 |
By *acey_Red OP Woman
over a year ago
Liverpool |
Ouuuuccccchhhhh. Anyone else ever had them? It's only just calmed down enough to be bearable after a couple of hours. It felt like my eye socket, cheekbone and upper jaw were going to explode out of my face!! |
Reply privately, Reply in forum +quote
or View forums list | |
|
By (user no longer on site)
over a year ago
|
"I suffer from migraines
I feel for you
I've only just had my dinner as I had to just go and hide in bed and hold my head  "
I get that with my migraines. It's not fun |
Reply privately, Reply in forum +quote
or View forums list | |
|
By (user no longer on site)
over a year ago
|
Cluster, migraine, postural, occular, thunder clap,you name them I've had them 
Can I ask, what's your favored sleeping position? I read about front sleeping being bad for causing headaches, which I did, I now sleep on my side and I have significantly less clusters. Just a thought.
They are incredibly painful to the point of bashing your head on things in frustration. I feel your pain. I hope you feel better soon. X |
Reply privately, Reply in forum +quote
or View forums list | |
|
By *acey_Red OP Woman
over a year ago
Liverpool |
"Cluster, migraine, postural, occular, thunder clap,you name them I've had them
Can I ask, what's your favored sleeping position? I read about front sleeping being bad for causing headaches, which I did, I now sleep on my side and I have significantly less clusters. Just a thought.
They are incredibly painful to the point of bashing your head on things in frustration. I feel your pain. I hope you feel better soon. X"
I sleep on my side but thank you anyway.
I honestly felt like it. I was squeezing my head like I was trying to hold it together  . It felt like I lost normal sensation and movement in that side of my face at the time. It was really freaky! |
Reply privately, Reply in forum +quote
or View forums list | |
|
By *acey_Red OP Woman
over a year ago
Liverpool |
"Yes I get them when the weather turns. Only think that helps is Novocaine and paracetamol taken together. Hope you feel better soon."
I suspected it was from it being so hot and humid. Thank you. |
Reply privately, Reply in forum +quote
or View forums list | |
|
By (user no longer on site)
over a year ago
|
"Not specifically for headaches, but Superdrug do a hydrating facial spray. I put it in the fridge when it's warm. "
Something like that would be refreshing for this heat! |
Reply privately, Reply in forum +quote
or View forums list | |
"Ouuuuccccchhhhh. Anyone else ever had them? It's only just calmed down enough to be bearable after a couple of hours. It felt like my eye socket, cheekbone and upper jaw were going to explode out of my face!! "
Occasionally when I play golf I end up with headaches like this through dehydration I think it is absolutely awful feeling |
Reply privately, Reply in forum +quote
or View forums list | |
|
By (user no longer on site)
over a year ago
|
Oh you poor thing, i really feel for you
I get them when I'm tired or stressed .... Always feels like a red hot poker has been pushed into my eye, or I've been shot through the eye
Takes a few days for it go..
Tell tale sign is massaging my temple the day before ... Which i never twig at the time
I use paracetamol and try to lie down in a cool, darkened room. Drink lots of water and cool your blood / head / neck |
Reply privately, Reply in forum +quote
or View forums list | |
|
By (user no longer on site)
over a year ago
|
I get them occasionally! And I feel like my head is going to explode. I also get migraines once or twice a week. I find the best thing is Nurofen, water and a dark room.
I've heard masturbation is meant to help but I'm never in the mood to flick my bean when I feel like I'm dying. |
Reply privately, Reply in forum +quote
or View forums list | |
|
By (user no longer on site)
over a year ago
|
If you diagnosed with cluster headaches then you must press your doctors for high flow oxygen.
It is a miracle.
Failing that look in to NATURAL tryptamines for cluster headaches...
first hand experience here. |
Reply privately, Reply in forum +quote
or View forums list | |
I (Mr) have been a sufferer for 18 years. The patterns do change over time and mine have moved from 3 weeks every 3 months to a 3 month period every 3 years - always starting in April. Clusters are a horrendous experience and I struggled for years with getting any meaningful help. However, there is light at the end of the tunnel and triptans are the only way to alleviate my clusters when they are active. As a previous poster mentioned, many people respond well to oxygen delivered through a specific respirator this has proven to be successful for some sufferers with the benefit of having few or no side effects. Unfortunately, oxygen did not work for me at all. Over the last few years I have tried different types of Sumatriptan from tablets which were ineffective, inhalers which did work but were intermittent in effectiveness through to a self injection which has proven to be a life saver. No form of pain killers or lying in a dark room made any difference for me at all but the injections generally work within 5 to 10 minutes. However, most GPs are only relatively familiar with cluster headaches and are reticent to give out the injection pens due to the cost. I suggest you go pre armed with information on treatments as this will help the GP understand the need for appropriate medication. If you haven’t already looked at it, go to the ouch.org site which has a lot of useful information. If you have any specific questions please feel free to pm. |
Reply privately, Reply in forum +quote
or View forums list | |
|
By (user no longer on site)
over a year ago
|
"Ouuuuccccchhhhh. Anyone else ever had them? It's only just calmed down enough to be bearable after a couple of hours. It felt like my eye socket, cheekbone and upper jaw were going to explode out of my face!! "
I've been suffering from chronic cluster headaches since I was 9 years old, so I've been in and out of remission with this absolutely awful condition for over 30 years. I'm outpatient at the National Neurology Hospital in London and see the top consultants in the UK. I posted a video of the last few minutes of an attack on YouTube, I've had over 28k people see it, a company called Vice bought the copyright of it and its now been seen by over 4 million people. And from people who have seen it, I've actually helped people. Lacey Red understandably you have blocked men from messaging you, but if you fancy a chat please get in touch, and actually that goes for anyone who is suffering. Check out the website OUCH |
Reply privately, Reply in forum +quote
or View forums list | |
I have Cluster Headache too, since my mid twenties.
I have Oxygen with a non rebreather mask and if that doesn't work I have Sumatriptan Injections.
OUCH UK and Cluster Headaches.com were a MASSIVE help with their support.
Please don't suffer alone, there is help out there x. |
Reply privately, Reply in forum +quote
or View forums list | |
|
By (user no longer on site)
over a year ago
|
Great responses from you fellow sufferers!
Some solid info there for anyone struggaling with what is a truly awful condition.
Thanks guys and girls .
Anyone who suffers and wants a non sexual chat about it feel free to inbox me .
I’ve suffered for last 8 years |
Reply privately, Reply in forum +quote
or View forums list | |
» Add a new message to this topic
