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Neurodivergent folk appreciation
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By *ingpot! OP Man
over a year ago
West Cork |
Shout out to any ND folk this side of the Irish Sea
Been reading about how common it is to find ND people in atypical sexual relationships, e.g. swinging, kink dynamics, poly, ethical non-monogamy, etc.
My wife and I are Autistic/AuDHD ourselves.. much love and understanding to y'all out there |
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We've a house full to the brim with neurodiverse wonderment. Two kiddies in ASD specialist classes and Laura diagnosed ADHD. Certainly makes life interesting but I wouldn't have it any other way!
I'm not the expert but I know impulsiveness is a big thing with ADHD which I suspect is something that can lead to sexual adventures amongst other things. |
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We also have a house full too. Two girls ADS, O is ADHD and I’m ADS too. Was great when I relished what I was made my life make so much sense. But got to say how much we both love the life style and how relaxed I makes us. |
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"Shout out to any ND folk this side of the Irish Sea
Been reading about how common it is to find ND people in atypical sexual relationships, e.g. swinging, kink dynamics, poly, ethical non-monogamy, etc.
My wife and I are Autistic/AuDHD ourselves.. much love and understanding to y'all out there "
much love and understanding back at ya it's not easy at times, but it can be lots of fun. rubs |
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Another ADHDer here and it explains a lot about why I have found it difficult to be in monogamous relationships over the years. Obviously not speaking for everyone here, but it’s helped me understand and accept. |
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I'm currently waiting on an ADHD assessment and have some sensory processing quirks that make my life quite interesting
It only came to light a few years ago after my long term partner and I seperated. It was my birthday and I gifted myself 6 months of therapy. It was obvious to my therapist immediately.
I can't even begin to describe how I felt having the realisation that I hadn't just been a weirdo for the last 40 years.
I've never read about the affect of neurodiversity in sexual behaviour before so I've learned something here and will look into it.
Cheers. |
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I've always meant to get assessed for ADHD. I definitely had it as a child. Im only self diagnosing, but as an adult, it seems to have manifested itself in my sleep deprivation. I sleep like a log when I go to bed, I just struggle to actually go to bed after some research I've discovered it can be connected to ADHD.
I've bundles of energy, but would love to get to bed earlier!
Mr. |
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There is a new service in Dublin called ADHDdoc I would highly recommend.
There are a lot of old, semi retired psychiatrists that will do assessment but my GP has warned me about outdated thinking and lack of follow up support.
ADHDdoc are launching their online booking service next week and have doubled their assessment capacity this month. |
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By *ingpot! OP Man
over a year ago
West Cork |
"Do! There is a link between ADHD and impulsive promiscuity, and promiscuity in general as well as risk taking behaviour. Also a much higher rate of teenage pregnancy."
Well that explains some things |
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By *ingpot! OP Man
over a year ago
West Cork |
"The hazelton clinic in Cork are doing diagnosis and would recommend. "
I booked with them earlier this year and wasn't aware until after a 3month waiting period that it was only a psychological assessment and not psychiatric (no meds) - my mistake for not doing due diligence.
Booked an online consult with one of the psychs on ADHDIreland and was given a diagnosis and prescription within 30min... feels a bit too quick in my opinion but I have an established history so |
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By *ingpot! OP Man
over a year ago
West Cork |
"Weird as they did a full psychiatric diagnosis with following concerta prescription and monitoring for us. I guess maybe they are fully booked for that now. Either way I hope your meds help!"
Yeah I think it depends on the doc you get in the clinic.. mine was with the one who was listed on ADHDIreland (psychologist) and no one informed me otherwise until the week before
We'll see how things go for me |
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I would never have mentioned my neurodiversity on this forum if it weren't for you guys.
It was a big moment so thanks for that.
Strangely for me, every since I got my (pre) diagnosis I have found that my symptoms have progressed quite a lot. I wonder if having that knowledge helps to subconsciously reduce the mask and pushes me proactively live with my own particular neurological quirks.
I don't suffer particularly except perhaps on a sensory level in certain environments.
In fact what I discovered was to completely trust my creative process and that has catapulted me to the top of my industry.
Neurodiversity can be a superpower. I know it's not like that for everyone but I believe that everyone has it in them. |
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By (user no longer on site)
over a year ago
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Well done OP.. I'm fighting for nearly 3years to get my child seen to, it all started over covid I'm having no luck, I seem to be going to more appointments and getting nowhere ...he's stressed out big time and now he doesn't want to go to any appointments and is blaming me .. |
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By (user no longer on site)
over a year ago
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"Thanks y'all for sharing your experiences!
I think it's good to talk about this stuff openly. There doesn't need to be a stigma. A little patiance and understanding goes a long way "
This. This. And again.. this. |
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"The hazelton clinic in Cork are doing diagnosis and would recommend.
I booked with them earlier this year and wasn't aware until after a 3month waiting period that it was only a psychological assessment and not psychiatric (no meds) - my mistake for not doing due diligence.
Booked an online consult with one of the psychs on ADHDIreland and was given a diagnosis and prescription within 30min... feels a bit too quick in my opinion but I have an established history so "
Sorry to intrude, and you obviously dont have to answer, but already done all the ECG stuff beforehand i presume? |
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By *ingpot! OP Man
over a year ago
West Cork |
"The hazelton clinic in Cork are doing diagnosis and would recommend.
I booked with them earlier this year and wasn't aware until after a 3month waiting period that it was only a psychological assessment and not psychiatric (no meds) - my mistake for not doing due diligence.
Booked an online consult with one of the psychs on ADHDIreland and was given a diagnosis and prescription within 30min... feels a bit too quick in my opinion but I have an established history so
Sorry to intrude, and you obviously dont have to answer, but already done all the ECG stuff beforehand i presume?"
I had my bloods already done and booked an ECG with my GP within the morning - only takes a few minutes |
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"Well done OP.. I'm fighting for nearly 3years to get my child seen to, it all started over covid I'm having no luck, I seem to be going to more appointments and getting nowhere ...he's stressed out big time and now he doesn't want to go to any appointments and is blaming me .. "
Is this for the assessment of need that you're waiting for? It's shameful that it takes so long to get kids seen. |
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"Well done OP.. I'm fighting for nearly 3years to get my child seen to, it all started over covid I'm having no luck, I seem to be going to more appointments and getting nowhere ...he's stressed out big time and now he doesn't want to go to any appointments and is blaming me ..
Is this for the assessment of need that you're waiting for? It's shameful that it takes so long to get kids seen."
Shameful is one word it took them 6yrs to actually start the process for my child. No matter that I had the child in private speech therapy from three yrs old they still wouldn't listen according to the health nurse and then the teachers the child was just "too lazy to speak,too disorganised to pay attention and just generally a bold and unrulely child that disrupted class because sitting still was and still can be an issue but since doing exercise breaks throughout the day the sitting still isn't as bad. I really hope your son gets seen to soon the diagnosis doesn't change much but at least it gives you as a parent a place to start on how to handle their quirks better |
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By *ingpot! OP Man
over a year ago
West Cork |
Oof that is shameful indeed! The private psych I just saw and the public psych I saw as part of the new HSE adult ADHD service both said we should get the kids checked asap due to the genetic component.
Fortunately, we're quite well aware and educated on our own different abilities and can spot and act accordingly with our kids and their school has been very open and understanding, even without formal diagnoses.
I'm really sorry to hear your struggles - it's such a difficult thing to bear when there's a lack of understanding and acknowledgement from the very system that should be helping you. |
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"Oof that is shameful indeed! The private psych I just saw and the public psych I saw as part of the new HSE adult ADHD service both said we should get the kids checked asap due to the genetic component.
Fortunately, we're quite well aware and educated on our own different abilities and can spot and act accordingly with our kids and their school has been very open and understanding, even without formal diagnoses.
I'm really sorry to hear your struggles - it's such a difficult thing to bear when there's a lack of understanding and acknowledgement from the very system that should be helping you."
Ye had a starting point with knowing you yourselves are on the spectrum but when there are older siblings that never caused an ounce of trouble in schools no phone calls from the schools saying you need to come in such and such has done x y or z thats where my issue came in. That is how they came to their conclusion that my child was just "lazy,disruptive and unrulely" now since the diagnosis I can honestly say the schools couldn't have been more understanding and helpful but it took them a long time to finally apologise and acknowledge what was said to me at one of the parent teacher meetings in particular was uncalled for and to then accuse me of allowing the child to be "this way" when basically they told me "well it must be steming from home life and thats where the issues lie because it certainly isn't the schools fault we can't control your child" |
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By *ingpot! OP Man
over a year ago
West Cork |
"Oof that is shameful indeed! The private psych I just saw and the public psych I saw as part of the new HSE adult ADHD service both said we should get the kids checked asap due to the genetic component.
Fortunately, we're quite well aware and educated on our own different abilities and can spot and act accordingly with our kids and their school has been very open and understanding, even without formal diagnoses.
I'm really sorry to hear your struggles - it's such a difficult thing to bear when there's a lack of understanding and acknowledgement from the very system that should be helping you.
Ye had a starting point with knowing you yourselves are on the spectrum but when there are older siblings that never caused an ounce of trouble in schools no phone calls from the schools saying you need to come in such and such has done x y or z thats where my issue came in. That is how they came to their conclusion that my child was just "lazy,disruptive and unrulely" now since the diagnosis I can honestly say the schools couldn't have been more understanding and helpful but it took them a long time to finally apologise and acknowledge what was said to me at one of the parent teacher meetings in particular was uncalled for and to then accuse me of allowing the child to be "this way" when basically they told me "well it must be steming from home life and thats where the issues lie because it certainly isn't the schools fault we can't control your child""
I feel you.. I was that kid growing up. My entire school life (even with an ADHD diagnosis) comprised of "suck it up, don't be lazy, fall in line or get out"
I feel for you and glad to hear some positive came from it eventually but I'm sorry you had to go through that |
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I have this problem at the moment. He had an undiagnosed sensory processing disorder and probable ADHD and litterly gets sick when he is in school.
Yesterday he felt so sick he ask to go home in the morning and the school secretary sent him back to class.
He ask again at lunch time with the same result.
The school did not contact myself or his mom.
We have made them aware of our kids condition so they know the score.
He missed two full months of school last year and had straight A's in every subject.
You'd think they could connect the dots and help. |
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"I have this problem at the moment. He had an undiagnosed sensory processing disorder and probable ADHD and litterly gets sick when he is in school.
Yesterday he felt so sick he ask to go home in the morning and the school secretary sent him back to class.
He ask again at lunch time with the same result.
The school did not contact myself or his mom.
We have made them aware of our kids condition so they know the score.
He missed two full months of school last year and had straight A's in every subject.
You'd think they could connect the dots and help."
I'd be having a word with the principal of the school about that!!!
We regularly get calls from our school and make a decision with the special needs teacher/team as to whether they think our daughter is capable of staying longer with either a sensory or a movement break or whether she's at capacity to what she's able for.
My daughter has started TY this year and it's not going well! She's already showing what I believe to be serious psychosomatic symptoms from the stress of trying most things on her timetable in the first week - she's on her third period in a month and this is something that we control through meds generally because of her heavy flow.
My daughter was on a very reduced timetable for most of the junior cert year after Christmas after a failed suicide attempt.
A number of things came together for her to push her over the edge but the main trigger was the school environment. EVEN with fantastic teamwork with the school and other professionals.
When your additional needs children tell you or their teachers they're sick, please, please, please - listen to them, find out the route cause, find out what can make it better or easier. We have so many knock-on effects from the suicide attempt health wise that has made life even more difficult in certain areas...
Wishing you and your child all the best x |
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"Well done OP.. I'm fighting for nearly 3years to get my child seen to, it all started over covid I'm having no luck, I seem to be going to more appointments and getting nowhere ...he's stressed out big time and now he doesn't want to go to any appointments and is blaming me .. "
If you have been referred to the CDNT or Children's Disability Network Team through your GP, they have to assess your child with an Assessment of need within 3 months of referral by law.
If this is what you're waiting for and longer than that, then I suggest you get onto your local TDs, a solicitor and get yourself into the associated fake book group who have parents giving vast amounts of advice, tips and tricks for anything disability related...pm me for the details if you like |
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I think it's taking a lot longer than 3 months to get the assessment of needs process even started. It's a bit of a postcode lottery and can literally take years, regardless of what the legislation says |
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Thank you _ la carte. My kid is Neurodivergent and trans. He is well supported and generally a very happy kid. School just overwhelms him though and we are waiting for a meeting with the principal.
My youngest is exhibiting signs of the same condition and has trouble learning outside of a one to one situation. He needs to run about every half hour and his teacher is quite unsympathetic. We have have asked for a meeting with the teacher and principal.
It's going to take years to get them assessed through that public system. My GP explained that it is particularly bad in Galway |
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Two of my kids are in ASD classes in different schools. Each class has 6 kids with a specially trained teacher and 2 SNAs. It's been a godsend. They get the movement breaks, social stories, and study cubicles that really help. There is literally two kids to each adult. Our first was diagnosed via assessment of needs which was much faster back then, but the second we had to go private as he couldn't wait and needed the diagnosis to get into the class for jr infants. I am so grateful for the help they get and would absolutely 100% go for separate classes if at all possible as they get specialist help. |
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The joke in my extended family is that we’re all trying to collect all the letters in the alphabet together (initials of diagnosis I.e. ADHD). We don’t take ourselves too seriously but yes, flying some neurodivergent flags here too |
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"
I had my bloods already done and booked an ECG with my GP within the morning - only takes a few minutes
Glad to hear its not just me. Doing thay just made me anxious"
The meds are stimulants and can put addition pressure on the heart. If they know your baseline stats then they can compare and see the effect your meds are having on your heart. It's normal. |
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Anyone any personal recommendations for an adult autistic assessment?
Thanks for this thread OP, as an intensely private person this is a huge departure for me to ask this question in such a public forum. |
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"Anyone any personal recommendations for an adult autistic assessment?
Thanks for this thread OP, as an intensely private person this is a huge departure for me to ask this question in such a public forum."
Honestly not sure if there’s a public list for adults like AON for the kids. My understanding is you’d be going privately which can be pricey. We’ve a few family members who have done this as adults couple years ago within Ireland so can get further details if you don’t have any luck from anyone else on here. There will be waiting lists also to factor in. We wish you luck - Mrs |
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"Anyone any personal recommendations for an adult autistic assessment?
Thanks for this thread OP, as an intensely private person this is a huge departure for me to ask this question in such a public forum.
Honestly not sure if there’s a public list for adults like AON for the kids. My understanding is you’d be going privately which can be pricey. We’ve a few family members who have done this as adults couple years ago within Ireland so can get further details if you don’t have any luck from anyone else on here. There will be waiting lists also to factor in. We wish you luck - Mrs"
Thanks for your reply.
Yes, it would be the private route as I believe it is nigh on impossible to get a public assessment. |
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By (user no longer on site)
over a year ago
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It's like anything money talks, I'm 3 years fighting to get help for my son I was pushed to Billy n Jack that's the gods honest truth,I'd love to have the money to get him seen too, I know this is going to sound awful but I have to say it. We are a great country helping others why can't we look after our own first |
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Even (doe) this is a public forum. I feel like I'm gate crashing a private chat group. After reading all(nearly all) ye're posts to this thread.
So it looks like nothing to much has changed in this Country with certain health departments with the Health system. Disabilities are still a taboo, aswell as a stigma about them in this Country. It also look's like some School's haven't changed there ways of thinking about certain kids & how to interact with them. Even sence I was in School. (A La Carte), I don't know what to say to ye after reading ye're post. Ye must be at ye're withs end after what ye went through with ye're Daughter.
Going private seems to be the only way to go, trying to get through the Health service in this Country. You'll need very deep pockets if you go down that road alright. That's why more people stick with the public system, despite the waiting lists for certain services.
So do ye have to go through a Neurologist to get examined?
Any ye have to get eeg's or MIR's done? |
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By (user no longer on site)
over a year ago
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"Even (doe) this is a public forum. I feel like I'm gate crashing a private chat group. After reading all(nearly all) ye're posts to this thread.
So it looks like nothing to much has changed in this Country with certain health departments with the Health system. Disabilities are still a taboo, aswell as a stigma about them in this Country. It also look's like some School's haven't changed there ways of thinking about certain kids & how to interact with them. Even sence I was in School. (A La Carte), I don't know what to say to ye after reading ye're post. Ye must be at ye're withs end after what ye went through with ye're Daughter.
Going private seems to be the only way to go, trying to get through the Health service in this Country. You'll need very deep pockets if you go down that road alright. That's why more people stick with the public system, despite the waiting lists for certain services.
So do ye have to go through a Neurologist to get examined?
Any ye have to get eeg's or MIR's done?"
Even to see my gp I'd to wait 3weeks and was told my 15mins was up .. must be a new thing can't be longer than 15mins to see the doc .. wtf like |
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"Even (doe) this is a public forum. I feel like I'm gate crashing a private chat group. After reading all(nearly all) ye're posts to this thread.
So it looks like nothing to much has changed in this Country with certain health departments with the Health system. Disabilities are still a taboo, aswell as a stigma about them in this Country. It also look's like some School's haven't changed there ways of thinking about certain kids & how to interact with them. Even sence I was in School. (A La Carte), I don't know what to say to ye after reading ye're post. Ye must be at ye're withs end after what ye went through with ye're Daughter.
Going private seems to be the only way to go, trying to get through the Health service in this Country. You'll need very deep pockets if you go down that road alright. That's why more people stick with the public system, despite the waiting lists for certain services.
So do ye have to go through a Neurologist to get examined?
Any ye have to get eeg's or MIR's done?"
After the initial assessments when they told me what they thought it was they still had to refer my child to a neurologist to confirm their diagnosis to make sure it wasn't neurological and to make it a formal diagnosis for the schools. |
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"Even (doe) this is a public forum. I feel like I'm gate crashing a private chat group. After reading all(nearly all) ye're posts to this thread.
So it looks like nothing to much has changed in this Country with certain health departments with the Health system. Disabilities are still a taboo, aswell as a stigma about them in this Country. It also look's like some School's haven't changed there ways of thinking about certain kids & how to interact with them. Even sence I was in School. (A La Carte), I don't know what to say to ye after reading ye're post. Ye must be at ye're withs end after what ye went through with ye're Daughter.
Going private seems to be the only way to go, trying to get through the Health service in this Country. You'll need very deep pockets if you go down that road alright. That's why more people stick with the public system, despite the waiting lists for certain services.
So do ye have to go through a Neurologist to get examined?
Any ye have to get eeg's or MIR's done?
Even to see my gp I'd to wait 3weeks and was told my 15mins was up .. must be a new thing can't be longer than 15mins to see the doc .. wtf like "
That doesn't surprise me Lou & sorry also, that doesn't make sence, about your 15mins was up. Did you actually see the Dr, at all? If you didn't you should have stayed where you were until you had seen him/her, as you had an appointment. It's all appointments to see your Dr, these day's. |
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"Even (doe) this is a public forum. I feel like I'm gate crashing a private chat group. After reading all(nearly all) ye're posts to this thread.
So it looks like nothing to much has changed in this Country with certain health departments with the Health system. Disabilities are still a taboo, aswell as a stigma about them in this Country. It also look's like some School's haven't changed there ways of thinking about certain kids & how to interact with them. Even sence I was in School. (A La Carte), I don't know what to say to ye after reading ye're post. Ye must be at ye're withs end after what ye went through with ye're Daughter.
Going private seems to be the only way to go, trying to get through the Health service in this Country. You'll need very deep pockets if you go down that road alright. That's why more people stick with the public system, despite the waiting lists for certain services.
So do ye have to go through a Neurologist to get examined?
Any ye have to get eeg's or MIR's done?
After the initial assessments when they told me what they thought it was they still had to refer my child to a neurologist to confirm their diagnosis to make sure it wasn't neurological and to make it a formal diagnosis for the schools."
O right. That's understandable, to me anyway's. Did the neurologist do any exams on your child?
You can be along time waiting to see a Neurologist aswell. Unless you go private & you could there in the waiting area for HOUR'S aswell on the day. |
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By (user no longer on site)
over a year ago
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"Even (doe) this is a public forum. I feel like I'm gate crashing a private chat group. After reading all(nearly all) ye're posts to this thread.
So it looks like nothing to much has changed in this Country with certain health departments with the Health system. Disabilities are still a taboo, aswell as a stigma about them in this Country. It also look's like some School's haven't changed there ways of thinking about certain kids & how to interact with them. Even sence I was in School. (A La Carte), I don't know what to say to ye after reading ye're post. Ye must be at ye're withs end after what ye went through with ye're Daughter.
Going private seems to be the only way to go, trying to get through the Health service in this Country. You'll need very deep pockets if you go down that road alright. That's why more people stick with the public system, despite the waiting lists for certain services.
So do ye have to go through a Neurologist to get examined?
Any ye have to get eeg's or MIR's done?
Even to see my gp I'd to wait 3weeks and was told my 15mins was up .. must be a new thing can't be longer than 15mins to see the doc .. wtf like
That doesn't surprise me Lou & sorry also, that doesn't make sence, about your 15mins was up. Did you actually see the Dr, at all? If you didn't you should have stayed where you were until you had seen him/her, as you had an appointment. It's all appointments to see your Dr, these day's. "
I did get to see my doctor but he kept looking up at the clock which made me so unfortable , |
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"Even (doe) this is a public forum. I feel like I'm gate crashing a private chat group. After reading all(nearly all) ye're posts to this thread.
So it looks like nothing to much has changed in this Country with certain health departments with the Health system. Disabilities are still a taboo, aswell as a stigma about them in this Country. It also look's like some School's haven't changed there ways of thinking about certain kids & how to interact with them. Even sence I was in School. (A La Carte), I don't know what to say to ye after reading ye're post. Ye must be at ye're withs end after what ye went through with ye're Daughter.
Going private seems to be the only way to go, trying to get through the Health service in this Country. You'll need very deep pockets if you go down that road alright. That's why more people stick with the public system, despite the waiting lists for certain services.
So do ye have to go through a Neurologist to get examined?
Any ye have to get eeg's or MIR's done?
Even to see my gp I'd to wait 3weeks and was told my 15mins was up .. must be a new thing can't be longer than 15mins to see the doc .. wtf like
That doesn't surprise me Lou & sorry also, that doesn't make sence, about your 15mins was up. Did you actually see the Dr, at all? If you didn't you should have stayed where you were until you had seen him/her, as you had an appointment. It's all appointments to see your Dr, these day's.
I did get to see my doctor but he kept looking up at the clock which made me so unfortable , "
O right. Ya I'd be the same as that meself aswell Lou.
Thankfully my Dr isn't that bad once your in with him. Its not nice sitting in the waiting room for ages alright. But once you get into the room it's worth it.
Keep fighting to get thing's sorted for your young man Lou. |
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By (user no longer on site)
over a year ago
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"Even (doe) this is a public forum. I feel like I'm gate crashing a private chat group. After reading all(nearly all) ye're posts to this thread.
So it looks like nothing to much has changed in this Country with certain health departments with the Health system. Disabilities are still a taboo, aswell as a stigma about them in this Country. It also look's like some School's haven't changed there ways of thinking about certain kids & how to interact with them. Even sence I was in School. (A La Carte), I don't know what to say to ye after reading ye're post. Ye must be at ye're withs end after what ye went through with ye're Daughter.
Going private seems to be the only way to go, trying to get through the Health service in this Country. You'll need very deep pockets if you go down that road alright. That's why more people stick with the public system, despite the waiting lists for certain services.
So do ye have to go through a Neurologist to get examined?
Any ye have to get eeg's or MIR's done?
Even to see my gp I'd to wait 3weeks and was told my 15mins was up .. must be a new thing can't be longer than 15mins to see the doc .. wtf like
That doesn't surprise me Lou & sorry also, that doesn't make sence, about your 15mins was up. Did you actually see the Dr, at all? If you didn't you should have stayed where you were until you had seen him/her, as you had an appointment. It's all appointments to see your Dr, these day's.
I did get to see my doctor but he kept looking up at the clock which made me so unfortable ,
O right. Ya I'd be the same as that meself aswell Lou.
Thankfully my Dr isn't that bad once your in with him. Its not nice sitting in the waiting room for ages alright. But once you get into the room it's worth it.
Keep fighting to get thing's sorted for your young man Lou. "
No better woman .. cheers pal.. because I'm getting fuck all help at home or the hse .. that's all I'm saying |
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"Even (doe) this is a public forum. I feel like I'm gate crashing a private chat group. After reading all(nearly all) ye're posts to this thread.
So it looks like nothing to much has changed in this Country with certain health departments with the Health system. Disabilities are still a taboo, aswell as a stigma about them in this Country. It also look's like some School's haven't changed there ways of thinking about certain kids & how to interact with them. Even sence I was in School. (A La Carte), I don't know what to say to ye after reading ye're post. Ye must be at ye're withs end after what ye went through with ye're Daughter.
Going private seems to be the only way to go, trying to get through the Health service in this Country. You'll need very deep pockets if you go down that road alright. That's why more people stick with the public system, despite the waiting lists for certain services.
So do ye have to go through a Neurologist to get examined?
Any ye have to get eeg's or MIR's done?
Even to see my gp I'd to wait 3weeks and was told my 15mins was up .. must be a new thing can't be longer than 15mins to see the doc .. wtf like
That doesn't surprise me Lou & sorry also, that doesn't make sence, about your 15mins was up. Did you actually see the Dr, at all? If you didn't you should have stayed where you were until you had seen him/her, as you had an appointment. It's all appointments to see your Dr, these day's.
I did get to see my doctor but he kept looking up at the clock which made me so unfortable ,
O right. Ya I'd be the same as that meself aswell Lou.
Thankfully my Dr isn't that bad once your in with him. Its not nice sitting in the waiting room for ages alright. But once you get into the room it's worth it.
Keep fighting to get thing's sorted for your young man Lou.
No better woman .. cheers pal.. because I'm getting fuck all help at home or the hse .. that's all I'm saying "
I know well. Your welcome Lou . I bet your not, alright. Sometimes your better to say Nothing, until you hear more. |
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By (user no longer on site)
over a year ago
|
"Even (doe) this is a public forum. I feel like I'm gate crashing a private chat group. After reading all(nearly all) ye're posts to this thread.
So it looks like nothing to much has changed in this Country with certain health departments with the Health system. Disabilities are still a taboo, aswell as a stigma about them in this Country. It also look's like some School's haven't changed there ways of thinking about certain kids & how to interact with them. Even sence I was in School. (A La Carte), I don't know what to say to ye after reading ye're post. Ye must be at ye're withs end after what ye went through with ye're Daughter.
Going private seems to be the only way to go, trying to get through the Health service in this Country. You'll need very deep pockets if you go down that road alright. That's why more people stick with the public system, despite the waiting lists for certain services.
So do ye have to go through a Neurologist to get examined?
Any ye have to get eeg's or MIR's done?
Even to see my gp I'd to wait 3weeks and was told my 15mins was up .. must be a new thing can't be longer than 15mins to see the doc .. wtf like
That doesn't surprise me Lou & sorry also, that doesn't make sence, about your 15mins was up. Did you actually see the Dr, at all? If you didn't you should have stayed where you were until you had seen him/her, as you had an appointment. It's all appointments to see your Dr, these day's.
I did get to see my doctor but he kept looking up at the clock which made me so unfortable ,
O right. Ya I'd be the same as that meself aswell Lou.
Thankfully my Dr isn't that bad once your in with him. Its not nice sitting in the waiting room for ages alright. But once you get into the room it's worth it.
Keep fighting to get thing's sorted for your young man Lou.
No better woman .. cheers pal.. because I'm getting fuck all help at home or the hse .. that's all I'm saying
I know well. Your welcome Lou . I bet your not, alright. Sometimes your better to say Nothing, until you hear more. "
Goodnight all
Chat soon |
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"Even (doe) this is a public forum. I feel like I'm gate crashing a private chat group. After reading all(nearly all) ye're posts to this thread.
So it looks like nothing to much has changed in this Country with certain health departments with the Health system. Disabilities are still a taboo, aswell as a stigma about them in this Country. It also look's like some School's haven't changed there ways of thinking about certain kids & how to interact with them. Even sence I was in School. (A La Carte), I don't know what to say to ye after reading ye're post. Ye must be at ye're withs end after what ye went through with ye're Daughter.
Going private seems to be the only way to go, trying to get through the Health service in this Country. You'll need very deep pockets if you go down that road alright. That's why more people stick with the public system, despite the waiting lists for certain services.
So do ye have to go through a Neurologist to get examined?
Any ye have to get eeg's or MIR's done?
Even to see my gp I'd to wait 3weeks and was told my 15mins was up .. must be a new thing can't be longer than 15mins to see the doc .. wtf like
That doesn't surprise me Lou & sorry also, that doesn't make sence, about your 15mins was up. Did you actually see the Dr, at all? If you didn't you should have stayed where you were until you had seen him/her, as you had an appointment. It's all appointments to see your Dr, these day's.
I did get to see my doctor but he kept looking up at the clock which made me so unfortable ,
O right. Ya I'd be the same as that meself aswell Lou.
Thankfully my Dr isn't that bad once your in with him. Its not nice sitting in the waiting room for ages alright. But once you get into the room it's worth it.
Keep fighting to get thing's sorted for your young man Lou.
No better woman .. cheers pal.. because I'm getting fuck all help at home or the hse .. that's all I'm saying
I know well. Your welcome Lou . I bet your not, alright. Sometimes your better to say Nothing, until you hear more.
Goodnight all
Chat soon "
Ya, good Lou.
I must go meself aswell soon. |
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"Even (doe) this is a public forum. I feel like I'm gate crashing a private chat group. After reading all(nearly all) ye're posts to this thread.
So it looks like nothing to much has changed in this Country with certain health departments with the Health system. Disabilities are still a taboo, aswell as a stigma about them in this Country. It also look's like some School's haven't changed there ways of thinking about certain kids & how to interact with them. Even sence I was in School. (A La Carte), I don't know what to say to ye after reading ye're post. Ye must be at ye're withs end after what ye went through with ye're Daughter.
Going private seems to be the only way to go, trying to get through the Health service in this Country. You'll need very deep pockets if you go down that road alright. That's why more people stick with the public system, despite the waiting lists for certain services.
So do ye have to go through a Neurologist to get examined?
Any ye have to get eeg's or MIR's done?
After the initial assessments when they told me what they thought it was they still had to refer my child to a neurologist to confirm their diagnosis to make sure it wasn't neurological and to make it a formal diagnosis for the schools.
O right. That's understandable, to me anyway's. Did the neurologist do any exams on your child?
You can be along time waiting to see a Neurologist aswell. Unless you go private & you could there in the waiting area for HOUR'S aswell on the day."
The initial neurology appointment I was told could be upwards of 3yrs.Thankfully the assessors fought with the neurologist because it took so long to get the initial assessment,this was the first case they heard of a parent fighting for 6yrs and to be completely ignored by people that should have helped. We only had to wait 6months for neurology and at the appointment there were mri's and other tests they ran and it came back the assessors were correct |
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"Even (doe) this is a public forum. I feel like I'm gate crashing a private chat group. After reading all(nearly all) ye're posts to this thread.
So it looks like nothing to much has changed in this Country with certain health departments with the Health system. Disabilities are still a taboo, aswell as a stigma about them in this Country. It also look's like some School's haven't changed there ways of thinking about certain kids & how to interact with them. Even sence I was in School. (A La Carte), I don't know what to say to ye after reading ye're post. Ye must be at ye're withs end after what ye went through with ye're Daughter.
Going private seems to be the only way to go, trying to get through the Health service in this Country. You'll need very deep pockets if you go down that road alright. That's why more people stick with the public system, despite the waiting lists for certain services.
So do ye have to go through a Neurologist to get examined?
Any ye have to get eeg's or MIR's done?
After the initial assessments when they told me what they thought it was they still had to refer my child to a neurologist to confirm their diagnosis to make sure it wasn't neurological and to make it a formal diagnosis for the schools.
O right. That's understandable, to me anyway's. Did the neurologist do any exams on your child?
You can be along time waiting to see a Neurologist aswell. Unless you go private & you could there in the waiting area for HOUR'S aswell on the day.
The initial neurology appointment I was told could be upwards of 3yrs.Thankfully the assessors fought with the neurologist because it took so long to get the initial assessment,this was the first case they heard of a parent fighting for 6yrs and to be completely ignored by people that should have helped. We only had to wait 6months for neurology and at the appointment there were mri's and other tests they ran and it came back the assessors were correct"
O right. That really wouldn't have looked good for them either. To leave you waiting any longer than you had been waiting already.
Some times they could keep asking you the same questions over time. Especially if you've to seem them number of times. That was good, in the end, to know. |
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By *etergemmaCouple
over a year ago
South Dublin Area |
"Shout out to any ND folk this side of the Irish Sea
Been reading about how common it is to find ND people in atypical sexual relationships, e.g. swinging, kink dynamics, poly, ethical non-monogamy, etc.
My wife and I are Autistic/AuDHD ourselves.. much love and understanding to y'all out there "
I am not so sure its too common for non monogamous people but it's definitely very wide spread in the kink scene.
Nimhneach is no doubt full of ND folk, thats probably what makes the people that attend the event so warm and friendly, its a space were they can be themselves. |
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By *etergemmaCouple
over a year ago
South Dublin Area |
"I've always meant to get assessed for ADHD. I definitely had it as a child. Im only self diagnosing, but as an adult, it seems to have manifested itself in my sleep deprivation. I sleep like a log when I go to bed, I just struggle to actually go to bed after some research I've discovered it can be connected to ADHD.
I've bundles of energy, but would love to get to bed earlier!
Mr."
Its extremely difficult to get diagnosed with ADHD.
Someone very close to me is a Psychologist who specializes in this area. I have heard it from the horses mouth as such.
Did anyone see the documentary on Adhd scam in England. It was on the bbc a few months back.
You would really want to do some research before going private and spending money on an evaluation. |
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By *etergemmaCouple
over a year ago
South Dublin Area |
"Two of my kids are in ASD classes in different schools. Each class has 6 kids with a specially trained teacher and 2 SNAs. It's been a godsend. They get the movement breaks, social stories, and study cubicles that really help. There is literally two kids to each adult. Our first was diagnosed via assessment of needs which was much faster back then, but the second we had to go private as he couldn't wait and needed the diagnosis to get into the class for jr infants. I am so grateful for the help they get and would absolutely 100% go for separate classes if at all possible as they get specialist help."
It's unbelievable the work SNAs do, the difference that they can make to a child is truly incredible. |
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By *ingpot! OP Man
over a year ago
West Cork |
"I've always meant to get assessed for ADHD. I definitely had it as a child. Im only self diagnosing, but as an adult, it seems to have manifested itself in my sleep deprivation. I sleep like a log when I go to bed, I just struggle to actually go to bed after some research I've discovered it can be connected to ADHD.
I've bundles of energy, but would love to get to bed earlier!
Mr.
Its extremely difficult to get diagnosed with ADHD.
Someone very close to me is a Psychologist who specializes in this area. I have heard it from the horses mouth as such.
Did anyone see the documentary on Adhd scam in England. It was on the bbc a few months back.
You would really want to do some research before going private and spending money on an evaluation."
Oof! That's a scary thought.. especially after my 30min diagnosis and prescription
The cost of private is mad but my end goal was to get the pills so I think it's worth it (if you can afford it) as the end goal is the same and the doctor is a real psych.
Do your due diligence folks |
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By *ingpot! OP Man
over a year ago
West Cork |
"it has to be one of the best threads here , we all know people who is suffering with mental health or cancer .. thank you OP "
Thanks so much Lou, really appreciate that x
As Hunter said previously: I think it's super important to be open and communicative about mental and emotional health, without stigma, even in unlikely places (like a sex site )
Thank you to and everyone else for sharing your experiences here |
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By *etergemmaCouple
over a year ago
South Dublin Area |
"I've always meant to get assessed for ADHD. I definitely had it as a child. Im only self diagnosing, but as an adult, it seems to have manifested itself in my sleep deprivation. I sleep like a log when I go to bed, I just struggle to actually go to bed after some research I've discovered it can be connected to ADHD.
I've bundles of energy, but would love to get to bed earlier!
Mr.
Its extremely difficult to get diagnosed with ADHD.
Someone very close to me is a Psychologist who specializes in this area. I have heard it from the horses mouth as such.
Did anyone see the documentary on Adhd scam in England. It was on the bbc a few months back.
You would really want to do some research before going private and spending money on an evaluation.
Oof! That's a scary thought.. especially after my 30min diagnosis and prescription
The cost of private is mad but my end goal was to get the pills so I think it's worth it (if you can afford it) as the end goal is the same and the doctor is a real psych.
Do your due diligence folks "
A 30 min Diagnosis, thats the exact sort of nonsense exposed by Panorama.
Getting a good doctor is the key. |
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By *ingpot! OP Man
over a year ago
West Cork |
"I've always meant to get assessed for ADHD. I definitely had it as a child. Im only self diagnosing, but as an adult, it seems to have manifested itself in my sleep deprivation. I sleep like a log when I go to bed, I just struggle to actually go to bed after some research I've discovered it can be connected to ADHD.
I've bundles of energy, but would love to get to bed earlier!
Mr.
Its extremely difficult to get diagnosed with ADHD.
Someone very close to me is a Psychologist who specializes in this area. I have heard it from the horses mouth as such.
Did anyone see the documentary on Adhd scam in England. It was on the bbc a few months back.
You would really want to do some research before going private and spending money on an evaluation.
Oof! That's a scary thought.. especially after my 30min diagnosis and prescription
The cost of private is mad but my end goal was to get the pills so I think it's worth it (if you can afford it) as the end goal is the same and the doctor is a real psych.
Do your due diligence folks
A 30 min Diagnosis, thats the exact sort of nonsense exposed by Panorama.
Getting a good doctor is the key."
Absolutely! It's bonkers to me but I chalked it up to having a childhood diagnosis and lifetime history, being low risk, and pretty much "ordering" meds (which is pretty common in the States)
No one knows you like you know yourself - it's important to do your own research and introspection as some doctors will (clearly) not spend much time with you |
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I think the explosion in ADHD diagnosis is less to do with sham private diagnoses and more the fact that there ARE drugs that can be game changers for some people and so it's "worth it" to get the official paperwork done. For adults on the spectrum who have struggled their whole lives there isn't the same treatment available so they don't see the point. It's disability allowance if you meet the criteria and that's it. It's different for kids if it can be caught early then the early intervention can be well worth it. Parents need to fight like hell and have the ability to pay or they are shit out of luck. It's a national disgrace the delay in public childhood ASD diagnosis. |
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Another thing I meant to say for ASD/ADHD kids who are recommended speech and language or occupational therapy... the HSE services have a massive wait. We have gotten VHI cover for them which can be as little as 30pm which gives you 70% cashback on private S&L and OT. It brings the price down to a lot less than it would be otherwise and the appointments can be had for immediate start. |
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"I think the explosion in ADHD diagnosis is less to do with sham private diagnoses and more the fact that there ARE drugs that can be game changers for some people and so it's "worth it" to get the official paperwork done. For adults on the spectrum who have struggled their whole lives there isn't the same treatment available so they don't see the point. It's disability allowance if you meet the criteria and that's it. It's different for kids if it can be caught early then the early intervention can be well worth it. Parents need to fight like hell and have the ability to pay or they are shit out of luck. It's a national disgrace the delay in public childhood ASD diagnosis."
My ex is a clinical research scientist working with the woman who developed the latest ADHD meds. She did it for her son and it's changed his life.
A story from big pharma. |
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