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By *appyPanda OP Man
over a year ago
Kilkenny, but Dublin is more fun |
Recently found out I'm more than likely on the autism spectrum at a very deep level (relating to interpersonal relationships mostly, but with a few quirks that now look obvious in hindsight) and while it's a big thing to find out you have at 31, its also been a huge relief answering questions I've had my whole life. Coming to terms with it happily, as the first 30 years of my life not knowing about it has caused me so much trouble and grief for so long. Things are looking up, and I'm glad to have an answer finally
I've searched the few times on the forums and there doesn't seem to be many people with it here but I decided I'd try ask again as I was wondering if anyone here has been in the same boat, getting diagnosed with it late in life, or even lucky enough to get the diagnosis early on in life where you could get the support to help you live as well as you could.
And a swinging site is definitely not the place for autism support but was just asking as a matter of interest.
Enjoy the lovely monday |
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By (user no longer on site)
over a year ago
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"Recently found out I'm more than likely on the autism spectrum at a very deep level (relating to interpersonal relationships mostly, but with a few quirks that now look obvious in hindsight) and while it's a big thing to find out you have at 31, its also been a huge relief answering questions I've had my whole life. Coming to terms with it happily, as the first 30 years of my life not knowing about it has caused me so much trouble and grief for so long. Things are looking up, and I'm glad to have an answer finally
I've searched the few times on the forums and there doesn't seem to be many people with it here but I decided I'd try ask again as I was wondering if anyone here has been in the same boat, getting diagnosed with it late in life, or even lucky enough to get the diagnosis early on in life where you could get the support to help you live as well as you could.
And a swinging site is definitely not the place for autism support but was just asking as a matter of interest.
Enjoy the lovely monday"
My little boy was diagnosed on Autism scale and when I read report of his assessment I smiled...as it was like reading my own childhood....did answer few questions in my head but also knew that my little boy will grow up to be happy legend of a boy..as the social skills he will need he will get taught earlier to him for me I didn't start becoming more social until I was at university and started work in a Bar... |
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I'm not on the spectrum.. but one of my kids is, and was lucky to be diagnosed early. It's been a journey learning about this, but my experience has been that its about learning tools and techniques to deal with the difficulties that your particular type of autism will bring, along with learning the times that you will need to challenge yourself and face up to the things you find hard, together with the times you can allow yourself to be different and do what you feel you need. I know that sounds wishy washy.. but for me as a parent thats the key. Sometimes you need to force yourself to come into the world and interact and others on their level, and sometimes you can do what you feel you need and expect others to understand that you might have different instincts or feelings that they need to be mindful of and respect. It's learning when to apply which technique that comes with experience. Good luck |
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By *appyPanda OP Man
over a year ago
Kilkenny, but Dublin is more fun |
"Recently found out I'm more than likely on the autism spectrum at a very deep level (relating to interpersonal relationships mostly, but with a few quirks that now look obvious in hindsight) and while it's a big thing to find out you have at 31, its also been a huge relief answering questions I've had my whole life. Coming to terms with it happily, as the first 30 years of my life not knowing about it has caused me so much trouble and grief for so long. Things are looking up, and I'm glad to have an answer finally
I've searched the few times on the forums and there doesn't seem to be many people with it here but I decided I'd try ask again as I was wondering if anyone here has been in the same boat, getting diagnosed with it late in life, or even lucky enough to get the diagnosis early on in life where you could get the support to help you live as well as you could.
And a swinging site is definitely not the place for autism support but was just asking as a matter of interest.
Enjoy the lovely monday
My little boy was diagnosed on Autism scale and when I read report of his assessment I smiled...as it was like reading my own childhood....did answer few questions in my head but also knew that my little boy will grow up to be happy legend of a boy..as the social skills he will need he will get taught earlier to him for me I didn't start becoming more social until I was at university and started work in a Bar... "
Retail helped me too, but unfortunately it was only surface deep. I learned from an early age to wear a friendly happy mask that would stop people worrying about me, til things got too bad for me to pretend I was fine any longer.
It's been a struggle, but I can look back with pride now that I accomplished what I have even with the serious difficulty I had to connect to people on a deeper level, and very happy that the younger generation are getting the help they need at an early age.
Have a friend who's daughter was diagnosed at 4 and it's amazing how much we can do now for children with special needs to help them grow in a society with tonnes of support, and no need to be ashamed or guilty for being different |
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One of my daughters is on the spectrum. We fought for years to have her assessed to no avail. Even when we had her assessed privately we discovered the education system didn't accept private assessment.
We were told if she hadn't been through the system by the age of 13 she would receive no special assistance.
Numerous school meetings and letters to the education board all fell on deaf ears and she got no help whatsoever.
She is now in her mid 20's and still struggles with a lack of social filters. |
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My daughter is on the spectrum, diagnosed when she Two she was young as she had classic signs from a early age. Funny though her own father said he can relate to some of her traits if anything he thinks he’s Aspergers. From my own daughter as a child it was a constant battle getting her into early intervention. Autism has come on a long way with awareness years ago people with autism was thrown into institutions and was classed insane. |
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Really great to read others personal stories of Autism! It's always amazed me, but saddening that hindsight reveals the traits of Autism to leave folks feeling 'that was me'.. What if you had assistance? Chats like this fill me with hope, that acceptance and general recognition of Autism will lead to better services and a happy life for ASD  Best wishes to you all! |
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By *appyPanda OP Man
over a year ago
Kilkenny, but Dublin is more fun |
"I'm not on the spectrum.. but one of my kids is, and was lucky to be diagnosed early. It's been a journey learning about this, but my experience has been that its about learning tools and techniques to deal with the difficulties that your particular type of autism will bring, along with learning the times that you will need to challenge yourself and face up to the things you find hard, together with the times you can allow yourself to be different and do what you feel you need. I know that sounds wishy washy.. but for me as a parent thats the key. Sometimes you need to force yourself to come into the world and interact and others on their level, and sometimes you can do what you feel you need and expect others to understand that you might have different instincts or feelings that they need to be mindful of and respect. It's learning when to apply which technique that comes with experience. Good luck "
Thank you and as I said it's been a relief, but I don't want to use it as an excuse to stay the way I am.
Autism hasn't been my problem, but not knowing has, and most of my difficulties have been because I wasn't aware of it at all and the issues I have to deal with are the aftermath of years upon years of self blame and constant self analysis. I've always felt like an outsider around groups of people, even if it's a lovely family event, and understanding the root cause now can have me relaxed in company, with my mind not constantly racing wondering why I can't be as social and care free as everyone else.
I care deeply about people, even strangers, but built up lots of guilt throughout my years for not picking up on social cues, not being able to empathise normally people, and even hating how I had such a good family and place to grow up in when so many people suffer (even getting addicted to watching videos of people pranking these telemarketer scammers to convince myself I wasn't a bad person).
It's still going to be a challenge, but in comparison to my last few decades, its a challenge I'll face head on and full of motivation. |
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My youngest was diagnosed three years ago,after fighting from the time he was one. He is nearly 12 now,as a parent I knew something was wrong but was constantly told no hes just bold and disruptive. He is finally getting the help but I hated the fact I was always told I was over reacting there was nothing wrong,when clearly there was and it was his speech made me question it but schools wouldn't listen and like a poster said already I done private testing and they would not accept that.
Now eight assessments later and countless reports each 20+ pages long,they finally listen and believe me. |
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"One of my daughters is on the spectrum. We fought for years to have her assessed to no avail. Even when we had her assessed privately we discovered the education system didn't accept private assessment.
We were told if she hadn't been through the system by the age of 13 she would receive no special assistance.
Numerous school meetings and letters to the education board all fell on deaf ears and she got no help whatsoever.
She is now in her mid 20's and still struggles with a lack of social filters. "
This makes me so sad. My sister was caught in the same way for one of her kids where she was pushed to pay for a private assessment due to a long waiting list, and was stretched to manage it, but after waiting and getting a diagnosis there, it wasn't accepted by the authorities for support. It makes me so angry thinking about it. Generations of kids previously went without support back in the day, and bureaucracy and lack of funding these days is STILL leaving kids unsupported.
If private assessments aren't good enough then they HAVE to fund more sanctioned testing services. It's not good enough letting kids slip through the net.
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"Really great to read others personal stories of Autism! It's always amazed me, but saddening that hindsight reveals the traits of Autism to leave folks feeling 'that was me'.. What if you had assistance? Chats like this fill me with hope, that acceptance and general recognition of Autism will lead to better services and a happy life for ASD Best wishes to you all!"
some of the traits of autism I think we all can identify with but with autism it’s more exaggerated, who hates large crowds meeting new people new places, who hates routine going awol . Like getting up late for work and it throws you throughout the day, I’m not saying if this is you and you have autism but it’s a slight understanding of some of the traits. Before my daughter was diagnosed she would only drink from a certain bottle and a certain colour. I travelled miles getting this bottle and stocking up and wondered why she wouldn’t take the same bottle but the top was a different colour everthing else the same. She had no eye contact and wouldn’t respond if you called her. She walked when excited on her toes and flapped her hands. When she was with other children apart from her sister she would play on her own and watch. I used to wonder why the kids wouldn’t play with her it wasn’t the other kids it was her she didn’t respond with them. I’m grateful she diagnosed early two is very young but knowing what I know now it was plain also she had other traits too, her world now is lovely she don’t worry bout heartache or bills nothing will worry her she has a beautiful life |
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By *appyPanda OP Man
over a year ago
Kilkenny, but Dublin is more fun |
And while I'm happy now with knowing (because of what I went through in my life) it's definitely disheartening seeing so many people struggling to get proper help where needed, and how difficult they make it to get a proper diagnosis unless someone has really obvious symptoms of it.
To be honest, I haven't gotten a proper diagnosis but went to a group specialising in autism, with me still thinking it was merely a possibility, the other being deep psychological issues I hadn't figured out yet.
It was supposed to be a little chat to see if it would be worth going for a professional assessment before coming back to receive support, but I was immediately asked to go straight to treatment and support.
I'd say they really don't like seeing someone who clearly has issues related to autism needing to pay over a grand for a private assessment just so they can get much needed help.
It may be worth looking around at groups like that, and seeing if they'll forego the professional assessment before helping. These are the people who went in to the job to help people. They're not the ones that want to profit off of people's misfortune and hard times. |
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Were waiting to have our youngest assessed for autism. All were getting is theres a waiting list, theres a waiting list. So im tracking down resources and courses online to try do things in the meantime. We are considering getting her assessed privately so we can have a better idea on how to approach things with her and we are considering home schooling when she gets to the age |
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"And while I'm happy now with knowing (because of what I went through in my life) it's definitely disheartening seeing so many people struggling to get proper help where needed, and how difficult they make it to get a proper diagnosis unless someone has really obvious symptoms of it.
To be honest, I haven't gotten a proper diagnosis but went to a group specialising in autism, with me still thinking it was merely a possibility, the other being deep psychological issues I hadn't figured out yet.
It was supposed to be a little chat to see if it would be worth going for a professional assessment before coming back to receive support, but I was immediately asked to go straight to treatment and support.
I'd say they really don't like seeing someone who clearly has issues related to autism needing to pay over a grand for a private assessment just so they can get much needed help.
It may be worth looking around at groups like that, and seeing if they'll forego the professional assessment before helping. These are the people who went in to the job to help people. They're not the ones that want to profit off of people's misfortune and hard times."
I'm not sure 'official' diagnosis is that important for adults in terms of supports, as there isn't much in the way of support.
The real gains are seen as part of early diagnosis and early intervention, which is why the MADNESS of waiting lists and non-acceptance of private diagnosis is so so unfair.
I know this doesn't help much but you can get involved in all the groups. There are loads on Facebook. |
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By *3nsesMan
over a year ago
Dublin |
"Were waiting to have our youngest assessed for autism. All were getting is theres a waiting list, theres a waiting list. So im tracking down resources and courses online to try do things in the meantime. We are considering getting her assessed privately so we can have a better idea on how to approach things with her and we are considering home schooling when she gets to the age"
It is definitely worth getting her privately assessed. Having that knowledge will.be a big help in giving you a clear idea on what is needed ahead. |
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"Were waiting to have our youngest assessed for autism. All were getting is theres a waiting list, theres a waiting list. So im tracking down resources and courses online to try do things in the meantime. We are considering getting her assessed privately so we can have a better idea on how to approach things with her and we are considering home schooling when she gets to the age"
Just be careful because our SENO wouldn't accept a private diagnosis and it had to be by an authorised party. |
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"Were waiting to have our youngest assessed for autism. All were getting is theres a waiting list, theres a waiting list. So im tracking down resources and courses online to try do things in the meantime. We are considering getting her assessed privately so we can have a better idea on how to approach things with her and we are considering home schooling when she gets to the age
It is definitely worth getting her privately assessed. Having that knowledge will.be a big help in giving you a clear idea on what is needed ahead. "
Definitely. Its very expensive but the waiting lists here are insane. I think OT and speech therapy are over 2 years and that not including the impact of covid when they shut everything down. |
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"Were waiting to have our youngest assessed for autism. All were getting is theres a waiting list, theres a waiting list. So im tracking down resources and courses online to try do things in the meantime. We are considering getting her assessed privately so we can have a better idea on how to approach things with her and we are considering home schooling when she gets to the age
Just be careful because our SENO wouldn't accept a private diagnosis and it had to be by an authorised party."
Thats the other side of it. I have an appt with our GP when he comes back from hols to discuss going privately. They cant call it early intervention when youre forced to wait over 2 years for assessment and in the meantime left in limbo. On the upside she trying to form words with the little bit weve done with her and shes happy out lining up her army men and cars. Its just very frustrating |
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"Were waiting to have our youngest assessed for autism. All were getting is theres a waiting list, theres a waiting list. So im tracking down resources and courses online to try do things in the meantime. We are considering getting her assessed privately so we can have a better idea on how to approach things with her and we are considering home schooling when she gets to the age
It is definitely worth getting her privately assessed. Having that knowledge will.be a big help in giving you a clear idea on what is needed ahead.
Definitely. Its very expensive but the waiting lists here are insane. I think OT and speech therapy are over 2 years and that not including the impact of covid when they shut everything down. "
Before covid the waiting list for ot and speech was 3 years,we are still waiting and its been pushed back so many times |
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My daughter is 13, was diagnosed late with high functioning ASD among other things when she was 9 years old, just completed 1st year with hormones raging.
The struggles she faces on a daily basis are reconfirmed every time we see a new "specialist". I have reams and reams of paperwork identifying her "issues", giving her "labels" to allow those working with her to address them accordingly.
The early intervention services have been seriously lacking every step of the way in every possible way, leaving my ex and I to look after her to the best of our abilities, doing research, finding private specialists etc...
And even if you find the necessary services through the HSE and department of education, you're still not guaranteed that these services and the people working in these institutions are professional, equipped or capable!
To top it off, my daughter suffers with severe social anxiety, isolating herself to an extreme, which brings with it low mood and lack of motivation. I would class it as a form of depression.
Try getting help for that!!!
There are services to deal with ASD in youngsters.
There are services to deal with mental health issues in youngsters.
There is NO service for youngsters on the spectrum with mental health issues! These public institutions WILL NOT touch a youngster on the spectrum with anxiety/depression...
OP, I am delighted that you have struggled through your journey and have gotten answers and help through support groups! I wish you well on your journey, making peace with the past, which I'm sure was difficult and confusing at the best of times.
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"Were waiting to have our youngest assessed for autism. All were getting is theres a waiting list, theres a waiting list. So im tracking down resources and courses online to try do things in the meantime. We are considering getting her assessed privately so we can have a better idea on how to approach things with her and we are considering home schooling when she gets to the age
It is definitely worth getting her privately assessed. Having that knowledge will.be a big help in giving you a clear idea on what is needed ahead.
Definitely. Its very expensive but the waiting lists here are insane. I think OT and speech therapy are over 2 years and that not including the impact of covid when they shut everything down.
Before covid the waiting list for ot and speech was 3 years,we are still waiting and its been pushed back so many times "
We were waiting for OT for nearly 3 years - went to our first group talk to start the process and Covid hit!!!
Tried finding someone private - NADA!!! |
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No speech language therapist in the southeast will look at a child if only put on the list I know people that waiting 5 yesrs, be careful with education department assessment they are prone to put autistic tendencies which won’t give a full time sna or even put into asd school. All down to funds, on Facebook there is s group called can cottage autism network.
Help snd advise there is brilliant  |
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"No speech language therapist in the southeast will look at a child if only put on the list I know people that waiting 5 yesrs, be careful with education department assessment they are prone to put autistic tendencies which won’t give a full time sna or even put into asd school. All down to funds, on Facebook there is s group called can cottage autism network.
Help snd advise there is brilliant "
I know all about the speech therapists,I have my child going private with that,just so he can be understood. The guy that was over the assessments signed his name to the assessments of my child because he was shocked and sickened by the lenght it took to have them done,he rang me apologising for the schools complete disregard and disinterest to what I was telling them.I later found out he never signs any of them and its his signature is needed to get the relevant help. He has pushed to get things as far as they have come so thankfully it seems to be working |
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By (user no longer on site)
over a year ago
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As a parent of 2 autistic adults, well done to you OP. We started our autism journey in 2004, home schooled our daughter for 6 years, she started montessori at 8 years old, school at 9. Shes currently in day service, lives at home and loves her life.
My son is 23 and in college now, he is diagnosed with aspergers.
Autism can be very daunting for all involved but the rewards are fantastic. Its not all doom and gloom. You celebrate the smallest achievement. |
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"Recently found out I'm more than likely on the autism spectrum at a very deep level (relating to interpersonal relationships mostly, but with a few quirks that now look obvious in hindsight) and while it's a big thing to find out you have at 31, its also been a huge relief answering questions I've had my whole life. Coming to terms with it happily, as the first 30 years of my life not knowing about it has caused me so much trouble and grief for so long. Things are looking up, and I'm glad to have an answer finally
I've searched the few times on the forums and there doesn't seem to be many people with it here but I decided I'd try ask again as I was wondering if anyone here has been in the same boat, getting diagnosed with it late in life, or even lucky enough to get the diagnosis early on in life where you could get the support to help you live as well as you could.
And a swinging site is definitely not the place for autism support but was just asking as a matter of interest.
Enjoy the lovely monday"
Makes a lot of sense now. Good luck. Hope you are well. |
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By (user no longer on site)
over a year ago
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I work in a school with autistic children with learning difficulties. They truly are some cool and magical people. I found from working there that as Letmebeurfantasy said we all have the same things they lable as autistic for the most part. Just the regulation part is difficult for many of the kids. I am sorry to hear so many of you had to fight for support. If you can in your schools please do insist on communication between psychologists, teachers, and SNAs. I find there is a big disconnect here.
To the Op you must be quite high functioning writing here. I am delighted you will get some support after all this time.
Good luck sir. |
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By (user no longer on site)
over a year ago
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I am astonished that a person with an asd diagnosis would find their way onto fab swingers. You must the exception but glad that you functioning so well |
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By (user no longer on site)
over a year ago
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"I am astonished that a person with an asd diagnosis would find their way onto fab swingers. You must the exception but glad that you functioning so well "
Perfect example of it being such a wide and varied spectrum. As the quote goes "If you've met one individual with autism, you've met one individual with autism"... No two people with an ASD diagnosis are ever the same. |
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"I am astonished that a person with an asd diagnosis would find their way onto fab swingers. You must the exception but glad that you functioning so well "
I'd be more astonished if the op was the exception. |
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By (user no longer on site)
over a year ago
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"I am astonished that a person with an asd diagnosis would find their way onto fab swingers. You must the exception but glad that you functioning so well
Perfect example of it being such a wide and varied spectrum. As the quote goes "If you've met one individual with autism, you've met one individual with autism"... No two people with an ASD diagnosis are ever the same. "
I always think of the less fortunate kids and adults on the lower end of the spectrum who have to beg for services in this country |
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By (user no longer on site)
over a year ago
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"I am astonished that a person with an asd diagnosis would find their way onto fab swingers. You must the exception but glad that you functioning so well
Perfect example of it being such a wide and varied spectrum. As the quote goes "If you've met one individual with autism, you've met one individual with autism"... No two people with an ASD diagnosis are ever the same.
I always think of the less fortunate kids and adults on the lower end of the spectrum who have to beg for services in this country "
The very reason it becomes a vocation for many parents. The work isn't done in a 30min therapy session, it's the reiteration at home and the support in school (when receiving). You cannot care for a child with needs without educating and upskilling as a parent. It's a full time job. It changes everything. |
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By (user no longer on site)
over a year ago
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"I am astonished that a person with an asd diagnosis would find their way onto fab swingers. You must the exception but glad that you functioning so well
Perfect example of it being such a wide and varied spectrum. As the quote goes "If you've met one individual with autism, you've met one individual with autism"... No two people with an ASD diagnosis are ever the same.
I always think of the less fortunate kids and adults on the lower end of the spectrum who have to beg for services in this country
The very reason it becomes a vocation for many parents. The work isn't done in a 30min therapy session, it's the reiteration at home and the support in school (when receiving). You cannot care for a child with needs without educating and upskilling as a parent. It's a full time job. It changes everything. "
I agree.. it becomes a big part of your life, you must separate time for yourself and partner. All work and no play as they say,makes life more difficult thsn it already is. Do not let autism consume your life. I've seen relationships and marriages fall apart due to the stresses it brings.. |
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By (user no longer on site)
over a year ago
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"I am astonished that a person with an asd diagnosis would find their way onto fab swingers. You must the exception but glad that you functioning so well "
Why are you astonished by it? |
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"I am astonished that a person with an asd diagnosis would find their way onto fab swingers. You must the exception but glad that you functioning so well "
I would be astounded if there weren't many many more. |
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"I am astonished that a person with an asd diagnosis would find their way onto fab swingers. You must the exception but glad that you functioning so well "
honestly i find it brilliant many forms of the spectrum from Aspergers to high functional asd…. |
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"I am astonished that a person with an asd diagnosis would find their way onto fab swingers. You must the exception but glad that you functioning so well
Perfect example of it being such a wide and varied spectrum. As the quote goes "If you've met one individual with autism, you've met one individual with autism"... No two people with an ASD diagnosis are ever the same.
I always think of the less fortunate kids and adults on the lower end of the spectrum who have to beg for services in this country "
it’s harder I find when they reach adulthood thrown out of children services into adult and the situation don’t get better. We plod on cause you gotta . |
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By *appyPanda OP Man
over a year ago
Kilkenny, but Dublin is more fun |
"Recently found out I'm more than likely on the autism spectrum at a very deep level (relating to interpersonal relationships mostly, but with a few quirks that now look obvious in hindsight) and while it's a big thing to find out you have at 31, its also been a huge relief answering questions I've had my whole life. Coming to terms with it happily, as the first 30 years of my life not knowing about it has caused me so much trouble and grief for so long. Things are looking up, and I'm glad to have an answer finally
I've searched the few times on the forums and there doesn't seem to be many people with it here but I decided I'd try ask again as I was wondering if anyone here has been in the same boat, getting diagnosed with it late in life, or even lucky enough to get the diagnosis early on in life where you could get the support to help you live as well as you could.
And a swinging site is definitely not the place for autism support but was just asking as a matter of interest.
Enjoy the lovely monday
Makes a lot of sense now. Good luck. Hope you are well. "
Thanks and hope you've been doing well too. At least there's a reason now for my absolute idiocy when it comes to talking about things without considering who I'm talking to, or my constant looking away during conversations.
Keep doing you. |
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By (user no longer on site)
over a year ago
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"I am astonished that a person with an asd diagnosis would find their way onto fab swingers. You must the exception but glad that you functioning so well "
There's loads
A whole thread full in the Lounge the other day |
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By *ilderMan
over a year ago
dublin |
"All this talk about the spectrum makes me need to say I think the Commodore 64 was a vastly superior computer in it's day.... there I've said it! 
You're just showing your age now  "
I'm like a fine wine.... Expensive |
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Hi functioning on the spectrum here.
People find me odd and strange.
I lack interests around basic interactions.
Used to mask a lot.
Then just gave up on the masking. So became very hard for me to connect with people.
My things, routines. My special interest brought me here (human phycology and dynamics) it very haphazard all the same as I like knowing many thing's, am very sexually open but finding others who will give me time to open up and or are willing to put the effort in are just lacking.
My other bad habit is mirroring peoples behavior. Sometimes am not sure what people want from me and many a time I've not read signals.
Now am teying to teach myself to smile more and be more open. Many people have told me am not approachable.
Genrally though sensory overload and decompressing after large social events can be tough. As I get older and desensitize to things again and again it gets lesser. One example I go back to....I drank in the same pub for four years, without talking to people till I feel I'd learned how. Now I can walk into any pub ! With no worry but again took much desensitization.
Shine helped in Ireland. The HSE aren't worth a fuck !
On here I find text, doesn't convey how or what I want to say.
Anyway hopes you have a nice day. 
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By (user no longer on site)
over a year ago
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Its shameful. Politicians HSE and special education departments have let all children and families down for so long now.
People shouldn't have to beg for services. It makes me so angry |
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"My son is waiting on early intervention over 2 years now it’s a joke he’s only getting assessment of needs now
Can you not go private for stuff like that "
I can only speak about up here and 15 years ago when one of mine was waiting on assessment.
We had it done privately but the education authority would not accept a private assessment so it was a complete waste of time and money. They said it had to be done through the system.
It never was and as soon as she turned 13 the system no longer allowed for assessment and she never received any assistance at all. |
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"I'm not on the spectrum.. but one of my kids is, and was lucky to be diagnosed early. It's been a journey learning about this, but my experience has been that its about learning tools and techniques to deal with the difficulties that your particular type of autism will bring, along with learning the times that you will need to challenge yourself and face up to the things you find hard, together with the times you can allow yourself to be different and do what you feel you need. I know that sounds wishy washy.. but for me as a parent thats the key. Sometimes you need to force yourself to come into the world and interact and others on their level, and sometimes you can do what you feel you need and expect others to understand that you might have different instincts or feelings that they need to be mindful of and respect. It's learning when to apply which technique that comes with experience. Good luck "
This....very well said. And hopefully some really good support to guide you on your journey. Best of luck. |
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By *og-ManMan
over a year ago
somewhere |
"My son is waiting on early intervention over 2 years now it’s a joke he’s only getting assessment of needs now
Can you not go private for stuff like that
I can only speak about up here and 15 years ago when one of mine was waiting on assessment.
We had it done privately but the education authority would not accept a private assessment so it was a complete waste of time and money. They said it had to be done through the system.
It never was and as soon as she turned 13 the system no longer allowed for assessment and she never received any assistance at all. "
Its terrible to think that you're saving the health board the money but they wont accept the results |
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Been diagnosed myself (Aspergers) a few years back … haven’t read all the comments …. No major change for me after diagnosis …. I’m happy to tell people, there’s just not enough actual real understanding about the subject and so many people throw away derogatory comments these days like it’s the go to insult for people who act a bit differently. For me Great to know and understand things from the past that I’ve not handled well and understand how to deal with issues in the future. If you wanna chat happy to discuss this if it helps |
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By *abeWMan
over a year ago
Kilkenny |
OP I am beyond thrilled you know. It helps so many things fall into place. Idk what I can offer but I've got the same diagnosis, same age and we're in the same county so if you want to chat with someone on the spectrum irl, I'd be happy to help. |
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By *al2001Man
over a year ago
kildare |
My son was diagnised with aspergers when very young.we got him privately assessed and he got some help with school after that which really helped him
Hes in his second year of university now and doing great |
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