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Disabled life
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Pity party over  | |||
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 I'm so sorry that's happened. You must be so dissapointed and frustrated. If only they could have given you prior warning so you had the option to rearrange or have at least been prepared. Sending hugs! | |||
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Maybe you can enjoy an ice cream with your daughter later and she can tell you all about it.
Hope they get the lift fixed for next time. X
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that’s a really shitty combination of things that simply shouldn’t happen!! I hope this afternoon brings lots of fun after that shitshow | |||
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"Maybe email the organisers of the storytelling and see if they would do a video of a storytelling that you two can watch together. I know it's not the same as real life but hopefully something to cheer you up " It's a bit late now, it started at 12. I'm reading a book from the foyer and trying not to cry, to be honest. | |||
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"That’s really shitty and an almost in fixable problem with current building designs. Maybe 2 lifts should be installed to help with these issue But I do often wonder how it could be done. I’m currently working in big tower blocks with 1 lift per block. 10 stories high. It’s sad to think anyone with a wheel chair is potentially phased out of living there " I'm about to move into a block with a lift and weirdly the flats on the top floor are the ones that are adapted for wheelchair users (wider doors, lower light switches, grab rails, etc). I kinda get why as they're the biggest flats but I'm sure they could have planned the building differently and I just hope the arrangements for the lift maintenance is very good! | |||
"That’s really shitty and an almost in fixable problem with current building designs. Maybe 2 lifts should be installed to help with these issue But I do often wonder how it could be done. I’m currently working in big tower blocks with 1 lift per block. 10 stories high. It’s sad to think anyone with a wheel chair is potentially phased out of living there I'm about to move into a block with a lift and weirdly the flats on the top floor are the ones that are adapted for wheelchair users (wider doors, lower light switches, grab rails, etc). I kinda get why as they're the biggest flats but I'm sure they could have planned the building differently and I just hope the arrangements for the lift maintenance is very good! " Seems a little silly to me. Fire alarms automatically turn off lifts. Let’s hope the wheelchair users aren’t alone without assistance in the event of a fire | |||
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I am so sorry. What an utterly crap setup. Your needs matter and people just don't give a thought to the impact that even a small thing can have. I do hope your day with your mini-me got better. | |||
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. That’s really rubbish for you. | |||
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"Oh KC I'm screaming in frustration and anger for you I can't believe how backward we still are when it comes to disabilities. Can you send a strongly worded letter about your whole experience to the council??? " Try having a disability and living in London and being reliant on the tube network. Honestly it's so difficult and like mrs KC said something like a lift being out can mean A day out whatever you have planned has to be cancelled. | |||
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"Oh KC I'm screaming in frustration and anger for you I can't believe how backward we still are when it comes to disabilities. Can you send a strongly worded letter about your whole experience to the council??? Try having a disability and living in London and being reliant on the tube network. Honestly it's so difficult and like mrs KC said something like a lift being out can mean A day out whatever you have planned has to be cancelled. "I have a lot of empathy.. We need policy changes.. I truly believe that as part of the curriculum, teens should spend 2 weeks in a wheelchair, experiencing life... I am sure that this would not only raise awareness, but it would bring creative solutions and policy change as they entered society | |||
"Oh KC I'm screaming in frustration and anger for you I can't believe how backward we still are when it comes to disabilities. Can you send a strongly worded letter about your whole experience to the council??? Try having a disability and living in London and being reliant on the tube network. Honestly it's so difficult and like mrs KC said something like a lift being out can mean A day out whatever you have planned has to be cancelled.
I have a lot of empathy.. We need policy changes.. I truly believe that as part of the curriculum, teens should spend 2 weeks in a wheelchair, experiencing life... I am sure that this would not only raise awareness, but it would bring creative solutions and policy change as they entered society "Totally agree and I think we definitely need more awareness about hidden disabilities as well. It's only by people like mrs KC who share their stories that things will actually change. | |||
"My Son is a full-time wheelchair user and cannot weight bare or transfer at all, so I know all to well the pain when it comes to wheelchair access and just how much you are often not accommodated for or just completely excluded from. And I have cried a million times about it. Unfortunately, the lift breaking was unavoidable, and although it would have helped if they could inform you, on the plus side, they did made arrangements to accommodate her and I am sure she loved it, even if it wasn't exactly what you had planned. Perhaps a dinner or ice-cream date next where she can tell you all about it.
xXx"The lift had been out of order for some time. The event was pre-book able and so they had both my email and phone number. The organiser didn't make accommodation, it was another parent who offered to take her upstairs with her own daughter. I was making plans "on my feet" so to speak, to leave and try and find other things to do, before the lady stepped in. Although yes, I can stand for brief periods, I can only do so bearing weight on one leg, like a flamingo and so although I can stand up for the milliseconds it takes to snap a pic in my keks for this place, I can't ascend flights of stairs or walk around town, and whatever I do on my feet, it's on crutches and so no hands to child-wrangle. I can't sit on backless stools or hard chairs in restaurants either. I got almost to the point of being suicidal, trying to live my life on crutches when my daughter was very little and getting my wheelchair was a new lease of life. I won't complain now about the fact I don't qualify for any state assistance with wheelchair costs, so I bear all that myself. However, just pushing along a pavement (by this, I mean self propelling) can be a nightmare and I have fallen out of my chair several times, having hit potholes and other obstacles. Anyway, finally home now, after spending the latter part of the day at my Dad's house. His dementia is just  but he seemed to enjoy seeing his Grandchildren (we picked up Child A on the way out of Manchester). | |||
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"I would challenge anyone to spend a few days, trying to live their normal lives as a wheelchair user. You wouldn't believe it. " This. | |||
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Polly xxx
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