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Stomas

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By (user no longer on site) OP     over a year ago

Having recently had surgery to remove the bowel cancer I had, I now have a stoma (bag on my belly). It's not permeant but I'm struggling with it. Has anyone got/had one and how did you deal with it?

Thanks

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By (user no longer on site)  over a year ago

I’m sorry to hear this OP.

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By *innamon!Woman  over a year ago

no matter

A few people on TikTok talk about their stomas . They seem to be happy to show and tell . Very informative . Go have a look . Must be a shock for you, hope they caught the cancer in time x

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By (user no longer on site)  over a year ago


"A few people on TikTok talk about their stomas . They seem to be happy to show and tell . Very informative . Go have a look . Must be a shock for you, hope they caught the cancer in time x "

Yes there is a stoma guy who has quite a big following.

Good luck OP x

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By (user no longer on site) OP     over a year ago

Thanks I'll check it out. I know it's a confidence thing. Trusting the stoma to stay there when I'm out or even when I get to have sex. But right now I haven't got it. Which is causing me to get nervous when I go out. I'm pushing through it, but it's hard.

Yer caught it early so I've been told no need for chemotherapy after this now. Just check ups

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By (user no longer on site)  over a year ago

I'm glad they caught the cancer. A stoma takes a lot of adjustment, but over time you'll get used to living with it, and your confidence will grow. There are some great social media resources now as already mentioned.

The websites salts.co.uk and iossg.org.uk have lists of regional and national support groups you can contact - to chatting with people in your area having similar daily experiences can be helpful for picking up practical tips as well as support.

If you run into any difficulties or have any questions, use your stoma nurse. They're a mine of useful information and will be happy to help. They've seen and heard it all before, so don't be embarrassed.

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By (user no longer on site)  over a year ago

There’s also a company called Vanilla Blush. They will sort underwear and a hernia belt via the nhs for you. The underwear really helps especially with confidence

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By *imiUKMan  over a year ago

Hereford

I've had one since I was 22 - It's not stopped me from doing any thing, really.

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By *imiUKMan  over a year ago

Hereford


"There’s also a company called Vanilla Blush. They will sort underwear and a hernia belt via the nhs for you. The underwear really helps especially with confidence "

I like the comfizz supports, they do a sports one too..

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By (user no longer on site) OP     over a year ago

Cheers everyone. It's honestly cheered me up seeing there are more people on here that have one. It's strange how not feeling alone can make it feel easier

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By (user no longer on site)  over a year ago

Good luck op, I have no info to share but wish you the best of luck going forward

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By (user no longer on site)  over a year ago

Onwards and upwards

Met a guy at a club..he had stoma.. he just wore his t shirt which covered it.

Nobody mentioned it..

He was a lovely chap.

Time and confidence

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By (user no longer on site) OP     over a year ago

As daft as it sounds I think actually having sex to get my self over it will eventually help. I went to the shops for the first time today and the nerves had be sweating like mad. I was on the verge of panicking cos I was that worried about something going wrong with it. But I did it and I'll do it again tomorrow.

Hopefully being naked infront of a lass will help me get over the confidence issue then I can move on from that.

Just need my body to agree with my mind that I'm ready for that though lol.

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By *indergirlWoman  over a year ago

somewhere, someplace

Mrcolitischrohns give him a look up on insta etc. His goal is to rid the stigma and embarrassment people feel over having a stoma xx

Sending hugs and positive vibes xx

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By (user no longer on site)  over a year ago

Firstly, congrats on kicking cancer's ass!

As for the stoma, it certainly wouldn't put us off meeting someone we liked!

As others have mentioned, there are some awesome people on tiktok raising awareness.

All the best for the future and getting your confidence back.

Cancer survivor myself (breast), my inbox is always open

Lu

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