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Coeliac Disease
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"No its not catching! just an intolerance to Gluten mainly found in Wheat, Barley and Oats. Male was diagnosed in 2011. Are there any swinging coeliacs out there?"
So are you the gluten free Lattimers of the tv advert then |
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I am a self diagnosed gluten intolerant and it was amazing the difference it made cutting out gluten. Feel so much better for it. Had blood test for coeliac but came back negative but it doesn't doesn't register intolerance. Anyone want more into pm me. |
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"I am a self diagnosed gluten intolerant and it was amazing the difference it made cutting out gluten. Feel so much better for it. Had blood test for coeliac but came back negative but it doesn't doesn't register intolerance. Anyone want more into pm me. "
Exactly the same here! Still working out what does / doesn't affect me. |
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Once you know you have to change your diet it gets progressively easier. Most of the major supermarkets are now selling a half decent range of GF products. I still struggle to find good bread. Does anyone have a good recipe that I can use in my breadmaker? |
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The missus is and the boy has an even more restricted diet. He cant have milk, oat, barley, egg, wheat, soya. Thank goodness for chip peas in a tin. The water can be whisked up into a egg replacement we used for his birthday  |
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By (user no longer on site)
over a year ago
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I have dodgey guts most of the time. Think mine is white bread definatly and probably more.
Nightmare when going out and have to drive back home each time.
had it since a kid but not done anything about it |
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By (user no longer on site)
over a year ago
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Two of my children have coeliac disease and the whole family have been tested. They get staple foods on prescription and the rest of us pretty much follow a gluten free diet too - and are so much healthier for it.
It's estimated that 1 in 100 people have coeliac disease, yet only 1 in 10 are diagnosed, so it's becoming more common as people are getting tested.
I think it's great that Tesco has publicised it's GF range at Christmas...it's the hardest time to cater for coeliacs  |
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Hi Yes all of my family got tested too, but I am the only one with a problem. ASDA has got a good GF range this christmas, most of their own brand sausages are also GF but you do need to look for the GF logo in the front. Hope this helps. |
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By (user no longer on site)
over a year ago
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"Now that has got to be a nightmare! I wish you well  "
Thanks...my youngest was diagnosed 7 years ago so I'm a dab hand at it now - lots of home baking is the way forward! x |
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"Once you know you have to change your diet it gets progressively easier. Most of the major supermarkets are now selling a half decent range of GF products. I still struggle to find good bread. Does anyone have a good recipe that I can use in my breadmaker?"
Try Bakels bread mix, had fairly good results so far from the breadmaker |
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By (user no longer on site)
over a year ago
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I had initial tests and was told my IG reading were abnormal and showed possible allergies to wheat, peanuts and soya. My blood tests came back negative for Coeliacs though. |
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Meeeeee!
It's not an intolerance, it's an auto-immune disease. The presence of gluten makes your immune system attack your digestive system.
Gluten is found naturally in wheat, barley & rye. Oats don't contain it but are generally contaminated by it. |
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I explained gluten intolerance to a GP I consulted once who told me I was a 'delusional hypochondriac'
I now see doctors in Belgium, who are far more sensible (& knowledgeable) about it.
Our grains in the UK are grown in such a way that some people's bodies just can't process them. If I only eat organically grown whole foods I can manage my health, if not, I may as well just lie in bed 
Some beers & largers will also have a gluten content…I think Budweiser is brewed with rice though |
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By (user no longer on site)
over a year ago
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Im not but my child is so decided to make our home totally coeliac friendly ,rather than split the kitchen n have separate toasters etc so at home im GF. |
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By (user no longer on site)
over a year ago
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My ex wife is a coeliac and when we would go out, the responses we would get from restaurants, cafe's was in some ways dam right rude. One that sticks in my mind was we were told "it won't kill you." "Yes it fucking will," I'm a chef & will try my dam best to cook for a customers a gluten free diet so they too can enjoy their lunch/dinner, just like the rest of us non coeliacs. |
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By *ikeC81Man
over a year ago
harrow |
A few years back I was unable to eat certain suger free drinks and sweet corn both used to involve multiple hours in the loo
At the moment they appear to be ok I stopped eating them for a while and evrythihg is ok |
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"A few years back I was unable to eat certain suger free drinks and sweet corn both used to involve multiple hours in the loo
At the moment they appear to be ok I stopped eating them for a while and evrythihg is ok "
A lot of sugar free stuff contains xylitol, which if have a decent amount acts as a laxative |
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"I have dodgey guts most of the time. Think mine is white bread definatly and probably more.
Nightmare when going out and have to drive back home each time.
had it since a kid but not done anything about it"
I suggest you get yourself checked out. If you are Coeliac and you continue eating Gluten you will end up with Brittle Bone Disease!
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"Have you signed up to coeliac UK? Get a full guide into what you can eat and what you can buy on supermarket.
Student dietitian by trade"
Thanks mail. Yes I have been signed onto Coeliac UK since 2012. This is a great source of info and membership is very cheap |
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"My ex wife is a coeliac and when we would go out, the responses we would get from restaurants, cafe's was in some ways dam right rude. One that sticks in my mind was we were told "it won't kill you." "Yes it fucking will," I'm a chef & will try my dam best to cook for a customers a gluten free diet so they too can enjoy their lunch/dinner, just like the rest of us non coeliacs."
Good for you, I like your style |
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By (user no longer on site)
over a year ago
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"You know that you don't actually have to eat any carbs, don't you?
I've been inadvertently GF for nine years by not eating any processed food or carbs. It's easy and much healthier."
That's actually a really ignorant statement to make to people suffering from coeliac disease - and yes I do mean suffering!
You won't have been 'inadvertently' totally gluten free just by cutting out carbs and processed food (unless you've been checking every product you buy, which I doubt), but any you may have eaten will have had no effect on you...to a coeliac a miniscule amount of a gluten-containing food can lead to crippling stomach pains, extreme sickness and diarrhoea, and even hospitalisation.
It's not easy, it's more expensive and it takes constant vigilance and care - but it is manageable and thankfully there's a lot of support for coeliacs now plus a wide range of products in supermarkets.
It's not a choice or fad like your diet but a critical and essential life change. Try engaging your brain and doing some basic research before you comment next time eh?  |
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"You know that you don't actually have to eat any carbs, don't you?
I've been inadvertently GF for nine years by not eating any processed food or carbs. It's easy and much healthier.
That's actually a really ignorant statement to make to people suffering from coeliac disease - and yes I do mean suffering!
You won't have been 'inadvertently' totally gluten free just by cutting out carbs and processed food (unless you've been checking every product you buy, which I doubt), but any you may have eaten will have had no effect on you...to a coeliac a miniscule amount of a gluten-containing food can lead to crippling stomach pains, extreme sickness and diarrhoea, and even hospitalisation.
It's not easy, it's more expensive and it takes constant vigilance and care - but it is manageable and thankfully there's a lot of support for coeliacs now plus a wide range of products in supermarkets.
It's not a choice or fad like your diet but a critical and essential life change. Try engaging your brain and doing some basic research before you comment next time eh? "
I didn't say I wasn't, did I? You're also assuming that none of my family or friends have it.
My diet is a critical life change too. If I ate yours, I would die a long, lingering, rotting death.
My point is if you base your diet on protein, vegetables, fruit, nuts, seeds, dairy and good fat, you wouldn't need to check labels for overpriced food that nobody needs to eat.
If you desire something sweet or want to replace bread with something else, it's great that there are substitutes but you don't need them.
In the early days of my life change, I also searched frantically for substitute foods but I soon dropped them when I realised it was pointless. |
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"I have dodgey guts most of the time. Think mine is white bread definatly and probably more.
Nightmare when going out and have to drive back home each time.
had it since a kid but not done anything about it"
Oh my  - if you have it that badly you really need to see your doctor for tests and start taking action - it is actually dangerous to your health to leave it untreated if it is full blown celiac disease. Mrs x |
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A lot of scientists are now saying that for those of us that are gluten intolerant (not actual coeliac), the problem is possibly glysophate being sprayed on the fields as a drying agent (!!! ) and the residue that is then present in our bread. Mr and I switched to buying organic bread (when we occasionally want bread, and Waitrose sells a gorgeous organic loaf for only £1.59 as does Sainsburys) We don't feel too bad when we eat it. We also switched to kamut or spelt pasta from Italy (where they have banned glysophate) with equally good results. So those may be something for the intolerant to try if you aren't getting any joy out of the GF breads.
www.thehealthyhomeeconomist.com/real-reason-for-toxic-wheat-its-not-gluten/ |
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Diagnosed as Coeliac 18 years ago, it's not fun, cheap or pleasant and despite being ultra careful and reading all labels for ingredients I still get an upset stomach from time to time.
Dining out is a freakin nightmare as it reduces the cultural options and menu to the basics of meat, fish and vegetables if you're playing it safe as I do. Generally, despite the new laws regarding labeling items/dishes as GF or not, most establishments are ignorant, lazy or simply don't care, to the detriment of sufferers. I hope things change soon and food manufacturers manage to keep the parts per million as low as possible.
p.s. Bella-Donna... I think I love you but I also respect Topsy Rogers reply as you're both obviously highly intelligent and well informed women. |
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By (user no longer on site)
over a year ago
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Mother of 2 coeliacs here & owner of a gluten free home baking business
Even if you test negative please ask for a retest. You will need to add gluten back in to your diet for at least 6 weeks prior to the test. ONLY a biopsy will confirm coeliac disease. If diagnosed you can then have certain staples on prescription. There is an awesome company that bake awesome bread (so the kids tell me) also the best donughts they have ever tasted. Please feel free to message me for the name (can't put it on here) Also, join some gluten free pages on the popular social media sites. They regularly post about places to eat out & there is a page dedicated to gluten free fish & chip shops nationwide. My kids had their first ever fish & chips by the sea last summer |
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By (user no longer on site)
over a year ago
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"You know that you don't actually have to eat any carbs, don't you?
I've been inadvertently GF for nine years by not eating any processed food or carbs. It's easy and much healthier.
That's actually a really ignorant statement to make to people suffering from coeliac disease - and yes I do mean suffering!
You won't have been 'inadvertently' totally gluten free just by cutting out carbs and processed food (unless you've been checking every product you buy, which I doubt), but any you may have eaten will have had no effect on you...to a coeliac a miniscule amount of a gluten-containing food can lead to crippling stomach pains, extreme sickness and diarrhoea, and even hospitalisation.
It's not easy, it's more expensive and it takes constant vigilance and care - but it is manageable and thankfully there's a lot of support for coeliacs now plus a wide range of products in supermarkets.
It's not a choice or fad like your diet but a critical and essential life change. Try engaging your brain and doing some basic research before you comment next time eh? "
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Interesting bcos my GP argued with me about all of this…to the point that he called me a 'delusional hypochondriac'.
I now treat all GPs with the contempt that anyone who went to medical school but failed to manage to specialise in something deserves!
Immune function is split into separate functions of identifying a foreign body & then responding accordingly with histamine or white blood cells. My GPs cannot explain how this works bcos they didn't do this at medical school!?!
Anyway, I make my own bread with Spelt flour. The complex functioning of my immune system has been wonderful for my health & wellbeing bcos I cook almost everything entirely from scratch & grow my own organic veg. I don't have to watch my weight now & cooking & baking are part of my everyday routine & I can make super quality food for next to nothing & never crave junk food |
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By (user no longer on site)
over a year ago
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"I get bread etc. on prescription. The best is definitely Genius I think.
Asda were better at GF foods way before Tesco and their own brand range is relatively well priced."
I enjoy the genius crumpets |
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By (user no longer on site)
over a year ago
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"No its not catching! just an intolerance to Gluten mainly found in Wheat, Barley and Oats. Male was diagnosed in 2011. Are there any swinging coeliacs out there?"
Yes common in my family |
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By (user no longer on site)
over a year ago
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"Interesting bcos my GP argued with me about all of this…to the point that he called me a 'delusional hypochondriac'.
I now treat all GPs with the contempt that anyone who went to medical school but failed to manage to specialise in something deserves!
Immune function is split into separate functions of identifying a foreign body & then responding accordingly with histamine or white blood cells. My GPs cannot explain how this works bcos they didn't do this at medical school!?!
Anyway, I make my own bread with Spelt flour. The complex functioning of my immune system has been wonderful for my health & wellbeing bcos I cook almost everything entirely from scratch & grow my own organic veg. I don't have to watch my weight now & cooking & baking are part of my everyday routine & I can make super quality food for next to nothing & never crave junk food "
Not all gp's are the same I have had many good ones |
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I was (pink) diagnosed last year after really being very ill ... Taken me a long time to get my head around it ... All the foods I love out the window and so damn hard when you go to a party with food there X |
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By *umpkinMan
over a year ago
near the sounds of the wimborne quarter jack! |
"I have dodgey guts most of the time. Think mine is white bread definatly and probably more.
Nightmare when going out and have to drive back home each time.
had it since a kid but not done anything about it"
I`m not celiac but even so I eat very little bread. Find it bloats me up but then I do have a hiatus hernia. |
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By (user no longer on site)
over a year ago
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Get a second opinion. I w a s diagnosed as having this. It was wrong I had a problem following along dose of antibiotics, cleared up. Still get the odd problem. Sorts itself with high fibre, real ale and yoghurt. I do hope that you get better and safe journey xxxx |
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By *3xymamaWoman
over a year ago
Uptown Top Ranking |
"Mother of 2 coeliacs here & owner of a gluten free home baking business
Even if you test negative please ask for a retest. You will need to add gluten back in to your diet for at least 6 weeks prior to the test. ONLY a biopsy will confirm coeliac disease. If diagnosed you can then have certain staples on prescription. There is an awesome company that bake awesome bread (so the kids tell me) also the best donughts they have ever tasted. Please feel free to message me for the name (can't put it on here) Also, join some gluten free pages on the popular social media sites. They regularly post about places to eat out & there is a page dedicated to gluten free fish & chip shops nationwide. My kids had their first ever fish & chips by the sea last summer "
Thank you for your post. Reintroducing gluten into your diet is exactly what we advise our patients prior to having a gastrostomy and a duodenal biopsy to determine coeliac disease. Once there is a positive result patients are then contacted by a dietician and food stuff can be obtained by prescription |
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"Interesting bcos my GP argued with me about all of this…to the point that he called me a 'delusional hypochondriac'.
I now treat all GPs with the contempt that anyone who went to medical school but failed to manage to specialise in something deserves!
Immune function is split into separate functions of identifying a foreign body & then responding accordingly with histamine or white blood cells. My GPs cannot explain how this works bcos they didn't do this at medical school!?!
Anyway, I make my own bread with Spelt flour. The complex functioning of my immune system has been wonderful for my health & wellbeing bcos I cook almost everything entirely from scratch & grow my own organic veg. I don't have to watch my weight now & cooking & baking are part of my everyday routine & I can make super quality food for next to nothing & never crave junk food
Not all gp's are the same I have had many good ones"
Not in my lifetime!!! |
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By (user no longer on site)
over a year ago
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The gf is lacto and gluten intolerant. I follow the same diet just cause its good for you. She cant even handle gluten free stuff any more. We eat a lot of meat veg and fruit. |
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I (Ang) diagnosed 2 years ago, followed a strict gf diet for a year, felt amazing so started dipping back to real food again
and managed to gain some much needed weight
Now paying the price as my system is all over the place
Anyway strictly going back to gf but if any of you have advice on how not to lose weight I would be most grateful |
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By (user no longer on site)
over a year ago
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"I (Ang) diagnosed 2 years ago, followed a strict gf diet for a year, felt amazing so started dipping back to real food again
and managed to gain some much needed weight
Now paying the price as my system is all over the place
Anyway strictly going back to gf but if any of you have advice on how not to lose weight I would be most grateful"
Hi Ang
Sorry no actual advice on how not to lose weight, but are you registered with Coeliac UK? They offer great advice. I am sure somewhere on their website there will be an article on your plight.
Please don't dip out again from your diet, not a nag, just concerned as it will cause you huge problems in the future. |
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By (user no longer on site)
over a year ago
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"No its not catching! just an intolerance to Gluten mainly found in Wheat, Barley and Oats. Male was diagnosed in 2011. Are there any swinging coeliacs out there?
It's actually an auto immune disease, not an just an intolerance to gluten
Yes common in my family"
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Thank you Star, lesson already learnt--- the hard way unfortunately.
I looked at joining celiac UK when I was first diagnosed but I was so overwhelmed by all the ' you can't have' food and found that what I could have tasted like cardboard that I have just muddled through and lapsed into a false sense of security when I felt well again. Will have another look at them--- now that I'm a bit older and wiser lol x |
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By *T_LEECouple (MM)
over a year ago
near you |
It was a massive life changer but once you get the hang of it it's not to bad. The good thing is its made me more aware of what I eat.
If it's processed leave it out. I do miss a pint of beer but cider has become a worthy substitute. 2 years on after years of mis diagnosis and feeling great.
Legislation also means most restaurants have a good understanding and if they don't or I doubt there knowledge I go somewhere else.
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By *pertureTV/TS
over a year ago
New Ferry, wirral in stockings and sussies |
Been living with this for about 6 years now, went on the gluten free diet for 5 years and honestly most of the food tasted like cardboard or had the texture of it, put myself on a keto diet nine months back and loving life again. |
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"Been living with this for about 6 years now, went on the gluten free diet for 5 years and honestly most of the food tasted like cardboard or had the texture of it, put myself on a keto diet nine months back and loving life again."
did you go gluten free through choice or was it from a medical diagnosis? It was quite difficult at first but it’s easy when I’m at home because everything in my kitchen is gluten free ... I find it really difficult if I go a away for a few days I usually end up living on snacks or starving because I’m scared to eat out
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By *pertureTV/TS
over a year ago
New Ferry, wirral in stockings and sussies |
"Been living with this for about 6 years now, went on the gluten free diet for 5 years and honestly most of the food tasted like cardboard or had the texture of it, put myself on a keto diet nine months back and loving life again. did you go gluten free through choice or was it from a medical diagnosis? It was quite difficult at first but it’s easy when I’m at home because everything in my kitchen is gluten free ... I find it really difficult if I go a away for a few days I usually end up living on snacks or starving because I’m scared to eat out"
from medical reasons, literaly a bread crumb that found its way into my food would leave me in agony for days.
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By (user no longer on site)
over a year ago
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"Been living with this for about 6 years now, went on the gluten free diet for 5 years and honestly most of the food tasted like cardboard or had the texture of it, put myself on a keto diet nine months back and loving life again."
The Keto wins again!
Not heard one bad thing about it amongst people I know.
Are there any drawbacks for you? |
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One thing to remember if anyone is getting tested is you have to eat a normal diet containing gluten for 2 weeks prior to the test.
If you avoid gluten before the test it will always show negative. |
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By (user no longer on site)
over a year ago
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Jeni is coeliac, and to be honest if you read all the labels and make a lot of the stuff yourself its all good!!
Only really misses good bread and pizza!!!! |
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By (user no longer on site)
over a year ago
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"No its not catching! just an intolerance to Gluten mainly found in Wheat, Barley and Oats. Male was diagnosed in 2011. Are there any swinging coeliacs out there?"
Hi, my son has Coeliacs and I relearned cooking to insure he does not feel left out at dinner time (GF replacements for various ingredients etc.). I have yet to master a ‘light’ cake mixture, but he loves his pasta.
As an aside, Oats do not contain gluten, but you have to be aware of cross contamination in their production etc. |
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"No its not catching! just an intolerance to Gluten mainly found in Wheat, Barley and Oats. Male was diagnosed in 2011. Are there any swinging coeliacs out there?"
male half was diagnosed 11 years ago bit of a pain but life choices have to be made and live with it  |
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"My man has celiac x found it hard at first x he loves bread x the only one he likes is the tiger loaf from a well known Baker beginning with W and ends with Burton lol xxx"
. I actually get warburtons bread and bread rolls on prescription it’s sliced bread it’s not as nice as the tiger bread but it’s eatable
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"I actually get warburtons bread and bread rolls on prescription it’s sliced bread it’s not as nice as the tiger bread but it’s eatable "
I used to till Covid and nothing was available. Then when it did arrive is was already stale |
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"I actually get warburtons bread and bread rolls on prescription it’s sliced bread it’s not as nice as the tiger bread but it’s eatable
I used to till Covid and nothing was available. Then when it did arrive is was already stale "
I’m allowed 8 loaves a month plus bread rolls I freeze it which isn’t ideal I use it mainly to toast |
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By *pertureTV/TS
over a year ago
New Ferry, wirral in stockings and sussies |
"I have coeliac. No kissing me if you've just eaten gluten or d*unk beer/lager. Pain in the ass. I so miss getting noodles from the Chinese as a treat!"
you can get rice noodles |
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By (user no longer on site)
over a year ago
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"One thing to remember if anyone is getting tested is you have to eat a normal diet containing gluten for 2 weeks prior to the test.
If you avoid gluten before the test it will always show negative. "
It's actually 6-12 weeks as per Coeliacs UK. I was once told 2 weeks by my GP, but that info is just flatout wrong and the test will still show negative if you've been eating a GF diet and return to eating gluten for only 2 weeks. The only thing you'll succeed in by following that advice is making yourself ill for several weeks. |
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"I have coeliac. No kissing me if you've just eaten gluten or d*unk beer/lager. Pain in the ass. I so miss getting noodles from the Chinese as a treat!
you can get rice noodles"
I know, but the kitchen in a takeaway place is cross-contamination Hell. Not worth it unless they're coeliac uk accredited. It's the normal noodles I miss anyway.
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By *hropsDuoCouple
over a year ago
Shropshire |
"Coeliac swinger here! If you ever did find a good bread recipe please do let me know, as I still haven’t found anything half decent
The new tesco gluten free posh looking loaf isn't half bad. "
Their own brand Tiger bread do you mean? I buy that most of the time. The nearest thing to normal bread I've found. Expensive though for so few slices, but worth it. |
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"I’m allowed 8 loaves a month plus bread rolls I freeze it which isn’t ideal I use it mainly to toast
Me too, perhaps I better check whether the supply chain is fixed "
i think different health authorities have different rules |
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