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Hidden Illnesses.
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By (user no longer on site) OP
over a year ago
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I've noticed a few people on the forums have them, I do too.
I'm wondering if maybe those that want to would be open about theirs on the thread and help others with their knowledge and experiences.
And how does it affect your fab life?
Do you tell people you're chatting to so they know that you could potentially need to cancel a social or meet if the illness gets the better of you that day? Do you worry they'll think you're making excuses?
Do you feel like you're not letting it dictate your life as you're still able to get out there and misbehave or socialise?
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Sure. Mine is related to my mental health; PTSD.
In terms of general life it can mean there are horrible days or extreme lethargy without warning. I've got one of the sunflower cards which is helpful out in the world. Never needed to use it but I find it helps reduce my anxiety like a comfort blanket.
Fab-wise pretty much the same; tend to be a little reluctant to meet 'just in case' because I don't want a reputation as a flake or time waster because that's not the case. Having said that, I've had some great meets from here over the years across this and previous profiles. I actually deleted my last profile during an 'episode' to remove distractions.
Very happy to discuss more in DMs, feel free to slide in if you want to chat or ask any questions (I'm not easily offended so please feel free to ask if you want to). |
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By *oodmessMan
over a year ago
yumsville |
I don't meet as I don't like bad sex. I don't see the point in exchanging messages as people aren't really here to chat so I tend to cut people off if they do. Now, I'm mostly here to perv and (try) take the piss. Compared to when I was well, it's a bit different yeah (even this has taken me 10+ mins to type and it's not coming across that well). |
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I have an abnormal heart rhythm and endometriosis. I sometimes tell fab meets about the endometriosis as I don't enjoy very deep penetration as a result. Neither is likely to cause me to cancel these days as both are fairly well managed. |
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By *ancer36Woman
over a year ago
Stirling |
I have type one diabetes….
I was 27 when I was diagnosed, at that time I had lost around 3 stone had a terrible thirst, little appetite, suffered from exhaustion among other things but these were the main telling signs something was wrong.
When I was first diagnosed I thought I’d never be able to eat certain things again, or have alcohol, exercise the way I do etc however I have educated myself over the years by attending courses, reading and joining a forum.
I keep active, minimise carbohydrates I eat, and watch my sugar intake.I take my medication daily and check my blood sugar before every meal, the key to managing this condition is consistency
Being insulin dependant means I have to inject myself several times per day, I always advise any potential meet that I am diabetic and that I inject my medication. I don’t feel embarrassed or worried about it at all I need this to live, if someone had an issue with it I’d respect that but I wouldn’t be going to hide in a bathroom to take my medication, which 10yrs ago I may have.
Xx |
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"I have an abnormal heart rhythm and endometriosis. I sometimes tell fab meets about the endometriosis as I don't enjoy very deep penetration as a result. Neither is likely to cause me to cancel these days as both are fairly well managed. "
do you find the abnormal heart rhythm is evident most specifically after you look at my profile - you saucy minx!!
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By (user no longer on site)
over a year ago
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I have MS, the beginning of the year I was quite poorly with it and I now have carers and my house looks crap.
When I'm ok, the only difference you can tell is that walk like I'm pissed.
I do tend to tell people I met, not only to warn them but to see their reaction. I've had some that have reacted badly and judged me |
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By (user no longer on site)
over a year ago
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Sure. I have Endometriosis, same as Lacey red - I don't really enjoy deep pen as a result (birth trauma has some involvement too).
Periods are fairly regular so I can plan meets around them but sometimes I have pain during sex so I wouldn't want to carry on. I wouldn't be drinking before a meet anyway so I can just take some painkillers (the ones that don't put me to sleep  ) and hope that keeps it at bay. |
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By *asmeenTV/TS
over a year ago
STOKE ON TRENT |
"I have an abnormal heart rhythm and endometriosis. I sometimes tell fab meets about the endometriosis as I don't enjoy very deep penetration as a result. Neither is likely to cause me to cancel these days as both are fairly well managed. "
Lacey hugs xx |
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"I've noticed a few people on the forums have them, I do too.
I'm wondering if maybe those that want to would be open about theirs on the thread and help others with their knowledge and experiences.
And how does it affect your fab life?
Do you tell people you're chatting to so they know that you could potentially need to cancel a social or meet if the illness gets the better of you that day? Do you worry they'll think you're making excuses?
Do you feel like you're not letting it dictate your life as you're still able to get out there and misbehave or socialise?
"
What’s yours? |
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By (user no longer on site)
over a year ago
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"I have a heart arrhythmia that sporadically makes me faint, but I know when it's coming and can usually provide plenty of warning and grab a pillow 
Nooo way
 "
2nd degree heart block (slow/irregular heartbeat, not fast) - no biggy, I just hit the deck 2/3 times a year |
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By *asmeenTV/TS
over a year ago
STOKE ON TRENT |
"I have a heart arrhythmia that sporadically makes me faint, but I know when it's coming and can usually provide plenty of warning and grab a pillow
Nooo way
2nd degree heart block (slow/irregular heartbeat, not fast) - no biggy, I just hit the deck 2/3 times a year"
Sounds scarey xxx |
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Oh, I also have photosensitive epilepsy. Gotta be careful around strobe lights, but only certain ones, and I may have the odd twitch whilst travelling in a moving vehicle or walking past railings when the sun is a certain height |
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By (user no longer on site)
over a year ago
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Christ I have far too many to list both physical and mental health. I had meningitis 6 years ago and it completely wiped me out and left me with lots of chronic conditions.
Sending love to those who also battle everyday with their health.
 . |
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By *asmeenTV/TS
over a year ago
STOKE ON TRENT |
"Oh, I also have photosensitive epilepsy. Gotta be careful around strobe lights, but only certain ones, and I may have the odd twitch whilst travelling in a moving vehicle or walking past railings when the sun is a certain height "
Hugs xxx
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Not illness as such, I have a spinal injury caused by falling off a motorbike in the snow, and striking my pelvis on a kerb. My sciatic nerves are damaged, and I get swelling in my feet and lower legs so I have some mobility, balance and stamina issues at times. The meds help and I use a TENS machine to cope with the worst of the pain. I guess when thats' how things are you learn to cope and find fun in ways which work for you. It's ok when the person you are with understands. |
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By (user no longer on site)
over a year ago
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"I have a heart arrhythmia that sporadically makes me faint, but I know when it's coming and can usually provide plenty of warning and grab a pillow "
Sounds like POTS with vasovagal syncope. Sorry to hear this. A friend at college had it badly she would faint at the drop of a hat. I caught her once in the car park to stop her smashing her head in the road. It’s scary. Xx |
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By (user no longer on site)
over a year ago
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"Sure. I have Endometriosis, same as Lacey red - I don't really enjoy deep pen as a result (birth trauma has some involvement too).
Periods are fairly regular so I can plan meets around them but sometimes I have pain during sex so I wouldn't want to carry on. I wouldn't be drinking before a meet anyway so I can just take some painkillers (the ones that don't put me to sleep ) and hope that keeps it at bay. "
Another endometriosis warrior here x |
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By (user no longer on site)
over a year ago
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I have too many to mention, but possibly the most ‘important’ one for here is that I have Lichen Sclerosis. I was diagnosed with it after being misdiagnosed with recurring thrush, because many of the symptoms are the same except that there is none of the discharge you get with thrush, and you get ‘white plaques’ on the skin. LS is an autoimmune disorder that attacks the genital area. Because mine was misdiagnosed it cause atrophy of the vagina and clit. This now means that I don’t have very good nerve endings in my clit, and my vag can no longer accommodate very big cocks. I’m probably one of the few who now prefer a smaller more average sized member, but as they say, it’s not the size, it’s what is done with it that matters. After all is said and done, I now prefer anal. Getting an orgasm is nigh on impossible, but I still enjoy sex.
If any lady has been diagnosed with LS and wants to talk about it, just let me know. My preferences for ladies is turned off, but I can reverse that if needed. |
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"I have an abnormal heart rhythm and endometriosis. I sometimes tell fab meets about the endometriosis as I don't enjoy very deep penetration as a result. Neither is likely to cause me to cancel these days as both are fairly well managed.
Lacey hugs xx"
Aww thank you! |
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By *asmeenTV/TS
over a year ago
STOKE ON TRENT |
"I have an abnormal heart rhythm and endometriosis. I sometimes tell fab meets about the endometriosis as I don't enjoy very deep penetration as a result. Neither is likely to cause me to cancel these days as both are fairly well managed.
Lacey hugs xx
Aww thank you! "
Xxx |
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By (user no longer on site)
over a year ago
|
"I have type one diabetes….
I was 27 when I was diagnosed, at that time I had lost around 3 stone had a terrible thirst, little appetite, suffered from exhaustion among other things but these were the main telling signs something was wrong.
When I was first diagnosed I thought I’d never be able to eat certain things again, or have alcohol, exercise the way I do etc however I have educated myself over the years by attending courses, reading and joining a forum.
I keep active, minimise carbohydrates I eat, and watch my sugar intake.I take my medication daily and check my blood sugar before every meal, the key to managing this condition is consistency
Being insulin dependant means I have to inject myself several times per day, I always advise any potential meet that I am diabetic and that I inject my medication. I don’t feel embarrassed or worried about it at all I need this to live, if someone had an issue with it I’d respect that but I wouldn’t be going to hide in a bathroom to take my medication, which 10yrs ago I may have.
Xx"
It’s amazing what you can still achieve, a friend is type 1 and thought he couldn’t continue with cycling but we found https://www.teamnovonordisk.com/
And opened there eyes again!
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By *elkieWoman
over a year ago
Durham |
ME, neuralgia, and some mental health stuff. I only swing at clubs, because that helps me manage the mental health stuff and if I have a wobble, they’ve still got other people to talk to.
I do end up having to tap out of sex because tiredness sometimes, and sometimes I just want to curl up and watch cos my brain is still horny. I get weird pains and sometimes my hands give up on me when I’m still playing, which is really annoying, and I fall over a LOT. |
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I had some mental health issues 12 years ago. Wasn’t it a good place at all back then. Not many other than family know about it as it’s something I like to keep in the past and rarely talk about. And more recently I’ve found I’ve had another issue but hoping that we’re on top of that one now too. |
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I've mentioned problems on previous similar posts...
PTSD
Cluster Headache
Aspergers
Now starting to suffer with arthritic pain in my legs.
I'm not one for complaining, these are just things to deal with along with everything else that life throws my way.
Stay strong  |
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By *enm83Man
over a year ago
Stockport |
Aspergers Syndrome and depression/anxiety. Which is why in an odd sort of way I've found this site comforting and I'm at ease with it, compared to if I tried to d*unkenly tried and failed to chat someone up in a social setting. (Lost patience with dating apps too) |
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By (user no longer on site)
over a year ago
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Yep. I have Atrial Fibrillation caused by a leaking heart valve. On medication at the moment and also have angina as a consequence
Generally well, rarely go into arrhythmia. And have only ever had one angina attack and I had been in AF for a week.
Long term friends know about it and have been supportive so far. It isn't something I drop into normal conversation though |
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By (user no longer on site)
over a year ago
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Social anxiety, its a real bitch to deal with. While i understand that i wont get many meets in my time on fab due to this, its often a serious mind fuck.
When im comfortable and dont have worry on my mind, i am actually a very confident and extroverted person. But, when i do worry i completely shut down.
"Am i ugly?"
"Am i not saying the right things?"
"Am i too boring?"
"Am i not big enough?" (Even though i do workout)
The list goes on and on. Im never gonna cancel due to this cos at that point the anxiety isnt an issue, its mostly the first contact thats hard for me. Clubs or social meets among groups would be very hard for me if i didnt know anyone there |
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By (user no longer on site)
over a year ago
|
"I have type one diabetes….
I was 27 when I was diagnosed, at that time I had lost around 3 stone had a terrible thirst, little appetite, suffered from exhaustion among other things but these were the main telling signs something was wrong.
When I was first diagnosed I thought I’d never be able to eat certain things again, or have alcohol, exercise the way I do etc however I have educated myself over the years by attending courses, reading and joining a forum.
I keep active, minimise carbohydrates I eat, and watch my sugar intake.I take my medication daily and check my blood sugar before every meal, the key to managing this condition is consistency
Being insulin dependant means I have to inject myself several times per day, I always advise any potential meet that I am diabetic and that I inject my medication. I don’t feel embarrassed or worried about it at all I need this to live, if someone had an issue with it I’d respect that but I wouldn’t be going to hide in a bathroom to take my medication, which 10yrs ago I may have.
Xx
It’s amazing what you can still achieve, a friend is type 1 and thought he couldn’t continue with cycling but we found https://www.teamnovonordisk.com/
And opened there eyes again!
"
It is amazing. My late wife had type 1 from 14 years old to 56 when she died. She managed her life in the main with no issues as long as she stuck by her programme. She used to struggle a bit during lambing time when she would be out in the field for 12 hours straight but got by with sandwiches and lucozade - not the best but it seemed to work for her. |
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By (user no longer on site)
over a year ago
|
I have Sjogrens Syndrome, i do mention it when i have a meet arranged because it causes dryness !! Plus lots of other issues too.
I also have Essential Tremors, i mention that if I'm having a bad day otherwise they might think i need alcohol to stop the shaking actually alcohol does help stop the shaking
I have other health problems but i don't mention them.
I am being tested for a neurological condition at the moment but they don't know exactly what it is yet, it affects my balance and movement.
I'm happy to talk about any of them. |
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By *ancer36Woman
over a year ago
Stirling |
"I have type one diabetes….
I was 27 when I was diagnosed, at that time I had lost around 3 stone had a terrible thirst, little appetite, suffered from exhaustion among other things but these were the main telling signs something was wrong.
When I was first diagnosed I thought I’d never be able to eat certain things again, or have alcohol, exercise the way I do etc however I have educated myself over the years by attending courses, reading and joining a forum.
I keep active, minimise carbohydrates I eat, and watch my sugar intake.I take my medication daily and check my blood sugar before every meal, the key to managing this condition is consistency
Being insulin dependant means I have to inject myself several times per day, I always advise any potential meet that I am diabetic and that I inject my medication. I don’t feel embarrassed or worried about it at all I need this to live, if someone had an issue with it I’d respect that but I wouldn’t be going to hide in a bathroom to take my medication, which 10yrs ago I may have.
Xx
It’s amazing what you can still achieve, a friend is type 1 and thought he couldn’t continue with cycling but we found https://www.teamnovonordisk.com/
And opened there eyes again!
"
That’s great! I’m glad he managed to continue doing what he loves xx |
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By (user no longer on site)
over a year ago
|
"I have Sjogrens Syndrome, i do mention it when i have a meet arranged because it causes dryness !! Plus lots of other issues too.
I also have Essential Tremors, i mention that if I'm having a bad day otherwise they might think i need alcohol to stop the shaking actually alcohol does help stop the shaking
I have other health problems but i don't mention them.
I am being tested for a neurological condition at the moment but they don't know exactly what it is yet, it affects my balance and movement.
I'm happy to talk about any of them."
I was investigated for Sjögrens in 2018/19 but it was found in January this year that I do not have it, but I do have Sicca syndrome. Hope you are ok |
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By (user no longer on site)
over a year ago
|
"I've got psoriatic arthritis and when I had the 2nd vaccine in May it triggered my skin, I'm only just recovering from it which obviously meant I had to put off meeting people until recently."
Sorry to hear that. My sister has the same it affects so much more than just your skin. She is on methotrexate injections they’ve massively helped her. X |
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"I've got psoriatic arthritis and when I had the 2nd vaccine in May it triggered my skin, I'm only just recovering from it which obviously meant I had to put off meeting people until recently.
Sorry to hear that. My sister has the same it affects so much more than just your skin. She is on methotrexate injections they’ve massively helped her. X"
Had the injections and they’ve had to change it twice. It’s annoying but have learned to live with it x |
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Ulcerative colitis. Diagnosed aged 11.
It's well under control and rarely causes me problems. Flare ups are rare and don't seem to last long. But when they happen I lay around with severe fatigue and tend to hang around my bed and the toilet.
If I get a flare up then all sex (even the boring married kind) is off the menu until I've got my energy back.
Could be a lot worse |
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"I've got psoriatic arthritis and when I had the 2nd vaccine in May it triggered my skin, I'm only just recovering from it which obviously meant I had to put off meeting people until recently."
Oh, poor you. I have Rheumatoid Arthritis - very similar.
I've been fine with the vaccines & my booster, but the new meds I'm on have triggered a skin condition which I'm very self conscious of. I'll stay on the meds though, as this is the first time I've been pain free in 25 yrs. I'll just have to live with the skin issue. X |
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By (user no longer on site)
over a year ago
|
I'm severely asthmatic, so I can be fine one day and completely unable to move without having an attack the next day.
It hasn't come up yet but I imagine if I cancelled a meet over it they'd assume I was lying given that I'm a single male. Which is fair enough given the volume of timewasting guys on here. |
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"I've got psoriatic arthritis and when I had the 2nd vaccine in May it triggered my skin, I'm only just recovering from it which obviously meant I had to put off meeting people until recently.
Oh, poor you. I have Rheumatoid Arthritis - very similar.
I've been fine with the vaccines & my booster, but the new meds I'm on have triggered a skin condition which I'm very self conscious of. I'll stay on the meds though, as this is the first time I've been pain free in 25 yrs. I'll just have to live with the skin issue. X"
So I’ve avoided getting the booster as I don’t want the joints or even the skin to kick off again. X |
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By (user no longer on site)
over a year ago
|
"I have Sjogrens Syndrome, i do mention it when i have a meet arranged because it causes dryness !! Plus lots of other issues too.
I also have Essential Tremors, i mention that if I'm having a bad day otherwise they might think i need alcohol to stop the shaking actually alcohol does help stop the shaking
I have other health problems but i don't mention them.
I am being tested for a neurological condition at the moment but they don't know exactly what it is yet, it affects my balance and movement.
I'm happy to talk about any of them.
I was investigated for Sjögrens in 2018/19 but it was found in January this year that I do not have it, but I do have Sicca syndrome. Hope you are ok "
I had to google sicca
I'm ok, you ? |
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By (user no longer on site)
over a year ago
|
Yes, my mental health when im good im reallly good.. the past few week have been good. When its bad its bad to the point ive tried to end it twice in the past few years, ive coped & controlled it for years but the past 3 years its become more and more uncontrollable. Id trade everything to have a sane mind and wouldnt wish this horrendous feeling on anyone. It stops me getting close to people and getting deep relationships as i know it will be the end of me 
|
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By *anae21Woman
over a year ago
Nearer than you think |
I have a rare autoimmune disease that attacks the membrane behind my retina. I'm half blind (which might work in favour of some Fab men!) and the immunosuppressants I take mean I can't drink. Other than that, I'm not held back from any Fab activities. |
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By (user no longer on site) OP
over a year ago
|
"I've noticed a few people on the forums have them, I do too.
I'm wondering if maybe those that want to would be open about theirs on the thread and help others with their knowledge and experiences.
And how does it affect your fab life?
Do you tell people you're chatting to so they know that you could potentially need to cancel a social or meet if the illness gets the better of you that day? Do you worry they'll think you're making excuses?
Do you feel like you're not letting it dictate your life as you're still able to get out there and misbehave or socialise?
What’s yours? "
Chronic Fatigue Syndrome. |
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By *anae21Woman
over a year ago
Nearer than you think |
"I had covid a few weeks after the initial lockdown. It has left me with several ongoing new health issues I’m now being treated for.
This pesky little virus really does do some damage! "
DC, I'm sorry to hear that; hope the prognosis is positive. |
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I suffer from anxiety, depression and I have a growth on my lung of which can make me feel sick and causes me issues with breathing if I do too much. Fortunately it hasn't yet stopped me from having fun but it's only a matter of time and I have a scan on the 24th to check progression followed by breathing tests on the 9th December and then hopefully I will have some medication to help relieve my symptoms. |
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By (user no longer on site)
over a year ago
|
"Yes, my mental health when im good im reallly good.. the past few week have been good. When its bad its bad to the point ive tried to end it twice in the past few years, ive coped & controlled it for years but the past 3 years its become more and more uncontrollable. Id trade everything to have a sane mind and wouldnt wish this horrendous feeling on anyone. It stops me getting close to people and getting deep relationships as i know it will be the end of me
"
*hugs* |
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By (user no longer on site)
over a year ago
|
"I have a heart arrhythmia that sporadically makes me faint, but I know when it's coming and can usually provide plenty of warning and grab a pillow "
Blimey, that could be quite unnerving |
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By (user no longer on site)
over a year ago
|
"I suffer from anxiety, depression and I have a growth on my lung of which can make me feel sick and causes me issues with breathing if I do too much. Fortunately it hasn't yet stopped me from having fun but it's only a matter of time and I have a scan on the 24th to check progression followed by breathing tests on the 9th December and then hopefully I will have some medication to help relieve my symptoms. "
That's rough, I hope it can be controlled. |
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Having covid early 2020 has now given me asthma and daily steroid inhaler. I feel like I have the lungs of an 80 year old sometimes.
I’m on medication for depression.
Not going into it too much as even though it seems we’re able to talk about it more,
there’s still a hell of a lot of stigma and judgment around sadly |
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"I suffer from anxiety, depression and I have a growth on my lung of which can make me feel sick and causes me issues with breathing if I do too much. Fortunately it hasn't yet stopped me from having fun but it's only a matter of time and I have a scan on the 24th to check progression followed by breathing tests on the 9th December and then hopefully I will have some medication to help relieve my symptoms.
That's rough, I hope it can be controlled. "
Thank you, it's non treatable apart from relieving symptoms unfortunately but hopefully they can give me something to make it more manageable |
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"I've noticed a few people on the forums have them, I do too.
I'm wondering if maybe those that want to would be open about theirs on the thread and help others with their knowledge and experiences.
And how does it affect your fab life?
Do you tell people you're chatting to so they know that you could potentially need to cancel a social or meet if the illness gets the better of you that day? Do you worry they'll think you're making excuses?
Do you feel like you're not letting it dictate your life as you're still able to get out there and misbehave or socialise?
What’s yours?
Chronic Fatigue Syndrome. "
My sister has that P. It's totally changed her life and she struggled for a long time getting the right medical advice |
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By (user no longer on site)
over a year ago
|
"Yes, my mental health when im good im reallly good.. the past few week have been good. When its bad its bad to the point ive tried to end it twice in the past few years, ive coped & controlled it for years but the past 3 years its become more and more uncontrollable. Id trade everything to have a sane mind and wouldnt wish this horrendous feeling on anyone. It stops me getting close to people and getting deep relationships as i know it will be the end of me
"
I know how that feels, ive made 2 attempts during the toxic relationship i was in for 4 years, until i got away from it in august last year. Im still wounded from that relationship and the scars havent fully healed, which im still feeling the effects of
Ive found the best way for me to cope with the depression side is to embrace it. Being a spiritual person, ive delved into the darker realm of the human psyche. Due to my depression i often have existential crises, bouts of anger and often thoughts that most ppl would find very disturbing, sometimes i wonder if id end up in a straitjacket if i werent able to keep control of myself.
Knowing how my thoughts can drift into darkness, the misery and suffering i put myself through, ive learnt to embrace that dark side. Its better to sit down and drink tea with your demons than trying to fight them off, as i feel that the more you try to fight them off, the more resistance and push back you receive, which makes it harder to deal with them. Giving them the space they need without fighting them, youre accepting their presence.
Being a sane person doesnt mean youre free from depression for good, it will always be there, it never fully goes away, being sane simply means that your head is always in a good space and you maintain control of your emotions. If the demons live in that dark forest in your head, dont try to cut the forest down, leave it there. Instead focus on building that paradise within your mind, the more space your paradise occupies, the smaller that dark forest becomes in comparison, and so do the problems you face.
Try explore spirituality if you havent done that before, it helps put things into persepctive and reflecting on your life. My way of coping with my depression and my thoughts may or may not work for you, but you wont know until you try. But taking a spiritual perspective could help you find your coping mechanisms. Theres plenty out there for you to follow to help you on your journey
Hope all of that made some sense and helps you. Couldnt really explain it without it being long winded |
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By (user no longer on site)
over a year ago
|
"Yes, my mental health when im good im reallly good.. the past few week have been good. When its bad its bad to the point ive tried to end it twice in the past few years, ive coped & controlled it for years but the past 3 years its become more and more uncontrollable. Id trade everything to have a sane mind and wouldnt wish this horrendous feeling on anyone. It stops me getting close to people and getting deep relationships as i know it will be the end of me
"
Somehow your post really made me stop and I’m so sorry that you have such intense feelings that can be good but also bad!!
I know it isn’t of comfort, but know that there’s always some light in the dark, even if you can’t see it! X |
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By (user no longer on site)
over a year ago
|
I used to suffer with bad anxiety, usually latent and I couldn’t pin point why. I don’t really suffer that much now, or nowhere near as what it was.
I’ve got better since I got my hormonal levels right for me, so my therapist and doctor said it probably could have been , because like cars , some run with diesel, some run with fuel. So having Estrogen and progesterone is what my body needed. And it improved things both mentally but also body wise and my anxiety disappeared
I know it isn’t considered a mental illness anymore (thank god), but my Dysphoria can get out of control still (maybe a few days a month). But it’s nowhere near as what it used to be. |
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By (user no longer on site)
over a year ago
|
"I have both types of glaucoma and tinnitus. It doesn’t affect me and as long as I have my eye drops with me I’m happy.  "
Tinnitus!!! I have that sometimes , it gets back when I’m feeling ill but there have been times I wanted to poke my ears out with a pen… disgusting |
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By (user no longer on site)
over a year ago
|
"I have Sjogrens Syndrome, i do mention it when i have a meet arranged because it causes dryness !! Plus lots of other issues too.
I also have Essential Tremors, i mention that if I'm having a bad day otherwise they might think i need alcohol to stop the shaking actually alcohol does help stop the shaking
I have other health problems but i don't mention them.
I am being tested for a neurological condition at the moment but they don't know exactly what it is yet, it affects my balance and movement.
I'm happy to talk about any of them.
I was investigated for Sjögrens in 2018/19 but it was found in January this year that I do not have it, but I do have Sicca syndrome. Hope you are ok
I had to google sicca
I'm ok, you ?"
Yeah I’m ok apart from , dry eyes, partially dry mouth, teeth are crap due to quality of saliva, and also the drying out of certain places
There is a saying with Sicca and Sjögrens - you can have Sicca without Sjögrens but you can’t have Sjögrens without Sicca.
|
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By (user no longer on site)
over a year ago
|
"I don't meet as I don't like bad sex. I don't see the point in exchanging messages as people aren't really here to chat so I tend to cut people off if they do. Now, I'm mostly here to perv and (try) take the piss. Compared to when I was well, it's a bit different yeah (even this has taken me 10+ mins to type and it's not coming across that well)."
It's coming across fine. Try not to be so hard on yourself x |
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By (user no longer on site)
over a year ago
|
I have ME/CFS and Functional Disorder (I can get the shakes, freezing to the spot, vacant seizures and occasional momentary black outs).
I'm careful who I agree to meet and when. Spontaneous meet ups won't happen because I need time to rest before and after. I'm only just getting over having 24 hours with Sir on Thursday/Friday and we had lots of snuggle times.
I don't tell everyone on here that I have it because when I'm on a good day, you would never know. If I do tell them, I sometimes say that there will be some things I can't do, but a lot I can do and that if I need a break/rest, cuddles are always lovely until I'm ready to go again.
So far, it hasn't been an issue in that respect. I have had to postpone a meet up or two because of it, but I explain and arrange another meet up as soon as possible. One thing I'll never do is use it as an excuse to get out of meeting up. |
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By (user no longer on site)
over a year ago
|
"I have Sjogrens Syndrome, i do mention it when i have a meet arranged because it causes dryness !! Plus lots of other issues too.
I also have Essential Tremors, i mention that if I'm having a bad day otherwise they might think i need alcohol to stop the shaking actually alcohol does help stop the shaking
I have other health problems but i don't mention them.
I am being tested for a neurological condition at the moment but they don't know exactly what it is yet, it affects my balance and movement.
I'm happy to talk about any of them.
I was investigated for Sjögrens in 2018/19 but it was found in January this year that I do not have it, but I do have Sicca syndrome. Hope you are ok
I had to google sicca
I'm ok, you ?
Yeah I’m ok apart from , dry eyes, partially dry mouth, teeth are crap due to quality of saliva, and also the drying out of certain places
There is a saying with Sicca and Sjögrens - you can have Sicca without Sjögrens but you can’t have Sjögrens without Sicca.
"
Yes, after googling it i can see that i have Sicca as part of Sjogrens.
My teeth are crap too. I had to see a different dentist this summer, he was extremely rude to me about my teeth and gums, made me cry, i pointed out that i have SS and he went very quiet and was much nicer after !! Might have helped if he had read my notes first ! |
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By (user no longer on site) OP
over a year ago
|
Can anyone elaborate on what functional disorder is? I guess I could Google it but better to ask those who have it.
I get the shakes, struggle to maintain body temperature randomly, and a few other bits.
And this is why I posted. Because others sharing can highlight things or be helpful to others. And I like knowing I'm not alone to be fair.
Some people just don't get it. They really don't understand at all. And some hidden Illnesses aren't even accepted by some people.
Like CFS, some can say it's just a fancy label for a lazy person. But they clearly don't know what fatigue is compared to tiredness. |
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By *asmeenTV/TS
over a year ago
STOKE ON TRENT |
"Can anyone elaborate on what functional disorder is? I guess I could Google it but better to ask those who have it.
I get the shakes, struggle to maintain body temperature randomly, and a few other bits.
And this is why I posted. Because others sharing can highlight things or be helpful to others. And I like knowing I'm not alone to be fair.
Some people just don't get it. They really don't understand at all. And some hidden Illnesses aren't even accepted by some people.
Like CFS, some can say it's just a fancy label for a lazy person. But they clearly don't know what fatigue is compared to tiredness. "
Impairs normal body Functions x |
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"Can anyone elaborate on what functional disorder is? I guess I could Google it but better to ask those who have it.
I get the shakes, struggle to maintain body temperature randomly, and a few other bits.
And this is why I posted. Because others sharing can highlight things or be helpful to others. And I like knowing I'm not alone to be fair.
Some people just don't get it. They really don't understand at all. And some hidden Illnesses aren't even accepted by some people.
Like CFS, some can say it's just a fancy label for a lazy person. But they clearly don't know what fatigue is compared to tiredness. "
My sister has fnd, she was fine and then started getting numbness and then out of nowhere she woke one morning and could only move one arm and she's been like that for months now. There's a chance she will recover partly or fully but it can return after |
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By (user no longer on site)
over a year ago
|
This is copied from the NHS website. I get the tremors in my legs too.
Functional neurological disorder
When symptoms seem to be caused by problems in the nervous system but you don't have a specific neurological condition, doctors may refer to your symptoms as a functional neurological disorder.
Examples of such symptoms include:
numbness or tingling in the hands or feet
weakness in the arms or legs
a tremor in 1 or both arms
blackouts |
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"Can anyone elaborate on what functional disorder is? I guess I could Google it but better to ask those who have it.
I get the shakes, struggle to maintain body temperature randomly, and a few other bits.
And this is why I posted. Because others sharing can highlight things or be helpful to others. And I like knowing I'm not alone to be fair.
Some people just don't get it. They really don't understand at all. And some hidden Illnesses aren't even accepted by some people.
Like CFS, some can say it's just a fancy label for a lazy person. But they clearly don't know what fatigue is compared to tiredness. "
Not answering the question, just adding that I had post viral fatigue after having pneumonia (that's what damaged my heart) and that has a lot of overlap with CFS and the clinic I went to covered both. I had lots of issues maintaining my body temperature (I used to just sit in a hot bath of water trying to warm myself up) and my blood sugar levels. It was also the start of digestive issues for me. I basically felt like my body and my brain just stopped working properly for a couple of years. It was mad. I just thought I'd say though in case it helped you relate your experiences as its so much more than just the fatigue as shit as that part is. |
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By *a LunaWoman
over a year ago
South Wales |
Recurring Mental health issues but *touch wood* haven’t needed medication since 2015.
Not an illness a such, but I also have a damaged/weakened sciatic nerve which can bring on sciatica at the slightest wrong move if it goes. I did have a meet pre lockdown and my back went then, that resulted in my meet having to help get me dressed  as I was unable to dress my lower half.
|
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"I have IBD. Not the sexiest topic to talk about so I'll leave it at that. Generally well controlled at the moment, touch wood. "
Oh bless you. A good friend of mine has Crohn's so you have my sympathy. |
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By (user no longer on site)
over a year ago
|
"I have too many to mention, but possibly the most ‘important’ one for here is that I have Lichen Sclerosis. I was diagnosed with it after being misdiagnosed with recurring thrush, because many of the symptoms are the same except that there is none of the discharge you get with thrush, and you get ‘white plaques’ on the skin. LS is an autoimmune disorder that attacks the genital area. Because mine was misdiagnosed it cause atrophy of the vagina and clit. This now means that I don’t have very good nerve endings in my clit, and my vag can no longer accommodate very big cocks. I’m probably one of the few who now prefer a smaller more average sized member, but as they say, it’s not the size, it’s what is done with it that matters. After all is said and done, I now prefer anal. Getting an orgasm is nigh on impossible, but I still enjoy sex.
If any lady has been diagnosed with LS and wants to talk about it, just let me know. My preferences for ladies is turned off, but I can reverse that if needed. "
Oh my goodness this was like reading about myself'im in exactly the same situations regarding sex as you, and also many years to get diagnosed, started after Menopause, strange how its called men-o-pause, are we meant to give up men haha
Damage to clitoris so cannot cum with oral, and so many meets focus on oral so I feel very insecure, can only cum with pneumatic drill that being doxy wand on full force!
Thank goodness I love anal.xx
|
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"I have IBD. Not the sexiest topic to talk about so I'll leave it at that. Generally well controlled at the moment, touch wood. "
It's shit isn't it
Ba dum tish
Seriously though bowel problems suck and are completely unsexy. As I said above I have ulcerative colitis. Keeping it controlled is the main thing |
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By (user no longer on site)
over a year ago
|
I have a cerebral aneurysm that may rupture at any time. It is monitored regularly but in vain. If it breaks, it breaks and I may go on living for years or I may be dead within minutes, unaware it has ruptured.
No one knows.
Nothing can be done about it. It was discovered during a brain scan for another matter and is my sword of Damocles. It doesn’t weigh on my mind because I forget it’s even there but at times, especially when I’m enjoying myself, I think “this is a good moment to go.”
Sometimes, I want to kill myself because I don’t want to live like this. Sometimes, I want to live all at once because I don’t want to die like this.
I live alone. If I ‘drop’ at home, I won’t be missed for several days. Sometimes, this dawns on me and I sit alone and cry.
I’m very tired. I want someone to hold me and tell me I was worth knowing.
I have told no one but now, I have here and it will go no further. |
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By (user no longer on site)
over a year ago
|
"[Removed by poster at 15/11/21 16:59:30]"
You removed your post after I had read it.
I can't begin to imagine what it's like for you. Sending you so many hugs right now. I know they might not help much, but virtual hugs are all I have xx |
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"I have a cerebral aneurysm that may rupture at any time. It is monitored regularly but in vain. If it breaks, it breaks and I may go on living for years or I may be dead within minutes, unaware it has ruptured.
No one knows.
Nothing can be done about it. It was discovered during a brain scan for another matter and is my sword of Damocles. It doesn’t weigh on my mind because I forget it’s even there but at times, especially when I’m enjoying myself, I think “this is a good moment to go.”
Sometimes, I want to kill myself because I don’t want to live like this. Sometimes, I want to live all at once because I don’t want to die like this.
I live alone. If I ‘drop’ at home, I won’t be missed for several days. Sometimes, this dawns on me and I sit alone and cry.
I’m very tired. I want someone to hold me and tell me I was worth knowing.
I have told no one but now, I have here and it will go no further."
Bloody hell |
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"I have a cerebral aneurysm that may rupture at any time. It is monitored regularly but in vain. If it breaks, it breaks and I may go on living for years or I may be dead within minutes, unaware it has ruptured.
No one knows.
Nothing can be done about it. It was discovered during a brain scan for another matter and is my sword of Damocles. It doesn’t weigh on my mind because I forget it’s even there but at times, especially when I’m enjoying myself, I think “this is a good moment to go.”
Sometimes, I want to kill myself because I don’t want to live like this. Sometimes, I want to live all at once because I don’t want to die like this.
I live alone. If I ‘drop’ at home, I won’t be missed for several days. Sometimes, this dawns on me and I sit alone and cry.
I’m very tired. I want someone to hold me and tell me I was worth knowing.
I have told no one but now, I have here and it will go no further."
I wish I had anything helpful to say. I’m so sorry to read that |
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By (user no longer on site)
over a year ago
|
I have stage 4 endometriosis. I had surgery for it earlier this year so aprt from dealing with that, I now have scars I'm cripplingly self conscious off.
I can manage the condition mostly, but I am occasionally floored by an unexpected flare up, which could in theory lead to me cancelling a meet at short notice, so I would have to warn a potential meet beforehand I suppose |
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By (user no longer on site)
over a year ago
|
"I have a cerebral aneurysm that may rupture at any time. It is monitored regularly but in vain. If it breaks, it breaks and I may go on living for years or I may be dead within minutes, unaware it has ruptured.
No one knows.
Nothing can be done about it. It was discovered during a brain scan for another matter and is my sword of Damocles. It doesn’t weigh on my mind because I forget it’s even there but at times, especially when I’m enjoying myself, I think “this is a good moment to go.”
Sometimes, I want to kill myself because I don’t want to live like this. Sometimes, I want to live all at once because I don’t want to die like this.
I live alone. If I ‘drop’ at home, I won’t be missed for several days. Sometimes, this dawns on me and I sit alone and cry.
I’m very tired. I want someone to hold me and tell me I was worth knowing.
I have told no one but now, I have here and it will go no further.
I wish I had anything helpful to say. I’m so sorry to read that "
I can't imagine how that feels, but I'm sending you a whole heap of love |
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By (user no longer on site)
over a year ago
|
"I have stage 4 endometriosis. I had surgery for it earlier this year so aprt from dealing with that, I now have scars I'm cripplingly self conscious off.
I can manage the condition mostly, but I am occasionally floored by an unexpected flare up, which could in theory lead to me cancelling a meet at short notice, so I would have to warn a potential meet beforehand I suppose "
Hugs xx I've recently been checked out for this. Turns out I've got Atypical Hyperplasia, so they're keeping an eye on me. |
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"I have IBD. Not the sexiest topic to talk about so I'll leave it at that. Generally well controlled at the moment, touch wood.
Oh bless you. A good friend of mine has Crohn's so you have my sympathy. "
Many thanks. |
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"I have IBD. Not the sexiest topic to talk about so I'll leave it at that. Generally well controlled at the moment, touch wood.
It's shit isn't it
Ba dum tish
Seriously though bowel problems suck and are completely unsexy. As I said above I have ulcerative colitis. Keeping it controlled is the main thing "
Ha! Yeah I read yours. I'm Crohns. Mine seems to go through stages, all ok, then bad when I have a flare up. |
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By (user no longer on site)
over a year ago
|
My partner has crohn's and it can be an absolute nightmare some days. He gets grief at work for taking time off because he looks like there's nothing wrong with him but they don't see him crying in agony on the loo time and time again |
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By (user no longer on site)
over a year ago
|
"I have stage 4 endometriosis. I had surgery for it earlier this year so aprt from dealing with that, I now have scars I'm cripplingly self conscious off.
I can manage the condition mostly, but I am occasionally floored by an unexpected flare up, which could in theory lead to me cancelling a meet at short notice, so I would have to warn a potential meet beforehand I suppose
Hugs xx I've recently been checked out for this. Turns out I've got Atypical Hyperplasia, so they're keeping an eye on me. "
I’v just had it all whipped out because of that and adenomyosis.
Have they put a coil in? |
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By (user no longer on site)
over a year ago
|
"I have a cerebral aneurysm that may rupture at any time. It is monitored regularly but in vain. If it breaks, it breaks and I may go on living for years or I may be dead within minutes, unaware it has ruptured.
No one knows.
Nothing can be done about it. It was discovered during a brain scan for another matter and is my sword of Damocles. It doesn’t weigh on my mind because I forget it’s even there but at times, especially when I’m enjoying myself, I think “this is a good moment to go.”
Sometimes, I want to kill myself because I don’t want to live like this. Sometimes, I want to live all at once because I don’t want to die like this.
I live alone. If I ‘drop’ at home, I won’t be missed for several days. Sometimes, this dawns on me and I sit alone and cry.
I’m very tired. I want someone to hold me and tell me I was worth knowing.
I have told no one but now, I have here and it will go no further."
X |
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By (user no longer on site)
over a year ago
|
Here’s my list-
Endometriosis
PCOS
Scoliosis
Interstitial cystitis
Fibromyalgia
Chronic fatigue / ME
BPD
Depression/anxiety
ADHD
Possible IBD (under investigation)
Folate deficiency anemia.
Oh and Chuck in some rare form of eczema for fun too. (DE)
I was fit and well up til 5/6 years ago. I’d rarely been seriously unwell or in hospital, I got meningitis and it just killed my immune system.
All a bundle of fun I tell ya!
You are all amazing!! Don’t let anyone dull your sparkle.
Much love. Xx |
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By (user no longer on site)
over a year ago
|
My hidden disability always scares the bejesus out of people as there is so much stigma attached …..
I have schizoaffective disorder - which is a form of schizophrenia with mood disorder attached . I take a shed load of medication for this , have had numerous hospital stays and some very very dark times but if I didn’t tell you about it you wouldn’t ever no .
I talk about my mental health to professionals now as part of some charity work , most people are surprised to know given my job and their internal bias or unknown judgement as to what they think a person with my mental health condition would be like !
The best way to break down barriers is to go through them ! We have to talk about disability more in order for it to become less stigmatised ! |
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By (user no longer on site)
over a year ago
|
"My hidden disability always scares the bejesus out of people as there is so much stigma attached …..
I have schizoaffective disorder - which is a form of schizophrenia with mood disorder attached . I take a shed load of medication for this , have had numerous hospital stays and some very very dark times but if I didn’t tell you about it you wouldn’t ever no .
I talk about my mental health to professionals now as part of some charity work , most people are surprised to know given my job and their internal bias or unknown judgement as to what they think a person with my mental health condition would be like !
The best way to break down barriers is to go through them ! We have to talk about disability more in order for it to become less stigmatised !"
Amen to this! I’ve found the same with my BPD I linked in with a not for profit organisation which genuinely saved my life. I now want to help others as a lived through practitioner teaching CBT and DBT and other skills I’ve learned on my journey. I’ve been well now for over a year and meds help! God knows they help haha.
Invisible illnesses are being highlighted more and more but mental health still has some stigma attached. It’s a real shame.
Thank you for sharing and empowering. Xx |
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By (user no longer on site)
over a year ago
|
I have a few, anxiety and depression, I have medication that is helping. Essential tremor, I can look like a nodding dog when it’s bad, and shake like I’ve got withdrawal signs. I’ve got an enlarged spleen and protein in my blood which means I have to be monitored every 6 months as it can be a sign of cancer. I’ve got ibs, and coupled with a gastric bypass can mean I have a love hate relationship with toilets. I’ve got a large umbilical hernia that can cause intense pain. Plus I’m getting over covid, and have fatigue and breathing problems. But other than that I’m ok x |
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By (user no longer on site)
over a year ago
|
"
Amen to this! I’ve found the same with my BPD I linked in with a not for profit organisation which genuinely saved my life. I now want to help others as a lived through practitioner teaching CBT and DBT and other skills I’ve learned on my journey. I’ve been well now for over a year and meds help! God knows they help haha.
Invisible illnesses are being highlighted more and more but mental health still has some stigma attached. It’s a real shame.
Thank you for sharing and empowering. Xx"
Yes to medication!! How ever many wizards and witches have tried to tell me to take a walk and take some herbs of some sort lol - that my friends is not going help
I have found that depression and anxiety are trending some what and people are happy to talk about the mental health conditions that they deem acceptable ? But when it gets to “mental “ for want of a better word - then people really don’t want to talk about it , and your instantly an absolute fruit cake |
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"My hidden disability always scares the bejesus out of people as there is so much stigma attached …..
I have schizoaffective disorder - which is a form of schizophrenia with mood disorder attached . I take a shed load of medication for this , have had numerous hospital stays and some very very dark times but if I didn’t tell you about it you wouldn’t ever no .
I talk about my mental health to professionals now as part of some charity work , most people are surprised to know given my job and their internal bias or unknown judgement as to what they think a person with my mental health condition would be like !
The best way to break down barriers is to go through them ! We have to talk about disability more in order for it to become less stigmatised !"
I know exactly what you mean. I saw a psychiatrist years ago because antidepressants made me hallucinate and they suggested I had some form of Bipolar Disorder. I'm personally not convinced anymore however as I waited so long to be seen that I got better before a formal diagnosis and I've been plodding along fine on my own now for about 7 years apart from some mild depression and anxiety but I definitely know that look when you talk about it with some people. |
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By *arkus1812Man
over a year ago
Lifes departure lounge NN9 Northamptonshire East not West MidlandsMidlands |
I suffer from Atrial Fibrillation (Irregular Heart Rhythm) which leaves me breathless after the shortest of excercises and also feeling very tired by the middle of the day.
Seemingly my consultant advises me that I have it under control and will now not need the pacemaker as discussed at a previous meeting. I will however have to continue to taking the existing medication.
Being the age that I am I experienced Erectional Disfunction prior to my heart problem but coped by using Viagra and/or Cialis. I have been told by my Consultant, G.P. and Pharmacist that under no circumstances should I continue to use them due to reaction to my heart medications.
On top of all this I have acute arthritis in both my knees which is having an affect on my mobility, possible knee replacement next year hopefully.
Under these circumstances meeting anyone is almost out of the question and I have stated in my profile my situation. |
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By (user no longer on site)
over a year ago
|
"I have stage 4 endometriosis. I had surgery for it earlier this year so aprt from dealing with that, I now have scars I'm cripplingly self conscious off.
I can manage the condition mostly, but I am occasionally floored by an unexpected flare up, which could in theory lead to me cancelling a meet at short notice, so I would have to warn a potential meet beforehand I suppose
Hugs xx I've recently been checked out for this. Turns out I've got Atypical Hyperplasia, so they're keeping an eye on me.
I’v just had it all whipped out because of that and adenomyosis.
Have they put a coil in? "
No, no coil. I can't take any kind of hormone therapy. It just makes my endo worse |
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By (user no longer on site)
over a year ago
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"
Amen to this! I’ve found the same with my BPD I linked in with a not for profit organisation which genuinely saved my life. I now want to help others as a lived through practitioner teaching CBT and DBT and other skills I’ve learned on my journey. I’ve been well now for over a year and meds help! God knows they help haha.
Invisible illnesses are being highlighted more and more but mental health still has some stigma attached. It’s a real shame.
Thank you for sharing and empowering. Xx
Yes to medication!! How ever many wizards and witches have tried to tell me to take a walk and take some herbs of some sort lol - that my friends is not going help
I have found that depression and anxiety are trending some what and people are happy to talk about the mental health conditions that they deem acceptable ? But when it gets to “mental “ for want of a better word - then people really don’t want to talk about it , and your instantly an absolute fruit cake "
Oh I’m so with you on that. Any formal diagnoses other than depression and you get that weird raised eyebrow , slightly scared look or you see peoples body language change. It’s like don’t worry love I’m not plotting your murder in my mind. Haha. Honestly some people. . Joe Pasquales son Joe Tracini has bpd and does some hilarious yet real down to earth skits on his Instagram about the realities of mental health. |
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By (user no longer on site)
over a year ago
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"I have stage 4 endometriosis. I had surgery for it earlier this year so aprt from dealing with that, I now have scars I'm cripplingly self conscious off.
I can manage the condition mostly, but I am occasionally floored by an unexpected flare up, which could in theory lead to me cancelling a meet at short notice, so I would have to warn a potential meet beforehand I suppose
Hugs xx I've recently been checked out for this. Turns out I've got Atypical Hyperplasia, so they're keeping an eye on me.
I’v just had it all whipped out because of that and adenomyosis.
Have they put a coil in?
No, no coil. I can't take any kind of hormone therapy. It just makes my endo worse"
I’ve tried Norethisterone for my endo. It didn’t do anything. My best friend for a flare is heat. Honestly I live with my hot water bottle and heat packs. Mines only mild but I know that stages don’t always indicate pain levels. I had my lap done in summer. I’ve had a d&c due to my bleeding and been admitted on the gynae ward on a drip because I faint and pass out with pain and blood loss. It’s a shit condition. I saw an interesting statistic that more is spend on men and erectile dysfunction than is spent on endometriosis and gynaecology combined. Sickening. If this was a condition which men had to endure our treatment would be much better.
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By (user no longer on site)
over a year ago
|
"I have stage 4 endometriosis. I had surgery for it earlier this year so aprt from dealing with that, I now have scars I'm cripplingly self conscious off.
I can manage the condition mostly, but I am occasionally floored by an unexpected flare up, which could in theory lead to me cancelling a meet at short notice, so I would have to warn a potential meet beforehand I suppose
Hugs xx I've recently been checked out for this. Turns out I've got Atypical Hyperplasia, so they're keeping an eye on me.
I’v just had it all whipped out because of that and adenomyosis.
Have they put a coil in?
No, no coil. I can't take any kind of hormone therapy. It just makes my endo worse"
Oh . I’m sorry, are you a candidate for a hysterectomy? |
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By (user no longer on site)
over a year ago
|
"I have stage 4 endometriosis. I had surgery for it earlier this year so aprt from dealing with that, I now have scars I'm cripplingly self conscious off.
I can manage the condition mostly, but I am occasionally floored by an unexpected flare up, which could in theory lead to me cancelling a meet at short notice, so I would have to warn a potential meet beforehand I suppose
Hugs xx I've recently been checked out for this. Turns out I've got Atypical Hyperplasia, so they're keeping an eye on me.
I’v just had it all whipped out because of that and adenomyosis.
Have they put a coil in?
No, no coil. I can't take any kind of hormone therapy. It just makes my endo worse
I’ve tried Norethisterone for my endo. It didn’t do anything. My best friend for a flare is heat. Honestly I live with my hot water bottle and heat packs. Mines only mild but I know that stages don’t always indicate pain levels. I had my lap done in summer. I’ve had a d&c due to my bleeding and been admitted on the gynae ward on a drip because I faint and pass out with pain and blood loss. It’s a shit condition. I saw an interesting statistic that more is spend on men and erectile dysfunction than is spent on endometriosis and gynaecology combined. Sickening. If this was a condition which men had to endure our treatment would be much better.
"
So true, it’s really disgusting. |
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By (user no longer on site)
over a year ago
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I've had a hearing problem for years. There's a doctor I'm travelling to see that does pioneering treatment for it. (I'm on his nhs list now, after paying for a private initial consultation)
I also have a really bad herniated disc that I've had an operation on once already. (I'm in severe pain, especially in the morning..just to stand to brush my teeth kills..) |
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I have OCD. It's (mostly) controlled at the moment and doesn't impact on my Fab activities. Long may that continue.
I also have PCOS. I've not had a period since June, and before that it was June 2020 (hurrah!). The period that ended at the end of June 2020 was a 6 week period though (boo!).
I've unexpectedly come on during a meet, which was a bit embarrassing, and I once had to cancel because a cyst had ruptured and I had to get treatment.
Life has improved since this forum introduced me to Beppy tampons - at least I know if I have another three month period (thanks, 2018) it needn't mean everything stops for those three months entire.
Reading this thread and seeing conditions other people are living with makes me very grateful my own are so very manageable. |
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By (user no longer on site)
over a year ago
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I also have quite a lot of food intolerances, that I have to keep a list of, otherwise my stomach churns for hours. (Before I turned 40 I seemed to have a cast iron stomach & could eat anything..) |
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"I had covid a few weeks after the initial lockdown. It has left me with several ongoing new health issues I’m now being treated for.
This pesky little virus really does do some damage!
DC, I'm sorry to hear that; hope the prognosis is positive. "
Thank you lovely xx |
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By (user no longer on site)
over a year ago
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"I've got psoriatic arthritis and when I had the 2nd vaccine in May it triggered my skin, I'm only just recovering from it which obviously meant I had to put off meeting people until recently.
Oh, poor you. I have Rheumatoid Arthritis - very similar.
I've been fine with the vaccines & my booster, but the new meds I'm on have triggered a skin condition which I'm very self conscious of. I'll stay on the meds though, as this is the first time I've been pain free in 25 yrs. I'll just have to live with the skin issue. X"
I have just been diagnosed with arthritis in one wrist and and severe soft tissue damage in the other. This made me look at things in a totally different way. I am still going through tests to ascertain how severe both diagnoses are. I was thinking about leaving swinging because of this as I will have to probably give up driving, however reading this thread, it has given me a real boost. Thank you to all and kudos for coming forward with your health issues  |
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"I've got psoriatic arthritis and when I had the 2nd vaccine in May it triggered my skin, I'm only just recovering from it which obviously meant I had to put off meeting people until recently.
Oh, poor you. I have Rheumatoid Arthritis - very similar.
I've been fine with the vaccines & my booster, but the new meds I'm on have triggered a skin condition which I'm very self conscious of. I'll stay on the meds though, as this is the first time I've been pain free in 25 yrs. I'll just have to live with the skin issue. X
I have just been diagnosed with arthritis in one wrist and and severe soft tissue damage in the other. This made me look at things in a totally different way. I am still going through tests to ascertain how severe both diagnoses are. I was thinking about leaving swinging because of this as I will have to probably give up driving, however reading this thread, it has given me a real boost. Thank you to all and kudos for coming forward with your health issues "
More thank happy for you to message mate |
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By (user no longer on site) OP
over a year ago
|
"After seeing all the crohns, ibd and ulcerative colitis....
My other hidden one is IBS. And I hate it. Its not sexy at all.
Same here, it’s horrible "
It is but people on here are so amazingly understanding and it's lot more common than people think. |
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By (user no longer on site)
over a year ago
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PCOS - makes me very anxious as I am quite hairy and have a manly beer belly. I don't drink lol. Unfortunately any fat goes to my gut, always has.
Anxiety and depression, bpd and ptsd - am medicated and generally high functioning. When I crash then it's pretty bad but I try to keep a routine (not always successfully)
Also ulcerative proctitis which was diagnosed in 2016 but no one actually told me til a few weeks ago, I just thought it was me doing something wrong. |
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By (user no longer on site)
over a year ago
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Social anxiety and panic attacks
It's what stops me attending clubs and socials
They have only manifested themselves in later life
I had my first panic attack on a plane and then they started when I was driving
I can feel them coming on and if I do I avoid driving on roads that I can't escape off |
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By (user no longer on site) OP
over a year ago
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"Social anxiety and panic attacks
It's what stops me attending clubs and socials
They have only manifested themselves in later life
I had my first panic attack on a plane and then they started when I was driving
I can feel them coming on and if I do I avoid driving on roads that I can't escape off "
I've had panic attacks in the past. After a few I learned the tell tale signs and use to call a friend. Any one of them, and I'd just say I'm starting panic, just chat bollocks to me, about anything but just talk and distract my thoughts. It worked really well for me.
As you can feel them coming on do you have any ideas on what you can do to stop it progressing?
They are horrid things, and embarrassing. I feel you. |
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"After seeing all the crohns, ibd and ulcerative colitis....
My other hidden one is IBS. And I hate it. Its not sexy at all.
Same here, it’s horrible
It is but people on here are so amazingly understanding and it's lot more common than people think. "
Increasingly so. Or more people are just open about it. I bump into more people with Crohn's these days than I used too. I've had it for over 20 years. |
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By (user no longer on site) OP
over a year ago
|
"After seeing all the crohns, ibd and ulcerative colitis....
My other hidden one is IBS. And I hate it. Its not sexy at all.
Same here, it’s horrible
It is but people on here are so amazingly understanding and it's lot more common than people think.
Increasingly so. Or more people are just open about it. I bump into more people with Crohn's these days than I used too. I've had it for over 20 years. "
I have a friend with crohns and ulcerative colitis and she suffers bless her. It's horrible. 20 years is a long time. |
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By (user no longer on site)
over a year ago
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"Social anxiety and panic attacks
It's what stops me attending clubs and socials
They have only manifested themselves in later life
I had my first panic attack on a plane and then they started when I was driving
I can feel them coming on and if I do I avoid driving on roads that I can't escape off
I've had panic attacks in the past. After a few I learned the tell tale signs and use to call a friend. Any one of them, and I'd just say I'm starting panic, just chat bollocks to me, about anything but just talk and distract my thoughts. It worked really well for me.
As you can feel them coming on do you have any ideas on what you can do to stop it progressing?
They are horrid things, and embarrassing. I feel you. "
Stress / being burnt out
I had my first one after 20+ years in senior management roles, which also involved me being 'on call' 24/7 for 18 years
I got out and took the easy road job wise and they stopped (or very much slowed down)
Now, I have issues with both my parents health (one terminal, one long term) and they have started to make their presence known again |
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By (user no longer on site) OP
over a year ago
|
"Social anxiety and panic attacks
It's what stops me attending clubs and socials
They have only manifested themselves in later life
I had my first panic attack on a plane and then they started when I was driving
I can feel them coming on and if I do I avoid driving on roads that I can't escape off
I've had panic attacks in the past. After a few I learned the tell tale signs and use to call a friend. Any one of them, and I'd just say I'm starting panic, just chat bollocks to me, about anything but just talk and distract my thoughts. It worked really well for me.
As you can feel them coming on do you have any ideas on what you can do to stop it progressing?
They are horrid things, and embarrassing. I feel you.
Stress / being burnt out
I had my first one after 20+ years in senior management roles, which also involved me being 'on call' 24/7 for 18 years
I got out and took the easy road job wise and they stopped (or very much slowed down)
Now, I have issues with both my parents health (one terminal, one long term) and they have started to make their presence known again "
That's a hard one and I'm sorry to hear about your parents. Mine disappeared after after I ended a relationship which I think speaks volumes. Removing the cause helps like you did with work but they are often a reaction to something you can't control and can't always solve. Finding a coping mechanism helps. But when you feel fine you don't think to. Not easy. |
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By (user no longer on site)
over a year ago
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Great thread PW and hugs to everyone that needs/wants them. It's good to see people opening up and supporting eachother.
Biggest one for me currently is undiagnosed joint pain. Undiagnosed because my Dr is a twat who seems to think walking will heal everything which is wonderful when my legs decide to collapse on me while walking down the stairs. My knees are the worst but it's gradually spreading to other parts of my body and can make daily life a challenge. Like most I have good days and bad. My friends are always aware and I don't meet anyone else for it to be an issue. |
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"I have type one diabetes….
I was 27 when I was diagnosed, at that time I had lost around 3 stone had a terrible thirst, little appetite, suffered from exhaustion among other things but these were the main telling signs something was wrong.
When I was first diagnosed I thought I’d never be able to eat certain things again, or have alcohol, exercise the way I do etc however I have educated myself over the years by attending courses, reading and joining a forum.
I keep active, minimise carbohydrates I eat, and watch my sugar intake.I take my medication daily and check my blood sugar before every meal, the key to managing this condition is consistency
Being insulin dependant means I have to inject myself several times per day, I always advise any potential meet that I am diabetic and that I inject my medication. I don’t feel embarrassed or worried about it at all I need this to live, if someone had an issue with it I’d respect that but I wouldn’t be going to hide in a bathroom to take my medication, which 10yrs ago I may have.
Xx"
Me too and it doesn't effect my sex life just have to eat the right things and ensure my energy levels get topped up |
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By (user no longer on site)
over a year ago
|
"Social anxiety and panic attacks
It's what stops me attending clubs and socials
They have only manifested themselves in later life
I had my first panic attack on a plane and then they started when I was driving
I can feel them coming on and if I do I avoid driving on roads that I can't escape off
I've had panic attacks in the past. After a few I learned the tell tale signs and use to call a friend. Any one of them, and I'd just say I'm starting panic, just chat bollocks to me, about anything but just talk and distract my thoughts. It worked really well for me.
As you can feel them coming on do you have any ideas on what you can do to stop it progressing?
They are horrid things, and embarrassing. I feel you.
Stress / being burnt out
I had my first one after 20+ years in senior management roles, which also involved me being 'on call' 24/7 for 18 years
I got out and took the easy road job wise and they stopped (or very much slowed down)
Now, I have issues with both my parents health (one terminal, one long term) and they have started to make their presence known again "
Have you tried the 5 4 3 2 1 method? |
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Mr KC - Aspergers and a degree of social anxiety
Me - I'm a wreck
Multiple prolapsed discs, especially the completely bust L4/5 one that crushed the L4 nerve root
SI joint dysfunction, pubis symphisis separation
Lumbosacral plexus nerve injury caused by pregnancy, caused weakness to all muscles in my left hip/leg/foot and neuropathic pain
Prolapsed uterus
Rectocele (partly repaired)
Mild bladder prolapse
Left shoulder impingement
Underactive thyroid
Lactose intolerance
Bile salt malabsorption
Under investigation for Sjögrens
I my sexy red wheelchair  |
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"I have too many to mention, but possibly the most ‘important’ one for here is that I have Lichen Sclerosis. I was diagnosed with it after being misdiagnosed with recurring thrush, because many of the symptoms are the same except that there is none of the discharge you get with thrush, and you get ‘white plaques’ on the skin. LS is an autoimmune disorder that attacks the genital area. Because mine was misdiagnosed it cause atrophy of the vagina and clit. This now means that I don’t have very good nerve endings in my clit, and my vag can no longer accommodate very big cocks. I’m probably one of the few who now prefer a smaller more average sized member, but as they say, it’s not the size, it’s what is done with it that matters. After all is said and done, I now prefer anal. Getting an orgasm is nigh on impossible, but I still enjoy sex.
If any lady has been diagnosed with LS and wants to talk about it, just let me know. My preferences for ladies is turned off, but I can reverse that if needed. "
I also have this, I was lucky enough to be aware of what it is and went to my doctor armed with a self-diagnosis and she agreed! Got there early with the steroid ointment and *touch wood* it seems to be in remission for now. I’m sorry you struggled with a diagnosis. I saw the practice nurse first who said she couldn’t see anything (mine wasn’t external) but took myself back to see a doctor x
I’m also currently battling health anxiety which is a complete bitch. I’m having CBT so fingers crossed it will ease at some point! |
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