final straw for me. |
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By (user no longer on site)
over a year ago
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Not really a chronic illness but I had an issue once, a serious life threatening one - and the doctors told me I’d had a pulled muscle. Even after an X-ray that showed the problem, the doctor still said it was a pulled muscle.
I spent the week in agony and unable to breathe or barely stay awake and was just told to take paracetamol.
It was only after a week later when someone else looked at the X-ray by chance, that I was urgently recalled to hospital. Luckily I’d recovered by myself without treatment.
But from that point on I’ve never trusted doctors. |
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By *OXO2018Couple
over a year ago
Norfolk |
I’ve had my chronic pain condition (still's disease) since I was a child wheel chair bond and having to lean to walk again was challenging but I and had excellent care.
I turned 18 (now 40) and got forgotten about so I don’t bother with DRs anymore (pain killers are my best friend) I have very limited mobility but I work, go on holiday and really enjoy swinging.
I just live my life to the fullest and take each day at a time. It’s ok not to be ok and sometimes and perfectly acceptable to be able to walk after a good sex session lol  |
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By *adyJayneWoman
over a year ago
Burnleyish (She/They) |
For the chronic headaches I can give some practical advice (if you want it).
I have chronic migraines as well as ME/CFS and eventually I ended up moving GPs (helpfully because I moved house) just as I'd got the original (useless) GP to agree to do something about the migraines. |
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