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Restless legs syndrome!
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By (user no longer on site) OP
over a year ago
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Does anyone else suffer with this ? It’s the most annoying sleep stealing frickin thing out of any problem I’ve ever had!!! I’ve tried all sorts over the years the latest thing is ropinerole from the docs but even that is hit and miss , any tips gratefully received  |
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By (user no longer on site)
over a year ago
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"Does anyone else suffer with this ? It’s the most annoying sleep stealing frickin thing out of any problem I’ve ever had!!! I’ve tried all sorts over the years the latest thing is ropinerole from the docs but even that is hit and miss , any tips gratefully received "
Weed?
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By (user no longer on site)
over a year ago
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My Ex-Mrs had this fukn thing 
It drove me nuts.
Constant flapping of her feet in bed and legs moving when I tried to sleep 
Exercise is key, tire those leg muscles out  |
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By (user no longer on site) OP
over a year ago
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"Does anyone else suffer with this ? It’s the most annoying sleep stealing frickin thing out of any problem I’ve ever had!!! I’ve tried all sorts over the years the latest thing is ropinerole from the docs but even that is hit and miss , any tips gratefully received
Weed?
"
Erm possibly but not my thing ! |
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By (user no longer on site) OP
over a year ago
|
"My Ex-Mrs had this fukn thing
It drove me nuts.
Constant flapping of her feet in bed and legs moving when I tried to sleep
Exercise is key, tire those leg muscles out "
I can do a 15 hour shift at work and it’s still the same  |
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By *asmeenTV/TS
over a year ago
STOKE ON TRENT |
"My Ex-Mrs had this fukn thing
It drove me nuts.
Constant flapping of her feet in bed and legs moving when I tried to sleep
Exercise is key, tire those leg muscles out
I can do a 15 hour shift at work and it’s still the same "
Massage with deep heat and no dont try xxx |
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By (user no longer on site) OP
over a year ago
|
"My Ex-Mrs had this fukn thing
It drove me nuts.
Constant flapping of her feet in bed and legs moving when I tried to sleep
Exercise is key, tire those leg muscles out
I can do a 15 hour shift at work and it’s still the same
Massage with deep heat and no dont try xxx"
Haven’t tried deep heat , thank you x |
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By (user no longer on site) OP
over a year ago
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"The only thing that helped me was stretching and a weighted blanket. It’s awful "
Weighted blanket? Good idea, I am in tears some nights I just want to sleep! X |
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By *asmeenTV/TS
over a year ago
STOKE ON TRENT |
"My Ex-Mrs had this fukn thing
It drove me nuts.
Constant flapping of her feet in bed and legs moving when I tried to sleep
Exercise is key, tire those leg muscles out
I can do a 15 hour shift at work and it’s still the same
Massage with deep heat and no dont try xxx
Haven’t tried deep heat , thank you x"
Xx |
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By (user no longer on site) OP
over a year ago
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"Have you tried magnesium?
Yes in tablet from and cream x
It really is the worst thing!! Hope you find something that works for you!! "
Thank you yes it’s awful x |
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By (user no longer on site)
over a year ago
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"Listen to the Half Man Half Biscuit song about just this subject. They have some ideas on that."
I just have been quoting it as you posted x what a band |
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"The only thing that helped me was stretching and a weighted blanket. It’s awful
Weighted blanket? Good idea, I am in tears some nights I just want to sleep! X"
I feel your pain. It’s the most frustrating thing!! I find wrapping my legs in sheets and weighting them down really helps, once I’m comfy I concentrate on breathing to relax and distract myself. |
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By (user no longer on site)
over a year ago
|
"My Ex-Mrs had this fukn thing
It drove me nuts.
Constant flapping of her feet in bed and legs moving when I tried to sleep
Exercise is key, tire those leg muscles out
I can do a 15 hour shift at work and it’s still the same "
Wowsers 
Some good ideas here. Hope they help.
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By (user no longer on site) OP
over a year ago
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""Milky drink and Sudafed", that should sort me out she said, as I kicked myself clean out of the bed and grazed my restless legs... "
I’ve kicked the poor dog many times ! X |
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By (user no longer on site) OP
over a year ago
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"The only thing that helped me was stretching and a weighted blanket. It’s awful
Weighted blanket? Good idea, I am in tears some nights I just want to sleep! X
I feel your pain. It’s the most frustrating thing!! I find wrapping my legs in sheets and weighting them down really helps, once I’m comfy I concentrate on breathing to relax and distract myself. "
Seems the weighted blanket is a good choice, thank you x |
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By (user no longer on site) OP
over a year ago
|
"My Ex-Mrs had this fukn thing
It drove me nuts.
Constant flapping of her feet in bed and legs moving when I tried to sleep
Exercise is key, tire those leg muscles out
I can do a 15 hour shift at work and it’s still the same
Wowsers
Some good ideas here. Hope they help.
"
Thanks Cindi will definitely be trying some of these x |
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By (user no longer on site) OP
over a year ago
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"I don't know anything about it.
How long have you had it for?
It would definitely get me down not being able to sleep!
Does it come and go, or always there.
Hope it eases off for you x"
I’ve had it on and off since my teens , it used to come and go every few weeks but the last 6 months it’s been relentless and there’s never and pattern to what makes it worse , I mean in the grand scheme of things It could be worse it’s just bloody annoying and the lack of sleep is sometimes a killer x |
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By *ENGUYMan
over a year ago
Hull |
I have a variation of this, but linked to my Osteoarthritic knees, when pain kicks in at intervals throughout sleeping, and causes the legs to jerk and move involuntarily, thus creating more pain and waking new up. Some times it can reach to my feet, contorting them outside of my control.
I seldom get a full night's sleep. |
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By (user no longer on site) OP
over a year ago
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"Try stretching your hamstrings before sleep and sometimes taking a quinine tablet helps too.
Good luck. "
I’ve tried the quinine to no avail but will definitely try the stretching thank you x |
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By (user no longer on site) OP
over a year ago
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"I have a variation of this, but linked to my Osteoarthritic knees, when pain kicks in at intervals throughout sleeping, and causes the legs to jerk and move involuntarily, thus creating more pain and waking new up. Some times it can reach to my feet, contorting them outside of my control.
I seldom get a full night's sleep."
That’s interesting as I also have bad arthritis in my knees which has got worse over the last year, horrible isn’t it ?! X |
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"Does anyone else suffer with this ? It’s the most annoying sleep stealing frickin thing out of any problem I’ve ever had!!! I’ve tried all sorts over the years the latest thing is ropinerole from the docs but even that is hit and miss , any tips gratefully received "
I suffer with insomnia so sleep is hard for me but a good CBD oil dose help.
Can I ask how much do you drink water and alcohol during the day. |
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"I don't know anything about it.
How long have you had it for?
It would definitely get me down not being able to sleep!
Does it come and go, or always there.
Hope it eases off for you x
I’ve had it on and off since my teens , it used to come and go every few weeks but the last 6 months it’s been relentless and there’s never and pattern to what makes it worse , I mean in the grand scheme of things It could be worse it’s just bloody annoying and the lack of sleep is sometimes a killer x"
Yes..I suppose in the grand scheme of things they could be.
But, still things like this can get one down.
I had a recurring back pain and it made me so miserable. It was relentless..it kind of took over.
Thankfully it eased off!
I really hope yours does too and soon you get a good night's sleep x |
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By *ENGUYMan
over a year ago
Hull |
"I have a variation of this, but linked to my Osteoarthritic knees, when pain kicks in at intervals throughout sleeping, and causes the legs to jerk and move involuntarily, thus creating more pain and waking new up. Some times it can reach to my feet, contorting them outside of my control.
I seldom get a full night's sleep.
That’s interesting as I also have bad arthritis in my knees which has got worse over the last year, horrible isn’t it ?! X"
I'm at Stage 4 (severe) in both knees, both hands and wrists. But I saw a consultant surgeon on Wednesday, at my local BUPA hospital which is doing a lot of the routine surgical Operations which the NHS can't do due to lack of normal capacity. I'm having a new knee joint in October / November.
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I get this. Its horrendous at times and the aching and cramping and last for hours. I've also had it in my arms. I've tried the heat rubs. Sometimes they help but not for long at all. Other times wrapping my legs tightly in a warm blanket under the duvet can help, other times nothing does..and although mostly at night it can happen in the car or cinema.. |
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"My Ex-Mrs had this fukn thing
It drove me nuts.
Constant flapping of her feet in bed and legs moving when I tried to sleep
Exercise is key, tire those leg muscles out
I can do a 15 hour shift at work and it’s still the same
Massage with deep heat and no dont try xxx
Haven’t tried deep heat , thank you x"
If you try the deep heat for heaven's sake wash your hands afterwards and don't get it anywhere near your delicate bits. Hope it works. Good luck |
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By *asmeenTV/TS
over a year ago
STOKE ON TRENT |
"My Ex-Mrs had this fukn thing
It drove me nuts.
Constant flapping of her feet in bed and legs moving when I tried to sleep
Exercise is key, tire those leg muscles out
I can do a 15 hour shift at work and it’s still the same
Massage with deep heat and no dont try xxx
Haven’t tried deep heat , thank you x
If you try the deep heat for heaven's sake wash your hands afterwards and don't get it anywhere near your delicate bits. Hope it works. Good luck"
Obviously  |
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By (user no longer on site)
over a year ago
|
"My Ex-Mrs had this fukn thing
It drove me nuts.
Constant flapping of her feet in bed and legs moving when I tried to sleep
Exercise is key, tire those leg muscles out
I can do a 15 hour shift at work and it’s still the same
Massage with deep heat and no dont try xxx
Haven’t tried deep heat , thank you x
If you try the deep heat for heaven's sake wash your hands afterwards and don't get it anywhere near your delicate bits. Hope it works. Good luck"
Great advice. It’s like that mint source shower gel, multiply it by an amount greater than 100 and then you’re half way there |
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"I have a variation of this, but linked to my Osteoarthritic knees, when pain kicks in at intervals throughout sleeping, and causes the legs to jerk and move involuntarily, thus creating more pain and waking new up. Some times it can reach to my feet, contorting them outside of my control.
I seldom get a full night's sleep.
That’s interesting as I also have bad arthritis in my knees which has got worse over the last year, horrible isn’t it ?! X
I'm at Stage 4 (severe) in both knees, both hands and wrists. But I saw a consultant surgeon on Wednesday, at my local BUPA hospital which is doing a lot of the routine surgical Operations which the NHS can't do due to lack of normal capacity. I'm having a new knee joint in October / November.
"
Can I ask when did you Osteoarthritis start had mine diagnosed when I was 50 and it's not going well waiting to chat to pain management on the 26th |
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By (user no longer on site)
over a year ago
|
"I get this. Its horrendous at times and the aching and cramping and last for hours. I've also had it in my arms. I've tried the heat rubs. Sometimes they help but not for long at all. Other times wrapping my legs tightly in a warm blanket under the duvet can help, other times nothing does..and although mostly at night it can happen in the car or cinema.."
This is just like mine .. any where I relax .. not tried wrapping them going to give that a go .. stretching does help some nights .. |
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By *ENGUYMan
over a year ago
Hull |
"I have a variation of this, but linked to my Osteoarthritic knees, when pain kicks in at intervals throughout sleeping, and causes the legs to jerk and move involuntarily, thus creating more pain and waking new up. Some times it can reach to my feet, contorting them outside of my control.
I seldom get a full night's sleep.
That’s interesting as I also have bad arthritis in my knees which has got worse over the last year, horrible isn’t it ?! X
I'm at Stage 4 (severe) in both knees, both hands and wrists. But I saw a consultant surgeon on Wednesday, at my local BUPA hospital which is doing a lot of the routine surgical Operations which the NHS can't do due to lack of normal capacity. I'm having a new knee joint in October / November.
Can I ask when did you Osteoarthritis start had mine diagnosed when I was 50 and it's not going well waiting to chat to pain management on the 26th "
Mine was first diagnosed 11 years ago, when I was 54; that was in my knees. It only reached stage 4, 18 months ago.
But the right hand was only first diagnosed 2 years ago, but is already at Stage 4. The left hand developed sometime from February 2019 to August last year when I was on an Osteoarthritis Pain Relief Drug Trial, which masked all O/A pains. That hand is now at Stage 4 too.
Current pain meds work 50% in my knees but nowhere else. |
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By *ENGUYMan
over a year ago
Hull |
"Above knee double amputation should sort that out.
More seriously, check B12 levels"
Strangely enough, that's what my GP said recently, got blood tested and it was a B12 Deficiency, do now on 2 months meds for that. |
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I’m 35 I’ve had RLS for years also suffer from burning feet
I’m on lyrica for the pain kinda helps
I smoke to relax also helps
Take a bath before bed
I cut alcohol seemed to work
If it’s really bad night for it try putting the tv in bedroom on so u can barely hear it and try to set your brain to work out what they saying this helps me take my mind off my legs also works to help me sleep
Hope some of this helps cos it sucks |
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By (user no longer on site)
over a year ago
|
I’ve suffered with this since my teens, my sister and my father also therefore I think a generic link.
I have watched programmes on it and they believe it’s neurological rather than physical.
A lot of people & GPs wrongly diagnose it though and connect it with cramps etc
For me I can feel it building, I know it’s going to start and I plan lol
Being on a plane is the worst when it starts!!
Try going to bed earlier as it does happen more when you’re tired... for me the easiest cure is to have an orgasm! It gets the blood pumping quickly, if you can sleep straight after a play then you should get some decent sleep.
Good luck to you sweet x |
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By (user no longer on site)
over a year ago
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I used to get this a lot after swimming.
What worked for me: plenty of recovery if its due to exercise, mostly when my nutrition was right I didn’t get it.
If its not related to exercise: foam roll - a goos stretch and deep massage of the muscle, gets the blood going, this or a massage gun, worked for me when I got restless legs and could’t put it down to any activity I was doing.
Minimise salt intake. I avoided baths/showers too close to bed. You would think this helps you wind down and relax, for me and others it can affect your body regulating its temperature and give you that unsettled bed time feeling.
Sorry Im rambling, the above works for me, I guess it depends on the cause. Everyones body is different but good lifestyle changes as others here have mentioned may help, i.e cut down or out on smoking/alcohol, exercise during the day, try out some supplements etc... |
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"I have a variation of this, but linked to my Osteoarthritic knees, when pain kicks in at intervals throughout sleeping, and causes the legs to jerk and move involuntarily, thus creating more pain and waking new up. Some times it can reach to my feet, contorting them outside of my control.
I seldom get a full night's sleep.
That’s interesting as I also have bad arthritis in my knees which has got worse over the last year, horrible isn’t it ?! X
I'm at Stage 4 (severe) in both knees, both hands and wrists. But I saw a consultant surgeon on Wednesday, at my local BUPA hospital which is doing a lot of the routine surgical Operations which the NHS can't do due to lack of normal capacity. I'm having a new knee joint in October / November.
Can I ask when did you Osteoarthritis start had mine diagnosed when I was 50 and it's not going well waiting to chat to pain management on the 26th
Mine was first diagnosed 11 years ago, when I was 54; that was in my knees. It only reached stage 4, 18 months ago.
But the right hand was only first diagnosed 2 years ago, but is already at Stage 4. The left hand developed sometime from February 2019 to August last year when I was on an Osteoarthritis Pain Relief Drug Trial, which masked all O/A pains. That hand is now at Stage 4 too.
Current pain meds work 50% in my knees but nowhere else."
Thanks for telling it like it is as an electrical engineer life looks pain full for some time to come I ware a brace on my left hand/arm to help but am losing strength I all joints quite quick
Most of the time the pain is not to bad but when I'm working on a heavy job it's quite acute.
Also have triger finger in my right hand |
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I've had restless legs for years and it's often miserable. Best thing I've tried is magnesium supplements. I've been taking them for six weeks and the problem has pretty much gone.
I found a hot water bottle filled with cold water helps too. |
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Its the most horrendous thing, I suffered very badly with it when I was pregnant with my 5th....I tried everything their was...even tried the damp socks...I felt that just made it worse. I spent over 6 weeks with no sleep because of it..my iron levels were low so midwife told me to take my pregacare tablets..unbeknown to be that this stopped the restless legs after a few nights of starting them again...I looked into what I could be lacking in that would cause restless leg and was infact magnesium and probably a few other things...so only a suggestion maybe try some multi vitamins...Good luck xx |
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By (user no longer on site) OP
over a year ago
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Thank you all for your responses and advice, I’ve got a phone appointment with the docs Monday so might ask for a blood test to check my iron levels, and also try a few things that people have mentioned that I’ve not already tried x |
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In my younger days never knew this was a thing. Hubby used to move his legs all through the night ......
I took it in my stride most times but would also thump the fuck out of him and tell him to stop it .... poor bugger. |
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By (user no longer on site)
over a year ago
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The following has worked for me:
Magnesium supplements (but they take a few weeks to really kick in, the mouth spray is good too)
Better sleep magnesium spray oil
Epsom salt baths
Weighted blanket
Leg stretches before bed
Ensure you are hydrated
Don't let yourself get too overtired
They are an absolute ballache xx
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By (user no longer on site) OP
over a year ago
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"In my younger days never knew this was a thing. Hubby used to move his legs all through the night ......
I took it in my stride most times but would also thump the fuck out of him and tell him to stop it .... poor bugger."
Luckily D is a heavy sleeper lol ! |
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By *viatrixWoman
over a year ago
Redhill |
I’ve had it on and off since my second pregnancy 14 years ago. It is horrible...
Have you tried a bar of soap, Castille or Marseille? There’s a belief that the lye in the soap helps. Don’t know if it’s true or the placebo effect, but it dies work! They recommend placing the soap between the mattress and the fitted sheet, but sometimes I rub the dry bar on my calves and leave it on the bed, my legs touching it. It really, really helps me. I hope it helps you too! x |
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By (user no longer on site)
over a year ago
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Mine seems to be related to not eating enough, so exercise can make it worse given that it increases your nutritional needs, so I try to make sure I get plenty of calories. Problem is, after a few rough nights, my appetite goes and it becomes a vicious cycle. Also seems to get me more autumn time when the temperature drops, same sort of thing I imagine. |
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"Does anyone else suffer with this ? It’s the most annoying sleep stealing frickin thing out of any problem I’ve ever had!!! I’ve tried all sorts over the years the latest thing is ropinerole from the docs but even that is hit and miss , any tips gratefully received "
What dosage of ropinerole are you on, they may be able to up it. I'm on 2mg tablets twice a day |
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By (user no longer on site) OP
over a year ago
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"Does anyone else suffer with this ? It’s the most annoying sleep stealing frickin thing out of any problem I’ve ever had!!! I’ve tried all sorts over the years the latest thing is ropinerole from the docs but even that is hit and miss , any tips gratefully received
What dosage of ropinerole are you on, they may be able to up it. I'm on 2mg tablets twice a day"
Well the last two nights I’ve gone up to 4mg after a quick check with the docs and it’s been a bit better x |
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By (user no longer on site)
over a year ago
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"Thank you all for your responses and advice, I’ve got a phone appointment with the docs Monday so might ask for a blood test to check my iron levels, and also try a few things that people have mentioned that I’ve not already tried x"
I have been prescribed Quinine Sulfate by my GP for said condition.
Some very interesting answers in the thread.
Personally, exercise before bed didn't work, not tried deep heat but I found a cold damp towel half hour before bed worked. |
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By *not123Couple
over a year ago
sp1 |
"Does anyone else suffer with this ? It’s the most annoying sleep stealing frickin thing out of any problem I’ve ever had!!! I’ve tried all sorts over the years the latest thing is ropinerole from the docs but even that is hit and miss , any tips gratefully received "
does that not work very well I was considering going to doctors to asked about it , it drives me crazy some nights end up getting up |
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By (user no longer on site)
over a year ago
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"Does anyone else suffer with this ? It’s the most annoying sleep stealing frickin thing out of any problem I’ve ever had!!! I’ve tried all sorts over the years the latest thing is ropinerole from the docs but even that is hit and miss , any tips gratefully received
What dosage of ropinerole are you on, they may be able to up it. I'm on 2mg tablets twice a day
Well the last two nights I’ve gone up to 4mg after a quick check with the docs and it’s been a bit better x"
Have you found it comes and goes? The more you think about it etc the worse it is? |
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"I get it the whole time and actually only started after I started having problems with my knee and I also keep getting a cramp in my calf during the night.."
I've started running again x trying to do 3 x5k a week so normally muscles are warmed up and stretched x but pain from hip down and cramping in calves is becoming a nightly occurrence x
Tried weighted blanket but no use
Taking an unit before bed eases it but probably not a long term solution x |
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"I get it the whole time and actually only started after I started having problems with my knee and I also keep getting a cramp in my calf during the night..
I've started running again x trying to do 3 x5k a week so normally muscles are warmed up and stretched x but pain from hip down and cramping in calves is becoming a nightly occurrence x
Tried weighted blanket but no use
Taking an unit before bed eases it but probably not a long term solution x"
Not unit before bed - Ibuprofen- was auto correct |
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By (user no longer on site)
over a year ago
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I have it terrible, I'm always getting tingly legs when I lay down in bed, even if I've had a busy on my feet day. And I can't stop moving them as soon as I get into bed, never found a cure. |
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By *adame BWoman
over a year ago
C'est moi Boudoir |
I have back issues as well as joints and have to have B12 injections all the time so firmly believe that there is a link.
Restless legs and cramping are rotten to deal with. Managed to lock my back the other night after getting out of bed to stretch legs! Was in bits after it. Thanks for posting op, some great tips here.
Electric blanket, anti inflammatory gels and tens machine are my saving grace. I try to go easy on meds as I don't want to be out of it and that seems to be the only setting! |
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By (user no longer on site)
over a year ago
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I too have suffered with this for years. I am on Roprinarole and was on the maximum dose of 4 tabs before bed. I found that the longer I took them the earlier in the evening I would get my symptoms and they were really bad. I have now gradually reduced the dose (over several months) to just one tablet before bed. I couldn’t cope without any, I did try.
I’ve found since living alone and hence sleeping mostly alone I’m better. Or I just don’t realise as I’m not constantly being woken up by my ex who was a very light sleeper. My boyfriend now doesn’t get affected by me if I am restless. |
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By (user no longer on site)
over a year ago
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"The only thing that helped me was stretching and a weighted blanket. It’s awful
Weighted blanket? Good idea, I am in tears some nights I just want to sleep! X"
I also found this helpful. Hope you find a solution, it is deeply frustrating. Good luck |
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Try wearing socks in bed. Your ankle is the weakest and lowest point in your blood flow system therefore it has to work harder to return to your heart. If you wear socks it’s applies a degree of pressure around your ankle to assist circulation
Try half a banana for the potassium content
Hot water bottle or wheat ban across your feer |
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"Try wearing socks in bed. Your ankle is the weakest and lowest point in your blood flow system therefore it has to work harder to return to your heart. If you wear socks it’s applies a degree of pressure around your ankle to assist circulation
Try half a banana for the potassium content
Hot water bottle or wheat ban across your feer"
Wheat bag* |
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By (user no longer on site) OP
over a year ago
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"Try wearing socks in bed. Your ankle is the weakest and lowest point in your blood flow system therefore it has to work harder to return to your heart. If you wear socks it’s applies a degree of pressure around your ankle to assist circulation
Try half a banana for the potassium content
Hot water bottle or wheat ban across your feer"
I have found my feet are getting way more cold than they ever have ?! Thank you x |
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