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By (user no longer on site)
over a year ago
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Methotrexate is horrible. It wipes you out so much.
Admittedly I don't take it daily or anything like those for R, Arthritis do. But I had an injection of it once and I couldn't get out of bed and was wiped out for a few days. |
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By (user no longer on site) OP
over a year ago
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"Whatever the reason for taking it is, I hope you are okay, OP. My meds are a bit different, but I only function with my daily pregabalin  "
Not my meds but I am the 1 administering them, I just wish I could take it all away but I can't  |
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By (user no longer on site)
over a year ago
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"Methotrexate is horrible. It wipes you out so much.
Admittedly I don't take it daily or anything like those for R, Arthritis do. But I had an injection of it once and I couldn't get out of bed and was wiped out for a few days. "
oh |
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By (user no longer on site) OP
over a year ago
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"Methotrexate is horrible. It wipes you out so much.
Admittedly I don't take it daily or anything like those for R, Arthritis do. But I had an injection of it once and I couldn't get out of bed and was wiped out for a few days. "
She's been on them since last June, had NO side effects as such and then a month ago was advised to stop the meds to allow her blood cells to come back up, started again 3 weeks ago and it's now causing nausea |
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"Whatever the reason for taking it is, I hope you are okay, OP. My meds are a bit different, but I only function with my daily pregabalin
Not my meds but I am the 1 administering them, I just wish I could take it all away but I can't "
Ah. Yes, seeing a loved one ill etc is horrible. Mr KC has been an absolute rock with the disability that I acquired 4 years ago. I couldn't have done it without him  |
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Really feel for the OP as I am a full time carer for a family member and seeing someone you love in pain or suffering is probably one of the hardest things in the world, I have wished for that magic wand myself many times. |
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By (user no longer on site) OP
over a year ago
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"Whatever the reason for taking it is, I hope you are okay, OP. My meds are a bit different, but I only function with my daily pregabalin
Not my meds but I am the 1 administering them, I just wish I could take it all away but I can't
Ah. Yes, seeing a loved one ill etc is horrible. Mr KC has been an absolute rock with the disability that I acquired 4 years ago. I couldn't have done it without him "
Its a mix of emotions
Anger mainly but it's a different type of anger and I can't help feeling it, there's literally nothing I can do except listen to the professionals and carry on doing the things I'm doing, it's not fair, but then what ever is |
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By (user no longer on site) OP
over a year ago
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"Really feel for the OP as I am a full time carer for a family member and seeing someone you love in pain or suffering is probably one of the hardest things in the world, I have wished for that magic wand myself many times."
1 day my little girl is going to be called names, ( ugly ) Its killing me |
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"Whatever the reason for taking it is, I hope you are okay, OP. My meds are a bit different, but I only function with my daily pregabalin
Not my meds but I am the 1 administering them, I just wish I could take it all away but I can't
Ah. Yes, seeing a loved one ill etc is horrible. Mr KC has been an absolute rock with the disability that I acquired 4 years ago. I couldn't have done it without him
Its a mix of emotions
Anger mainly but it's a different type of anger and I can't help feeling it, there's literally nothing I can do except listen to the professionals and carry on doing the things I'm doing, it's not fair, but then what ever is "
I'm sure you'll keep doing your best to support whoever it is and remember there are organisations out there to support carers, Carers UK being a big one. You can access support and counselling etc, because the burden of being a carer is immense, as is the burden of illness. |
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By (user no longer on site) OP
over a year ago
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"Whatever the reason for taking it is, I hope you are okay, OP. My meds are a bit different, but I only function with my daily pregabalin
Not my meds but I am the 1 administering them, I just wish I could take it all away but I can't
Ah. Yes, seeing a loved one ill etc is horrible. Mr KC has been an absolute rock with the disability that I acquired 4 years ago. I couldn't have done it without him
Its a mix of emotions
Anger mainly but it's a different type of anger and I can't help feeling it, there's literally nothing I can do except listen to the professionals and carry on doing the things I'm doing, it's not fair, but then what ever is
I'm sure you'll keep doing your best to support whoever it is and remember there are organisations out there to support carers, Carers UK being a big one. You can access support and counselling etc, because the burden of being a carer is immense, as is the burden of illness."
It is immense  |
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OP, a guy I know has a son born with a very rare condition that affects his skin, as well as lots of other things, but with the great treatment he gets etc, this lad is living a normal life. Try not to worry about the future and what might be, and focus on the here and now and what your family member needs from you |
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"Really feel for the OP as I am a full time carer for a family member and seeing someone you love in pain or suffering is probably one of the hardest things in the world, I have wished for that magic wand myself many times.
1 day my little girl is going to be called names, ( ugly ) Its killing me "
Anyone that does things like that because of someone's illness/disability doesn't deserve the oxygen they are wasting, also remember for every one that says such hateful things there will be many that will not and will say the most lovely things instead. |
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By (user no longer on site)
over a year ago
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Heart wrenching to read this op...find somewhere you can scream and cry at the top of your voice and maybe someone you feel safe doing this with...sending caring vibes |
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By (user no longer on site) OP
over a year ago
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"OP, a guy I know has a son born with a very rare condition that affects his skin, as well as lots of other things, but with the great treatment he gets etc, this lad is living a normal life. Try not to worry about the future and what might be, and focus on the here and now and what your family member needs from you "
That's what this is, a rare auto immune disease that attacks the skin bone and tissue |
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By (user no longer on site) OP
over a year ago
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"Really feel for the OP as I am a full time carer for a family member and seeing someone you love in pain or suffering is probably one of the hardest things in the world, I have wished for that magic wand myself many times.
1 day my little girl is going to be called names, ( ugly ) Its killing me
Anyone that does things like that because of someone's illness/disability doesn't deserve the oxygen they are wasting, also remember for every one that says such hateful things there will be many that will not and will say the most lovely things instead."
I know pal, it's just difficult seeing anything positive |
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"OP, a guy I know has a son born with a very rare condition that affects his skin, as well as lots of other things, but with the great treatment he gets etc, this lad is living a normal life. Try not to worry about the future and what might be, and focus on the here and now and what your family member needs from you
That's what this is, a rare auto immune disease that attacks the skin bone and tissue "
However rare a condition, there will be support groups. The lad I referred to above, there's a single digit number of people with the condition but they have found support. |
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