FabSwingers.com > Forums > The Lounge > epilepsy
epilepsy
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"I’m sorry to hear the impact it has had on you. I don’t suffer so can’t put myself in your shoes. Are you taking the right medication? What about diet? I’ve heard there are loads of things you can do to help it. Fascinating really " yes diet plays a huge part, its amazing the things i need to avoid, and yes it has changed my life, i was very high up im my field, but cant do it now, and that sucks, as to drugs, ive been on a few, the ones im on seem to work better than most, but they arent a cure, the only cure seems to be an experimentle brain op, and im not doing that, i must admit it has been an interesting journey, and ive learned alot, its amazing the things we do daily and take for granted, that some cant, im not in the cant catogry often, but i still get on with life, its just another challange. going back to food, the one that really supprised me was pineapple, not alowd near the stuff, other things like caffiene etc are understanderble, but pineapple ffs, used to love it | |||
"My ex wife as a condition called non epileptic attack disorder .she as ad it few years ad 2 give up work through it she on loads of meds 2 help with all the things associated with condition .do stay strong and positive my friend x " sorry to hear about your ex, and thank you for the kind words, im a possitive peoson, and generaly cope well, my life is now so different, used to have a great job, loads of money etc, the whole perfect life, now live on benifits in a flat, wife left as soon as i got ill and couldnt pay for her shoes lol, probably better off, so it has changed things, but now have a great girlfriend and she gets it, so im ok,, its just very different. im not one to cry myself to sleep, but i would love to hear how others get on with it, i never realised how much what is a small illness can change your life | |||
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"Hubby has FND which kind of mimics epilepsy but is dissociative, his last seizure has done some damage so all we can do is sympathise "hope hes ok, sending supporting thoughts x | |||
"I’m sorry to hear the impact it has had on you. I don’t suffer so can’t put myself in your shoes. Are you taking the right medication? What about diet? I’ve heard there are loads of things you can do to help it. Fascinating really yes diet plays a huge part, its amazing the things i need to avoid, and yes it has changed my life, i was very high up im my field, but cant do it now, and that sucks, as to drugs, ive been on a few, the ones im on seem to work better than most, but they arent a cure, the only cure seems to be an experimentle brain op, and im not doing that, i must admit it has been an interesting journey, and ive learned alot, its amazing the things we do daily and take for granted, that some cant, im not in the cant catogry often, but i still get on with life, its just another challange. going back to food, the one that really supprised me was pineapple, not alowd near the stuff, other things like caffiene etc are understanderble, but pineapple ffs, used to love it" Really?? What’s in pineapple that you have to avoid? Doesn’t the Keto diet (if that’s how you spell it) have a really positive effect for epilepsy? | |||
"I’m sorry to hear the impact it has had on you. I don’t suffer so can’t put myself in your shoes. Are you taking the right medication? What about diet? I’ve heard there are loads of things you can do to help it. Fascinating really yes diet plays a huge part, its amazing the things i need to avoid, and yes it has changed my life, i was very high up im my field, but cant do it now, and that sucks, as to drugs, ive been on a few, the ones im on seem to work better than most, but they arent a cure, the only cure seems to be an experimentle brain op, and im not doing that, i must admit it has been an interesting journey, and ive learned alot, its amazing the things we do daily and take for granted, that some cant, im not in the cant catogry often, but i still get on with life, its just another challange. going back to food, the one that really supprised me was pineapple, not alowd near the stuff, other things like caffiene etc are understanderble, but pineapple ffs, used to love it Really?? What’s in pineapple that you have to avoid? Doesn’t the Keto diet (if that’s how you spell it) have a really positive effect for epilepsy? " not sure about whats in pineapple, but all my doctors etc have said to stay clear, must say i never realised how good the nhs were untill i had this, the support etc ive had have been second to none, ive never really used the nhs before, other than self inflicted injuries, crashing bikes etc, so, a few stiches maybe a pin or two etc, but i cant praise them enough | |||
"Hubby has FND which kind of mimics epilepsy but is dissociative, his last seizure has done some damage so all we can do is sympathise
hope hes ok, sending supporting thoughts x"Thank you x | |||
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"I don't know what that last seizure did to hubby but he hasn't been the same since, I really worry about him but our GP doesn't know anything about his condition, medically he is very much on his own, he has no friends to turn to and no way to vent his frustration "i think the problem is that many people including doctors dont really understand the problem | |||
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"I don't know what that last seizure did to hubby but he hasn't been the same since, I really worry about him but our GP doesn't know anything about his condition, medically he is very much on his own, he has no friends to turn to and no way to vent his frustration
i think the problem is that many people including doctors dont really understand the problem"They don't and it is really frustrating, he tries to hide it but I see the pain he's in | |||
